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Immunodeficiencies and defective immune system
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Jak2/tet2 mutation
Hello this is Ben from VA! I was diagnosed with MPN last year and use Besremi every 2 weeks. I have jak2/tet2 mutations which makes me feel confused and scared since the majority of PVs only have jak2(or other so-called driver mutations). I read a lot online and it seems tet2 is not the worst thing
Hello this is Ben from VA! I was diagnosed with MPN last year and use Besremi every 2 weeks. I have jak2/tet2 mutations which makes me feel confused and scared since the majority of PVs only have jak2(or other so-called driver mutations). I read a lot online and it seems tet2 is not the worst thing
Ben2022
in
MPN Voice
9 months ago
PSA Ultrasensitive 0.015 six months after prostatectomy
3 month PSA was <0.1, but that was not ultra sensitive. How worried should I be? Next steps? Urologist wants to see what the 9-month PSA test looks like, and to get a second Decipher genetic test. (I had one prior to surgery.) Pathology from surgery showed margins were positive, but Gleason score
3 month PSA was <0.1, but that was not ultra sensitive. How worried should I be? Next steps? Urologist wants to see what the 9-month PSA test looks like, and to get a second Decipher genetic test. (I had one prior to surgery.) Pathology from surgery showed margins were positive, but Gleason score
SmasherOfAjumma
in
Prostate Cancer Network
9 months ago
Advise on these pictures please?
Hi everyone. I’m 25 years old and was a heavy drinker from 2018 - February this year. I’ve quite drinking vodka and other alcohol completely since then. Due to the alcohol my stools haven’t really been normal for years and I don’t particularly have a great diet either. At the moment I’m drinking too
Hi everyone. I’m 25 years old and was a heavy drinker from 2018 - February this year. I’ve quite drinking vodka and other alcohol completely since then. Due to the alcohol my stools haven’t really been normal for years and I don’t particularly have a great diet either. At the moment I’m drinking too
DontTrustGoogle
in
Colon Cancer Connected
8 months ago
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Me with a urological oncologist yesterday. He asked questions and when I told him that. My mother had breast cancer at 36 he said that he wanted germline testing and Decipher done on biopsy cores before moving further. In his opinion is BRCA is present, removal is the only option. Otherwise radiation
Me with a urological oncologist yesterday. He asked questions and when I told him that. My mother had breast cancer at 36 he said that he wanted germline testing and Decipher done on biopsy cores before moving further. In his opinion is BRCA is present, removal is the only option. Otherwise radiation
Chasbearcat999
in
Prostate Cancer Network
10 months ago
Depersonalization and Derealization
anyone else? how do you cope? it’s very new to me and I don’t like it!
anyone else? how do you cope? it’s very new to me and I don’t like it!
Kimbad1990
in
Anxiety Support
6 months ago
Buscapan
Any one on colesevelam and buscapan does the buscapan work i have ibs and bam sick of the stomach pains everyday before and after opening my bowels , and another thing i am frm uk and going to spain for a well deserved holiday next sunday for 2 weeks getting anxious incase the difference off foods makes
Any one on colesevelam and buscapan does the buscapan work i have ibs and bam sick of the stomach pains everyday before and after opening my bowels , and another thing i am frm uk and going to spain for a well deserved holiday next sunday for 2 weeks getting anxious incase the difference off foods makes
Netbet22
in
IBS Network
8 months ago
Parathyroid identification by autofluorescence – preliminary report on five cases of surgery for primary hyperparathyroidism
Sounds a pretty good idea! [i] Case report[/i] [i] Open Access[/i] [i] Published: 28 August 2019[/i] [i]
Parathyroid identification by autofluorescence – preliminary report on five cases of surgery for primary hyperparathyroidism
[/i] [i]Abstract[/i] [i]Background[/i] [i]Intra-operative
Sounds a pretty good idea! [i] Case report[/i] [i] Open Access[/i] [i] Published: 28 August 2019[/i] [i]
Parathyroid identification by autofluorescence – preliminary report on five cases of surgery for primary hyperparathyroidism
[/i] [i]Abstract[/i] [i]Background[/i] [i]Intra-operative
helvella
Thyroid UK
in
Thyroid UK
10 months ago
Breast pain on prednisolone
This might be a bit of a strange one, but have you experienced twinges in the breast on pred? I get these quite sharp twinges every now and again and I wondered if it might be the pred? A very quick google suggests it might be. I mentioned it to the radiographer last week when I had a routine mammogram
This might be a bit of a strange one, but have you experienced twinges in the breast on pred? I get these quite sharp twinges every now and again and I wondered if it might be the pred? A very quick google suggests it might be. I mentioned it to the radiographer last week when I had a routine mammogram
Gimme
in
PMRGCAuk
10 months ago
Abdominal Pain/Discomfort Bloating, Ribbon poop.
So after 5 nights of drinking (I know, a bit much. Me and my wife were like “whoa we’ve been drinking alot in a row! we need to cool it..” Well it was just lined up events of birthdays and friends engagements which had us drinking like sailors. Anyway on the fifth day I had trouble with my bowels fully
So after 5 nights of drinking (I know, a bit much. Me and my wife were like “whoa we’ve been drinking alot in a row! we need to cool it..” Well it was just lined up events of birthdays and friends engagements which had us drinking like sailors. Anyway on the fifth day I had trouble with my bowels fully
AnxiousDude10
in
Colon Cancer Connected
8 months ago
Immunotherapies for MBC?
When I search for “immunotherapy” on this site I mostly see posts related to other types of cancers, but not MBC. I believe there are a few immunotherapies approved for MBC and there are several in clinical trials, but unless I’m missing it they don’t seem to get much discussion on this board. Immunotherapies
When I search for “immunotherapy” on this site I mostly see posts related to other types of cancers, but not MBC. I believe there are a few immunotherapies approved for MBC and there are several in clinical trials, but unless I’m missing it they don’t seem to get much discussion on this board. Immunotherapies
Half-Full
in
SHARE Metastatic Breast Cancer
10 months ago
Final diagnosis uncertain - either cured or stage 4
Hello all, I hope you are as well as you can be. I am wondering if anyone has ever been in my situation. This is quite long - sorry. I have metastatic breast cancer in my bones (9 years) which have been stable for quite a few years. Routine CT picked up lung nodule - PET confirmed most likely lung
Hello all, I hope you are as well as you can be. I am wondering if anyone has ever been in my situation. This is quite long - sorry. I have metastatic breast cancer in my bones (9 years) which have been stable for quite a few years. Routine CT picked up lung nodule - PET confirmed most likely lung
Surfinsafari
in
The Roy Castle Lung Cancer Foundation
10 months ago
All clear now for two years
Just sending a positive story. Diagnosed 2b HG clear cell, endometrioid 2020. Big op, chemo, diagnosed my own recurrence after 6 months. Another op, then RT. 2021. Last couple of scans have been clear. They are still going to check me every 6 months. I am taking alternative supplements and vitamins
Just sending a positive story. Diagnosed 2b HG clear cell, endometrioid 2020. Big op, chemo, diagnosed my own recurrence after 6 months. Another op, then RT. 2021. Last couple of scans have been clear. They are still going to check me every 6 months. I am taking alternative supplements and vitamins
candyapplegrey
in
My Ovacome
8 months ago
Laxido - diarrhoea
hi there, I was suffering with constipation so my doctor prescribed Laxido. The label from the pharmacy said take one twice a day generally but if constipated you can take 6 in 1 hour. I took 5 in 1 hour last Saturday. Since then, I have loose stools/diarrhoea. I have bloating and cramps also. I thought
hi there, I was suffering with constipation so my doctor prescribed Laxido. The label from the pharmacy said take one twice a day generally but if constipated you can take 6 in 1 hour. I took 5 in 1 hour last Saturday. Since then, I have loose stools/diarrhoea. I have bloating and cramps also. I thought
LMEB_92
in
IBS Network
8 months ago
Post Colonoscopy Bowel Movement
Hi All Just had a colonoscopy as part of long ongoing investigations into my IBS-C and recent ongoing difficult bowel movements. I'm 74 yrs old with digestive problems since 22 yrs old. Lots of scans do not show any problems and the colonoscopy only revealed 2 polyps 6mm in size , removed for the normal
Hi All Just had a colonoscopy as part of long ongoing investigations into my IBS-C and recent ongoing difficult bowel movements. I'm 74 yrs old with digestive problems since 22 yrs old. Lots of scans do not show any problems and the colonoscopy only revealed 2 polyps 6mm in size , removed for the normal
guitarman49
in
IBS Network
8 months ago
Clonazepam, Oxy, Perampanel...oh my!
I've been to see Prof Walker who has prescribed me Clonazepam, if that doesn't work he wants me to try Targinact (Oxy) or Perampanel. I'd love to hear back from y'all with your experiences with these medications (positive or negative). [u]
Perampanel:
[/u] Think this is taken just before bed
I've been to see Prof Walker who has prescribed me Clonazepam, if that doesn't work he wants me to try Targinact (Oxy) or Perampanel. I'd love to hear back from y'all with your experiences with these medications (positive or negative). [u]
Perampanel:
[/u] Think this is taken just before bed
HappyGreenBean
in
Restless Legs Syndrome
8 months ago
Eustachian tube dysfunction is it possible this is connected to b12 deficiency?
My partner has has b12 deficiency symptoms for years, only recently diagnosed. He gets a fullness in his ears, he cant pop them even with all methods ENT teach you. I was just wondering if anyone else had had these problems. Initially we thought his off balance feeling when walking was caused by this
My partner has has b12 deficiency symptoms for years, only recently diagnosed. He gets a fullness in his ears, he cant pop them even with all methods ENT teach you. I was just wondering if anyone else had had these problems. Initially we thought his off balance feeling when walking was caused by this
Nic878
in
Pernicious Anaemia Society
8 months ago
Help with iron results - follow up from 3 arrows nutra
Hi everyone, I did an iron panel and I’m quite amazed with my ferritin level. I have been lax with my iron supps since going to T3 only and thought I would definitely have ranked my previously low results. To my disbelief, my ferritin is the highest I’ve ever seen it! I was previously taking the 3 arrows
Hi everyone, I did an iron panel and I’m quite amazed with my ferritin level. I have been lax with my iron supps since going to T3 only and thought I would definitely have ranked my previously low results. To my disbelief, my ferritin is the highest I’ve ever seen it! I was previously taking the 3 arrows
Beau55
in
Thyroid UK
8 months ago
Moviprep & panicking
So I finally got my date today for colonoscopy this coming Wednesday. I thought they’d give me Citrafleet for the prep as my dad had one last week and that’s what he got but for some reason they gave me MoviPrep and I’m freaking out a little (a lot). I’ve read so much about this prep and it really
So I finally got my date today for colonoscopy this coming Wednesday. I thought they’d give me Citrafleet for the prep as my dad had one last week and that’s what he got but for some reason they gave me MoviPrep and I’m freaking out a little (a lot). I’ve read so much about this prep and it really
Chaucer89
in
IBS Network
6 months ago
Foot/mouth hand or something else??
Does anyone know what this is. It started with red burning spots then turned into patches. Then I had chicken like pox all over my body and face. Hands rashes are similar to feet. But my thumbs are going white too and thin skin. Anyone know what's happening. I'm very stressed. Doctors are not helping
Does anyone know what this is. It started with red burning spots then turned into patches. Then I had chicken like pox all over my body and face. Hands rashes are similar to feet. But my thumbs are going white too and thin skin. Anyone know what's happening. I'm very stressed. Doctors are not helping
Shine54
in
LUPUS UK
6 months ago
Trying To Hold Onto Hope
Hi all, I last wrote on here back in the fall because my dad was deteriorating quickly after ending 2nd round of chemo and his PSA went to the 300s (see my bio for his medical history). He was a candidate for Pluvicto, and was also put on Zytgea and a steroid before starting treatment which helped
Hi all, I last wrote on here back in the fall because my dad was deteriorating quickly after ending 2nd round of chemo and his PSA went to the 300s (see my bio for his medical history). He was a candidate for Pluvicto, and was also put on Zytgea and a steroid before starting treatment which helped
Sunnyday1122
in
Advanced Prostate Cancer
10 months ago
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