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Mycosis Fungoides
Hi. I haven’t posted in a while but wanted anyone’s opinion on being tested for mycosis Fungoides and if anyone had CLL plus this disease. It’s a cutaneous T cell lymphoma. I’ve had a rash that was there two years ago and and it goes away and comes back in different areas. No scaling, itchiness
Hi. I haven’t posted in a while but wanted anyone’s opinion on being tested for mycosis Fungoides and if anyone had CLL plus this disease. It’s a cutaneous T cell lymphoma. I’ve had a rash that was there two years ago and and it goes away and comes back in different areas. No scaling, itchiness
Madison1995
in
CLL Support
4 years ago
Fist Pump - The little successes!
I could probably post all the time, because you all understand the journey. I try not to over post here, but I wanted to share this with you all. I have a private Facebook group page for my Mom's family & friends, so I can keep everyone updated on her health, and ultimately educate them (or try) on
I could probably post all the time, because you all understand the journey. I try not to over post here, but I wanted to share this with you all. I have a private Facebook group page for my Mom's family & friends, so I can keep everyone updated on her health, and ultimately educate them (or try) on
bazooka111
in
PSP Association
4 years ago
Central serous chorioretinopathy and PDT
Hi, I have had CSCR episodes in my left eye for a number of years now. They seem to resolve but keep returning,, at least once a year. I had a flare up a few weeks ago and my consultant has suggested Photodynamic Therapy for this Friday. I agreed but now I worry it may end up doing more bad than good
Hi, I have had CSCR episodes in my left eye for a number of years now. They seem to resolve but keep returning,, at least once a year. I had a flare up a few weeks ago and my consultant has suggested Photodynamic Therapy for this Friday. I agreed but now I worry it may end up doing more bad than good
barbiedog
in
Macular Society
4 years ago
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New diagnosis
I was wondering if anyone has heard of blepharitis? I was surprised when I was diagnosed with it. I have never had flaky eye lashes or signs of it. It’s inflammation in the oil glands near the eye lashes. I’m so tired of hear that darn word. “Inflammation”. I have a flare and I’m trying to figure how
I was wondering if anyone has heard of blepharitis? I was surprised when I was diagnosed with it. I have never had flaky eye lashes or signs of it. It’s inflammation in the oil glands near the eye lashes. I’m so tired of hear that darn word. “Inflammation”. I have a flare and I’m trying to figure how
Jennyhadenough
in
PBC Foundation
4 years ago
PV and Teaching Amidst Covid
Hi All. I am age 54, have PV and also rheumatoid arthritis that may or may not be related to my MPN. I was being treated with Pegasys, and my blood levels were very well controlled. In the last few months though, inflammation led to a diagnosis of rheumatoid arthritis, which then led to may oncologist
Hi All. I am age 54, have PV and also rheumatoid arthritis that may or may not be related to my MPN. I was being treated with Pegasys, and my blood levels were very well controlled. In the last few months though, inflammation led to a diagnosis of rheumatoid arthritis, which then led to may oncologist
clevemic
in
MPN Voice
4 years ago
Pineapple and floaters
Has anyone heard of a recent study in Taiwan looking at the effects on floaters of eating pineapple? I have always had floaters, which got worse after a bout of posterior vitreous detachment and are very annoying even if not dangerous as is my AMD (under control with AREDS2 for the dry eye and injections
Has anyone heard of a recent study in Taiwan looking at the effects on floaters of eating pineapple? I have always had floaters, which got worse after a bout of posterior vitreous detachment and are very annoying even if not dangerous as is my AMD (under control with AREDS2 for the dry eye and injections
ElviraKate
in
Macular Society
4 years ago
Edoxaban and surgery - update
Just thought I would update you all, on the issue I had last week concerning stopping taking edoxaban before a minor operation, as I had a blood clot before being prescribed any anti-coag's 7 years ago, and being"more than your average anxious type" person!! I ended up having a telephone discussion about
Just thought I would update you all, on the issue I had last week concerning stopping taking edoxaban before a minor operation, as I had a blood clot before being prescribed any anti-coag's 7 years ago, and being"more than your average anxious type" person!! I ended up having a telephone discussion about
Wightbaby
in
AF Association
4 years ago
Rheumatology telephone appointment
Haven’t written on here for a while but do pop in and read what’s happening. Had my second rheumatology appointment yesterday over the phone. He said he had come out of retirement to help out for now during lockdown. He went through ‘my story’. He questioned whether the pains I have in the bottom
Haven’t written on here for a while but do pop in and read what’s happening. Had my second rheumatology appointment yesterday over the phone. He said he had come out of retirement to help out for now during lockdown. He went through ‘my story’. He questioned whether the pains I have in the bottom
Spittal9
in
PMRGCAuk
4 years ago
EMDR
Has anyone tried EMDR?
Has anyone tried EMDR?
bulldog71
in
My OCD Community
4 years ago
Colistimethate powder for use in a nebuliser
Good afternoon all, on a daily basis I take the above powdered antibiotic (Promixin) through my nebuliser with a saline solution to help with my psudamonas bugs. The other day I noticed I had ran out of saline so I had to used one of my salbutamol solutions to mix it. Will this have been ok? Has anyone
Good afternoon all, on a daily basis I take the above powdered antibiotic (Promixin) through my nebuliser with a saline solution to help with my psudamonas bugs. The other day I noticed I had ran out of saline so I had to used one of my salbutamol solutions to mix it. Will this have been ok? Has anyone
Joseph260268
in
Lung Conditions Community Forum
4 years ago
Wrinkly fingers and pitting edema on fingers.
Wrinkly fingers and pitting edema on fingers. Is this caused by Hashimotos or maybe a sign of undermedicated?
Wrinkly fingers and pitting edema on fingers. Is this caused by Hashimotos or maybe a sign of undermedicated?
Nessynu
in
Thyroid UK
4 years ago
I ALREADY HAVE RHEUMATOID ARTHRITIS. BUT I ALSO MIGHT BE A FUTURE SJOGREN’S SYNDROME SUFFERER. ANYONE OUT THERE WITH THE SAME THINGS?
Hi. As i’ve already said. I’ve been on this forum a few times. Not on a regular basis though. So maybe i repeat myself bit. (Sorry!) I’ve just turned 49. (I had a publess birthday last week). I’ve had rheumatoid arthritis & Iritis since i was 21. Glaucoma came on about 9 yrs ago. I’ve had some awful
Hi. As i’ve already said. I’ve been on this forum a few times. Not on a regular basis though. So maybe i repeat myself bit. (Sorry!) I’ve just turned 49. (I had a publess birthday last week). I’ve had rheumatoid arthritis & Iritis since i was 21. Glaucoma came on about 9 yrs ago. I’ve had some awful
Vixen2
in
NRAS
4 years ago
Twitching of legs
Hi All I have been suffering of permanent AF for long time,controlled (not well) with Bisoprolol, Apixaban and Telmisartan and Statins. Recently I noted frequent twitching of my legs. Can it be connected with AF or the medicines or not? Anyone have experienced that? Many thanks.
Hi All I have been suffering of permanent AF for long time,controlled (not well) with Bisoprolol, Apixaban and Telmisartan and Statins. Recently I noted frequent twitching of my legs. Can it be connected with AF or the medicines or not? Anyone have experienced that? Many thanks.
TO383Y
in
AF Association
4 years ago
Next: FET (bit concerned re medication thyroid/estrogen)
Hi. First of all it was a horrendous few months waiting for the clinics to open. Mental health was really lowest i ever felt in my life.. I got the go to do my FET (only one frostie left) in July. I hope all the other NHS clinics follow xx All prayers and tips welcome re FET i know there were loads
Hi. First of all it was a horrendous few months waiting for the clinics to open. Mental health was really lowest i ever felt in my life.. I got the go to do my FET (only one frostie left) in July. I hope all the other NHS clinics follow xx All prayers and tips welcome re FET i know there were loads
Hidden
in
Fertility Network UK
4 years ago
New shoes 😁👟👟
Ok so not been on here last week was so busy with my last assignment and finishing uni that i didnt have time for anything, but think my legs were probably grateful for the extra week off to be fair! Finally got my gait analysis done and told i have a really good gait so at least i know it not how i
Ok so not been on here last week was so busy with my last assignment and finishing uni that i didnt have time for anything, but think my legs were probably grateful for the extra week off to be fair! Finally got my gait analysis done and told i have a really good gait so at least i know it not how i
Shar71
Graduate
in
Couch to 5K
4 years ago
Eye swelling
Hi Hope everyone is okay . Haven’t been on much due to constant worry and feeling scared . Still have no rheumatologist appointment and probably won’t now until next year . I was just wondering, does anyone get a swollen eyelid ? Mines is always the left one ? It doesn’t hurt and no other symptoms just
Hi Hope everyone is okay . Haven’t been on much due to constant worry and feeling scared . Still have no rheumatologist appointment and probably won’t now until next year . I was just wondering, does anyone get a swollen eyelid ? Mines is always the left one ? It doesn’t hurt and no other symptoms just
Natz36
in
LUPUS UK
4 years ago
Glaucoma surgery / laser treatment
Dear all, As a follow-up of my last post. https://healthunlocked.com/iga-uk/posts/143621317/surgery-option-trabectome-vs-trabeculectomy I visited my ophthalmologist on yesterday to discuss the surgery option. 1. Trabeculectomy: the gold standard, traditional surgey, which he thinks can offer the
Dear all, As a follow-up of my last post. https://healthunlocked.com/iga-uk/posts/143621317/surgery-option-trabectome-vs-trabeculectomy I visited my ophthalmologist on yesterday to discuss the surgery option. 1. Trabeculectomy: the gold standard, traditional surgey, which he thinks can offer the
lswk
in
Glaucoma UK
4 years ago
Long list of strange eye issues...thyroid connection?
I have hyper nodule confirmed by uptake scan and TSI negative (no other antibodies tested recently) but I have developed an number of different eye issues. ⚫️ Ingrowing lash! Causing irritation when too long. Very fine, so difficult to remove but I have managed to do it a few times. ⚫️Very small
I have hyper nodule confirmed by uptake scan and TSI negative (no other antibodies tested recently) but I have developed an number of different eye issues. ⚫️ Ingrowing lash! Causing irritation when too long. Very fine, so difficult to remove but I have managed to do it a few times. ⚫️Very small
PurpleNails
Administrator
in
Thyroid UK
4 years ago
Vision loss following eyelea injection
Cloudy vision and deterioration following eyelea injection Has anyone experienced worse vision after eylea injection? My mum has had injection for several years now but different doc did the injection and it just didn't seem the same?
Cloudy vision and deterioration following eyelea injection Has anyone experienced worse vision after eylea injection? My mum has had injection for several years now but different doc did the injection and it just didn't seem the same?
Rogerl07
in
Macular Society
4 years ago
Need HELP : Epithelial Basement Membrane Dystrophy after Infection
As mentioned in a topic, a goof friend of mine diagnosed with EBMD (epithelial basement membrane distrophy) after konjuctivitis almost lost his vision on one eye (0.15). EBMD and dry eye were treated with conservative methods, nothing could help. Now, PTK (laser) was recommended to remove defective parts
As mentioned in a topic, a goof friend of mine diagnosed with EBMD (epithelial basement membrane distrophy) after konjuctivitis almost lost his vision on one eye (0.15). EBMD and dry eye were treated with conservative methods, nothing could help. Now, PTK (laser) was recommended to remove defective parts
BasarDeBersaq
in
Macular Society
4 years ago
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