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Sadly Not Just Thyroid Patients
I've been following the infected blood scandal with interest, basically thousands of patients in the 70's, 80's and early 90's were given blood transfusions/ products that were cheaply imported, often from USA, and not screened for Hep C. This was to save the NHS money. Unfortunately many people became
I've been following the infected blood scandal with interest, basically thousands of patients in the 70's, 80's and early 90's were given blood transfusions/ products that were cheaply imported, often from USA, and not screened for Hep C. This was to save the NHS money. Unfortunately many people became
Sparklingsunshine
in
Thyroid UK
1 day ago
Latest Study Re Long Covid
Given the recent posts about the the next Covid vaccination boosters, I thought people might find thi interesting. BBC News - Long Covid: MRI scans reveal new clues to symptoms https://www.bbc.co.uk/news/health-66890505
Given the recent posts about the the next Covid vaccination boosters, I thought people might find thi interesting. BBC News - Long Covid: MRI scans reveal new clues to symptoms https://www.bbc.co.uk/news/health-66890505
Bcol
in
PMRGCAuk
8 months ago
Warts and all
I consider myself fortunate, now in year 12 on BTK inhibitors with low, but adequate blood counts and a reasonably good quality of life that includes travel and a range of physical activities like biking and kayaking. This after Fludarabine/Cytoxan/Rituximab x 5 with only a brief response. Starting
I consider myself fortunate, now in year 12 on BTK inhibitors with low, but adequate blood counts and a reasonably good quality of life that includes travel and a range of physical activities like biking and kayaking. This after Fludarabine/Cytoxan/Rituximab x 5 with only a brief response. Starting
Bluesinthenight
in
CLL Support
6 days ago
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Mildly Burning After Withdrawing From Neupro
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
RiversW
in
Restless Legs Syndrome
13 days ago
Dizzy
Good morning to you all.I've been diagnosed with fibomyaigia in 2020 But I am getting real dizzy it's lasted for a couple of weeks now at first I got up at night and couldn't walk at all in a straight line everything was spinning so scary. The doctor said I have Benign paroxysmal positional vertigo
Good morning to you all.I've been diagnosed with fibomyaigia in 2020 But I am getting real dizzy it's lasted for a couple of weeks now at first I got up at night and couldn't walk at all in a straight line everything was spinning so scary. The doctor said I have Benign paroxysmal positional vertigo
Chellelo
in
Fibromyalgia Action UK
6 months ago
Buprenorphine transition from patch to tablets
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
RiversW
in
Restless Legs Syndrome
15 days ago
Bechets support pip
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Tibz
in
Behçet's UK
17 days ago
anyone have achy legs
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
Corolla1
in
Restless Legs Syndrome
4 months ago
Buprenorphine patch and swimming
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
RiversW
in
Restless Legs Syndrome
23 days ago
Steroid injection in shoulder joint
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
Cutes
in
NRAS
4 months ago
Covid & Flu Vaccinations
Can anyone please tell me if you have had both the flu and Covid vaccinations at the same time please. If you have did you suffer any worse side effects from having them at the same time? I have both booked at my GP's but am not happy to have both together as I think this is a first time it has happened
Can anyone please tell me if you have had both the flu and Covid vaccinations at the same time please. If you have did you suffer any worse side effects from having them at the same time? I have both booked at my GP's but am not happy to have both together as I think this is a first time it has happened
Bailybiscuit
in
NRAS
8 months ago
evening update
I don’t have head lice or covid! My nurse checked my head and I took a covid test this morning. I am congested but I think it’s just allergies. I’m a little nervous though bc my temp has been around 99 all day today. Usually I run a little cooler. Today felt much better than the past few days, so I hope
I don’t have head lice or covid! My nurse checked my head and I took a covid test this morning. I am congested but I think it’s just allergies. I’m a little nervous though bc my temp has been around 99 all day today. Usually I run a little cooler. Today felt much better than the past few days, so I hope
Daisy425
in
Anxiety and Depression Support
8 months ago
scabies won´t go away, help
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Massio
in
BASHH
27 days ago
covid
has anyone had covid recently and what were your symptoms, did it affect your AFIB at all, I am interested to know what other people’s experience have been.
has anyone had covid recently and what were your symptoms, did it affect your AFIB at all, I am interested to know what other people’s experience have been.
Electricblue1
in
AF Association
8 months ago
anxious
I woke up feeling somewhat less anxious this morning, which is great. However, my head started really itching so now I have to go to the school nurse to check to see if it’s head lice. My boyfriend also texted me saying he’s stuffy and his throat hurts a little. I really don’t want him to have covid.
I woke up feeling somewhat less anxious this morning, which is great. However, my head started really itching so now I have to go to the school nurse to check to see if it’s head lice. My boyfriend also texted me saying he’s stuffy and his throat hurts a little. I really don’t want him to have covid.
Daisy425
in
Anxiety and Depression Support
8 months ago
Recurrent meningitis
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
SunflowerGirl
in
Meningitis Now
3 months ago
Sciatica
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Stormtrooper4
in
Pain Concern
4 months ago
Buprenorphine
Hello, have many UK people found it easy or hard to get Buprenorphine px by GP to control pain from RLS? I have been withdrawing from Pramepexole and using only codeine however it is now not effective in controlling my pain. I have a GP appointment in a few days and was going to ask for Buprenorphine
Hello, have many UK people found it easy or hard to get Buprenorphine px by GP to control pain from RLS? I have been withdrawing from Pramepexole and using only codeine however it is now not effective in controlling my pain. I have a GP appointment in a few days and was going to ask for Buprenorphine
Cookiebum24
in
Restless Legs Syndrome
1 month ago
Post Covid for a Cllier
Came down with Covid 7 days ago - like a horrid bout of flu. Managed to get anti virals sent by the hospital on the second day at 10pm- great service Chelsea and Westminster hospital. Now tested negative yesterday but still got heavy cold and sore throat and feel weak. When will it go away??
Came down with Covid 7 days ago - like a horrid bout of flu. Managed to get anti virals sent by the hospital on the second day at 10pm- great service Chelsea and Westminster hospital. Now tested negative yesterday but still got heavy cold and sore throat and feel weak. When will it go away??
Nucleusman
in
CLL Support
5 months ago
dipyridamole
I’m going to try this next week when I get an Rx. Looking for any pointers from anyone who has had success with it. I gather that 225mg is a common dose for RLS (three 75mg pills). I intend to start with one pill and titrate up to three quickly if there are no issues. I’m currently using buprenorphine
I’m going to try this next week when I get an Rx. Looking for any pointers from anyone who has had success with it. I gather that 225mg is a common dose for RLS (three 75mg pills). I intend to start with one pill and titrate up to three quickly if there are no issues. I’m currently using buprenorphine
707twitcher
in
Restless Legs Syndrome
1 month ago
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