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immunosuppression, Covid, and back to office policies
Is there anyone else whose reasonable accommodation request to telecommute full time due to immunosuppression during Covid was completely disregarded and treated with disdain? I am pursuing legal action and looking for others who have experienced similar discrimination
Is there anyone else whose reasonable accommodation request to telecommute full time due to immunosuppression during Covid was completely disregarded and treated with disdain? I am pursuing legal action and looking for others who have experienced similar discrimination
MsAmyM
in
Kidney Disease
9 months ago
Colds and flu…🧐🥹?
”Why don’t lupus patients catch cold? Many, many patients comment on this observation – that during cold and flu epidemics they seem to be the only family member not affected…?”
Professor Graham Hughes, [the London Lupus Centre] 2008
Just wondering about this observation but I personally have
”Why don’t lupus patients catch cold? Many, many patients comment on this observation – that during cold and flu epidemics they seem to be the only family member not affected…?”
Professor Graham Hughes, [the London Lupus Centre] 2008
Just wondering about this observation but I personally have
Suvi8901
in
LUPUS UK
5 months ago
COVID and prednisone
Hi everyone, There's a summer COVID surge happening here in the US. I'm just wondering if there is anything I should know about COVID and pred. If I get COVID, does that affect how much pred I should take? If I am in a flare (I am actually in a mild flare right now) and I get COVID, then what do I
Hi everyone, There's a summer COVID surge happening here in the US. I'm just wondering if there is anything I should know about COVID and pred. If I get COVID, does that affect how much pred I should take? If I am in a flare (I am actually in a mild flare right now) and I get COVID, then what do I
sferios
in
PMRGCAuk
9 months ago
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Best Arthur description I’ve read!
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Llanberisman
in
NRAS
9 months ago
First time Ruxolitinib and what to make note of, from Vietnam - a case of interest/study
I am writing on behalf of my mother who was diagnosed with PV back in 2002. The symptoms started with her in 2001 but it took over 1 year for my mother to get to the right hospital, a specialized Hematologic hospital of the Ho Chi Minh City and she was put on HU since then, until recently, as a BMB showed
I am writing on behalf of my mother who was diagnosed with PV back in 2002. The symptoms started with her in 2001 but it took over 1 year for my mother to get to the right hospital, a specialized Hematologic hospital of the Ho Chi Minh City and she was put on HU since then, until recently, as a BMB showed
Cranston3x
in
MPN Voice
9 months ago
Garlic and Autoimmune
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
Thick_Blood
in
Hughes Syndrome APS Forum
8 months ago
myocarditis
I have long covid and for months I’ve suffered debilitating symptoms of arhythmia and breathlessness and exhaustion on exercise Finally after an MRI scan of heart I have been told I have myocarditis. Does anyone have experience of this being caused by covid? I don’t know how it can be treated but am
I have long covid and for months I’ve suffered debilitating symptoms of arhythmia and breathlessness and exhaustion on exercise Finally after an MRI scan of heart I have been told I have myocarditis. Does anyone have experience of this being caused by covid? I don’t know how it can be treated but am
Midnight2022
in
British Heart Foundation
9 months ago
well another drug fail.
Rituximab after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks. Given a steroid injection and will see me in 2 months
Rituximab after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks. Given a steroid injection and will see me in 2 months
J1707-
in
NRAS
6 months ago
Joint Steroid Injection
Hi,Im due to have a Steroid Injection in my knee to hopefully relieve the symptoms of Osteoarthritis. Which is very painful most of the time, and can be very debilitating. Just Wondering if anyone has had this done and knows how long it lasts before wearing off? Do they work? Are they worth having done
Hi,Im due to have a Steroid Injection in my knee to hopefully relieve the symptoms of Osteoarthritis. Which is very painful most of the time, and can be very debilitating. Just Wondering if anyone has had this done and knows how long it lasts before wearing off? Do they work? Are they worth having done
Tina1591
in
NRAS
6 months ago
Covid Recovery - Exhausted
Hi, I tested positive for Covid on July 15. Symptoms were mild at first, felt more like allergies. On July 15 I lost my sense of taste and smell, then the tightest in my chest and exhaustion hit. I took Paxlovid and have had a round of antibiotics and steroids to get rid of this virus, but it’s
Hi, I tested positive for Covid on July 15. Symptoms were mild at first, felt more like allergies. On July 15 I lost my sense of taste and smell, then the tightest in my chest and exhaustion hit. I took Paxlovid and have had a round of antibiotics and steroids to get rid of this virus, but it’s
Utballa
in
AF Association
9 months ago
does half a mg make so much difference
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. I’ve arranged a further blood test next week and was advised to stay with
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. I’ve arranged a further blood test next week and was advised to stay with
Rosina1871
in
PMRGCAuk
9 months ago
Chronic endometritis
Hey lovely ladies! My question today related to endometritis/chronic uterine inflammation. I have done 4 hysteroscopies so far (two in 2021, one in 2022, one in 2023), each time the inflamed endometrium came out, with a "strawberry" appearance. After the tests, I came out positive for Ureaplasma (at
Hey lovely ladies! My question today related to endometritis/chronic uterine inflammation. I have done 4 hysteroscopies so far (two in 2021, one in 2022, one in 2023), each time the inflamed endometrium came out, with a "strawberry" appearance. After the tests, I came out positive for Ureaplasma (at
Anita85
in
Endometriosis UK
8 months ago
What preparation for my first FET and I have Lupus?
Hello ladies, I have been diagnosed with Lupus in Feb 2020 and I haven’t been well since I had the Pfizer booster injection Dec 2021 which caused tightness in my chest, feeling lightheaded and palpitations. 5 months later being triple vaccinated and I had Covid last year and it has triggered some
Hello ladies, I have been diagnosed with Lupus in Feb 2020 and I haven’t been well since I had the Pfizer booster injection Dec 2021 which caused tightness in my chest, feeling lightheaded and palpitations. 5 months later being triple vaccinated and I had Covid last year and it has triggered some
Sunflowers_2020
in
Fertility, Miscarriage & IVF Support
9 months ago
Covid-19 Vaccination?
This may provoke a tirade from people who feel very strongly one way or another, but I felt it was worth flagging up - please try to be polite! There has been previous discussion on here about whether to go for further booster vaccinations against Covid-19 now it is no longer ‘NEWS’ . Currently [i]most
This may provoke a tirade from people who feel very strongly one way or another, but I felt it was worth flagging up - please try to be polite! There has been previous discussion on here about whether to go for further booster vaccinations against Covid-19 now it is no longer ‘NEWS’ . Currently [i]most
oldtimer2
in
NRAS
9 months ago
Be Careful
Morning everyone, hope you are all well. I have pernicious anaemia and through the years have managed with self injections, resting, eating as well as I could (within reason), watching my weight and exercising as well as I can. In general I thought I was doing not too badly at all. Albeit tingling,
Morning everyone, hope you are all well. I have pernicious anaemia and through the years have managed with self injections, resting, eating as well as I could (within reason), watching my weight and exercising as well as I can. In general I thought I was doing not too badly at all. Albeit tingling,
Miss-guineapig
in
Pernicious Anaemia Society
9 months ago
Anyone had hand therapy for Chronic repetitive strain injury of the wrists?
My question is has anyone ever had hand therapy for chronic tendonitis or like a chronic repetitive strain injury in your wrist? And if so did it help with the pain? This is the only thing that I've not tried besides obviously I've not tried surgery and I asked my orthopedic hand dr about it and he doesn't
My question is has anyone ever had hand therapy for chronic tendonitis or like a chronic repetitive strain injury in your wrist? And if so did it help with the pain? This is the only thing that I've not tried besides obviously I've not tried surgery and I asked my orthopedic hand dr about it and he doesn't
Hidden
in
Pain Concern
6 months ago
My dad graduated from ICU today! Severe Pneumonia
Hello, Everyone: I have posted here about my dad who is in his late 70s. At the end of August, he was admitted to the hospital to remove a small benign cyst from his throat and two days after the surgery, he choked on water and yogurt that were served and developed aspirational pneumonia. Since it
Hello, Everyone: I have posted here about my dad who is in his late 70s. At the end of August, he was admitted to the hospital to remove a small benign cyst from his throat and two days after the surgery, he choked on water and yogurt that were served and developed aspirational pneumonia. Since it
ForMyPapa
in
Lung Conditions Community Forum
5 months ago
🟨 Making Yellow Card Reports 🟨
🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨 In the UK, the
Medicines and Healthcare products Regulatory Agency (MHRA)
operates the Yellow Card scheme for reporting issues with medicines. They have slightly different approaches to: 🟡 Side Effects 🟡 Defective medicines 🟡 Counterfeit or
🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨🟨 In the UK, the
Medicines and Healthcare products Regulatory Agency (MHRA)
operates the Yellow Card scheme for reporting issues with medicines. They have slightly different approaches to: 🟡 Side Effects 🟡 Defective medicines 🟡 Counterfeit or
helvella
Thyroid UK
in
Thyroid UK
9 months ago
Beta Alanine: STOPS or STARTS itch?
Considering trying Beta Alanine to stop my PV itch, but every time I Google what makes it STOP itch (i.e., how does it work?), all I come up with are articles that say it STARTS itch! Did anyone w/ PV, AP, etc. have their itch actually intensify by taking BA? Also curious if anyone happens to know
Considering trying Beta Alanine to stop my PV itch, but every time I Google what makes it STOP itch (i.e., how does it work?), all I come up with are articles that say it STARTS itch! Did anyone w/ PV, AP, etc. have their itch actually intensify by taking BA? Also curious if anyone happens to know
TwinMom88
in
MPN Voice
8 months ago
covid
I wonder if anyone can help me out on this So I have Cirrhosis and Iam on holiday been feeling rubbish with high temperatures Just done a covid test and it’s positive The temperature is bad at 39 .3 would you advise taking paracetamol 4 hourly ? many thanks
I wonder if anyone can help me out on this So I have Cirrhosis and Iam on holiday been feeling rubbish with high temperatures Just done a covid test and it’s positive The temperature is bad at 39 .3 would you advise taking paracetamol 4 hourly ? many thanks
Liver007123
in
British Liver Trust
9 months ago
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