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Giant axonal neuropathy
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Bowels misbehaving!
sorry for the delicate nature of this post! I finished chemo 5 weeks ago, all through cycle 5 & 6 I had diarrhoea and unfortunately it has continued. My recent scan was clear so my hospital are not overly concerned, they were pleased that Imodium works very well, but I can't take it for ever! can I?
sorry for the delicate nature of this post! I finished chemo 5 weeks ago, all through cycle 5 & 6 I had diarrhoea and unfortunately it has continued. My recent scan was clear so my hospital are not overly concerned, they were pleased that Imodium works very well, but I can't take it for ever! can I?
Hidden
in
My Ovacome
5 years ago
Correction
First constipation, then urge to poop and nothing but bright red blood. Dr said chronic constipation, prescribed Miramax and benefiber. Two months later , the urge to go often and only bloody mucus . Anyone experienced this before?
First constipation, then urge to poop and nothing but bright red blood. Dr said chronic constipation, prescribed Miramax and benefiber. Two months later , the urge to go often and only bloody mucus . Anyone experienced this before?
tford
in
Healthy Eating
5 years ago
Diagnosis chronic constipation
First consolation then the urge to poop but nothing but bright red blood. Now urge to poop and nothing but bloody mucus. Taking a stool softener and benefited not helping
First consolation then the urge to poop but nothing but bright red blood. Now urge to poop and nothing but bloody mucus. Taking a stool softener and benefited not helping
tford
in
Healthy Eating
5 years ago
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CBD with antidepressants and painkillers?
I am taking Venlalic XL 150 mg and Pregablin 150 mg for Fibromyalgia and am keen to understand the risks if any from also using CBD oil for the pain. Anyone have any info or experience, I would be grateful. The CBD oil is 2.75% recommended by a friend who does not take any antidepressants or painkillers
I am taking Venlalic XL 150 mg and Pregablin 150 mg for Fibromyalgia and am keen to understand the risks if any from also using CBD oil for the pain. Anyone have any info or experience, I would be grateful. The CBD oil is 2.75% recommended by a friend who does not take any antidepressants or painkillers
Monkey233
in
Pain Concern
5 years ago
Does exercise make your tingling/numbness worse?
When I walk or run, both of my feet and right leg up to mid-thigh tingle and feel “crawly” and occasionally my hands tingle, too. Within 5 minutes of stopping, it goes away. It’s not to where I can’t exercise, but it does feel strange the entire time. I’m on weekly b12 injections and the strange sensations
When I walk or run, both of my feet and right leg up to mid-thigh tingle and feel “crawly” and occasionally my hands tingle, too. Within 5 minutes of stopping, it goes away. It’s not to where I can’t exercise, but it does feel strange the entire time. I’m on weekly b12 injections and the strange sensations
Ashley820
in
Pernicious Anaemia Society
5 years ago
Preventing peripheral neuropathy during Taxotere treatment.
A question: I will be starting Taxotere soon. Has anyone used the cold gloves and footwear to avoid issues with peripheral neuropathy, and how successful were they in avoiding this side effect? Thanks in advance for your response.
A question: I will be starting Taxotere soon. Has anyone used the cold gloves and footwear to avoid issues with peripheral neuropathy, and how successful were they in avoiding this side effect? Thanks in advance for your response.
jholmq
in
Advanced Prostate Cancer
5 years ago
Recent bloods show elevated creatine. Systemic sclerosis and secondary Raynauds sufferer.
Hi all I suffer with Systemic sclerosis and secondary Raynauds with GI issues including dyspagia, GORD and Oesophagitis. I’ve recently had bloods taken and they found I have elevated creatine, could this be linked to the disease? Can the test be a one off elevation? Feeling concerned. Any information
Hi all I suffer with Systemic sclerosis and secondary Raynauds with GI issues including dyspagia, GORD and Oesophagitis. I’ve recently had bloods taken and they found I have elevated creatine, could this be linked to the disease? Can the test be a one off elevation? Feeling concerned. Any information
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Muscle cramps
Does anyone get muscle cramps in their calf muscles and feet. I have a peripheral neuropathy from my b12 deficiency. The peripheral neuropathy is receding but still get muscle cramps. It has been 6 months since I started treatment. I started with injections and now I switched over to oral b12 1000. Feeling
Does anyone get muscle cramps in their calf muscles and feet. I have a peripheral neuropathy from my b12 deficiency. The peripheral neuropathy is receding but still get muscle cramps. It has been 6 months since I started treatment. I started with injections and now I switched over to oral b12 1000. Feeling
Coonass1
in
Pernicious Anaemia Society
5 years ago
Is creatine a bad idea?
Hi is it dodgy if I take creatine? I'm early stage one CLL. I've gone on a vegan low-carb diet and my numbers go down each month with it but I've lost some weight. I wonder if taking creatine to boost my muscles is a bad idea. Thank you!
Hi is it dodgy if I take creatine? I'm early stage one CLL. I've gone on a vegan low-carb diet and my numbers go down each month with it but I've lost some weight. I wonder if taking creatine to boost my muscles is a bad idea. Thank you!
Research123
in
CLL Support
5 years ago
Anyone use rFSH/puregon for IVF?
I’m 43.5 years old going for my last IVF cycle. We had a failed cycle despite having over 20 follicles and 3 good blasts due to empty follicle syndrom. My dr wants to switch me to puregon instead of gonal f. The gonal f worked to stimulate me but he wants to try something else. Apparently the dose is
I’m 43.5 years old going for my last IVF cycle. We had a failed cycle despite having over 20 follicles and 3 good blasts due to empty follicle syndrom. My dr wants to switch me to puregon instead of gonal f. The gonal f worked to stimulate me but he wants to try something else. Apparently the dose is
HopeAt43
in
Fertility, Miscarriage & IVF Support
5 years ago
Longtec
Hi just been to the doctors today got these for the pain was talking about oxynorm but doctor said these are better as there slow release.... anyone had experience with these .... at all ...
Hi just been to the doctors today got these for the pain was talking about oxynorm but doctor said these are better as there slow release.... anyone had experience with these .... at all ...
Notawhiff
in
Fibromyalgia Action UK
5 years ago
Temporal Ultrasound May Be Useful in Giant Cell Arteritis Disease Monitoring (in patients paring corticosteroids with tocilizumab)
Thought this was an interesting article... wouldn't it be great if ultrasounds became the standard and most reliable source for monitoring and tracking GCA, in all patients, not just those paring their corticosteroids with tocilizumab. The more tracking/monitoring, the more data... the more data,
Thought this was an interesting article... wouldn't it be great if ultrasounds became the standard and most reliable source for monitoring and tracking GCA, in all patients, not just those paring their corticosteroids with tocilizumab. The more tracking/monitoring, the more data... the more data,
Hidden
in
PMRGCAuk
5 years ago
Right decision ?
Morning ladies from rainy Lincolnshire, I think I've decided not to have my last dose of taxol, ,will have carbo on its own, started back in March with three cycles of both ,the taxol nearly finished me ,excruciating leg and foot pain ,given morphine with little relief , last cycle took two weeks before
Morning ladies from rainy Lincolnshire, I think I've decided not to have my last dose of taxol, ,will have carbo on its own, started back in March with three cycles of both ,the taxol nearly finished me ,excruciating leg and foot pain ,given morphine with little relief , last cycle took two weeks before
fendweller
in
My Ovacome
5 years ago
Aloe Vera
Does anyone take aloe Vera capsules to help with slow track bowel and constipation . I suffer with diverticulitis as well . And was wondering if Aloe Vera would help . I m on constella 290 ,one a day .
Does anyone take aloe Vera capsules to help with slow track bowel and constipation . I suffer with diverticulitis as well . And was wondering if Aloe Vera would help . I m on constella 290 ,one a day .
Readmeastory
in
IBS Network
5 years ago
Fourth cycle starting on the 27th of December
Hello everyone I’m about to start my fourth IVF cycle, my last three were cancelled due to lack of response to stimming medication. I gave lots of follicles unfortunately they just getting stuck at 15mm. Anyway I’ve done 2 cycles of menopur and one of Gonal F so this time we’re doing a combination
Hello everyone I’m about to start my fourth IVF cycle, my last three were cancelled due to lack of response to stimming medication. I gave lots of follicles unfortunately they just getting stuck at 15mm. Anyway I’ve done 2 cycles of menopur and one of Gonal F so this time we’re doing a combination
EmGLA
in
Fertility Network UK
5 years ago
EGPA / Neuropathy?
I have a potential diagnosis of egpa, but only symptom has been lung infiltrates, now on 5mg pred and was doing ok, only suddenly got tingling in hands and feet and a feeling of cramp in my arm muscles - worried this is neuropathy, but could just be side effects steriods - any ideas? Had bloods done
I have a potential diagnosis of egpa, but only symptom has been lung infiltrates, now on 5mg pred and was doing ok, only suddenly got tingling in hands and feet and a feeling of cramp in my arm muscles - worried this is neuropathy, but could just be side effects steriods - any ideas? Had bloods done
Greytippy7
in
Vasculitis UK
5 years ago
Headache and GCA
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
LilyBark
in
PMRGCAuk
5 years ago
Anyone familiar with Eosinophilic Fasciitis?
My dad, who is in his 60s, was diagnosed with Eosinophilic Fasciitis this past June. Apparently this auto immune disease is rare, and they don't know much about it. So far the medication they have tried on my dad has not had any real positive affects. One of which is called prednisone & and another is
My dad, who is in his 60s, was diagnosed with Eosinophilic Fasciitis this past June. Apparently this auto immune disease is rare, and they don't know much about it. So far the medication they have tried on my dad has not had any real positive affects. One of which is called prednisone & and another is
MAP5
in
Pain Concern
5 years ago
Ovary stuck to uterus?
So whilst having an ultrasound, I was told that my left ovary is stuck to my uterus. I’m not surprised as I’ve been getting pains there. However the lady who was scanning me told me this is normal for people with endo and that nothing would be done about it? The pain is getting worse as time goes on
So whilst having an ultrasound, I was told that my left ovary is stuck to my uterus. I’m not surprised as I’ve been getting pains there. However the lady who was scanning me told me this is normal for people with endo and that nothing would be done about it? The pain is getting worse as time goes on
MsP27
in
Endometriosis UK
5 years ago
Hand Exercises [putty, ball, misc]
My Occupational Therapist writes: Exercise putty (Or "Theraputty") is commonly used to strengthen muscles within the hand. ... PlayDough is not the same as exercise putty so I'd recommend ordering some from online. Here's a link to exercise putty online through Amazon. There are four colors, each with
My Occupational Therapist writes: Exercise putty (Or "Theraputty") is commonly used to strengthen muscles within the hand. ... PlayDough is not the same as exercise putty so I'd recommend ordering some from online. Here's a link to exercise putty online through Amazon. There are four colors, each with
Pa-zzi69
in
Cure Parkinson's
5 years ago
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