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Giant axonal neuropathy
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Methotrexate
Thanks for the responses to my previous post. I have now had two doses of Methotrexate. I take it early evening on a Sunday, and in terms of side effects have experienced fatigue and very sore skin for a couple of days. I have blood tests this Monday to check internal responses, hopeful that all wil
Thanks for the responses to my previous post. I have now had two doses of Methotrexate. I take it early evening on a Sunday, and in terms of side effects have experienced fatigue and very sore skin for a couple of days. I have blood tests this Monday to check internal responses, hopeful that all wil
RubyRobs
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Using 7 tesla MRI power for DBS “The first time I ... showed the neurosurgeon the images, it was like turning on a light in a dark room."
They are still making dramatic improvements in DBS. "The problem with this promising therapy ... is that not every patient receives a video-worthy benefit. “There’s a big distribution of the quality of outcomes that patients actually get from DBS—in some cases, it can even cause more side effects than
They are still making dramatic improvements in DBS. "The problem with this promising therapy ... is that not every patient receives a video-worthy benefit. “There’s a big distribution of the quality of outcomes that patients actually get from DBS—in some cases, it can even cause more side effects than
MBAnderson
in
Cure Parkinson's
3 years ago
Big belly
I’m going in for an ablation on July 22 to try to alleviate premature ventricular contractions. My only concern is that I am overweight with most of that weight concentrated in my belly. If everything else is in good order do you think I have a lot to worry about?
I’m going in for an ablation on July 22 to try to alleviate premature ventricular contractions. My only concern is that I am overweight with most of that weight concentrated in my belly. If everything else is in good order do you think I have a lot to worry about?
Modog
in
AF Association
3 years ago
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New to Parkinson's
Was just diagnosed with early stages of PD. Dr prescribed Rasagiline 1mg to start off with, but the cost is terrible ($302.00). Have been looking into DopaBoost type products to save money and be more natural product, anyone have any suggestions? Thanks in advance.
Was just diagnosed with early stages of PD. Dr prescribed Rasagiline 1mg to start off with, but the cost is terrible ($302.00). Have been looking into DopaBoost type products to save money and be more natural product, anyone have any suggestions? Thanks in advance.
SAGoodman
in
Cure Parkinson's
3 years ago
Follicle size day of trigger injection? Accuracy of measurements!
Hi ladies, What size are your follicles on the day of trigger? Does your clinic have a number they look for? I understand they create a “story” based on your hormone blood test results as well as follicle size. Not sure what hormone levels should be do you? Second scan today I have 6 follicles though
Hi ladies, What size are your follicles on the day of trigger? Does your clinic have a number they look for? I understand they create a “story” based on your hormone blood test results as well as follicle size. Not sure what hormone levels should be do you? Second scan today I have 6 follicles though
Latetotheparty38
in
Fertility Network UK
3 years ago
Sensitive to my own fecal matter
It seems that as my fecal matter moves through my large intestine, my intestine and rectum are so inflamed. I suffer from IBS C. I have to use Miralax daily and I am in so much pain as the matter moves thru bowels. I’d rather be constipated but, of course, after a couple of days of That and I am
It seems that as my fecal matter moves through my large intestine, my intestine and rectum are so inflamed. I suffer from IBS C. I have to use Miralax daily and I am in so much pain as the matter moves thru bowels. I’d rather be constipated but, of course, after a couple of days of That and I am
marshamclean
in
IBS Network
3 years ago
Long term tocilizumab use
Hello all - I wonder if anyone has experience of long term tocilizumab use. I have been having injections every 4 weeks. I began weekly and gradually moved to 4 weekly. I have been on TZ for 3 1/2 years now. I am now getting fairly regular relapses - especially after overdoing it. Have felt really
Hello all - I wonder if anyone has experience of long term tocilizumab use. I have been having injections every 4 weeks. I began weekly and gradually moved to 4 weekly. I have been on TZ for 3 1/2 years now. I am now getting fairly regular relapses - especially after overdoing it. Have felt really
christine2715
in
PMRGCAuk
3 years ago
Possible Rheumatoid arthritis
Today I’ve been prescribed a short course of steroids by the GP for possible Rheumatoid arthritis. My hands are really bad today…..lost my sense of touch but have had tingling and swelling in my hands for 3 days now. I also have slightly swollen toes. My glands are up and my throat feels gravelly/ lumpy
Today I’ve been prescribed a short course of steroids by the GP for possible Rheumatoid arthritis. My hands are really bad today…..lost my sense of touch but have had tingling and swelling in my hands for 3 days now. I also have slightly swollen toes. My glands are up and my throat feels gravelly/ lumpy
sunshineisbetter
in
Thyroid UK
3 years ago
2WW, here we go again
This really is the worst part of it right!? Id happily take all the side effects from the stims again over this. Sadly, as expected, our 2nd cycle ended with a BFN. My bleeding started around 7/8 days after transfer and only got heavier. We started cycle 3 straight the way again. I couldnt wait, i
This really is the worst part of it right!? Id happily take all the side effects from the stims again over this. Sadly, as expected, our 2nd cycle ended with a BFN. My bleeding started around 7/8 days after transfer and only got heavier. We started cycle 3 straight the way again. I couldnt wait, i
Hidden
in
Fertility Network UK
3 years ago
Anyone Been Successful On Menopur?
Hi, We've just started our second cycle of ICSI. The first cycle i was on Gonal F 450iu and Buserelin, unfortunately we were only able to get 1 mature egg and 1 immature egg. Neither of which made it passed fertilisation. So either the medication didn't stimulate my follicles or I just have that low
Hi, We've just started our second cycle of ICSI. The first cycle i was on Gonal F 450iu and Buserelin, unfortunately we were only able to get 1 mature egg and 1 immature egg. Neither of which made it passed fertilisation. So either the medication didn't stimulate my follicles or I just have that low
sparkle183
in
Pregnancy and Parenting Support
3 years ago
Anyone Been On Menopur And Cetrotide ICSI IVF?
Hi, We've just started our second cycle of ICSI. The first cycle i was on Buserelin and Gonal F 450iu, unfortunately we were only able to get 1 mature egg and 1 immature egg. Neither of which made it passed fertilisation. So either the medication didn't stimulate my follicles or I just have that low
Hi, We've just started our second cycle of ICSI. The first cycle i was on Buserelin and Gonal F 450iu, unfortunately we were only able to get 1 mature egg and 1 immature egg. Neither of which made it passed fertilisation. So either the medication didn't stimulate my follicles or I just have that low
sparkle183
in
Fertility Network UK
3 years ago
Weening off oxycodone targinact
Iam trying to wean off oxycodone targinact20mg twice a day iam now taking 10 g at night and 5mg in the morning but have awfull withdraw symptons and very depressed as the medi ation was not lasting the 12hrs my rls has come back awful,and having no sleep feeling as if life n ot worth living should
Iam trying to wean off oxycodone targinact20mg twice a day iam now taking 10 g at night and 5mg in the morning but have awfull withdraw symptons and very depressed as the medi ation was not lasting the 12hrs my rls has come back awful,and having no sleep feeling as if life n ot worth living should
Hidden
in
Restless Legs Syndrome
3 years ago
I am Back
After taking a long break for the IVF world i decided to give it another try. Cycle NR 8 here we go!!! I Changed clinic and doctor which feels good he diagnosed me with Adenomyosis and put on 2 months treatment with decapeptyl and Gonal F for the entire stim. I had my retrieval on Monday. out of 10 eggs
After taking a long break for the IVF world i decided to give it another try. Cycle NR 8 here we go!!! I Changed clinic and doctor which feels good he diagnosed me with Adenomyosis and put on 2 months treatment with decapeptyl and Gonal F for the entire stim. I had my retrieval on Monday. out of 10 eggs
Chantysal
in
Fertility Network UK
3 years ago
Hello there! Would appreciate input..Hello there! Would appreciate input..
I'm brand new to this site. Really happy that I stumbled upon it during a search for, "Carpal Tunnel Syndrome relationship to Lupron." Not a lot of into on the subject so far. I was wondering if any of the folks on this site may have encountered this so-called rare side effect? If so, what was done
I'm brand new to this site. Really happy that I stumbled upon it during a search for, "Carpal Tunnel Syndrome relationship to Lupron." Not a lot of into on the subject so far. I was wondering if any of the folks on this site may have encountered this so-called rare side effect? If so, what was done
sorciverde
in
Advanced Prostate Cancer
3 years ago
Scared to start Leflunomide
Is anyone on or taking Leflunomide? My rheumatologist has been advocating for it for over a year and given my Lupus raging worse than ever - it’s out of control- he wants me to go on it. I’m on Stelara but the COVID vaccine rendered it basically useless. And I don’t have another shot for 2 months. So
Is anyone on or taking Leflunomide? My rheumatologist has been advocating for it for over a year and given my Lupus raging worse than ever - it’s out of control- he wants me to go on it. I’m on Stelara but the COVID vaccine rendered it basically useless. And I don’t have another shot for 2 months. So
katidid
in
LUPUS UK
3 years ago
Vagus Nerve Stimulation on Ear with TENS Unit Improves HRV, Sleep, Depression, & More?
I can provide links to studies, but what I'm looking for are any experiences PWP have had with this. https://youtu.be/ZkC9RVFhlX8
I can provide links to studies, but what I'm looking for are any experiences PWP have had with this. https://youtu.be/ZkC9RVFhlX8
JAS9
in
Cure Parkinson's
3 years ago
Ovulation induction drugs
I am starting ovulation induction. 4 previous miscarriages and PCOS (bloods normal diagnosed based on scan and irregular periods) They initially said Menopur but because I got over stimulated this time they said gonal f. Any suggestions/stories on which is better? Thank you all I’m Advance xx
I am starting ovulation induction. 4 previous miscarriages and PCOS (bloods normal diagnosed based on scan and irregular periods) They initially said Menopur but because I got over stimulated this time they said gonal f. Any suggestions/stories on which is better? Thank you all I’m Advance xx
Bump12
in
Fertility Network UK
3 years ago
Sotalol experience
I was prescribed Sotalol 80 mg to take twice a day. Need some advice....whats the best way to take it in the morning...before breakfast or after? I like a cup of decaf coffee in the morning any advice. Still nervous about the whole afib thing. Would appreciate if I hear some individual experiences.
I was prescribed Sotalol 80 mg to take twice a day. Need some advice....whats the best way to take it in the morning...before breakfast or after? I like a cup of decaf coffee in the morning any advice. Still nervous about the whole afib thing. Would appreciate if I hear some individual experiences.
roma60
in
AF Association
3 years ago
Ear neuropathy…?
Hi, everyone — I’ve written here about my experience of peripheral neuropathy in my left big toe as a result of B12 deficiency, which has definitely improved with treatment (although it hasn’t quite vanished). Today, though, presented something completely new and unexpected: a sharp, stabbing pain
Hi, everyone — I’ve written here about my experience of peripheral neuropathy in my left big toe as a result of B12 deficiency, which has definitely improved with treatment (although it hasn’t quite vanished). Today, though, presented something completely new and unexpected: a sharp, stabbing pain
still_elsewhere
in
Pernicious Anaemia Society
3 years ago
Fatigue and very hot flushes
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
AnniesRyder5
in
PMRGCAuk
3 years ago
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