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Giant axonal neuropathy
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RLS
Hello troops The enemy won last night time and time again the left flank was breached It wasn’t until 3.30 to 4am that we could stand down for some R&R Disheartened and exhausted but will live to fight another day Tonight I will bring in troops from the rear guard and right flank ( I have a gel filled
Hello troops The enemy won last night time and time again the left flank was breached It wasn’t until 3.30 to 4am that we could stand down for some R&R Disheartened and exhausted but will live to fight another day Tonight I will bring in troops from the rear guard and right flank ( I have a gel filled
Hoochybaby
in
Restless Legs Syndrome
3 years ago
My doctor is STUPID, STUPID, STUPID !!!
I sent a message to him describing how I had to split the 1500 mg of gabapentin I take at night into 3 doses and said I wanted to SWITCH to pregabalin. I said since they didn't make a 250 mg capsule I needed 2 prescriptions, one for 225 mg and one for 25 mg. He wrote back he was confused. Did I want
I sent a message to him describing how I had to split the 1500 mg of gabapentin I take at night into 3 doses and said I wanted to SWITCH to pregabalin. I said since they didn't make a 250 mg capsule I needed 2 prescriptions, one for 225 mg and one for 25 mg. He wrote back he was confused. Did I want
SueJohnson
in
Restless Legs Syndrome
3 years ago
Failed rectocele/cystocele surgery
Hi had anyone here suffered from failed rectocele/cystocele surgery? I had both repaired in 2018 but feel that I am back to square one, the physio says that I have some nerve damage to the pelvic floor and the exercises aren’t really working. I have a pessary but to it out to clean it and now can’t get
Hi had anyone here suffered from failed rectocele/cystocele surgery? I had both repaired in 2018 but feel that I am back to square one, the physio says that I have some nerve damage to the pelvic floor and the exercises aren’t really working. I have a pessary but to it out to clean it and now can’t get
weegiesmam
in
Pelvic Pain Support Network
3 years ago
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Convergence Insufficiency
I've seen CI mentioned a few times here, sometimes in association with migraine so this might be of interest to some people here: https://pubmed.ncbi.nlm.nih.gov/25313120/ Balance issues also get mentioned here so if you haven't already seen them the Life Rebalanced Chronicles, made for VeDA by an award
I've seen CI mentioned a few times here, sometimes in association with migraine so this might be of interest to some people here: https://pubmed.ncbi.nlm.nih.gov/25313120/ Balance issues also get mentioned here so if you haven't already seen them the Life Rebalanced Chronicles, made for VeDA by an award
210272
in
Functional Neurological Disorder - FND Hope
3 years ago
Ferritin/Folacin confusion
Latest blood test results. Ferritin 155ug//L (Range 13 - 150) Folate 7.4 ug/L (Range over 2.9) I take Folacin 400 ug but is this Folate or Ferritin or neither? Feeling totally dumb so would be grateful for any words of wisdom from the good members here. Thank you.
Latest blood test results. Ferritin 155ug//L (Range 13 - 150) Folate 7.4 ug/L (Range over 2.9) I take Folacin 400 ug but is this Folate or Ferritin or neither? Feeling totally dumb so would be grateful for any words of wisdom from the good members here. Thank you.
Utterlyfedup
in
Thyroid UK
3 years ago
Super cutie pic
Hello everyone I just had to share this super cutie bunny pictured in Richmond Park. I think he is adorable and hope you do too. Do hope your all coping in this heat and sun and keeping safe. Take Extra Care. MistyX P.s. i saw the podiatrist yesterday and he was very helpful. He says these added pain
Hello everyone I just had to share this super cutie bunny pictured in Richmond Park. I think he is adorable and hope you do too. Do hope your all coping in this heat and sun and keeping safe. Take Extra Care. MistyX P.s. i saw the podiatrist yesterday and he was very helpful. He says these added pain
misty14
in
LUPUS UK
3 years ago
How much reduction in absorption of gabapentin is there if one takes more than 600 mg?
I have been taking 1400 mg gabapentin divided into 700 mg at 7:15 and 700 mg at 9:15, going to bed at 10:15. I increased this to 1500 mg on July 5th, with 700 mg at 7:15 and 800 mg at 9:15, but last night had restless legs. I know I should switch to pregabalin but it is expensive. I know that in taking
I have been taking 1400 mg gabapentin divided into 700 mg at 7:15 and 700 mg at 9:15, going to bed at 10:15. I increased this to 1500 mg on July 5th, with 700 mg at 7:15 and 800 mg at 9:15, but last night had restless legs. I know I should switch to pregabalin but it is expensive. I know that in taking
SueJohnson
in
Restless Legs Syndrome
3 years ago
Gene Therapy Success With Ties to Parkinson’s Disease
I posted this as a reply to Bass of Spade's optimistic post regarding gene therapy, but I think it's worthy of being the subject of a separate post. Gene Therapy Offers Long-Awaited Hope for Children with Rare, Incurable Disorder. Patients with Parkinson’s, Alzheimer’s May Benefit from Novel Treatment
I posted this as a reply to Bass of Spade's optimistic post regarding gene therapy, but I think it's worthy of being the subject of a separate post. Gene Therapy Offers Long-Awaited Hope for Children with Rare, Incurable Disorder. Patients with Parkinson’s, Alzheimer’s May Benefit from Novel Treatment
jimcaster
in
Cure Parkinson's
3 years ago
Scared and confused by possible neuropathy
Back in February of this year I slipped on ice and fell off my porch. Shortly after I experienced a radiating pain in my left butt cheek area that comes and goes throughout the day. My neck also hurt after the fall but felt better the day after so I didn't see a doctor about it, My doctor said it sounds
Back in February of this year I slipped on ice and fell off my porch. Shortly after I experienced a radiating pain in my left butt cheek area that comes and goes throughout the day. My neck also hurt after the fall but felt better the day after so I didn't see a doctor about it, My doctor said it sounds
brandon80w
in
Neuropathy Support
3 years ago
Peripheral neuropathy : numbness, tingling, discomfort. What should I do?
My peripheral neuropathy has suddenly increased. I’m trying to not be scared but I am. I’m 46. Since my early 20’s my feet have gone numb on exercise machines. Now I’m waking up with tingling dead feeling limbs. It’s difficult to stand still like at museums for example bc I feel like I will fall
My peripheral neuropathy has suddenly increased. I’m trying to not be scared but I am. I’m 46. Since my early 20’s my feet have gone numb on exercise machines. Now I’m waking up with tingling dead feeling limbs. It’s difficult to stand still like at museums for example bc I feel like I will fall
Hidden
in
Cure Parkinson's
3 years ago
Ivermectin
There’s a lot of talk about Ivermectin on vaccine injury blogs for those who have sustained Neurological damage. One person claimed it stopped their tremors. And then I found this were it mentions Ivermectin possible use for PD. https://pubs.acs.org/doi/10.1021/acsomega.8b01451 Ivermectin could
There’s a lot of talk about Ivermectin on vaccine injury blogs for those who have sustained Neurological damage. One person claimed it stopped their tremors. And then I found this were it mentions Ivermectin possible use for PD. https://pubs.acs.org/doi/10.1021/acsomega.8b01451 Ivermectin could
Cons10s
in
Cure Parkinson's
3 years ago
Finding injections really painful and hard to pierce skin
Hi, I am on day 23 (tonight) of Buserelin and day 5 (tonight) of Menopur and Gonal F. I’m not going to lie I’ve found these stims injections HARD! Whether it’s the effect of moving from 1 to 3 injections a night or they are just taking their toll on me I don’t know, but I feel like I am over injections
Hi, I am on day 23 (tonight) of Buserelin and day 5 (tonight) of Menopur and Gonal F. I’m not going to lie I’ve found these stims injections HARD! Whether it’s the effect of moving from 1 to 3 injections a night or they are just taking their toll on me I don’t know, but I feel like I am over injections
road_to_motherhood
in
Fertility Network UK
3 years ago
Gabapentin becoming less effective
Hi, I’ve been on Gabapentin since my RLS was diagnosed in January, and it has been working very well giving me a decent nights sleep. However, over the last month, it’s been less effective despite the fact that I’ve increased my dosage. I had been taking a few 100mg during the day, and then 400mg before
Hi, I’ve been on Gabapentin since my RLS was diagnosed in January, and it has been working very well giving me a decent nights sleep. However, over the last month, it’s been less effective despite the fact that I’ve increased my dosage. I had been taking a few 100mg during the day, and then 400mg before
Walrob66
in
Restless Legs Syndrome
3 years ago
Lecicarbon A suppositories
I`ve been diagnosed with evacuatory dysfunction and last week saw a colorectal surgeon privately who has referred me for a proctogram but in the meantime suggested I should try Lecicarbon suppositories instead of glycerol. He didn`t give me a prescription but said I can buy them over the counter. Looking
I`ve been diagnosed with evacuatory dysfunction and last week saw a colorectal surgeon privately who has referred me for a proctogram but in the meantime suggested I should try Lecicarbon suppositories instead of glycerol. He didn`t give me a prescription but said I can buy them over the counter. Looking
janke
in
IBS Network
3 years ago
Tocilizumab treatment extension, and latest PET-CT scan results
Three weeks ago, I discovered (via this wonderful group) that the NHS had decided to extend Tocilizumab injections until March 2022 (and indeed, my suppliers, Lloyds’ Homecare, arranged a delivery whilst I was away visiting my mum). 2 days later, my Consultant emailed me to say that she
Three weeks ago, I discovered (via this wonderful group) that the NHS had decided to extend Tocilizumab injections until March 2022 (and indeed, my suppliers, Lloyds’ Homecare, arranged a delivery whilst I was away visiting my mum). 2 days later, my Consultant emailed me to say that she
Suzita76
in
PMRGCAuk
3 years ago
3rd time lucky?
So here we go again after a reasonable first try resulting in a double transfer and no joy and a disastrous second attempt we are having one last go. Clinic have put me on estrogen tablets and changed from bemfola to Gonal F has anyone had both should I be worried about the change of meds my anxiety
So here we go again after a reasonable first try resulting in a double transfer and no joy and a disastrous second attempt we are having one last go. Clinic have put me on estrogen tablets and changed from bemfola to Gonal F has anyone had both should I be worried about the change of meds my anxiety
Guinny01
in
Fertility Network UK
3 years ago
Gonal F combination
Hello, has anyone had success with Gonal F or combination protocol? Xx
Hello, has anyone had success with Gonal F or combination protocol? Xx
Tilly8135
in
Fertility Network UK
3 years ago
Calling UK tocilizumab or epipen users: How do you dispose of your self-injector? Who arranges it?
Someone on the Vasculitis forum is encountering difficulty - is expected to attend the hospital to be handed her self-injection medication because they claim there isn't a protocol for disposing of the needle.
Someone on the Vasculitis forum is encountering difficulty - is expected to attend the hospital to be handed her self-injection medication because they claim there isn't a protocol for disposing of the needle.
PMRpro
Ambassador
in
PMRGCAuk
3 years ago
IVF Injection Leaks
Hi everyone , I am having issues mixing Merional ( Same as Gonal F) 150IU x 2 . I have to take the water first from another mini bottle then put into each 150 Iu but I think I take air in my efforts to take all of it and sometime my injection has pressure it just sprayed the medicine out -few drops.
Hi everyone , I am having issues mixing Merional ( Same as Gonal F) 150IU x 2 . I have to take the water first from another mini bottle then put into each 150 Iu but I think I take air in my efforts to take all of it and sometime my injection has pressure it just sprayed the medicine out -few drops.
babycometrue
in
Fertility Network UK
3 years ago
More on HELP #3 Day in Hospital Possible Giant Cell Arteritis Biopsy Tomorrow. San Antonio Rose
All, More to add- after much discussion with Ophthalmology late yesterday afternoon, it was decided, based on pictures I sent them, that I might have shingles and they will postpone temple biopsy until more is known later,, Now trying to reach PCM and Rheumatologist for guidance on what to do for #
All, More to add- after much discussion with Ophthalmology late yesterday afternoon, it was decided, based on pictures I sent them, that I might have shingles and they will postpone temple biopsy until more is known later,, Now trying to reach PCM and Rheumatologist for guidance on what to do for #
SARose
in
PMRGCAuk
3 years ago
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