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Gaucher disease type 3 (GD3)
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Third Perianal Abscess Drainage
I just had my third Perianal Abscess drained in an operation. I was diagnosed with Crohn's last year. I have fistula's that haven't closed so they put a Seton in during this operation. I'm wondering what suggestions people might have for diet and how to avoid getting another abscess. It's incredibly
I just had my third Perianal Abscess drained in an operation. I was diagnosed with Crohn's last year. I have fistula's that haven't closed so they put a Seton in during this operation. I'm wondering what suggestions people might have for diet and how to avoid getting another abscess. It's incredibly
MrNewfie17
in
Crohn's and Colitis Support
6 months ago
Newbie to this community and wondering about B12 deficiency
Hello, for the past 4 years I've had symptoms of CFS, plus low FT4 and on occasions, low TSH. I've also had my cortisol tested by saliva and short synacthen test, both showed low levels but the adrenals work when stimulated so it's not Addisons. I've tried levothyroxine, T3 and thyroid glandulars and
Hello, for the past 4 years I've had symptoms of CFS, plus low FT4 and on occasions, low TSH. I've also had my cortisol tested by saliva and short synacthen test, both showed low levels but the adrenals work when stimulated so it's not Addisons. I've tried levothyroxine, T3 and thyroid glandulars and
Jamima
in
Pernicious Anaemia Society
6 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
6 months ago
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Autoimmune Chronic Gastiritis
Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone interested… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10934127/
Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone interested… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10934127/
Karenedawson
in
Pernicious Anaemia Society
3 months ago
Lastest results
Hi all, Feeling somewhat relived that my latest medichecks test shows my TSH has increased since Jan (same dose - 75mcg) from 0.9 - 3.38. T3 and T4 remained fairly constant (see attached) For the first time I also got TGA tested and they are high, my TPO antibodies have always been negative. So at least
Hi all, Feeling somewhat relived that my latest medichecks test shows my TSH has increased since Jan (same dose - 75mcg) from 0.9 - 3.38. T3 and T4 remained fairly constant (see attached) For the first time I also got TGA tested and they are high, my TPO antibodies have always been negative. So at least
Dahliasanddaisies
in
Thyroid UK
3 months ago
Women’s Health in RA survey
A Rheumatology Registrar with an interest in women's health has developed a survey as part of their PhD which explores what RA patients want from future research on rheumatoid arthritis in relation to women's health issues such as pregnancy, periods and the menopause. They would love to hear more about
A Rheumatology Registrar with an interest in women's health has developed a survey as part of their PhD which explores what RA patients want from future research on rheumatoid arthritis in relation to women's health issues such as pregnancy, periods and the menopause. They would love to hear more about
SarahW-NRAS
NRAS
in
NRAS
3 months ago
Is there a “recovery sheet” on what to do/not do after a cardioversion.
had first cardioversion in December 2024, which lasted 5 days. Next cardioversion is booked for next Thursday, hospital advice was rest for 24 hours, no alcohol or caffeine, no driving. After 48 hours back to normal. Any suggestions to try and prolong sinus rhythm would be appreciated
had first cardioversion in December 2024, which lasted 5 days. Next cardioversion is booked for next Thursday, hospital advice was rest for 24 hours, no alcohol or caffeine, no driving. After 48 hours back to normal. Any suggestions to try and prolong sinus rhythm would be appreciated
mear1957
in
Atrial Fibrillation Support
53 minutes ago
Ramipril, diarrhoea and pred
After doubling my dose of amlodipine due to my BP still being too high, I suffered from poor sleep quality - my fitbit recorded very little if any, deep sleep. I dropped back to 5mg and immediately my sleep improved. But now they've put me on ramipril 2.5mg to try, in addition to the 5mg amlodipine.
After doubling my dose of amlodipine due to my BP still being too high, I suffered from poor sleep quality - my fitbit recorded very little if any, deep sleep. I dropped back to 5mg and immediately my sleep improved. But now they've put me on ramipril 2.5mg to try, in addition to the 5mg amlodipine.
Broseley
in
PMRGCAuk
3 days ago
seeing neurologist, advice on b12 injections welcomed…
hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last reading was 188 2 weeks ago but imagine it’s greater than 2000 now. My folate was low - 3.5. My Gp has helpfully given me folic acid 5 mg a day
hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last reading was 188 2 weeks ago but imagine it’s greater than 2000 now. My folate was low - 3.5. My Gp has helpfully given me folic acid 5 mg a day
Damacian
in
Pernicious Anaemia Society
3 months ago
biologic medication and possible side effects
Wondering if anyone has had something similar happen. I’ve had severe p since 2020 and PA soon after and started the biologic adalimumab in January 2020 after systemic treatments failed/side effects became to bad. In June this month my adalimumab was swapped as it want working wellto ustekinumab which
Wondering if anyone has had something similar happen. I’ve had severe p since 2020 and PA soon after and started the biologic adalimumab in January 2020 after systemic treatments failed/side effects became to bad. In June this month my adalimumab was swapped as it want working wellto ustekinumab which
katienewland
in
NRAS
4 days ago
Hemodialysis question
I did PD from Feb 2023 to July 2023 when it failed and sent me to hospital. In August they put a chest catheter in and I started hemodialysis. After 3 treatments it cleared up the problems I was having on PD. At first I was doing Tues, Thur, and Sat in center for 3 hours and 15 minutes. My kt/V was
I did PD from Feb 2023 to July 2023 when it failed and sent me to hospital. In August they put a chest catheter in and I started hemodialysis. After 3 treatments it cleared up the problems I was having on PD. At first I was doing Tues, Thur, and Sat in center for 3 hours and 15 minutes. My kt/V was
horsie63
in
Kidney Dialysis
6 months ago
A Fib
I had an ablation done on 12/23, now I have no palpitations, my Dr. says I can go off the Eliquis is there something natural I can take to thin my blood?
I had an ablation done on 12/23, now I have no palpitations, my Dr. says I can go off the Eliquis is there something natural I can take to thin my blood?
Ddserj
in
Atrial Fibrillation Support
4 days ago
Wet AMD and Eliquis
Has anyone with Wet AMD then put on Eliquis for Afib seen an increase in bleeding in the eyes since being on the Eliquis?
Has anyone with Wet AMD then put on Eliquis for Afib seen an increase in bleeding in the eyes since being on the Eliquis?
nyla668
in
Macular Society
5 days ago
Eliquis and Wet AMD
My mom has been getting injections for Wet AMD for 13 years. They have worked well and her vision has been stable. She was diagnosed with Afib in April and put on Eliquis. Since then she has been having more bleeding in her eyes at her eye doctor appointments. It probably didn’t occur to her to mention
My mom has been getting injections for Wet AMD for 13 years. They have worked well and her vision has been stable. She was diagnosed with Afib in April and put on Eliquis. Since then she has been having more bleeding in her eyes at her eye doctor appointments. It probably didn’t occur to her to mention
nyla668
in
Atrial Fibrillation Support
5 days ago
Protein c protein s
Hi I have a question looking back over all my blood tests I've gone back years lol my protein c and s have always been slightly elevated anyone found this?
Hi I have a question looking back over all my blood tests I've gone back years lol my protein c and s have always been slightly elevated anyone found this?
DonnaD123
in
LUPUS UK
6 days ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
6 months ago
What Causes Autoimmune Diseases?
Interesting read...Autoimmune Disease: Why Is My Immune System Attacking Itself?Reviewed By: Ana-Maria Orbai, M.D., M.H.S. Autoimmune disease affects 23.5 million Americans, and nearly 80 percent of those are women. If you’re one of the millions of women affected by this group of diseases, which includes
Interesting read...Autoimmune Disease: Why Is My Immune System Attacking Itself?Reviewed By: Ana-Maria Orbai, M.D., M.H.S. Autoimmune disease affects 23.5 million Americans, and nearly 80 percent of those are women. If you’re one of the millions of women affected by this group of diseases, which includes
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Wednesday's 'Word'
[u][i]
autoimmune -
[/i][/u] This word refers to a disease in which the body's immune (protection or resistance) system attacks healthy cells. Other autoimmune diseases include lupus, rheumatoid arthritis, celiac, sjogrens syndrome, multiple sclerosis, polymyalgia rheumatica, Type 1 diabetes
[u][i]
autoimmune -
[/i][/u] This word refers to a disease in which the body's immune (protection or resistance) system attacks healthy cells. Other autoimmune diseases include lupus, rheumatoid arthritis, celiac, sjogrens syndrome, multiple sclerosis, polymyalgia rheumatica, Type 1 diabetes
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
General Update - I got lost in the site
Sorry everyone, I managed to get totally confused again, and I think I've posted duplicate replies, then lost other replies and now I can't find all the replies that were left for me so I think I've managed to delete them. Trouble is my hands shake so much these days that I keep pressing wrong buttons
Sorry everyone, I managed to get totally confused again, and I think I've posted duplicate replies, then lost other replies and now I can't find all the replies that were left for me so I think I've managed to delete them. Trouble is my hands shake so much these days that I keep pressing wrong buttons
Blondgrassblowing
in
PMRGCAuk
7 days ago
to all our newly diagnosed people
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
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