Experiences with

Gaucher disease type 3 (GD3)

Hello all, I'd like your guidance in my diet concerns. I'm almost months after losing my husband to AML. My concern is that I just have zero motivation to cook or eat anything remotely healthy. Where we used to eat relatively balanced meals, I fall so short in eating anything that resembles a vegetable

I watched an episode last night, part 2 of a series. Using volunteers as case studies/guinea pigs, she (Jessie Inchauspe) extols the 'hacks' she sets out in her books and the science behind it, like having a savoury not sweet breakfast, moving your body after eating, adding fats and protein to

Has anyone seen this study from China? https://www.frontiersin.org/journals/cell-and-developmental-biology/articles/10.3389/fcell.2021.685522/full [i]Findings: We found that metformin indeed had a therapeutic effect on mice with HT mainly by reducing TgAb and lymphocyte infiltration in thyroid tissue

Maybe a silly question but does anyone have a medical alert bracelet indicating they take the steroid prednisolone and that it should not be stopped. I always carry my NHS Steroid Emergency Card in my purse, but if I was in an accident would anyone look for something like that? I also have a 'green

I have been trying to decrease my Statin dose and my lipid panel was good except my HDL dropped to 31. I do not have any of the risk factors ( not overweight, don’t smoke ,eat well exercise etc) so I asked google “ Can CLL cause your HDL to droop and the answer was YES. Does anyone have any information

Hi everyone, On the suggestion of one of the kind members in the group, and following my recent PMR diagnosis and the start of15mg Pred with accompanying increase of glucose levels, I got hold of one of the monitors free of charge from Abbott It arrived the following day and I have to say hiw impressed

Hi,hope everyone is well Just had some bloods done recently,and my total cholesterol has come back at 6.4. The pharmacist has just phoned me saying I need to make adjustments in my diet,and exercise more.Im quite an active person,and my diet isn’t that bad. Any help/suggestions would be greatly appreciated

I was looking for information regarding cholesterol medication "ezetimibe" and I came across this article. There seams to be a relation between regulating lipid accumulation and CLL. I am currently not taking ezetimibe but I do plan to have a conversation with my doctor to see if we should consider

I have had PMR since March 2019, stress-induced. I quickly became diabetic after starting prednisone. I'm currently on Metformin and have an Hb1Ac of 43, so it's not too bad. I'm on 2.25mg prednisone, on a dead slow taper. I also take Leuflonamide as a steroid-sparing agent after several flares and a

Floating an idea. As a bear with a small brain of increasing forgetfulness, it seems hard to keep track of all the knowledge from the group etc. Probably needs caviats about patient to patient advise - check with your doctor etc. For actual supplements we could link to recent posts or create another

65 in 2 weeks a d I want to shed type 2 diabetes and have been persuaded to take up something other than dog walking .week 1 complete and apprehensive about week 2 but I have an ideal location to run and maybe next week I will introduce some music to take tge mind away from the torture lol 😆

hi are there any brands that do 200mcg? I’m on 225mcg which means taking 3 pills every day . I’d rather it was 1. (I’m on 3 blood pressure pills too) Would be good it it was just a higher dose pill Unfortunately I get a different brand every time from chemist also they seem very sweet do they

hello forum friends I’ve just bought some cytoplan betaine and pepsin. My thinking is to raise my stomach acid to help my body better absorb nutrients. I’m just wondering have any of you tried this, and has it helped? Thanks 💜

Useful for those who've been told they are in the pre-diabetes or even diabetes range or worried about weight gain and/or raised blood sugar levels due to steroids. Although technically what we get is steroid-induced diabetes the principles of prevention and managing it are the same as Type 2 diabetes

Reducing down and have reached 16mgs. Have lost a lot of weight with low carb diet so decided to try and increase muscle mass with two basic exercises. Side to side crouch with medium resistance band and another for gluts and back holding (not lifting) weights. Oh dear, now pain in hip and knee. I

Morning all Am day 11 in cycle for a modified natural FET. Scan this morning showed lining at 5.9 and one follicle at 10. Clinic require min 7mm lining and one follicle at 14. Next scan on Fri. Any top tips/wives tales for improving lining thickness over next 48 hours?? Been eating lots of protein (

Hi, all! I've been following this forum for quite some time, finding help within these pages - I'm very grateful for all of your contributions! I need your advice again, as I'm facing a dead end here. I'm hypothyroid (Hashi) and have been on combo pill (T4:T3) Prothyrid and Novothyral for the

Hi there 👋🏼 I have Hashimotos and so have been taking multivitamins since my diagnosis, as well as the standard better you sprays for iron, vit D and B12. Recently I’ve been trying to get pregnant (no luck yet) but have been taking vitamins to help me conceive, as well as magnesium, omega 3, calcium

Writing this on behalf of my uncle to see if anyone has any thoughts on tweaking this protocol He has been battling PD for 5 years Last 2 years the condition has progressed Main issues: Balance, Drooling, and Freezing. Below is standard treatment along with alternative treatment

Having read some posts yesterday I saw that Omega 3 is not good for CLL patients. I took green tea and Omega 3 thinking they would be good for me but after reading a post from Neil I stopped green tea and now I think I need to stop Omega 3. Am I right in thinking this.