Search
Search
About
Log in
Join
Experiences with
Gaucher disease type 3 (GD3)
Posts
Communities
45,966 public posts
Filter results
biopsy report, still waiting to see consultant.
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I don’t really understand the results, I know none of you are specialist or doctors
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I don’t really understand the results, I know none of you are specialist or doctors
Goneinsixtyseconds
in
British Liver Trust
5 months ago
Help and advice for mum
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
PerpetuallySad
in
British Liver Trust
5 months ago
Compensated liver
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
Oasisman
in
British Liver Trust
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Confused and seeking clarification
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
HouseHead
in
British Liver Trust
5 months ago
Blood test Results AST/GGT
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Koswecan
in
British Liver Trust
5 months ago
liver transplant : build up
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
Meanies
in
British Liver Trust
5 months ago
PSA of <0.1 undetectable?
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
pj1121
in
Advanced Prostate Cancer
5 months ago
B1 therapy side effects
Hi, I am 55 years old male diagnosed with PD about 5 years ago. Started B1 therapy couple of days ago in consultation with my Neurologist. He suggested 100 mg Thiamine oral tablets 3 times a day for 10 days and taper down after 10 days. However severe side effects like feverish, body aches, headache
Hi, I am 55 years old male diagnosed with PD about 5 years ago. Started B1 therapy couple of days ago in consultation with my Neurologist. He suggested 100 mg Thiamine oral tablets 3 times a day for 10 days and taper down after 10 days. However severe side effects like feverish, body aches, headache
ashok200
in
Cure Parkinson's
5 months ago
Can i take vacation when already 5 years PSA < 0.01
Cancer of the prostate and pelvic lymph nodes found with PET 1, MRI, biopsy, PSA=100. - After 6 cycles of chemotherapy with docetaxel and ADT-ELIGARD with PET 2 and PET 3 show a rapid decrease in the size of the lymph nodes and their emission of SUV, as well as the disappearance of several of them
Cancer of the prostate and pelvic lymph nodes found with PET 1, MRI, biopsy, PSA=100. - After 6 cycles of chemotherapy with docetaxel and ADT-ELIGARD with PET 2 and PET 3 show a rapid decrease in the size of the lymph nodes and their emission of SUV, as well as the disappearance of several of them
Vasili
in
Advanced Prostate Cancer
5 months ago
SPECT scan horror
I had a SPECT scan after first does of Pluvicto. I had no idea how horrible a scan could be. There are things that project out to get as close to you as possible. I have had many CT scans MRIs PET scans but this is different. I do have a bit of claustrophobia but never felt this horrible before. They
I had a SPECT scan after first does of Pluvicto. I had no idea how horrible a scan could be. There are things that project out to get as close to you as possible. I have had many CT scans MRIs PET scans but this is different. I do have a bit of claustrophobia but never felt this horrible before. They
spencoid2
in
Advanced Prostate Cancer
5 months ago
The ups and downs of our rollercoaster OC journeys
When I recovered from debulking earlier this year I gave myself a good talking to and vowed not to let myself go from blood check to blood check worrying about them. I was so pleased my first check showed bloods were normal so thought my plan was working but then prior to the 6 month check developed
When I recovered from debulking earlier this year I gave myself a good talking to and vowed not to let myself go from blood check to blood check worrying about them. I was so pleased my first check showed bloods were normal so thought my plan was working but then prior to the 6 month check developed
Jholly4
in
My Ovacome
5 months ago
Possible urinary biomarkers of lupus nephritis identified in study
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 months ago
6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Vasili
in
Advanced Prostate Cancer
5 months ago
Benfotiamine In The Mix For PD Again?
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
chartist
in
Cure Parkinson's
5 months ago
Serum cortisol test results
Hello all, Further to my saliva cortisol test (link to post below), I requested a serum cortisol test at my GPs (8.45am, yesterday): Serum cortisol level 381 nmol/L >350 nmol/L makes adrenal insufficiency unlikely Is this in keeping with my less-than-optimal-and-occasionally-below-range saliva results
Hello all, Further to my saliva cortisol test (link to post below), I requested a serum cortisol test at my GPs (8.45am, yesterday): Serum cortisol level 381 nmol/L >350 nmol/L makes adrenal insufficiency unlikely Is this in keeping with my less-than-optimal-and-occasionally-below-range saliva results
J972
in
Thyroid UK
5 months ago
When to do certain blood tests and why.
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Mgtd
in
Advanced Prostate Cancer
5 months ago
What is my status
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
JennyWrenn4
in
Thyroid UK
3 months ago
intrinsic factor test
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
Painttube
in
Pernicious Anaemia Society
5 months ago
Currently in phase 1 but promising: Bispecific Antibody Programs and IL-12 Cytokine, XmAb662
early results are positive on solid tumors, including prostate https://www.pharmaceutical-technology.com/data-insights/xmab-662-xencor-metastatic-castration-resistant-prostate-cancer-mcrpc-likelihood-of-approval-2/ Thanks mhamle01 !!
early results are positive on solid tumors, including prostate https://www.pharmaceutical-technology.com/data-insights/xmab-662-xencor-metastatic-castration-resistant-prostate-cancer-mcrpc-likelihood-of-approval-2/ Thanks mhamle01 !!
Maxone73
in
Advanced Prostate Cancer
5 months ago
Scans other than PSMA for PC
My husband’s PSA continues to rise yet his PSMA scans are all clear. His last PSMA was late October with a PSA of 4.7 His PSA today was 6.5 It seems I have noted on this forum some other type scans should be done besides PSMA. His ALK PHOSPHATE is 85 (normal) Calcium levels all normal. Thanks
My husband’s PSA continues to rise yet his PSMA scans are all clear. His last PSMA was late October with a PSA of 4.7 His PSA today was 6.5 It seems I have noted on this forum some other type scans should be done besides PSMA. His ALK PHOSPHATE is 85 (normal) Calcium levels all normal. Thanks
JolleySprings
in
Advanced Prostate Cancer
5 months ago
1
...
39
40
41
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5990 results
British Liver Trust
4427 results
Advanced Prostate Cancer
4345 results
View top 10 communities
Sort by
Most Relevant
Newest