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Gaucher disease type 3 (GD3)
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Remission now flare.
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
pool0009
in
NRAS
3 months ago
Atrial Fibrillation
I'm in the process of finding out which blood thinner is best for me. Started with bisoprolol 1.25mg twice daily and feeling ill so have changed to Edoxaban causing cold hands and feet and breathlessness. I feel that my Cardiologist hasn't taken into consideration my other health conditions, i.e. Asthma
I'm in the process of finding out which blood thinner is best for me. Started with bisoprolol 1.25mg twice daily and feeling ill so have changed to Edoxaban causing cold hands and feet and breathlessness. I feel that my Cardiologist hasn't taken into consideration my other health conditions, i.e. Asthma
magriff1
in
Pain Concern
16 days ago
Low O2
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
grandmagigitovivi
in
Hughes Syndrome APS Forum
17 days ago
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Two weeks after ablation and I'm on the list for a cardioversion
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
JoDogBlue
in
Atrial Fibrillation Support
17 days ago
Orgovyx and its side effects on the heart's electrical system
I've been taking Orgovyx for over two years with few side effects. But I have been experiencing episodes of dizziness and light-headedness over the last few months. My cardiologist has diagnosed bradycardia (a slow heart beat that can cause such episodes). I will need a pacemaker. I know a side effect
I've been taking Orgovyx for over two years with few side effects. But I have been experiencing episodes of dizziness and light-headedness over the last few months. My cardiologist has diagnosed bradycardia (a slow heart beat that can cause such episodes). I will need a pacemaker. I know a side effect
Boonster
in
Advanced Prostate Cancer
17 days ago
INR meter
Hi all, I had a stroke when I was 27 years old and 10 years later I got diagnosed with Palindromic Rheumatism, a form or Arthritis. With both, current medication is Warfarin and X is required. I feel limited about the regular INR control lead by coagulation variability. Thinking to get an INR meter
Hi all, I had a stroke when I was 27 years old and 10 years later I got diagnosed with Palindromic Rheumatism, a form or Arthritis. With both, current medication is Warfarin and X is required. I feel limited about the regular INR control lead by coagulation variability. Thinking to get an INR meter
HectorManzanoDiaz
in
Anticoagulation Support
17 days ago
Bevacizumab v Niraparib
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
LovemyJackRussell
in
My Ovacome
17 days ago
Hello
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Tray68
in
LUPUS UK
3 months ago
chemo and genetic testing questions
My husband’s genetic testing of the biopsies came back. It’s 19 pages and I am having a super difficult time interpreting. His Oncologist Urologist is overwhelmed with duties and we probably won’t get reviewed at the level we need. attaching the executive summary. They said he tests positive for SPOP
My husband’s genetic testing of the biopsies came back. It’s 19 pages and I am having a super difficult time interpreting. His Oncologist Urologist is overwhelmed with duties and we probably won’t get reviewed at the level we need. attaching the executive summary. They said he tests positive for SPOP
Sunnysailor
in
Advanced Prostate Cancer
18 days ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
3 months ago
high heart rate at night
Anyone else out there experience something like this at night and have any idea if this is AFib or something else? Currently on 2.5mg bisoprolol daily thanks
Anyone else out there experience something like this at night and have any idea if this is AFib or something else? Currently on 2.5mg bisoprolol daily thanks
Craneguy83
in
Atrial Fibrillation Support
19 days ago
any tips/advice
Hello, I’m new here. I came upon this sit while trying to search for ways to lower my thyroid antibodies as my latest bloods have come back abnormal. But was told that my iron, ferritin and vitamin d was ok. I was wondering if there was any advice on how to feel a bit healthier.? I was as diagnosed
Hello, I’m new here. I came upon this sit while trying to search for ways to lower my thyroid antibodies as my latest bloods have come back abnormal. But was told that my iron, ferritin and vitamin d was ok. I was wondering if there was any advice on how to feel a bit healthier.? I was as diagnosed
Margiepargie
in
Thyroid UK
20 days ago
Warfarin
Hi i m taking warfarin now for one month for LV thrombus. The warfrin level is not going up. I m following the right diet for warfarin. Please help me.
Hi i m taking warfarin now for one month for LV thrombus. The warfrin level is not going up. I m following the right diet for warfarin. Please help me.
neomiferdy
in
Atrial Fibrillation Support
20 days ago
Low Ovarian Reserve - (supplements to boost eggs quality)
I'm 44 with a low ovarian reserve and multiple fibroids (which thankfully is outside the cavity). My GP referred me for NHS fertility investigations but I was rejected due to CCG criteria. My GP applied for Individual funding request but I was rejected. I had a consultation with a fertility expert
I'm 44 with a low ovarian reserve and multiple fibroids (which thankfully is outside the cavity). My GP referred me for NHS fertility investigations but I was rejected due to CCG criteria. My GP applied for Individual funding request but I was rejected. I had a consultation with a fertility expert
olabode
in
Fertility Network UK
9 months ago
lupus
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
Pea_m
in
LUPUS UK
3 months ago
Ablation/S-ICD Recovery Time - why is it taking so long?
Bit of a long one… Hi all, I’m currently recovering from a 4 week hospital stay and struggling with the recovery period. I was admitted for investigation due to a high burden of PVCs which were making me very symptomatic. I had a previous diagnosis of low burden of PVCs, as well as mild dilated cardiomyopathy
Bit of a long one… Hi all, I’m currently recovering from a 4 week hospital stay and struggling with the recovery period. I was admitted for investigation due to a high burden of PVCs which were making me very symptomatic. I had a previous diagnosis of low burden of PVCs, as well as mild dilated cardiomyopathy
AspiringVet
in
Heart Rhythm Disorders Support
21 days ago
Lupie Diary - International 4+Syamsi Dhuha Foundation
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 months ago
Is the rhythm of your heart regular?
A simple pulse check only takes 30 seconds! Atrial fibrillation, also known as AF or AFib is a quivering or irregular heart rhythm (arrhythmia) that can lead to an AF-related stroke or heart failure if left untreated. If you have AF, your heart beats in an irregular rhythm causing the blood to not
A simple pulse check only takes 30 seconds! Atrial fibrillation, also known as AF or AFib is a quivering or irregular heart rhythm (arrhythmia) that can lead to an AF-related stroke or heart failure if left untreated. If you have AF, your heart beats in an irregular rhythm causing the blood to not
TracyAdmin
Partner
in
Atrial Fibrillation Support
21 days ago
What is an ICM?
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
21 days ago
What is an ICM?
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
21 days ago
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