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Gaucher disease type 3 (GD3)
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Lipomatosis of the ileocaecal valve
Recently had a CT scan that revealed Lipomatosis of the ileocaecal valve.Has anyone else had this diagnosis that could offer any dietary advice? TIA. P.S. I'm currently waiting for an appointment with NHS Gastroenterologist but it could be next year.
Recently had a CT scan that revealed Lipomatosis of the ileocaecal valve.Has anyone else had this diagnosis that could offer any dietary advice? TIA. P.S. I'm currently waiting for an appointment with NHS Gastroenterologist but it could be next year.
Scoobiedoobie
in
IBS Network
21 days ago
racing heart , nausea sweating can’t breath young female
called an ambulance for the first time today. What was either the worst panic attack of my life or a cardiac episode. Went to hospital this morning and had multiple ekg, chest X-ray and bloods. I’m a young female. Blood test showed higher than normal Troponin but after the 3rd blood test in 9 hours my
called an ambulance for the first time today. What was either the worst panic attack of my life or a cardiac episode. Went to hospital this morning and had multiple ekg, chest X-ray and bloods. I’m a young female. Blood test showed higher than normal Troponin but after the 3rd blood test in 9 hours my
CopingwithEx
in
Anxiety Support
22 days ago
Impaired left ventricular relaxation /normal filling pressures-whatever that means
So I had an echo yesterday ordered by my cardiologist after I went to see him to ask for propranolol because my nurse navigator from my EP's office is weird about prescribing propranolol. I had an ablation in April. My cardiologist wants to rule out pulmonary vein stenosis following the ablation because
So I had an echo yesterday ordered by my cardiologist after I went to see him to ask for propranolol because my nurse navigator from my EP's office is weird about prescribing propranolol. I had an ablation in April. My cardiologist wants to rule out pulmonary vein stenosis following the ablation because
Iamfuzzyduck
in
Atrial Fibrillation Support
22 days ago
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Good morning my MPN family, Yesterday my husband tested positive for Covid, then I decided to take test too and was positive. After that I went to contact my MPN team and request antiviral Paxlovid medication. I was not able to get through my MPN team as I was hoping then I called 111 and as I was talking
Good morning my MPN family, Yesterday my husband tested positive for Covid, then I decided to take test too and was positive. After that I went to contact my MPN team and request antiviral Paxlovid medication. I was not able to get through my MPN team as I was hoping then I called 111 and as I was talking
light
in
MPN Voice
22 days ago
little advice from fellow Coeliac’s
hi Was wondering if any other coeliac out there has had similar experience/symptons? I got diagnosed with Coeliac disease about 4 years ago I follow the diet, have separate toaster, chopping board etc I’ve been suffering with terrible upper tummy and back passage cramps, blood and yellow mucus
hi Was wondering if any other coeliac out there has had similar experience/symptons? I got diagnosed with Coeliac disease about 4 years ago I follow the diet, have separate toaster, chopping board etc I’ve been suffering with terrible upper tummy and back passage cramps, blood and yellow mucus
RJane83
in
Gluten Free Guerrillas
3 months ago
Latest blood tests
Hi everyone, I posted a while ago about getting all my underactive thyroid symptoms back, joint pains, fatigue, anxiety and others. I’d had test results saying my TSH was low, but the dr was saying that it was satisfactory. I managed to speak to another dr and she ordered full blood tests. My results
Hi everyone, I posted a while ago about getting all my underactive thyroid symptoms back, joint pains, fatigue, anxiety and others. I’d had test results saying my TSH was low, but the dr was saying that it was satisfactory. I managed to speak to another dr and she ordered full blood tests. My results
Button83
in
Thyroid UK
3 months ago
Thank you all!
Firstly I would like to thank all of you who were so kind and answered my fears about my upcoming ablation. I'm so much happier about it now😊 Especially since I just came out of another tiring 28 hour episode! Sorry to ask yet another question but I was wondering if amiodarone was routinely prescribed
Firstly I would like to thank all of you who were so kind and answered my fears about my upcoming ablation. I'm so much happier about it now😊 Especially since I just came out of another tiring 28 hour episode! Sorry to ask yet another question but I was wondering if amiodarone was routinely prescribed
Spj57
in
Atrial Fibrillation Support
22 days ago
Any info on the drug Dapaglifozen?
Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc
Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc
Will1408
in
LUPUS UK
3 months ago
Hair loss is Bisoprolol or Apixaban? the cause
Hi all, My hair has really started to fall out lately, I’m on 1.25 Bisoprolol and 5mg Apixaban x2. I’ve tried to do a bit of research but found it a bit contradictory, some saying it’s either one or the other some saying both tablets. My cardiologist has in the past offered me Nebivolol and I’m wondering
Hi all, My hair has really started to fall out lately, I’m on 1.25 Bisoprolol and 5mg Apixaban x2. I’ve tried to do a bit of research but found it a bit contradictory, some saying it’s either one or the other some saying both tablets. My cardiologist has in the past offered me Nebivolol and I’m wondering
Crumbling
in
Atrial Fibrillation Support
23 days ago
underactive thyroid
getting numb feeling in my face arm and leg. Headache itchy skin and tired out light headed. My gp sent me for mri. Everything is fine. I have had an underactive thyroid for 25 years My blood pressure is also low I take 100 levothyroxine. Does it need increasing ???? Blood tests 3 rd June ! Any
getting numb feeling in my face arm and leg. Headache itchy skin and tired out light headed. My gp sent me for mri. Everything is fine. I have had an underactive thyroid for 25 years My blood pressure is also low I take 100 levothyroxine. Does it need increasing ???? Blood tests 3 rd June ! Any
Carlphilip1958
in
Thyroid UK
3 months ago
Total cholesterol and Triglyceride both at 3 mmol/mL
I was on station 5 mg Rosuvastatin. The numbers did not come down therefore was increased to 10mg. My last blood test total cholesterol 3 mmol/L. Triglyceride is also 3 mmol/L LDL and HDL is not within limit. Hba1c 62 !!! At 77 i want to eat and drink what I want? "Cholesterol levels in the UK
I was on station 5 mg Rosuvastatin. The numbers did not come down therefore was increased to 10mg. My last blood test total cholesterol 3 mmol/L. Triglyceride is also 3 mmol/L LDL and HDL is not within limit. Hba1c 62 !!! At 77 i want to eat and drink what I want? "Cholesterol levels in the UK
sandybrown
in
Cholesterol Support
24 days ago
Anyone with experience of taking Dipyridamole and Aspirin together ?
After a vasovagal syncope in Feb.2024 I was sent for brain MRI scan. And a ECG .The result was scar evidence of a small stroke on left side of my head. The ECG was clear. My blood pressure was back to normal around 132/72. I was put on Candestarten clexitel 8 mg daily , atorvastatin 20 mg and Clopidogrel
After a vasovagal syncope in Feb.2024 I was sent for brain MRI scan. And a ECG .The result was scar evidence of a small stroke on left side of my head. The ECG was clear. My blood pressure was back to normal around 132/72. I was put on Candestarten clexitel 8 mg daily , atorvastatin 20 mg and Clopidogrel
Marymon
in
Cholesterol Support
24 days ago
Amiodarone
Hi. After Bisoprolol and Flecainide stopped working I was prescribed Amiodarone last September initially on a loading dose of 3 x 200. This was reduced to 1 x 200 then raised to 2 x 200 when lower dose failed. My question is: do people on Amiodarone have regular blood checks? My blood was tested after
Hi. After Bisoprolol and Flecainide stopped working I was prescribed Amiodarone last September initially on a loading dose of 3 x 200. This was reduced to 1 x 200 then raised to 2 x 200 when lower dose failed. My question is: do people on Amiodarone have regular blood checks? My blood was tested after
jd2004
in
Atrial Fibrillation Support
24 days ago
Back in permanent AF
Hi,I have been in sinus rhythm for 3 years after an ablation at Barts and been feeling fit and healthy. 3 weeks ago I woke up and knew straight away I had gone back in to AF, this has now been confirmed after a couple of ECG's at the hospital. I feel very symptomatic at the moment with lots of palpitations
Hi,I have been in sinus rhythm for 3 years after an ablation at Barts and been feeling fit and healthy. 3 weeks ago I woke up and knew straight away I had gone back in to AF, this has now been confirmed after a couple of ECG's at the hospital. I feel very symptomatic at the moment with lots of palpitations
Bigredhear
in
Atrial Fibrillation Support
24 days ago
Retacrit Shots
I’m posting this in hopes it may help other MPN sufferers. In early December, 2023, I saw my longstanding oncologist of 20 years. My labs showed 7.2 hemoglobin I was weak and tired. He sent me to a hematologist at Emory Hospital in Atlanta. The new doctor tested me for my EPO level. Mine barely registered
I’m posting this in hopes it may help other MPN sufferers. In early December, 2023, I saw my longstanding oncologist of 20 years. My labs showed 7.2 hemoglobin I was weak and tired. He sent me to a hematologist at Emory Hospital in Atlanta. The new doctor tested me for my EPO level. Mine barely registered
Bippers
in
MPN Voice
6 months ago
taking Urso
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Tilt Table Test
Well, on Thursday I had a Tilt Table test and it was positive. My blood pressure rose to 185/110 before taking a nosedive to 80/54 with me on the verge of passing out. My nurse then stopped the test and reclined the table. I am pretty certain that I did not escape Sjogrens with my year on Pegasys. I
Well, on Thursday I had a Tilt Table test and it was positive. My blood pressure rose to 185/110 before taking a nosedive to 80/54 with me on the verge of passing out. My nurse then stopped the test and reclined the table. I am pretty certain that I did not escape Sjogrens with my year on Pegasys. I
Wewo01
in
MPN Voice
27 days ago
Cholesterol levels
Hi iam currently on 75mcg of levothyroxine I signed up to the new Our future health scheme been today to the unit had a finger tip cholesterol test down nurse said my total cholesterol was low results as follows any help advice please thank.
Hi iam currently on 75mcg of levothyroxine I signed up to the new Our future health scheme been today to the unit had a finger tip cholesterol test down nurse said my total cholesterol was low results as follows any help advice please thank.
Bridkid67
in
Thyroid UK
27 days ago
Latest Private Test
Hi there, I'm still waiting on a telephone app with my GP, but my new private antibody test results have come back. I get these done myself as we know GP's and the Endo situation is pretty poor for most of us, as our symptoms often get dismissed. The last endo appt said I may be at risk of developing
Hi there, I'm still waiting on a telephone app with my GP, but my new private antibody test results have come back. I get these done myself as we know GP's and the Endo situation is pretty poor for most of us, as our symptoms often get dismissed. The last endo appt said I may be at risk of developing
Ciri
in
Thyroid UK
6 months ago
Interesting article on why women get higher levels of autoimmune disease
Two versions: [i][/i] [i]
Stanford Medicine-led study shows why women are at greater risk of autoimmune disease
[/i] [i][/i] [i][/i] [i]Research throws light on the mystery of why women are much more prone to autoimmune disorders: A molecule made by one X chromosome in every female cell can
Two versions: [i][/i] [i]
Stanford Medicine-led study shows why women are at greater risk of autoimmune disease
[/i] [i][/i] [i][/i] [i]Research throws light on the mystery of why women are much more prone to autoimmune disorders: A molecule made by one X chromosome in every female cell can
TSH110
in
Thyroid UK
3 months ago
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