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Gaucher disease type 3 (GD3)
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General Update - I got lost in the site
Sorry everyone, I managed to get totally confused again, and I think I've posted duplicate replies, then lost other replies and now I can't find all the replies that were left for me so I think I've managed to delete them. Trouble is my hands shake so much these days that I keep pressing wrong buttons
Sorry everyone, I managed to get totally confused again, and I think I've posted duplicate replies, then lost other replies and now I can't find all the replies that were left for me so I think I've managed to delete them. Trouble is my hands shake so much these days that I keep pressing wrong buttons
Blondgrassblowing
in
PMRGCAuk
7 days ago
High dose Ergocalciferol (Vit. D-2) for Osteoporosis?
Since losing my long time primary doctor last year, I am on my second doctor for advice for osteoporosis. I was reluctant to take Prolia recommended by the first D.O. doctor and the second Internist Doctor recommended 50,000 (I think IU) weekly for a couple of months. I haven't picked up the prescription
Since losing my long time primary doctor last year, I am on my second doctor for advice for osteoporosis. I was reluctant to take Prolia recommended by the first D.O. doctor and the second Internist Doctor recommended 50,000 (I think IU) weekly for a couple of months. I haven't picked up the prescription
pegpowell
in
PMRGCAuk
8 days ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
6 months ago
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Phosphorous questions
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
Bassetmommer
in
Kidney Dialysis
6 months ago
I have a question.
Does anyone's rheumatologist order a CRP HS blood test? I heard of CRP, but not this one. Is it solely for heart disease, or something to do with other diseases too like Lupus?? Mine was high.
Does anyone's rheumatologist order a CRP HS blood test? I heard of CRP, but not this one. Is it solely for heart disease, or something to do with other diseases too like Lupus?? Mine was high.
Willow7733
in
LUPUS UK
8 days ago
Intrinsic Factor result
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
Chickens44
in
Pernicious Anaemia Society
3 months ago
how often for a Fibroscan
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Newbie and blood tests
Good morning all, I've been borderline underactive thyroid for a year or so. I was never told my levels and they aren't on my GP app. I've been retested recently and have a TSH level of 6. I also have a TSH receptor level of 0.3. I have a few symptoms.. Tiredness Brain fog Cold all the time Thinning
Good morning all, I've been borderline underactive thyroid for a year or so. I was never told my levels and they aren't on my GP app. I've been retested recently and have a TSH level of 6. I also have a TSH receptor level of 0.3. I have a few symptoms.. Tiredness Brain fog Cold all the time Thinning
HubbaBubbaLover
in
Thyroid UK
3 months ago
Can you have “attacks” when in persistent/constant afib?
If you are in persistent/constant bradycardic (40-60ish bpm) afib can you still have “attacks” of afib? Sort of ad-hoc exasperation of say breathlessness, chest pressure etc. I’m not even sure that question makes any sense… we are still trying to sort out what are “afib symptoms” and what isn’t after
If you are in persistent/constant bradycardic (40-60ish bpm) afib can you still have “attacks” of afib? Sort of ad-hoc exasperation of say breathlessness, chest pressure etc. I’m not even sure that question makes any sense… we are still trying to sort out what are “afib symptoms” and what isn’t after
Efka
in
Atrial Fibrillation Support
9 days ago
The Idea of White Coat Syndrome led to me having many mini strokes.
"White coat syndrome, or white coat hypertension, is the term for when you get a high blood pressure reading in a doctor's office and a normal reading at home. The anxiety of being around doctors in white coats can make your blood pressure rise. Most people don't need treatment if their blood pressure
"White coat syndrome, or white coat hypertension, is the term for when you get a high blood pressure reading in a doctor's office and a normal reading at home. The anxiety of being around doctors in white coats can make your blood pressure rise. Most people don't need treatment if their blood pressure
Tugun
in
Lung Conditions Community Forum
10 days ago
Persistent AF
Hi all,I have recently gone back In to AF and just seen my cardiologist after having an echo and 24 hour monitor. The echo has shown the hearts looks OK with a good EF and moderate dilation of left atrium, the monitor showed my HR anywhere between low 70's and mid 120's with an average of 94! The cardiologist
Hi all,I have recently gone back In to AF and just seen my cardiologist after having an echo and 24 hour monitor. The echo has shown the hearts looks OK with a good EF and moderate dilation of left atrium, the monitor showed my HR anywhere between low 70's and mid 120's with an average of 94! The cardiologist
Bigredhear
in
Atrial Fibrillation Support
10 days ago
Compression socks for travel
Hello, wondering if anyone has a good experience with compression socks for long haul travel? I do experience some feet swelling these days during the day which usually goes away with elevation for a brief period of time. I have flights coming up in the 7 to 14 hour range so am thinking that apart
Hello, wondering if anyone has a good experience with compression socks for long haul travel? I do experience some feet swelling these days during the day which usually goes away with elevation for a brief period of time. I have flights coming up in the 7 to 14 hour range so am thinking that apart
Support_helps
in
Vasculitis UK
10 days ago
Cardioversion of Atrial Fibrillation (AF)
Atrial fibrillation (AF) is a common rhythm disturbance of the heart which may cause rapid irregular palpitations, chest pain, breathlessness or fatigue. Sometimes it is hardly noticed by the patient. In such cases it is often picked up by routine examination of the pulse listening to the heart or recording
Atrial fibrillation (AF) is a common rhythm disturbance of the heart which may cause rapid irregular palpitations, chest pain, breathlessness or fatigue. Sometimes it is hardly noticed by the patient. In such cases it is often picked up by routine examination of the pulse listening to the heart or recording
SamAdmin
Administrator
in
Atrial Fibrillation Support
11 days ago
Question about support stockings
Hello. It's been a while with posting. I have been wearing support stockings since last November after arriving home from the hospital, for almost 10 months now, they have always been a struggle, and it's a bit tough to wear shorts with these knee-high's, I usually wear long pants outside to hide them
Hello. It's been a while with posting. I have been wearing support stockings since last November after arriving home from the hospital, for almost 10 months now, they have always been a struggle, and it's a bit tough to wear shorts with these knee-high's, I usually wear long pants outside to hide them
gbn_
in
Atrial Fibrillation Support
11 days ago
Thoughts on blood test ? (Quite new to T3 meds)
Any thoughts regarding my latest bloods please? I take 100 mcg T4 and 20mcg T3. My symptoms are nausea and brain fog. (I have an Underactive Thyroid). Free T3 5.1 pmol/L (in range) (3.10-6.80pmol)L THS 0.01 pmol/L (out of range) (range 0.27-4.20mIU/L) Free T4
Any thoughts regarding my latest bloods please? I take 100 mcg T4 and 20mcg T3. My symptoms are nausea and brain fog. (I have an Underactive Thyroid). Free T3 5.1 pmol/L (in range) (3.10-6.80pmol)L THS 0.01 pmol/L (out of range) (range 0.27-4.20mIU/L) Free T4
Heyhop
in
Thyroid UK
3 months ago
What is post ablation normal heart rate
I had my ablation last week for a fib which I have been told was a success. I have felt very dizzy with occasional ectopics since but bp has been ok and heart rate between 72 and 78. Then today everything has changed. Lots of ectopics and resting heart rate between 95 and 98. Should I be worried?
I had my ablation last week for a fib which I have been told was a success. I have felt very dizzy with occasional ectopics since but bp has been ok and heart rate between 72 and 78. Then today everything has changed. Lots of ectopics and resting heart rate between 95 and 98. Should I be worried?
Nantoone
in
Atrial Fibrillation Support
12 days ago
high blood pressure
I’ve been in hospital all day today. Woke at 6am with racing heart and ectopics. Took my blood pressure and it was 196/95. I felt really scared and rang 111 and they told me to go into A&E within the hour, so we did. I was diagnosed with severe hypertension and after loads of tests, ECG’s etc, I was
I’ve been in hospital all day today. Woke at 6am with racing heart and ectopics. Took my blood pressure and it was 196/95. I felt really scared and rang 111 and they told me to go into A&E within the hour, so we did. I was diagnosed with severe hypertension and after loads of tests, ECG’s etc, I was
Sixtychick
in
Atrial Fibrillation Support
12 days ago
My recovery from my pulse field ablation April 15.
I am basically very pleased with the outcome. I no longer need to take Flecainide which bothered my gut with excessive (noisy, embarrassing) wind. I am 82 with other comorbidities: secondary adrenal insufficiency and scoliotic restrictive lung disease requiring O2, 24/7. Dr. Reddy, my surgeon at Mount
I am basically very pleased with the outcome. I no longer need to take Flecainide which bothered my gut with excessive (noisy, embarrassing) wind. I am 82 with other comorbidities: secondary adrenal insufficiency and scoliotic restrictive lung disease requiring O2, 24/7. Dr. Reddy, my surgeon at Mount
Karenjaninaz
in
Atrial Fibrillation Support
12 days ago
76 years old with A F
Hi all. I was diagnosed with AF on the 18 July as I had trouble breathing, so I went to see my GP. I’ve always led a active life so I was surprised to hear about AF. With in three days I had an ECG in the morning. That afternoon I was to see another GP. GP then made appointments for blood tests and echo
Hi all. I was diagnosed with AF on the 18 July as I had trouble breathing, so I went to see my GP. I’ve always led a active life so I was surprised to hear about AF. With in three days I had an ECG in the morning. That afternoon I was to see another GP. GP then made appointments for blood tests and echo
KookyNo1
in
Atrial Fibrillation Support
12 days ago
18F-flotufolastat PET alters treatment approach for nearly 90% of patients with recurrent prostate cancer
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
Maxone73
in
Advanced Prostate Cancer
6 months ago
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