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Gaucher disease type 3 (GD3)
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cardioversion
All was going well after my cardioversion on Thursday until Sunday when my heart was all over the place really bad not sure what was going on, sat it out for a couple of hours seemed to settle and then off again felt quite ill and was worried about other arythmia’s went to urgent care to get it checked
All was going well after my cardioversion on Thursday until Sunday when my heart was all over the place really bad not sure what was going on, sat it out for a couple of hours seemed to settle and then off again felt quite ill and was worried about other arythmia’s went to urgent care to get it checked
Patchwork123
in
AF Association
6 months ago
Phenylethylamine is NOT Palmitoylethanolamide! They are both called PEA. I take Palmitoylethanolamide
SAGoodmanthis is for you: Phenylethylamine is NOT Palmitoylethanolamide! They are both called PEA. I take Palmitoylethanolamide
I originally posted this a year ago. You should check out the comment on that thread also
. https://healthunlocked.com/cure-parkinsons/posts/148290658/phenylethylamine-is-not-palmitoylethanolamide-they-are-both-called-pea-i-take-palmitoylethanolamide
SAGoodmanthis is for you: Phenylethylamine is NOT Palmitoylethanolamide! They are both called PEA. I take Palmitoylethanolamide
I originally posted this a year ago. You should check out the comment on that thread also
. https://healthunlocked.com/cure-parkinsons/posts/148290658/phenylethylamine-is-not-palmitoylethanolamide-they-are-both-called-pea-i-take-palmitoylethanolamide
Bolt_Upright
in
Cure Parkinson's
9 months ago
Avacopan (Tavneos®) is accepted for use within NHSScotland.
The Scottish Medicines Consortium (SMC) has completed its assessment of Avacopan and, following review by the SMC executive, advises NHS Boards and Area Drug and Therapeutics Committees (ADTCs) on its use in NHSScotland. Full details posted here: https://www.scottishmedicines.org.uk/media/7938/avacopan-tavneos-final-oct
The Scottish Medicines Consortium (SMC) has completed its assessment of Avacopan and, following review by the SMC executive, advises NHS Boards and Area Drug and Therapeutics Committees (ADTCs) on its use in NHSScotland. Full details posted here: https://www.scottishmedicines.org.uk/media/7938/avacopan-tavneos-final-oct
JaneLE
Administrator
in
Vasculitis UK
6 months ago
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Had paroxysmal since 2016
I’m a 68 yo male and have had 5 or 6 AF episodes since 2016 and one in the last 2 years. Docs put me on Multaq (anti arrhythmia) and Eliquis 2 years ago and the last episode was this past June was diagnosed as Atrial Flutter. Normal sinus rhythm was restored about 10 minutes after a calcium blocker
I’m a 68 yo male and have had 5 or 6 AF episodes since 2016 and one in the last 2 years. Docs put me on Multaq (anti arrhythmia) and Eliquis 2 years ago and the last episode was this past June was diagnosed as Atrial Flutter. Normal sinus rhythm was restored about 10 minutes after a calcium blocker
RoyMac
in
AF Association
6 months ago
Coronary artery calcification, osteoporosis and B12 deficiency- what to do next ?
I have just been found to have coronary artery calcification incidentally when having a Lung Healthcare scan. This information was passed to my GP who wants to put me on statins (Atorvastatin 20mg daily). I have no idea of the severity or extent of the calcification, only that it was found. I don't
I have just been found to have coronary artery calcification incidentally when having a Lung Healthcare scan. This information was passed to my GP who wants to put me on statins (Atorvastatin 20mg daily). I have no idea of the severity or extent of the calcification, only that it was found. I don't
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
6 months ago
Thrombocytopenia
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
nunbrook
in
PBC Foundation
7 months ago
Whole-body shaking
Hello, I have a question regarding whole-body shaking and would be grateful for any information you could give me. Five years ago when I was 49 I was diagnosed with Parkinson's disease. My only symptom was that within a few months my whole body suddenly became very slow. It was bi-lateral, and equally
Hello, I have a question regarding whole-body shaking and would be grateful for any information you could give me. Five years ago when I was 49 I was diagnosed with Parkinson's disease. My only symptom was that within a few months my whole body suddenly became very slow. It was bi-lateral, and equally
Daisies22
in
Cure Parkinson's
9 months ago
Some advice re draining fluid?
11m post transplant. Had a clinic at QE today. Not feeling too good, feeling tired, bloated etc. Have gained about 8-10kg since March. They (bless 'em) fitted me in for an ultrasound, and found "pockets of free fluid." Is this the same as ascites? Can you get ascites after transplant...? Didn't
11m post transplant. Had a clinic at QE today. Not feeling too good, feeling tired, bloated etc. Have gained about 8-10kg since March. They (bless 'em) fitted me in for an ultrasound, and found "pockets of free fluid." Is this the same as ascites? Can you get ascites after transplant...? Didn't
taar
in
British Liver Trust
9 months ago
Coincidentally ...
.. a new study on CVD risk factors in men with PCa [1]: "
The Burden of Uncontrolled Cardiovascular Risk Factors in Men With Prostate Cancer: A RADICAL-PC Analysis
" The study found that most men with PCa have modifiable CVD risk factors. Although the authors recognize that CVD risk is
.. a new study on CVD risk factors in men with PCa [1]: "
The Burden of Uncontrolled Cardiovascular Risk Factors in Men With Prostate Cancer: A RADICAL-PC Analysis
" The study found that most men with PCa have modifiable CVD risk factors. Although the authors recognize that CVD risk is
pca2004
in
Fight Prostate Cancer
9 months ago
Ipsen and IRLAB enter exclusive worldwide licensing agreement aimed to improve the lives of people living with Parkinson’s disease
Mesdopetam is being assessed in Phase IIb clinical trials as a potential treatment option for people living with Parkinson’s disease (PD) experiencing levodopa-induced dyskinesia (LID). It is estimated that approximately 40-50 percent of people living with PD will experience LID after five years of initiating
Mesdopetam is being assessed in Phase IIb clinical trials as a potential treatment option for people living with Parkinson’s disease (PD) experiencing levodopa-induced dyskinesia (LID). It is estimated that approximately 40-50 percent of people living with PD will experience LID after five years of initiating
Farooqji
in
Cure Parkinson's
9 months ago
Warning, ugly face
I am not diagnosed with Lupus, but I do have Ehlers Danlos Syndrome and Generalised multi joint Osteoarthritis, fibromyalgia and am hypothyroid.However, I am trying to get to the bottom of the terrible sores that come up on my face and neck. They can be terrible and then clear up a bit, but never fully
I am not diagnosed with Lupus, but I do have Ehlers Danlos Syndrome and Generalised multi joint Osteoarthritis, fibromyalgia and am hypothyroid.However, I am trying to get to the bottom of the terrible sores that come up on my face and neck. They can be terrible and then clear up a bit, but never fully
Lozza812
in
LUPUS UK
7 months ago
... what, then, do we die of?
New study of SEER data below [1]. The old comforting words that men with PCa "die with the disease, not of it" does not apply once mets occur, of course, but is largely true for local disease (the majority of cases in the U.S., due to screening practices.) It has long been known that men with PCa
New study of SEER data below [1]. The old comforting words that men with PCa "die with the disease, not of it" does not apply once mets occur, of course, but is largely true for local disease (the majority of cases in the U.S., due to screening practices.) It has long been known that men with PCa
pca2004
in
Fight Prostate Cancer
9 months ago
Thoughts on preventing more arryrhmias. Now 2 ablations down, on having been persistently in AF
Just checking in , after my review with my Electrophysiologist . 2nd Ablation was Feb 23rd 2022. He says I am doing very well, for where I was in persistent and a lot of arrythmias, when he ablated. Also on my asking about prognosis that hopefully this will now sustain, with v short episodes of AF
Just checking in , after my review with my Electrophysiologist . 2nd Ablation was Feb 23rd 2022. He says I am doing very well, for where I was in persistent and a lot of arrythmias, when he ablated. Also on my asking about prognosis that hopefully this will now sustain, with v short episodes of AF
Turquoise19
in
AF Association
6 months ago
Update after cardiac catheterization.
First a BIG THANK YOU for all the advice and support. I felt you with me every step of the way. The catheterization showed no narrowing of the major cardiac arteries. But head cardiologist came and said all my symptoms were classic heart attack and clearly something was blocked...so i have a bucket
First a BIG THANK YOU for all the advice and support. I felt you with me every step of the way. The catheterization showed no narrowing of the major cardiac arteries. But head cardiologist came and said all my symptoms were classic heart attack and clearly something was blocked...so i have a bucket
agingfeminist
in
PMRGCAuk
6 months ago
Covid vaccines and Lupus Flare - up
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
seabreezegirl
in
LUpus Patients Understanding and Support
7 months ago
Paroxysmal and permanent Afib
Does anybody know when paroxysmal Afib becomes permanent? I was diagnosed with paroxysmal Afib towards the end of 2022, after I had been fitted with a Linq loop recorder. I was only ever having short episodes lasting up to 8 hours, then on 13th October just gone I started with an episode which is still
Does anybody know when paroxysmal Afib becomes permanent? I was diagnosed with paroxysmal Afib towards the end of 2022, after I had been fitted with a Linq loop recorder. I was only ever having short episodes lasting up to 8 hours, then on 13th October just gone I started with an episode which is still
Beatle45
in
AF Association
6 months ago
Protein Question
Is anyone eating a high protein diet but worried about the effects on their kidneys? Would a high protein intake cause kidney disease eventually?
Is anyone eating a high protein diet but worried about the effects on their kidneys? Would a high protein intake cause kidney disease eventually?
FlippinOut
in
British Liver Trust
9 months ago
What causes sudden return to sinus rhythm from permanent AF, even when it only lasts an hour or two?
I have permanent AF and of late is has been fairly normal to find walking difficult and feeling very breathless and easily tired. I am used to the routine of just carrying on and making myself stay as occupied and busy as I can. What I just found today, was that I found the daily walk (40 minutes,
I have permanent AF and of late is has been fairly normal to find walking difficult and feeling very breathless and easily tired. I am used to the routine of just carrying on and making myself stay as occupied and busy as I can. What I just found today, was that I found the daily walk (40 minutes,
oscarfox49
in
AF Association
6 months ago
First ever park run
Well, I’ve finally done it! First parkrun in the bag and it was enjoyable- as everyone had said, brilliantly well organised, friendly and absolutely no pressure. I wasn’t going to take the dog because I wanted to suss it out myself first but she did those puppy dog eyes at me when I put the gear on
Well, I’ve finally done it! First parkrun in the bag and it was enjoyable- as everyone had said, brilliantly well organised, friendly and absolutely no pressure. I wasn’t going to take the dog because I wanted to suss it out myself first but she did those puppy dog eyes at me when I put the gear on
SweatyHettie
Graduate
in
Couch to 5K
6 months ago
Has anyone taken 25mg of Metropolo twice a day! Any side effects?
I have AFIB and a lot of other medications bother me so they are going to try Metropolo twice a day for blood pressure and heart rate! I AM going to do this tomorrow! Any comments I would appreciate it!
I have AFIB and a lot of other medications bother me so they are going to try Metropolo twice a day for blood pressure and heart rate! I AM going to do this tomorrow! Any comments I would appreciate it!
BaileyC57
in
AF Association
6 months ago
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