to all our newly diagnosed people

[DonnaBoll]

Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation (pbcfoundation.org.uk). Their website has so much to offer someone who is just diagnosed as well as the person who has had PBC for many years.. Other great resources are the Mayo and Cleveland Clinics, American Liver Foundation, and the Canadian PBC Society. I live in the US. Many of our members live in the UK. Remember that every one of us has PBC differently from any other person in the group. Be patient and kind yourself always. It takes everyone time for it all to become a reality.. Never feel alone! Urso is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. Hopefully you feel that whoever is caring for you, knows about PBC and how to treat someone with it. If this isn’t the case, we can talk about this.. No one should feel they have no one to turn to, even if it’s to vent. Remember to take that breath……