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Gaucher disease type 3 (GD3)
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CT3M Method - some questions
I shared recently that I hadn’t been feeling quite as good on my T3 recently as I had earlier on in my treatment (which started just over a couple of years ago). With that in mind, I decided to re-read Paul Robinson’s excellent Recovering with T3 book, and the section on circadian T3 (or CT3M) resonated
I shared recently that I hadn’t been feeling quite as good on my T3 recently as I had earlier on in my treatment (which started just over a couple of years ago). With that in mind, I decided to re-read Paul Robinson’s excellent Recovering with T3 book, and the section on circadian T3 (or CT3M) resonated
JonnyA
in
Thyroid UK
11 days ago
Chemical Companies and PD
I did some research using ChatGPT, an Artificial Intelligence Bot, to learn about which executives running chemical companies knew that their products caused Parkinson's Disease, and whether they were punished for their greed-driven depraved indifference toward their victims - the thousands or millions
I did some research using ChatGPT, an Artificial Intelligence Bot, to learn about which executives running chemical companies knew that their products caused Parkinson's Disease, and whether they were punished for their greed-driven depraved indifference toward their victims - the thousands or millions
Alock2020
in
Cure Parkinson's
11 days ago
Fatty liver showed up on scan
Hi there This is my first time posting and I’m feeling a bit terrified. Back in June I was taken to A&E due to upper right quadrant pain. They did an ultrasound scan and found gallstones. Nothing else was mentioned but today I went to my GP and she told me that fatty liver had been diagnosed on the
Hi there This is my first time posting and I’m feeling a bit terrified. Back in June I was taken to A&E due to upper right quadrant pain. They did an ultrasound scan and found gallstones. Nothing else was mentioned but today I went to my GP and she told me that fatty liver had been diagnosed on the
KLL85
in
British Liver Trust
12 days ago
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On 60 mgs, potassium low, magnesium low, cramps, dizzy, fatigue ,the runs etc...
Due to reduce to 40mgs tomorrow but really feeling very strange, balance off, BP low for me, I'm on 2 x meds for BP which are contraindicated with steroids as should increase BP?? The symptoms are consistent with low potassium levels (call from hospital to tell me that) but worsening. Eating everything
Due to reduce to 40mgs tomorrow but really feeling very strange, balance off, BP low for me, I'm on 2 x meds for BP which are contraindicated with steroids as should increase BP?? The symptoms are consistent with low potassium levels (call from hospital to tell me that) but worsening. Eating everything
Fatsiajaponica
in
PMRGCAuk
12 days ago
GCA and type 2 diabetes
Hi all Warriors Since being on prednisone (since July 2023 at 60mg, now at l6mg) my A1C has slowly crept up. Had blood work yesterday and A1C is now at 7.1. I have been told by my rheumy this is steroid induced and will start going down as I taper. Even though I have been tapering by 1mg every 2
Hi all Warriors Since being on prednisone (since July 2023 at 60mg, now at l6mg) my A1C has slowly crept up. Had blood work yesterday and A1C is now at 7.1. I have been told by my rheumy this is steroid induced and will start going down as I taper. Even though I have been tapering by 1mg every 2
Groda
in
PMRGCAuk
8 months ago
What's it like to have a husband, Dad, or dear friend with prostate cancer?
If you are reading this, you are either diagnosed with prostate cancer or are concerned enough to be information hunting for someone you care about. There are many characterizations and attempts at defining "caregiver." At Malecare, if you are here, and do not have prostate cancer, then you are a caregiver
If you are reading this, you are either diagnosed with prostate cancer or are concerned enough to be information hunting for someone you care about. There are many characterizations and attempts at defining "caregiver." At Malecare, if you are here, and do not have prostate cancer, then you are a caregiver
Darryl
Partner
in
Advanced Prostate Cancer
12 days ago
Has anyone been in a battle about how bad their brain is?
I woke on day and brain had changed. 25 years years later and an unrelated MRI it was discovered I had a frontal lob cavernoma. But it was very small and some experts say incidental, other so no it is causing your problems. But this aside I know my memory is getting worse and it has been for the last
I woke on day and brain had changed. 25 years years later and an unrelated MRI it was discovered I had a frontal lob cavernoma. But it was very small and some experts say incidental, other so no it is causing your problems. But this aside I know my memory is getting worse and it has been for the last
LobDam
in
Headway
13 days ago
new to PSP
Iwas diagnosed in May with PSP about 4 yrs ago with Parkinson’s but was in because I wasn’t showing regular signs of Parkinson’s have been to a movement disorder clinic & possible i have PSP
Iwas diagnosed in May with PSP about 4 yrs ago with Parkinson’s but was in because I wasn’t showing regular signs of Parkinson’s have been to a movement disorder clinic & possible i have PSP
Slyone
in
PSP Association
14 days ago
new to PSP
Iwas diagnosed in May with PSP about 4 yrs ago with Parkinson’s but was in because I wasn’t showing regular signs of Parkinson’s have been to a movement disorder clinic & possible i have PSP
Iwas diagnosed in May with PSP about 4 yrs ago with Parkinson’s but was in because I wasn’t showing regular signs of Parkinson’s have been to a movement disorder clinic & possible i have PSP
Slyone
in
PSP Association
14 days ago
new to PSP
Iwas diagnosed in May with PSP about 4 yrs ago with Parkinson’s but was in because I wasn’t showing regular signs of Parkinson’s have been to a movement disorder clinic & possible i have PSP
Iwas diagnosed in May with PSP about 4 yrs ago with Parkinson’s but was in because I wasn’t showing regular signs of Parkinson’s have been to a movement disorder clinic & possible i have PSP
Slyone
in
PSP Association
14 days ago
Liver test results
Hi everyone, just joined the forum and would be interested in people's opinion of my latest liver test results.My cholesterol is showing as 6.1 also. Received: 26 Jul 2024 Provider Sample ID: BP274508V Pathology Investigations Liver function tests Serum total bilirubin level 17 umol/L [0.0 - 21.0]
Hi everyone, just joined the forum and would be interested in people's opinion of my latest liver test results.My cholesterol is showing as 6.1 also. Received: 26 Jul 2024 Provider Sample ID: BP274508V Pathology Investigations Liver function tests Serum total bilirubin level 17 umol/L [0.0 - 21.0]
Bigsi
in
British Liver Trust
14 days ago
not PCa related but an important step forward
as you know I like to look at trends as well, not only to scout for new prostate cancer research…so here we go, the first cell therapy for solid tumors approved in the USA https://www.europeanpharmaceuticalreview.com/news/232117/fda-approves-innovative-engineered-cell-therapy/
as you know I like to look at trends as well, not only to scout for new prostate cancer research…so here we go, the first cell therapy for solid tumors approved in the USA https://www.europeanpharmaceuticalreview.com/news/232117/fda-approves-innovative-engineered-cell-therapy/
Maxone73
in
Advanced Prostate Cancer
14 days ago
I find this helpful
I have talked to two people about alcohol use and they both had a physician tell them that they typically increase the amount a paticient reports to 2 to 4 times the amount reported because people lie about their alcohol intake. This also happened to me my liver function was low and I was told that
I have talked to two people about alcohol use and they both had a physician tell them that they typically increase the amount a paticient reports to 2 to 4 times the amount reported because people lie about their alcohol intake. This also happened to me my liver function was low and I was told that
WIZARD6787
in
Pernicious Anaemia Society
14 days ago
Free The Lid!
The EU in its wisdom has decided that all plastic bottles must have their tops tethered to the bottle to ensure they are recycled together. Great idea, though I'm not convinced how much reduction in waste this will really create as I always put the lid back on anyway. However, the actual method of "
The EU in its wisdom has decided that all plastic bottles must have their tops tethered to the bottle to ensure they are recycled together. Great idea, though I'm not convinced how much reduction in waste this will really create as I always put the lid back on anyway. However, the actual method of "
Grey_Area
in
Cure Parkinson's
14 days ago
Did I ever have/ have I got...
CIRRHOSIS? Ok, following on from fibroscan couple weeks back, have been copied in to letter from liver nurse to my (redundant) Consultant. Here goes... " had routine liver ultrasound and there has been an improvement in that the liver is normal in shape and outline with mild increasing reflectivity consistent
CIRRHOSIS? Ok, following on from fibroscan couple weeks back, have been copied in to letter from liver nurse to my (redundant) Consultant. Here goes... " had routine liver ultrasound and there has been an improvement in that the liver is normal in shape and outline with mild increasing reflectivity consistent
Ilovedavid
in
British Liver Trust
15 days ago
Crohn's+IBS
Hi,I became unwell about 2.5 years ago and after a year was diagnosed with Crohn's. I've been on biological injections for my Crohn's for the last 18 months and according to my consultant after a couple of colonoscopies/capsule it is being well managed. He said I also have IBS. My question is since
Hi,I became unwell about 2.5 years ago and after a year was diagnosed with Crohn's. I've been on biological injections for my Crohn's for the last 18 months and according to my consultant after a couple of colonoscopies/capsule it is being well managed. He said I also have IBS. My question is since
UmaDaisy
in
Crohn's and Colitis Support
15 days ago
Feeling pathetic...
Sitting at the hospital in the midst of a synacthen test and feeling sorry for myself. So I thought I'd vent on here to a group of lovely folk who understand what it's like to appear normal on the outside but struggling on the inside! Like most on here I hate having to admit I can't do what I used to
Sitting at the hospital in the midst of a synacthen test and feeling sorry for myself. So I thought I'd vent on here to a group of lovely folk who understand what it's like to appear normal on the outside but struggling on the inside! Like most on here I hate having to admit I can't do what I used to
CygnusX1
in
PMRGCAuk
15 days ago
my day took a dive.
My brother was diagnosed with pancreatic cancer. His surgery early this morning revealed the cancer had spread undetected. They ended the procedure and sent him home giving him 6 months to live. Life seems random and impersonal. My son’s dog Roxie understands.
My brother was diagnosed with pancreatic cancer. His surgery early this morning revealed the cancer had spread undetected. They ended the procedure and sent him home giving him 6 months to live. Life seems random and impersonal. My son’s dog Roxie understands.
Gobbsofjoy
in
Cure Parkinson's
16 days ago
Transplant needed......
Can you help me? My relative has been diagnosed with Liver Cirrhosis and is told they will need a transplant. They await an invitation to the liver hospital. Not sure if this is the process to get on the list or a second opinion/confirmed diagnosis. They have diagnosed cirrhosis following a lengthy
Can you help me? My relative has been diagnosed with Liver Cirrhosis and is told they will need a transplant. They await an invitation to the liver hospital. Not sure if this is the process to get on the list or a second opinion/confirmed diagnosis. They have diagnosed cirrhosis following a lengthy
Indigo99
in
British Liver Trust
16 days ago
Ultra sensitive psa
As my MO basically doesn't want to engage in conversation during my 5 min appointments as he feels it's an insult to his managing my case I was wondering after 7 rounds of docetaxil why he decided to do an Ultra sensitive PSA instead of just a good o PSA. I've not reached an undetectable number as of
As my MO basically doesn't want to engage in conversation during my 5 min appointments as he feels it's an insult to his managing my case I was wondering after 7 rounds of docetaxil why he decided to do an Ultra sensitive PSA instead of just a good o PSA. I've not reached an undetectable number as of
APK3
in
Advanced Prostate Cancer
16 days ago
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