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Gaucher disease type 3 (GD3)
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Father a fib
My father died after hospitalized with pneumonia in 1955. Death cert says also atrial fib and cerebral emboli. My brother 8 yrs older than me hit with it in his 70s. Has had 2 ablations. Fine last 4 years. I got it at 70 just had my ablation in May. So far so good. I think researchbsays heart genetics
My father died after hospitalized with pneumonia in 1955. Death cert says also atrial fib and cerebral emboli. My brother 8 yrs older than me hit with it in his 70s. Has had 2 ablations. Fine last 4 years. I got it at 70 just had my ablation in May. So far so good. I think researchbsays heart genetics
Healthyheart11
in
AF Association
5 months ago
PSA for PCa Awareness month
There's an App called Nextdoor and they're pretty much in all the cities, even this lil town. I posted on it for men to get screened as a Public Service Announcement for PCa Awareness Month. Many don't know that it's in September, but a whole lot more know that October is Breast Ca Awareness month.
There's an App called Nextdoor and they're pretty much in all the cities, even this lil town. I posted on it for men to get screened as a Public Service Announcement for PCa Awareness Month. Many don't know that it's in September, but a whole lot more know that October is Breast Ca Awareness month.
dockam
in
Advanced Prostate Cancer
8 months ago
Bradyarrythmia
I had an ablation almost 4 years ago in feb 2020. Since then I have rarely had any arrhythmias, that is until now. They started out of the blue almost two weeks ago and are constant. However , they are not like before, this time the average beats are 60 per minute. They go as low as 42 and as high as
I had an ablation almost 4 years ago in feb 2020. Since then I have rarely had any arrhythmias, that is until now. They started out of the blue almost two weeks ago and are constant. However , they are not like before, this time the average beats are 60 per minute. They go as low as 42 and as high as
destiny234
in
Atrial Fibrillation Support
5 months ago
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Help understanding my blood test results.
Hi M54 Have been diagnosed with underactive thyroid for about 4 years now. Symptoms were fatigue, insomnia, depression,feeling cold all the time.However lately have been experiencing memory and concentration problems. Have an appointment with an Endo on the 30th of this month what should I raise with
Hi M54 Have been diagnosed with underactive thyroid for about 4 years now. Symptoms were fatigue, insomnia, depression,feeling cold all the time.However lately have been experiencing memory and concentration problems. Have an appointment with an Endo on the 30th of this month what should I raise with
gerrycrilley1
in
Thyroid UK
6 months ago
cholesterol results
hi, I have just received my cholesterol results. My mum has high cholesterol and my Nan had high cholesterol. Cholesterol =7.1 mmol High density lipoprotein = 1.51 mmol/l Non -hDL cholesterol = 5.6mmol Triglycerides 1.42mmol I haven’t eaten before and tested at 8.30am I am 38 years old ~ diagnosed
hi, I have just received my cholesterol results. My mum has high cholesterol and my Nan had high cholesterol. Cholesterol =7.1 mmol High density lipoprotein = 1.51 mmol/l Non -hDL cholesterol = 5.6mmol Triglycerides 1.42mmol I haven’t eaten before and tested at 8.30am I am 38 years old ~ diagnosed
Luckygirl1
in
Cholesterol Support
5 months ago
BREAKTHROUGH! Scientists discover how brain cells die in Alzheimer's study
"A breakthrough in Alzheimer’s research has finally answered a question scientists have been asking for years." "Scientists have discovered how brain cells die when people develop Alzheimer’s, a study published in Science revealed." “This is a very important and interesting finding,” researcher Bart
"A breakthrough in Alzheimer’s research has finally answered a question scientists have been asking for years." "Scientists have discovered how brain cells die when people develop Alzheimer’s, a study published in Science revealed." “This is a very important and interesting finding,” researcher Bart
PDWarrior1900
in
Cure Parkinson's
8 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
8 months ago
fibroscan score and other scores
Hi all. My partner Nick has had his fibroscan score which is 32.8, CAP score is 289, child - pugh 5A, UKELD 45. Anyone know if these scores are dangerously high? I am trying to prepare myself for whats to come. Also, his stomach is swollen most of the time now. I am presuming this could be ascites
Hi all. My partner Nick has had his fibroscan score which is 32.8, CAP score is 289, child - pugh 5A, UKELD 45. Anyone know if these scores are dangerously high? I am trying to prepare myself for whats to come. Also, his stomach is swollen most of the time now. I am presuming this could be ascites
pussycat66
in
British Liver Trust
8 months ago
NASH & yellow diarrhea
Hi, I was diagnosed with NASH about 2 years ago.. I lost around 4 stone and my diet was a lot better, liver enzymes were in normal range. I then started on leflunomide for my rheumatoid arthritis around a month ago, and my ALT shot up to 100. I've been stopped the drug for about 2 weeks now but since
Hi, I was diagnosed with NASH about 2 years ago.. I lost around 4 stone and my diet was a lot better, liver enzymes were in normal range. I then started on leflunomide for my rheumatoid arthritis around a month ago, and my ALT shot up to 100. I've been stopped the drug for about 2 weeks now but since
Natbat87
in
British Liver Trust
6 months ago
Atypical Pernicious Anaemia
Hi All, If you have any spare time...I found some interesting articles when I searched online for "atypical pernicious anaemia".
Hi All, If you have any spare time...I found some interesting articles when I searched online for "atypical pernicious anaemia".
Sleepybunny
in
Pernicious Anaemia Society
6 months ago
Atrial fibrillation
Had an ablation procedure 6 yrs ago and this halted my first experience of atrial fibrillation. Now has started back up again. Leaves you feeling dreadful,short of breath and scared. Obviously went to A n E ,13 hrs to be discharged with app at GP for ECG 8 days later. Still waiting for that. Over the
Had an ablation procedure 6 yrs ago and this halted my first experience of atrial fibrillation. Now has started back up again. Leaves you feeling dreadful,short of breath and scared. Obviously went to A n E ,13 hrs to be discharged with app at GP for ECG 8 days later. Still waiting for that. Over the
chux
in
Anxiety Support
5 months ago
Rheaumatiod athritis
Diagnosed with rheaumatiod arthritis last March, still don't know much about it as I have had a lot going on, wondering if rheaumatiod arthritis ever goes into remission
Diagnosed with rheaumatiod arthritis last March, still don't know much about it as I have had a lot going on, wondering if rheaumatiod arthritis ever goes into remission
Alice70
in
NRAS
6 months ago
Air pollution is linked to PD
In a recent study, more than 270,000 people were followed for almost 20 years in six European countries where regular measurements of outdoor air quality take place. In the open air, the researchers looked separately at particulate matter (solid particles smaller than 2.5 micrometres, often contaminated
In a recent study, more than 270,000 people were followed for almost 20 years in six European countries where regular measurements of outdoor air quality take place. In the open air, the researchers looked separately at particulate matter (solid particles smaller than 2.5 micrometres, often contaminated
Esperanto
in
Cure Parkinson's
8 months ago
Low Oxygen linked to Afib?
My Apple Series 8 watch has been showing drops of oxygen. It has shown 71-83% but then can go up to 100%. Sometimes during day I have a very hard time breathing but night even sleeping elevated I am short of breath. Even side sleeping . Back is the worst. I am not on any meds, not overweight. 55,
My Apple Series 8 watch has been showing drops of oxygen. It has shown 71-83% but then can go up to 100%. Sometimes during day I have a very hard time breathing but night even sleeping elevated I am short of breath. Even side sleeping . Back is the worst. I am not on any meds, not overweight. 55,
Krissy55
in
Atrial Fibrillation Support
5 months ago
Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
8 months ago
induced coma
my brother was put into a coma due to alcohol withdrawal, he was having seizures they put him on a ventilator. Why isn’t he breathing on his own? Is it the medication they put him on to induce the coma or damage to lungs?
my brother was put into a coma due to alcohol withdrawal, he was having seizures they put him on a ventilator. Why isn’t he breathing on his own? Is it the medication they put him on to induce the coma or damage to lungs?
Kri-27
in
ICUsteps
8 months ago
cardiac thyroidology in the Uk?
Hello everyone I am new here. I am a super complex patient with couple of cardiac conditions incl. POTS dysautonomia and when i was living abroad was given T3 in small doses that helped me a bit as they said i had an underactive thyroid and a genetic tyoe of anaemia. I am in the Uk now an ddo not have
Hello everyone I am new here. I am a super complex patient with couple of cardiac conditions incl. POTS dysautonomia and when i was living abroad was given T3 in small doses that helped me a bit as they said i had an underactive thyroid and a genetic tyoe of anaemia. I am in the Uk now an ddo not have
Potsiegal
in
Thyroid UK
6 months ago
Swollen ankles
Hi,not been on for a while had cardioversion which only lasted a week then back into AF felt so rough afterwards not been right since still on list for an ablation anyway recently my ankles and sometimes my calves have been swelling up mainly my right one can this be normal with AF never had it before
Hi,not been on for a while had cardioversion which only lasted a week then back into AF felt so rough afterwards not been right since still on list for an ablation anyway recently my ankles and sometimes my calves have been swelling up mainly my right one can this be normal with AF never had it before
bobify
in
AF Association
5 months ago
PSADT question...plus Xofigo and comorbidities
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
WeatherLook
in
Advanced Prostate Cancer
8 months ago
serum inorganic phosphate
Hello, I hope you are all keeping as well as possible. Last week I had some blood results back and have an appointment this Friday to talk to my GP about raised serum inorganic phosphate. This was measured one year ago and was in the normal range at 1.26mmoI/L. It is now 1.84mmI/L and in the abnormal
Hello, I hope you are all keeping as well as possible. Last week I had some blood results back and have an appointment this Friday to talk to my GP about raised serum inorganic phosphate. This was measured one year ago and was in the normal range at 1.26mmoI/L. It is now 1.84mmI/L and in the abnormal
Pangolin43
in
PMRGCAuk
8 months ago
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