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Gaucher disease type 3 (GD3)
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What is an ablasion procedure is it safe?
Diagnosed with AFIB, cardiologist has suggested for me to look into ablasion proceedure. Taking Eliquis but an expensive drug to be on. Research shows this proceedure with ablasion only 70% successful to put heart back in a normal rhythem? Has anyone had this proceedure done?
Diagnosed with AFIB, cardiologist has suggested for me to look into ablasion proceedure. Taking Eliquis but an expensive drug to be on. Research shows this proceedure with ablasion only 70% successful to put heart back in a normal rhythem? Has anyone had this proceedure done?
Kallen32-missyou
in
Heart Rhythm Disorders Support
2 months ago
Amiodarone again...loading dose?
I'm reluctantly back on Amiodarone ahead of a cardioversion in the next few weeks. I had an ablation five weeks ago and have been in AF for the duration.When I was originally on Amiodarone (before a successful carioversion) I started on a high loading dose. This time its 200mg once a day, the maintenance
I'm reluctantly back on Amiodarone ahead of a cardioversion in the next few weeks. I had an ablation five weeks ago and have been in AF for the duration.When I was originally on Amiodarone (before a successful carioversion) I started on a high loading dose. This time its 200mg once a day, the maintenance
JoDogBlue
in
Atrial Fibrillation Support
2 months ago
ET Increase in Platelets Linear or Random?
I've had ET since my early 30s and my platelets seem to be increasing by a set amount each year, I'm now in my 40s and platelets are at 900. It seems like I should be able to plot that and figure out when its going to get to a worrying level. So I guess I'd like to know at what level will I need to
I've had ET since my early 30s and my platelets seem to be increasing by a set amount each year, I'm now in my 40s and platelets are at 900. It seems like I should be able to plot that and figure out when its going to get to a worrying level. So I guess I'd like to know at what level will I need to
Jpn4
in
MPN Voice
2 months ago
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Carnosine as potential initial PCa treatment
Researchers have discovered that a naturally-occurring molecule could potentially be an effective first line of treatment against prostate cancer. Nottingham Trent University (NTU) scientists investigated the anti-cancer properties of carnosine, which can be produced in the body and is also found
Researchers have discovered that a naturally-occurring molecule could potentially be an effective first line of treatment against prostate cancer. Nottingham Trent University (NTU) scientists investigated the anti-cancer properties of carnosine, which can be produced in the body and is also found
Derf4223
in
Advanced Prostate Cancer
7 months ago
Gluten free and vegetarian- struggling for choices
Hi, I am diagnosed with coeliac disease and I am also vegetarian. I am struggling for choices, and feel my diet is very bland and I tend to repeat meals several times a week. Particularly eating out, or free-from sections in supermarkets are difficult. They seem to cater for both, but not the two combined
Hi, I am diagnosed with coeliac disease and I am also vegetarian. I am struggling for choices, and feel my diet is very bland and I tend to repeat meals several times a week. Particularly eating out, or free-from sections in supermarkets are difficult. They seem to cater for both, but not the two combined
lauram1978
in
Gluten Free Guerrillas
7 months ago
occasional AF
My husband has recently had several bouts of AF lasting just a few minutes each. Heart rate only slightly raised. He is 72, pretty fit and not overweight. Had an ECG at the doctors which didn't detect AF. GP just said to leave it but call an ambulance if happens again and he is breathless. Is this how
My husband has recently had several bouts of AF lasting just a few minutes each. Heart rate only slightly raised. He is 72, pretty fit and not overweight. Had an ECG at the doctors which didn't detect AF. GP just said to leave it but call an ambulance if happens again and he is breathless. Is this how
Norfolk_spaniel
in
Atrial Fibrillation Support
2 months ago
Hello
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
StOsyths1970
in
NRAS
4 months ago
Malar rash caused by heat?
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Nome11
in
LUPUS UK
4 months ago
Multaq Side Effects
Been on 400mg of Multaq bid for a month now and have had few issues with it so far but what I have noticed is that an hour or so after taking it I become extremely fatigued to the point I have to lie down for a nap. Is this something others have experienced? I was on Amiodarone for 6 months and had zero
Been on 400mg of Multaq bid for a month now and have had few issues with it so far but what I have noticed is that an hour or so after taking it I become extremely fatigued to the point I have to lie down for a nap. Is this something others have experienced? I was on Amiodarone for 6 months and had zero
Foreverfibber
in
Atrial Fibrillation Support
2 months ago
Tapering well so far.
Down to 8 mgs methylpred. No probs so far. Going down to 6 tomorrow. I realize that this is more of a drop than recommended. I can raise and use both arms and hips haven’t frozen. Can sleep. Also, good news on queasiness from diabetes meds. Changed to Mounjaro from Ozempic. Queasiness less
Down to 8 mgs methylpred. No probs so far. Going down to 6 tomorrow. I realize that this is more of a drop than recommended. I can raise and use both arms and hips haven’t frozen. Can sleep. Also, good news on queasiness from diabetes meds. Changed to Mounjaro from Ozempic. Queasiness less
Merryfield
in
PMRGCAuk
10 months ago
metastatic prostate cancer
my dad has castrate resistant metastatic pc in bones- currently his psa is going up but his scans have been stable- he gets them Every three months- after Zytiga and xtandi are there still many treatments available- the scans were stable for over a year and he gets them Every three Months-
my dad has castrate resistant metastatic pc in bones- currently his psa is going up but his scans have been stable- he gets them Every three months- after Zytiga and xtandi are there still many treatments available- the scans were stable for over a year and he gets them Every three Months-
Chris52981
in
Advanced Prostate Cancer
7 months ago
newbie
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
Northernsouthener31
in
British Liver Trust
4 months ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
4 months ago
PSA Bounce
Hello and happy New year distinguished gentlemen. I was wondering if I may please get your input on my latest PSA which bounced from 1.2 to 1.6. Why did this happen and is this something I should be concerned about? Thanks so much. Regards.
Hello and happy New year distinguished gentlemen. I was wondering if I may please get your input on my latest PSA which bounced from 1.2 to 1.6. Why did this happen and is this something I should be concerned about? Thanks so much. Regards.
caysary
in
Advanced Prostate Cancer
7 months ago
Digoxin + Lopresspor
Is anyone on Digoxin plus Lopressor long term for chronic persistent afib and how do you feel? Thanks
Is anyone on Digoxin plus Lopressor long term for chronic persistent afib and how do you feel? Thanks
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
Paul's last day today
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Debbie_kinsey
Administrator
in
LUPUS UK
4 months ago
3 years post successful PVI RF Ablation
Had my three year check up, ECG, Holter monitor, PM diagnostic, echo and full bloods.All good. No AFIB since ablation. BP good. PM has many years left. Only meds 15mg zarelto and 40mg micardis. Still have not got back to as much energy as I would like, maybe just getting old.
Had my three year check up, ECG, Holter monitor, PM diagnostic, echo and full bloods.All good. No AFIB since ablation. BP good. PM has many years left. Only meds 15mg zarelto and 40mg micardis. Still have not got back to as much energy as I would like, maybe just getting old.
Geoffa1
in
Atrial Fibrillation Support
2 months ago
May is Vasculitis Awarenes Month
May - Day 6 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is the most common of the ANCA associated vasculitisdes, but still a rare disease. Maddie is a vasculitis warrior, take a moment to read her story. To donate to #VasculitisUK ‘s campaign this month to
May - Day 6 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is the most common of the ANCA associated vasculitisdes, but still a rare disease. Maddie is a vasculitis warrior, take a moment to read her story. To donate to #VasculitisUK ‘s campaign this month to
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
Here We Go Again
Four days ago, I reported that after 4 ‘failed’ ablations, I had undergone a ‘successful’ cardioversion for what my EP said was atrial tachycardia. For four days, I enjoyed normal sinus rhythm and a heart rate of between 50 and 70bpm. However, my joy was short lived. This evening, whilst watching a
Four days ago, I reported that after 4 ‘failed’ ablations, I had undergone a ‘successful’ cardioversion for what my EP said was atrial tachycardia. For four days, I enjoyed normal sinus rhythm and a heart rate of between 50 and 70bpm. However, my joy was short lived. This evening, whilst watching a
frankiec5
in
Atrial Fibrillation Support
2 months ago
Digoxin
Can I start Digoxin while still weaning off of Lopressor? Doc said stop lopressor and start dig no weaning needed I am a little nervous after all I read Thanks for Comments
Can I start Digoxin while still weaning off of Lopressor? Doc said stop lopressor and start dig no weaning needed I am a little nervous after all I read Thanks for Comments
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
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