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Gaucher disease type 2 (GD2)
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Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
Arrhythmias
Hi Everyone,I have Afib, 1st episode in December 2022 resolved by cardioversion followed by 2 episodes in July 2023, lasting 24 and 12 hours respectively. I am currently on 1.25 bisoporal daily. Over recent nights I have been getting arrhythmias which my scan watch and omron devices don't classify as
Hi Everyone,I have Afib, 1st episode in December 2022 resolved by cardioversion followed by 2 episodes in July 2023, lasting 24 and 12 hours respectively. I am currently on 1.25 bisoporal daily. Over recent nights I have been getting arrhythmias which my scan watch and omron devices don't classify as
Wilkie1
in
Atrial Fibrillation Support
6 months ago
fluoxetine
hi So I’ve asked before about Fluoxetine as treatment for my raynauds I’ve been told it’s extreme primary although they haven’t ruled out secondary. I’m anxious of taking drugs and wondered what experience anyone has had with fluoxetine. Effectiveness, side effects and is alcohol ok? Thanks all
hi So I’ve asked before about Fluoxetine as treatment for my raynauds I’ve been told it’s extreme primary although they haven’t ruled out secondary. I’m anxious of taking drugs and wondered what experience anyone has had with fluoxetine. Effectiveness, side effects and is alcohol ok? Thanks all
Enjoyswalking
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
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cardioversion and Flecainide
An update - I had my cardioversion privately a week ago - all good, so far….. I feel so much better. HR now around 55-60 instead of 90-100 ( on high dose drugs) I was immediately taken off Digoxin and told to continue the BB Nebivolol 10mg a day. Then started on Flecainide 100mg daily, with the BB.
An update - I had my cardioversion privately a week ago - all good, so far….. I feel so much better. HR now around 55-60 instead of 90-100 ( on high dose drugs) I was immediately taken off Digoxin and told to continue the BB Nebivolol 10mg a day. Then started on Flecainide 100mg daily, with the BB.
Canteringon
in
Atrial Fibrillation Support
6 months ago
hypertension stage 2 plus enlarged heart - is this linked to underactive thyroid? Help appreciated please
I’ve been on levothyroxine since about 2005. Back up to 125 mg per day after 9 months on 100mg. Tsh was 6.9 and t4 16 when last tested in December . Although I asked for t3 to be tested no results. im waiting for an echocardiogram in March to look at my heart as its enlarged. I’m taking spirometer
I’ve been on levothyroxine since about 2005. Back up to 125 mg per day after 9 months on 100mg. Tsh was 6.9 and t4 16 when last tested in December . Although I asked for t3 to be tested no results. im waiting for an echocardiogram in March to look at my heart as its enlarged. I’m taking spirometer
Mumsie22
in
Thyroid UK
6 months ago
Low Carb or even Keto why is not recommended with low thyroid - can I control prediabetes with diet ?
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Sleepman
in
Thyroid UK
6 months ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
8 months ago
Mirena coil
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
Hidden
in
Endometriosis UK
8 months ago
Post Cardioversion
Well, after 3 years in Afib and a failed ablation I had a cardioversion just over a week ago, and I am pleased to say I am in Normal Sinus Rhythm ( well, fingers crossed )!..Just a point. I was a runner before getting Afib, so my pulse was always low ( High 40's, 50 )... Before cardioversion my resting
Well, after 3 years in Afib and a failed ablation I had a cardioversion just over a week ago, and I am pleased to say I am in Normal Sinus Rhythm ( well, fingers crossed )!..Just a point. I was a runner before getting Afib, so my pulse was always low ( High 40's, 50 )... Before cardioversion my resting
FSsimmer
in
Atrial Fibrillation Support
6 months ago
Advice please - feeling worried
Hello all.
I need your thoughts and advice based on your experience.
Background
- I was diagnosed with AF four years ago, originally persistent and then intermittent doe to life style changes. I have lost 4 stone in weight (BMI now 29), cut out alcohol, gym 4 times a week and eat healthily
Hello all.
I need your thoughts and advice based on your experience.
Background
- I was diagnosed with AF four years ago, originally persistent and then intermittent doe to life style changes. I have lost 4 stone in weight (BMI now 29), cut out alcohol, gym 4 times a week and eat healthily
Steve101
in
Atrial Fibrillation Support
6 months ago
Now what? Second go-around of docetaxel not responding.
I am 65 years old and was Diagnosed 8 years ago with stage 4 PC. Metastasis to hips, pelvis, ribs and many lymph nodes. Took 6 rounds of docetaxel followed by ongoing Lupron injections and then 3 years of Zytiga. PSA was driven down to 2.0 from 76 with 1st 6 rounds of docetaxel. Zytiga drove PSA down
I am 65 years old and was Diagnosed 8 years ago with stage 4 PC. Metastasis to hips, pelvis, ribs and many lymph nodes. Took 6 rounds of docetaxel followed by ongoing Lupron injections and then 3 years of Zytiga. PSA was driven down to 2.0 from 76 with 1st 6 rounds of docetaxel. Zytiga drove PSA down
westjl2
in
Advanced Prostate Cancer
8 months ago
blinding period success!
This week I will hit the 3 month blinding period date! I remain in Normal sinus rhythm and will be able to discontinue my Eliquis! However 3 nights ago I began to have PAC’s. Today I recorded them pretty consistently 3-6 per minute. So bummed as I haven’t really even been aware of my heart beat in last
This week I will hit the 3 month blinding period date! I remain in Normal sinus rhythm and will be able to discontinue my Eliquis! However 3 nights ago I began to have PAC’s. Today I recorded them pretty consistently 3-6 per minute. So bummed as I haven’t really even been aware of my heart beat in last
Acheybreakeyheart
in
Atrial Fibrillation Support
6 months ago
Prednisolone for Lupus Flare
Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530
Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530
Chris5530
in
LUPUS UK
6 months ago
hydroxychloroquine and stuffy itchy nose with occasional bleeding.
My rheumatologist added hydroxychloroquine to my methotrexate regiment for my rheumatoid arthritis. After a few weeks on the hydroxychloroquine, my nose has become itchy and stuffed up, especially when lying down and I am having trouble sleeping. Has anyone else had this problem?
My rheumatologist added hydroxychloroquine to my methotrexate regiment for my rheumatoid arthritis. After a few weeks on the hydroxychloroquine, my nose has become itchy and stuffed up, especially when lying down and I am having trouble sleeping. Has anyone else had this problem?
Apm2626
in
NRAS
6 months ago
Lupron injection not working
Started one injection a month for lupron, October 2023. First psa test came back 26 in November, November got 2nd lupron injection, The second psa was 22 on December 11, 2023, Just got the third injection today, December 11, 2023. Lupron not reducing psa like the doc thought it would. doc said
Started one injection a month for lupron, October 2023. First psa test came back 26 in November, November got 2nd lupron injection, The second psa was 22 on December 11, 2023, Just got the third injection today, December 11, 2023. Lupron not reducing psa like the doc thought it would. doc said
woppaginny
in
Advanced Prostate Cancer
8 months ago
polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
8 months ago
Help For Pernicious Anaemia Injections Effect
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
So_Drained
in
Pernicious Anaemia Society
6 months ago
Olaparib for Metastatic Castration-Resistant Prostate Cancer With BRCA1 and/or BRCA2 Alterations
I know these results have been known for a while but me being germline and somatic BRCA 2, I thought it would be important to post this for those warriors with this condition. TAKE-HOME MESSAGE The phase III PROfound trial showed that patients with metastatic castration-resistant prostate cancer
I know these results have been known for a while but me being germline and somatic BRCA 2, I thought it would be important to post this for those warriors with this condition. TAKE-HOME MESSAGE The phase III PROfound trial showed that patients with metastatic castration-resistant prostate cancer
Balsam01
in
Advanced Prostate Cancer
8 months ago
cutaneous lupus
Hello Kim, I also suffer from cutaneous lupus and I have recently had it in my scalp. Have you tried dermovate hair and scalp liquid? My consultant prescribed it to me and it’s actually worked really well. It even worked on my skin. i really hope this helps you.
Hello Kim, I also suffer from cutaneous lupus and I have recently had it in my scalp. Have you tried dermovate hair and scalp liquid? My consultant prescribed it to me and it’s actually worked really well. It even worked on my skin. i really hope this helps you.
Beryl2485
in
LUPUS UK
6 months ago
Slight ache near heart
I had abdominal surgery in November. They used inappropriate dressings despite being warned and I had very inflamed skin on the stomach area. This all triggered paraxsysmal af. I then had terrible burning/itcing all over the torso for which I was prescribed strong pills. I have had a bad yeast problem
I had abdominal surgery in November. They used inappropriate dressings despite being warned and I had very inflamed skin on the stomach area. This all triggered paraxsysmal af. I then had terrible burning/itcing all over the torso for which I was prescribed strong pills. I have had a bad yeast problem
GrannyE
in
Atrial Fibrillation Support
6 months ago
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