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Experiences with
Gaucher disease type 2 (GD2)
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Dizziness
sorry not been on for a while , moved house then had another scare with my cancer in remission. It’s 2 years since my ruptured brain aneurysm, spoke to rehab consultant ( different one ) at last he listened about my dizziness and falls he has now referred me to a ENT consultant to see if he can help
sorry not been on for a while , moved house then had another scare with my cancer in remission. It’s 2 years since my ruptured brain aneurysm, spoke to rehab consultant ( different one ) at last he listened about my dizziness and falls he has now referred me to a ENT consultant to see if he can help
Blu37
in
Brain Aneurysm Support
8 months ago
Saliva cortisol test: should I talk to GP?
These are the results of my recent online purchased cortisol tests. The midday one was actually just above zero, the evening just below 1 (I think). I took the morning one at 6am, as I wake up stupid early all the time, and im wondering if it was too early. I have hashimotos, and take 150 levo per day
These are the results of my recent online purchased cortisol tests. The midday one was actually just above zero, the evening just below 1 (I think). I took the morning one at 6am, as I wake up stupid early all the time, and im wondering if it was too early. I have hashimotos, and take 150 levo per day
Where_am_I
in
Thyroid UK
8 months ago
Recent blood test results
Hi everyone I am new to the forum and would like your advice on recent blood test results please. My story of under active thyroid and now diagnosed with Graves’ disease. 2010 I was told I had an under active thyroid and was started on levothyroxine 50mcg, I was on levothyroxine in varying amounts
Hi everyone I am new to the forum and would like your advice on recent blood test results please. My story of under active thyroid and now diagnosed with Graves’ disease. 2010 I was told I had an under active thyroid and was started on levothyroxine 50mcg, I was on levothyroxine in varying amounts
Senior1449
in
Thyroid UK
8 months ago
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Most effective ablation method?
I am scheduled to have open heart surgery (OHS) to replace my aortic valve and while my chest is open the surgeon said they believe it would be a good time to perform a Maze ablation for my persistent afib. FYI: I was diagnosed with afib and tach back in 2008 - both were controlled well with flecainide
I am scheduled to have open heart surgery (OHS) to replace my aortic valve and while my chest is open the surgeon said they believe it would be a good time to perform a Maze ablation for my persistent afib. FYI: I was diagnosed with afib and tach back in 2008 - both were controlled well with flecainide
Jafib
in
Atrial Fibrillation Support
1 month ago
psoriatic arthritis
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Beata0102
in
NRAS
6 months ago
biopsy report, still waiting to see consultant.
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I don’t really understand the results, I know none of you are specialist or doctors
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I don’t really understand the results, I know none of you are specialist or doctors
Goneinsixtyseconds
in
British Liver Trust
8 months ago
Very low blood sugar - anyone had anything similar ?
Hello wise kind ones. I am/was? prediabetic prior to knowing about underactive thyroid.
Checked my blood sugar levels today. Very low. 2.1 to 4 range
. I tracked blood sugar from Dec 22 to April 23 and it was in range 5 to 8 range. HbA1c now about 43(Jan) 45 (Nov) was 47 in past a couple
Hello wise kind ones. I am/was? prediabetic prior to knowing about underactive thyroid.
Checked my blood sugar levels today. Very low. 2.1 to 4 range
. I tracked blood sugar from Dec 22 to April 23 and it was in range 5 to 8 range. HbA1c now about 43(Jan) 45 (Nov) was 47 in past a couple
Sleepman
in
Thyroid UK
6 months ago
Do you know your pulse?
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
6 months ago
High Cholesterol
Hi everyone, this is my first post. I have been experiencing symptoms of underactive thyroid and requested a blood test to look into it (this was done 2 days ago). I got a text message last night saying my routine blood test shows I have high cholesterol and advise going on statins. No mention of my
Hi everyone, this is my first post. I have been experiencing symptoms of underactive thyroid and requested a blood test to look into it (this was done 2 days ago). I got a text message last night saying my routine blood test shows I have high cholesterol and advise going on statins. No mention of my
RedorBed
in
Thyroid UK
6 months ago
Help and advice for mum
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
PerpetuallySad
in
British Liver Trust
8 months ago
Compensated liver
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
Oasisman
in
British Liver Trust
8 months ago
Confused and seeking clarification
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
HouseHead
in
British Liver Trust
8 months ago
new members
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Blood test Results AST/GGT
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Koswecan
in
British Liver Trust
8 months ago
change of medication to Atenolol from Bisoprolol
I have been on Bisoprolol for a couple of weeks but I haven’t felt great. I felt tired and foggy most of the time, struggled to get my breath and my feet were freezing. I have spoken to the pharmacist at our surgery and he has changed my medication to Atenolol even though he said Bisoprolol was the preferred
I have been on Bisoprolol for a couple of weeks but I haven’t felt great. I felt tired and foggy most of the time, struggled to get my breath and my feet were freezing. I have spoken to the pharmacist at our surgery and he has changed my medication to Atenolol even though he said Bisoprolol was the preferred
Wilky57
in
Atrial Fibrillation Support
6 months ago
liver transplant : build up
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
Meanies
in
British Liver Trust
8 months ago
Has anyone with Hashimoto or any other autoimmune condition tried low dose naltrexone ( NDL) to regulate autoimmune response?
I have multiple autoimmune diseases, such as Hashimoto, autoimmune gastritis and Reynolds. The list is growing. I am already on clean diet and manage my stress as much as I can and need to try something more than that. I have read the LDN research and keen to try. I understand it isn't a panacea
I have multiple autoimmune diseases, such as Hashimoto, autoimmune gastritis and Reynolds. The list is growing. I am already on clean diet and manage my stress as much as I can and need to try something more than that. I have read the LDN research and keen to try. I understand it isn't a panacea
sasha_nico
in
Thyroid UK
6 months ago
nail problems
Does anyone have problems with the nails on their hands? The sides of three of my nails are rough and breaking away from finger. I do have Raynauds and Scleroderma as well as Rheumatoid Arthritis lucky me! Sheena C
Does anyone have problems with the nails on their hands? The sides of three of my nails are rough and breaking away from finger. I do have Raynauds and Scleroderma as well as Rheumatoid Arthritis lucky me! Sheena C
SheenaC
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Persistent AF
Hello, for the past couple of years I have had paroxysmal AF which has taken increasingly long times to convert to NSR. The last few have been 22 hours and usually every couple of weeks or so. This time I was quite pleased as I went 22 days without, the longest interval for 18 months. However it's now
Hello, for the past couple of years I have had paroxysmal AF which has taken increasingly long times to convert to NSR. The last few have been 22 hours and usually every couple of weeks or so. This time I was quite pleased as I went 22 days without, the longest interval for 18 months. However it's now
Spj57
in
Atrial Fibrillation Support
6 months ago
Endo gave me private prescription
so, good news! The private Endo appointment went as I’d hoped and he was happy to let me try T3. I’m now trying to source it. I’ve had a no back from a couple of places on the list from Thyroid UK. Thing is, I just wanted to check as on the prescription it says triiodothyronine rather than liothyronine
so, good news! The private Endo appointment went as I’d hoped and he was happy to let me try T3. I’m now trying to source it. I’ve had a no back from a couple of places on the list from Thyroid UK. Thing is, I just wanted to check as on the prescription it says triiodothyronine rather than liothyronine
Loopnova
in
Thyroid UK
6 months ago
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