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Gaucher disease type 2 (GD2)
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Post ablation (1 week) and back in AFib. How often is this likely to happen over next few weeks?
Have had PAF for a few years and this year episodes became lengthier and more frequent, the latest lasting 4 weeks. Had a Cryo-ablation last Tuesday at Lancashire Cardiac Centre and was ok for a week, albeit with a few spells of ectopic beats and a very short run of AF (30-40 seconds only). Went on
Have had PAF for a few years and this year episodes became lengthier and more frequent, the latest lasting 4 weeks. Had a Cryo-ablation last Tuesday at Lancashire Cardiac Centre and was ok for a week, albeit with a few spells of ectopic beats and a very short run of AF (30-40 seconds only). Went on
Sorre1
in
AF Association
6 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
9 months ago
Newly diagnosed PAF by GP
Hi everyone, i was diagnosed with PAF by GP after 24hr holter monitor and referred to cardiology in July. Still waiting for cardio appt but have had s 72hr monitor in the meantime. No idea about results of that yet. My question is how do you all tell what is an Afib episode and what is eptopics or other
Hi everyone, i was diagnosed with PAF by GP after 24hr holter monitor and referred to cardiology in July. Still waiting for cardio appt but have had s 72hr monitor in the meantime. No idea about results of that yet. My question is how do you all tell what is an Afib episode and what is eptopics or other
Tropicaltaurus
in
AF Association
6 months ago
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fibroscan score and other scores
Hi all. My partner Nick has had his fibroscan score which is 32.8, CAP score is 289, child - pugh 5A, UKELD 45. Anyone know if these scores are dangerously high? I am trying to prepare myself for whats to come. Also, his stomach is swollen most of the time now. I am presuming this could be ascites
Hi all. My partner Nick has had his fibroscan score which is 32.8, CAP score is 289, child - pugh 5A, UKELD 45. Anyone know if these scores are dangerously high? I am trying to prepare myself for whats to come. Also, his stomach is swollen most of the time now. I am presuming this could be ascites
pussycat66
in
British Liver Trust
9 months ago
So girding my loins, GP's in morning,
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
Polo22
in
Thyroid UK
7 months ago
HRT and Lupus
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
RachelMaryS
in
LUPUS UK
7 months ago
Post Ablation Hypertension
I'm a male, age 88 who had persistent AF of unknown cause for 3 years, at the time on Dyazide and 10 mg Bystolic for mild essential hypertension. I had a successful RF ablation in May 2023, after which Dyazide was replaced by 20 mg Lasix, and the Bystolic was increased to 30 mg. Immediately after the
I'm a male, age 88 who had persistent AF of unknown cause for 3 years, at the time on Dyazide and 10 mg Bystolic for mild essential hypertension. I had a successful RF ablation in May 2023, after which Dyazide was replaced by 20 mg Lasix, and the Bystolic was increased to 30 mg. Immediately after the
RevDoc
in
AF Association
6 months ago
Has anyone ever been told that ablation will not work for them?
Hi all i am quite baffled as to why private cardiologist has referred me to one of his colleagues for ablation. I have been told numerous times, by nhs cardiologists, that ablation will not work to treat my afib. If fact one previous doctor said, "Ablation is out of the question due to extent of enlarged
Hi all i am quite baffled as to why private cardiologist has referred me to one of his colleagues for ablation. I have been told numerous times, by nhs cardiologists, that ablation will not work to treat my afib. If fact one previous doctor said, "Ablation is out of the question due to extent of enlarged
DizzyD
in
Atrial Fibrillation Support
6 months ago
Blood test help required
Hi all! Please could anyone advise me on my blood tests which were done as my hair is shedding like crazy. I have an underactive thyroid and about 8 weeks ago my GP increased my thyroxine to 200mcg as my TSH was 6 (she didn’t test anything else). Since the shedding has continued and I feel really tired
Hi all! Please could anyone advise me on my blood tests which were done as my hair is shedding like crazy. I have an underactive thyroid and about 8 weeks ago my GP increased my thyroxine to 200mcg as my TSH was 6 (she didn’t test anything else). Since the shedding has continued and I feel really tired
happykath
in
Thyroid UK
7 months ago
Air pollution is linked to PD
In a recent study, more than 270,000 people were followed for almost 20 years in six European countries where regular measurements of outdoor air quality take place. In the open air, the researchers looked separately at particulate matter (solid particles smaller than 2.5 micrometres, often contaminated
In a recent study, more than 270,000 people were followed for almost 20 years in six European countries where regular measurements of outdoor air quality take place. In the open air, the researchers looked separately at particulate matter (solid particles smaller than 2.5 micrometres, often contaminated
Esperanto
in
Cure Parkinson's
9 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Anticoagulation Support
2 months ago
Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
9 months ago
induced coma
my brother was put into a coma due to alcohol withdrawal, he was having seizures they put him on a ventilator. Why isn’t he breathing on his own? Is it the medication they put him on to induce the coma or damage to lungs?
my brother was put into a coma due to alcohol withdrawal, he was having seizures they put him on a ventilator. Why isn’t he breathing on his own? Is it the medication they put him on to induce the coma or damage to lungs?
Kri-27
in
ICUsteps
9 months ago
PSADT question...plus Xofigo and comorbidities
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
WeatherLook
in
Advanced Prostate Cancer
9 months ago
serum inorganic phosphate
Hello, I hope you are all keeping as well as possible. Last week I had some blood results back and have an appointment this Friday to talk to my GP about raised serum inorganic phosphate. This was measured one year ago and was in the normal range at 1.26mmoI/L. It is now 1.84mmI/L and in the abnormal
Hello, I hope you are all keeping as well as possible. Last week I had some blood results back and have an appointment this Friday to talk to my GP about raised serum inorganic phosphate. This was measured one year ago and was in the normal range at 1.26mmoI/L. It is now 1.84mmI/L and in the abnormal
Pangolin43
in
PMRGCAuk
9 months ago
And so it begins......home dialysis
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
Bassetmommer
in
Kidney Dialysis
9 months ago
Omega 3
Does anyone take Omega 3 supplements for Rheumatoid Arthritis if so do they help so many brands out there.
Does anyone take Omega 3 supplements for Rheumatoid Arthritis if so do they help so many brands out there.
welsh12
in
NRAS
7 months ago
Top tips on celebrating Diwali with Rheumatoid Arthritis
Join us in this heartfelt celebration of Diwali, the festival of lights🪔✨ Living with Rheumatoid Arthritis shouldn't mean you miss out on celebrating Diwali. Joti Reehal shares her personal experiences, tips, and inspiration to help you make the most of the festival while managing your Rheumatoid
Join us in this heartfelt celebration of Diwali, the festival of lights🪔✨ Living with Rheumatoid Arthritis shouldn't mean you miss out on celebrating Diwali. Joti Reehal shares her personal experiences, tips, and inspiration to help you make the most of the festival while managing your Rheumatoid
Aribah-NRAS
NRAS
in
NRAS
7 months ago
Thyroid antibodies test
My daughter had a thyroid antibodies test in May which was quite high. The hospital referred her back to our GP to be monitored for underactive thyroid. I have seen some posts that say antibodies test is a sign of Hashimoto's or Graves disease so I am just looking for some advice and guidance as I
My daughter had a thyroid antibodies test in May which was quite high. The hospital referred her back to our GP to be monitored for underactive thyroid. I have seen some posts that say antibodies test is a sign of Hashimoto's or Graves disease so I am just looking for some advice and guidance as I
Briggsi
in
Thyroid UK
7 months ago
Orgovyx stopped woking.
Started orgovyx 2 months ago. PSA went from 35 to 5 in first month. Second month, PSA went from 5 to 8. This month PSA is 18. Looks like cancer is castrate resistant. Anyone else had this problem. If so what did your doc switch you to and how is it working for you? I talked to my doc today, he said he
Started orgovyx 2 months ago. PSA went from 35 to 5 in first month. Second month, PSA went from 5 to 8. This month PSA is 18. Looks like cancer is castrate resistant. Anyone else had this problem. If so what did your doc switch you to and how is it working for you? I talked to my doc today, he said he
woppaginny
in
Advanced Prostate Cancer
9 months ago
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