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Gaucher disease type 2 (GD2)
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B12 made symptoms go away
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
MEguy
in
Pernicious Anaemia Society
7 months ago
blood test results
Hi all. I am age 24 male. History with excessive alcohol for the past 5 years. I recently got a full blood work carried out at my GP and my liver enzymes came back as ok, but I don’t really understand what any of it means. I tried calling my GP and it’s like trying to milk blood out of a stone
Hi all. I am age 24 male. History with excessive alcohol for the past 5 years. I recently got a full blood work carried out at my GP and my liver enzymes came back as ok, but I don’t really understand what any of it means. I tried calling my GP and it’s like trying to milk blood out of a stone
Uplight99
in
British Liver Trust
7 months ago
Nausea - Levo/Thyroid symptom?
I am at a complete and utter loss. Why as I optimise dose do I feel nauseated for days now? As of a few weeks ago I’ve been alternating doses of 75mcg own day, followed by 100mcg of Levothyroxine only for hypothyroidism (Hashimoto). Same brand throughout treatment thus far. Perhaps it’s nothing to
I am at a complete and utter loss. Why as I optimise dose do I feel nauseated for days now? As of a few weeks ago I’ve been alternating doses of 75mcg own day, followed by 100mcg of Levothyroxine only for hypothyroidism (Hashimoto). Same brand throughout treatment thus far. Perhaps it’s nothing to
HealthStarDust
in
Thyroid UK
7 months ago
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KardiaMobile and Apple Watch
I recently wore a heart monitor for two weeks. While on the monitor both my CardioMobile and my Apple Watch picked up several episodes of Afib, PACs, and Etopics. The results from the heart monitor test showed I had some episodes of PACs but otherwise the test was normal. It never picked one single
I recently wore a heart monitor for two weeks. While on the monitor both my CardioMobile and my Apple Watch picked up several episodes of Afib, PACs, and Etopics. The results from the heart monitor test showed I had some episodes of PACs but otherwise the test was normal. It never picked one single
Debjimmay
in
Atrial Fibrillation Support
3 months ago
Kellgren Centre in Manchester retains LUPUS UK Centre of Excellence award
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
Debbie_kinsey
Administrator
in
LUPUS UK
4 months ago
Confused and getting worse... Update
Hi I visited my GP today. I got a letter about my last visit and some results but I need to see my consultant for the rest. Most look OK to me just a couple outside of normal. The letter just confirmed that I have a strong family history of Rheumatoid arthritis and I exhibit organ specific autoimmune
Hi I visited my GP today. I got a letter about my last visit and some results but I need to see my consultant for the rest. Most look OK to me just a couple outside of normal. The letter just confirmed that I have a strong family history of Rheumatoid arthritis and I exhibit organ specific autoimmune
12stkeepgoing
in
Thyroid UK
4 months ago
I am so confused about bisoprolol...please help.
Hi i was prescibed 1.25 dose of bisoprolol after being admitted to a+e on 7 Feb. I have known Afib, not permanent afib. Over past year i have been told by EP, top thorasic surgeon, and several cardiologists that anti arrthymia meds and rate control meds are not an option open for me to be presribed this
Hi i was prescibed 1.25 dose of bisoprolol after being admitted to a+e on 7 Feb. I have known Afib, not permanent afib. Over past year i have been told by EP, top thorasic surgeon, and several cardiologists that anti arrthymia meds and rate control meds are not an option open for me to be presribed this
DizzyD
in
Atrial Fibrillation Support
3 months ago
Post Ablation advice please??
I underwent an RFA for Afib and Aflutter in late last year (coming up on end of blanking period) for paroxysmal afib/flutter first diagnosed 5 years ago. I have been on Flecainide and Diltiazem for several years. Prior to the ablation, I would experience episodes about 2x a week for about 12-24 hours
I underwent an RFA for Afib and Aflutter in late last year (coming up on end of blanking period) for paroxysmal afib/flutter first diagnosed 5 years ago. I have been on Flecainide and Diltiazem for several years. Prior to the ablation, I would experience episodes about 2x a week for about 12-24 hours
Jonboggs
in
AF Association
3 months ago
Elbow
Has anyone had an operation on the elbow that has rheumatoid arthritis? If so has it helped or not?
Has anyone had an operation on the elbow that has rheumatoid arthritis? If so has it helped or not?
65_women
in
PMRGCAuk
4 months ago
stomach acid
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
lifegems
in
Pernicious Anaemia Society
4 months ago
What the Heck? I thought boosting Short Chain Fatty Acids (SCFAs) was a Good Thing?
So... I'm digging into PDTom's post: Propionic acid (sodium propionate) - Does anyone have any experience? https://healthunlocked.com/cure-parkinsons/posts/150101092/propionic-acid-sodium-propionate-does-anyone-have-any-experience
And the feedback seems to be "Go Propionic Acid!" so I start
So... I'm digging into PDTom's post: Propionic acid (sodium propionate) - Does anyone have any experience? https://healthunlocked.com/cure-parkinsons/posts/150101092/propionic-acid-sodium-propionate-does-anyone-have-any-experience
And the feedback seems to be "Go Propionic Acid!" so I start
Bolt_Upright
in
Cure Parkinson's
7 months ago
Symptoms but blood tests Normal?
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
jennylouise91
in
Thyroid UK
4 months ago
My son’s PSA rose a bit today.
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
Cactus297
in
Advanced Prostate Cancer
7 months ago
My first endocrinologist visit
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
sferios
in
PMRGCAuk
7 months ago
Post 2nd Ablation Recovery
Hi All, I am 11-days in to my recovery from my second ablation procedure and wanted to check if anyone else has/had the symptoms I am suffering from; as I didn't have them after the first ablation procedure. I have two key ones as follows; 1. After walking for a few minutes and then standing still
Hi All, I am 11-days in to my recovery from my second ablation procedure and wanted to check if anyone else has/had the symptoms I am suffering from; as I didn't have them after the first ablation procedure. I have two key ones as follows; 1. After walking for a few minutes and then standing still
trevs7
in
AF Association
3 months ago
When's the "best" time to do the scan?
Well, it appears the salvage radiation done in January '23 (RP in 2019) may have been unsuccessful, as my latest PSA came back at 0.06, 3 months prior was 0.02. Obviously not yet actionable and not yet definitive for failure, but the indication that the barbarian hordes might be regrouping is apparent
Well, it appears the salvage radiation done in January '23 (RP in 2019) may have been unsuccessful, as my latest PSA came back at 0.06, 3 months prior was 0.02. Obviously not yet actionable and not yet definitive for failure, but the indication that the barbarian hordes might be regrouping is apparent
Cackalacky_cyclist
in
Advanced Prostate Cancer
7 months ago
No Afib after all
Hi everyone, well i finally had my cardio phone appointment after a 7 month wait since the GP 24 holter showed suspected PAF. (Only symptom really was a prolonged drop in blood pressure) Apparently i do not have AF after all. I should add i also had a 72 hour holter monitor from cardiology. He did say
Hi everyone, well i finally had my cardio phone appointment after a 7 month wait since the GP 24 holter showed suspected PAF. (Only symptom really was a prolonged drop in blood pressure) Apparently i do not have AF after all. I should add i also had a 72 hour holter monitor from cardiology. He did say
Tropicaltaurus
in
AF Association
3 months ago
Proctitis ? 🙏
Good morning, I am French and I come here on English-speaking forums to be able to find answers to my questions 😁 Has anyone here ever been diagnosed with proctitis? or inflammation of the intestines without pain? Thank you in advance have a good evening
Good morning, I am French and I come here on English-speaking forums to be able to find answers to my questions 😁 Has anyone here ever been diagnosed with proctitis? or inflammation of the intestines without pain? Thank you in advance have a good evening
Carl33150
in
Colon Cancer Connected
7 months ago
First dialysis.... not for a wuss
As I promised, I am going to document my journey as I have done before. Now it is hemodialysis. Holy mackerel. Anyone who thinks this is easy, let them sit in the chair for a turn and see what they think. My husband came with me and will be attending the training with me for the next five weeks. I am
As I promised, I am going to document my journey as I have done before. Now it is hemodialysis. Holy mackerel. Anyone who thinks this is easy, let them sit in the chair for a turn and see what they think. My husband came with me and will be attending the training with me for the next five weeks. I am
Bassetmommer
in
Kidney Dialysis
7 months ago
WHY WHY WHY
Suddenly my afib is visiting me a lot more frequently … it used to be every six months … now it’s every three weeks but it only lasts an hour or so and it converts to nsr. Today it happened when l returned from the gym and l was carrying very heavy bolders to put into a plant that keeps falling over
Suddenly my afib is visiting me a lot more frequently … it used to be every six months … now it’s every three weeks but it only lasts an hour or so and it converts to nsr. Today it happened when l returned from the gym and l was carrying very heavy bolders to put into a plant that keeps falling over
Janith
in
Atrial Fibrillation Support
3 months ago
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