Search
Search
About
Log in
Join
Experiences with
Gaucher disease type 2 (GD2)
Posts
Communities
44,942 public posts
Filter results
Chemo Vs ADT
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
Mike58
in
Advanced Prostate Cancer
5 months ago
Parkinson's medications and T3 interactions?
I've been hypothyroid for decades, in recent years self-dosing T3 (split dose - 50 mcg AM, 50 mcg afternoon, 12.5 mcg evening). Recently, I was formally diagnosed with Parkinson's disease (informally undiagnosed for years), and now my doctor put me on gradually increasing doses of a Levodopa/Carbidopa
I've been hypothyroid for decades, in recent years self-dosing T3 (split dose - 50 mcg AM, 50 mcg afternoon, 12.5 mcg evening). Recently, I was formally diagnosed with Parkinson's disease (informally undiagnosed for years), and now my doctor put me on gradually increasing doses of a Levodopa/Carbidopa
chrysalis56
in
Thyroid UK
7 months ago
Sticky blood! A thing or not?
Many years ago my blood tests often had to be repeated at the pathology lab because the first and second samples had set solid in transit before testing. I was told it was because I had sticky blood. Last week I saw a cardiologist who initially wanted me to take blood thinners, but as I only scored 1
Many years ago my blood tests often had to be repeated at the pathology lab because the first and second samples had set solid in transit before testing. I was told it was because I had sticky blood. Last week I saw a cardiologist who initially wanted me to take blood thinners, but as I only scored 1
jointpain
in
Arrhythmia Alliance
7 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
B1 Question ( nothing comes easy )
question at the bottom I have been reading everything I could get my hands on that was about vitamin B1 over the last couple years and I tried one B1 100 mg per day for one week about a year ago. It did not help and actually it seemed to make shaking worse. Finally I purchased Daphne Bryan's
question at the bottom I have been reading everything I could get my hands on that was about vitamin B1 over the last couple years and I tried one B1 100 mg per day for one week about a year ago. It did not help and actually it seemed to make shaking worse. Finally I purchased Daphne Bryan's
Gymsack
in
Cure Parkinson's
7 months ago
Provenge criteria necessary for acceptance.
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
SViking
in
Advanced Prostate Cancer
7 months ago
One litre of fluids
After having pneumonia with fluid on the lung I have now developed heart failure.My recent x-ray was showing I still have fluid on my lung. I don't have any shortness of breath at the moment. I was surprised to hear this. Apparently it's worse than it was. A consultant from the hospital rang me to ask
After having pneumonia with fluid on the lung I have now developed heart failure.My recent x-ray was showing I still have fluid on my lung. I don't have any shortness of breath at the moment. I was surprised to hear this. Apparently it's worse than it was. A consultant from the hospital rang me to ask
Cosychair
in
Asthma Community Forum
4 months ago
Possible Cure
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
groth12345
in
Advanced Prostate Cancer
7 months ago
Chostochondritus after cardioversion ?
Hi everyone, after a successful cardioversion I felt amazing. However, after six weeks I was told it has failed. I still felt alot better but recently it has been getting worse with some dizziness and more episodes. However, after being at A E 3 times since, the docs are sure that the chest pain on
Hi everyone, after a successful cardioversion I felt amazing. However, after six weeks I was told it has failed. I still felt alot better but recently it has been getting worse with some dizziness and more episodes. However, after being at A E 3 times since, the docs are sure that the chest pain on
Sailblue
in
AF Association
4 months ago
The Holidays can be hard!
Sometimes we dont think about the people that are alone during the holiday season. How difficult it can be with no one to reach out to. I know, l have been there. I knew l was loved, and so are you! MSAA is offering Talkspace, a private online therapy service. 🙂 Limited Space ! Dont do it alone
Sometimes we dont think about the people that are alone during the holiday season. How difficult it can be with no one to reach out to. I know, l have been there. I knew l was loved, and so are you! MSAA is offering Talkspace, a private online therapy service. 🙂 Limited Space ! Dont do it alone
Jesmcd2
CommunityAmbassador
in
My MSAA Community
5 months ago
seeking more info with yet more questions
Hello. As I begin to write this it's 5:45 in the morning here. Trying to get at least some type of sleep. Still having loads of anxiety but trying to calm myself down to at least write this. Glancing over once in a while to check oxymeter, heart rate ranging from 92 to 104, oxygen steady at 96-97.
Hello. As I begin to write this it's 5:45 in the morning here. Trying to get at least some type of sleep. Still having loads of anxiety but trying to calm myself down to at least write this. Glancing over once in a while to check oxymeter, heart rate ranging from 92 to 104, oxygen steady at 96-97.
gbn_
in
Atrial Fibrillation Support
4 months ago
Beta blockers
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
Robert1220
in
British Liver Trust
22 hours ago
Hello
Introducing myself, as I'll be looking through posts in the coming weeks... I'm 61, recently diagnosed with AF, but reckon I've been suffering for about 2 years. Biosprolol, Apixaban and Digoxin. Due to do the 'zaps' in 8-12 weeks.
Introducing myself, as I'll be looking through posts in the coming weeks... I'm 61, recently diagnosed with AF, but reckon I've been suffering for about 2 years. Biosprolol, Apixaban and Digoxin. Due to do the 'zaps' in 8-12 weeks.
MausenMumma
in
AF Association
4 months ago
Feeling Sad and scared.
Mick has been diagnosed with pancreatic cancer which the Medics think has spread too the Liver.I will give more details when I feel that I can cope. Regards Jenni uk
Mick has been diagnosed with pancreatic cancer which the Medics think has spread too the Liver.I will give more details when I feel that I can cope. Regards Jenni uk
very
in
CLL Support
5 months ago
here we go again!
As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on the off chance I could get a repeat script but I don’t why I bothered because I just got the usual response of - no chance were fully booked- ring 111. So I rang at about 4-30 pm -and 111 was also fully booked I think because
As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on the off chance I could get a repeat script but I don’t why I bothered because I just got the usual response of - no chance were fully booked- ring 111. So I rang at about 4-30 pm -and 111 was also fully booked I think because
AnniesRyder5
in
PMRGCAuk
7 months ago
new members
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
DonnaBoll
Administrator
in
PBC Foundation
20 days ago
Nees help
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
38yroldmale
in
Pernicious Anaemia Society
5 months ago
Annual Thyroid Palaver NHS
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
Sparklingsunshine
in
Thyroid UK
7 months ago
non responsive or refactory coeliac’s disease
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
RJane83
in
Gluten Free Guerrillas
5 months ago
Medication and Memory
I was diagnosed with AFib in July and my daily medication is 12-5 Bisoprolol, as well as Digoxin, Rivaroxaban and Perindopril. I’ve always had a brilliant memory but have recently become concerned that I cannot retain information for very long at all. I also seem to get spurts of random, fleeting and
I was diagnosed with AFib in July and my daily medication is 12-5 Bisoprolol, as well as Digoxin, Rivaroxaban and Perindopril. I’ve always had a brilliant memory but have recently become concerned that I cannot retain information for very long at all. I also seem to get spurts of random, fleeting and
Jonhel
in
AF Association
4 months ago
thyroid results need advice
had a test with medichecks and need advice on my results. TSH 0.61. Range 0.27-4.2Mu/L Free T3. Range 3.3 - 3.1-6.8 pmol/L Free thyroxine 20.5 range 12-22 pmol/L Looking if these levels are good or should I be on a combination of t3/t4 instead of thyroxine. Had underactive thyroid for nearly
had a test with medichecks and need advice on my results. TSH 0.61. Range 0.27-4.2Mu/L Free T3. Range 3.3 - 3.1-6.8 pmol/L Free thyroxine 20.5 range 12-22 pmol/L Looking if these levels are good or should I be on a combination of t3/t4 instead of thyroxine. Had underactive thyroid for nearly
elwins
in
Thyroid UK
5 months ago
1
...
79
80
81
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5755 results
British Liver Trust
4425 results
Advanced Prostate Cancer
4306 results
View top 10 communities
Sort by
Most Relevant
Newest