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Experiences with
Gaucher disease type 2 (GD2)
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Communities
80 public communities
AMN EASIER
1,317 members
AMN Easier was set up to help men and women who have adrenomyeloneuropathy (AMN) - to help make this disease a bit easier to live with. AMN EASIER provides information and support by (1) providing answers to health questions from other AMN patients with experience of the disease; (2) showing what other AMN patients are doing and thinking; (3) describing ideas and possibilities for therapies that could help
dRTA (distal Renal Tubular Acidosis)
478 members
dRTA (distal Renal Tubular Acidosis) is a rare type of kidney disease that can have a have major impact on a person’s health throughout their life. National Kidney Foundation has created this community to provide a source of support and general information and to help raise awareness and understanding about dRTA for patients and their families. Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
Kidney Disease
11,930 members
Welcome to the National Kidney Foundation's Community for people affected by Chronic Kidney Disease (CKD)! In this community you will find a safe and supportive space where you can share your experiences, ask questions, and get answers that are accurate and up to date. Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
FieryBones - RA Community
703 members
Rheumatoid Arthritis, or RA, is a type of auto-immune disease where the body's immune system starts attacking its own tissues and joints. It can happen at any age and is one of the most common form of arthritis. Some of the common symptoms are painful and swollen joints, fatigue and weakness. For people living with RA, it is a daily struggle to balance their personal and professional lives with the unpredictability of this painful disease. FieryBones has been created to connect all the RA warriors and caregivers throughout the world on a single platform. Nothing makes us feel better than reading inspirational blogs of how our RA peers are coping with this illness and sharing our story with the community that truly understands!
Acid Reflux Support
1,653 members
For more than three decades, the OPA has fought against oesophageal and gastric cancers, raising awareness, supporting patients, caregivers and their families. Whether you are in the early stages or further along in your journey, the OPA is dedicated to offering support and guidance. Did you know? There are over 65 Million people in the UK and it is estimated that over 1 in 10 people suffer from Reflux Disease. Reflux disease can have a terrible impact on a patients quality of life affecting many aspects of their everyday functioning. For many people, this can be managed effectively with lifestyle changes and/or medication prescribed by their GP such as omeprazole, lansoprazole and esomeprazole (as well as others). However there are over 2 million people in the UK who do not respond effectively to this treatment and for these people, there are other options they can consider to treat their disease. Head to our website for more information - https://opa.org.uk/
Foggy's "Invisible Illness" Support
5,584 members
With charitable donations, we are able to provide 2 Hydrotherapy sessions per week, for our paid members. We are dedicated to providing support, raising awareness and promoting positivity, for invisible conditions primarily for: Arthritic Condition's Chronic Fatigue Syndrome Chronic Widespread Pain Fibromyalgia Giant Cell Arteritis Long Covid M. E. Myalgic Encephalopathy Myofascial Pain Polymyalgia Rheumatic Condition's
ABDA
553 members
American Behcet's Disease Association - we aim to support patients with Behcet's disease and their families.
Children's Liver Disease Foundation
2,029 members
CLDF is a UK based national charity taking action against the effects of childhood liver disease, providing information, emotional support, research funds and a voice for all affected.
Living with Lyme Disease UK
241 members
Welcome to LWLD community! :) Here you can share your experiences about living with Lyme Disease in a non-judgemental friendly environment. The philosophy of the group to treat one another with respect & understanding focusing on bringing the Lyme community together to support each other. We aim to post relevant information or signpost members to other organisations that may give the appropriate advice. We are passionate about raising awareness & share relevant campaigns to help spread the word. Please can we kindly ask you adhere to the guidelines to make the community a supportive place for one & all. Any questions pleases contact our Volunteer Admin or alternatively email lwlymedisease@gmail.com. IMPORTANT: Living with Lyme Disease UK is NOT associated with any UK charities for Lyme disease and are an independent group for those living with Lyme Disease.
Paget’s Support
303 members
This is a safe online community for anyone affected by Paget's disease to share advice, find support and meet others who truly understand. Whether you're newly diagnosed, been living with Paget's disease for years or caring for someone affected, this is the community for you. Why not introduce yourself today: https://healthunlocked.com/pagets-support
Kidney Health New Zealand
429 members
We support patients and their families living in New Zealand who have been impacted by kidney disease.
Partners for Behcet's
528 members
We are a community dedicated to supporting those with Behcet’s Syndrome, which is a rare disease that sees the blood vessels become inflamed.
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