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Gaucher disease type 2 (GD2)
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Finally some progress
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Wolivere
in
British Liver Trust
8 months ago
What causes autoimmune diseases?
https://www.youtube.com/watch?v=PpZhLQXp__g I don't often post Youtube videos but I was much impressed by this lecture by Dr Peter Osborne and felt the need to share it. This is quite a long lecture (1 hour 50 mins) by an expert in autoimmune diseases who has rather unconventional views on the subject
https://www.youtube.com/watch?v=PpZhLQXp__g I don't often post Youtube videos but I was much impressed by this lecture by Dr Peter Osborne and felt the need to share it. This is quite a long lecture (1 hour 50 mins) by an expert in autoimmune diseases who has rather unconventional views on the subject
Frank77
in
Pernicious Anaemia Society
6 months ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
8 months ago
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Hello again. Questions with AF medications
Hi. Need to ask this question on current medications. Furosemide (water pill) 40 mg. once per day. Metoprolol (heart pill) 75 mg. twice a day. And Xarelto (blood thinner) 20 mg. once per day. Has anyone experienced any type of anxiety while on these types of AF medications? I occasionally suffer
Hi. Need to ask this question on current medications. Furosemide (water pill) 40 mg. once per day. Metoprolol (heart pill) 75 mg. twice a day. And Xarelto (blood thinner) 20 mg. once per day. Has anyone experienced any type of anxiety while on these types of AF medications? I occasionally suffer
gbn_
in
Atrial Fibrillation Support
5 months ago
Folic Acid does not cause PA
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
MEguy
in
Thyroid UK
6 months ago
nephrectomy
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
Sickey
in
MPN Voice
8 months ago
AF is back after lung cancer operation
I had a successful ablation over 4 years ago and stayed in sinus rhythm until this week. I had an operation 2 weeks ago and this week my Apple Watch detected AF. This has been confirmed by GP. Bisoprolol is increased from 5mg to 7.5 to try to reduce the heart rate. Starting that today. I was warned
I had a successful ablation over 4 years ago and stayed in sinus rhythm until this week. I had an operation 2 weeks ago and this week my Apple Watch detected AF. This has been confirmed by GP. Bisoprolol is increased from 5mg to 7.5 to try to reduce the heart rate. Starting that today. I was warned
Gincalpe
in
AF Association
5 months ago
Home testing machines
I am new to this group and I have family with afib, I have panic and anxiety with rapid heartbeat but was trying to rule out heart issues. I bought a kardiamobile ekg machine and tried it about 10 times and always got unclassified. My husband tried it and he got normal so it didnt appear to be interference
I am new to this group and I have family with afib, I have panic and anxiety with rapid heartbeat but was trying to rule out heart issues. I bought a kardiamobile ekg machine and tried it about 10 times and always got unclassified. My husband tried it and he got normal so it didnt appear to be interference
Shell2023
in
AF Association
5 months ago
So girding my loins, GP's in morning,
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
Polo22
in
Thyroid UK
6 months ago
HRT and Lupus
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
RachelMaryS
in
LUPUS UK
6 months ago
LDH Question
My typical quarterly checkup with my CLL doctor follows a certain routine - I have the blood draw and then, as soon as CBC results are available, I see the doctor or his nurse practitioner. And then, long after I've left the office, the other blood results are available, including LDH. So, in other
My typical quarterly checkup with my CLL doctor follows a certain routine - I have the blood draw and then, as soon as CBC results are available, I see the doctor or his nurse practitioner. And then, long after I've left the office, the other blood results are available, including LDH. So, in other
hhk50
in
CLL Support
8 months ago
Blood test help required
Hi all! Please could anyone advise me on my blood tests which were done as my hair is shedding like crazy. I have an underactive thyroid and about 8 weeks ago my GP increased my thyroxine to 200mcg as my TSH was 6 (she didn’t test anything else). Since the shedding has continued and I feel really tired
Hi all! Please could anyone advise me on my blood tests which were done as my hair is shedding like crazy. I have an underactive thyroid and about 8 weeks ago my GP increased my thyroxine to 200mcg as my TSH was 6 (she didn’t test anything else). Since the shedding has continued and I feel really tired
happykath
in
Thyroid UK
6 months ago
low dose naltrexone
Having Crohn’s disease I was wondering if anyone has any experience with this drug and if it has proven to be effective or not? my diet is pretty limited at moment but I’m hearing that this will inhibit inflammation to allow me to open up my diet more.
Having Crohn’s disease I was wondering if anyone has any experience with this drug and if it has proven to be effective or not? my diet is pretty limited at moment but I’m hearing that this will inhibit inflammation to allow me to open up my diet more.
Howson123
in
Crohn's and Colitis Support
8 months ago
PD sucks
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
reefeye
in
Cure Parkinson's
8 months ago
PIP when on oxygen 24/7
What a shocking past week! I've had COPD ( emphysema ) for several years but over the course of the last few weeks I've experienced a rapid decline in my breathing to the degree I could only walk a few metres before being totally out of breath. On Wednesday I attended a routine appointment at Sevenoaks
What a shocking past week! I've had COPD ( emphysema ) for several years but over the course of the last few weeks I've experienced a rapid decline in my breathing to the degree I could only walk a few metres before being totally out of breath. On Wednesday I attended a routine appointment at Sevenoaks
Nickcv
in
Lung Conditions Community Forum
5 months ago
Liver and Digestion
How has your liver disease affected your digestive system? My digestion has been unpredictable for years, sometimes constipation and sometimes diarrhea (sorry TMI). Dr always said it was IBS since nothing was seen on colonoscopies etc. I’m wondering if my digestive issues have been from my liver all
How has your liver disease affected your digestive system? My digestion has been unpredictable for years, sometimes constipation and sometimes diarrhea (sorry TMI). Dr always said it was IBS since nothing was seen on colonoscopies etc. I’m wondering if my digestive issues have been from my liver all
FlippinOut
in
British Liver Trust
8 months ago
UKIVAS Vasculitis Educational Course - Manchester November 2023
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
Suzi70
Administrator
in
Vasculitis UK
5 months ago
Can anyone Assist?
A couple of weeks ago, I partially read a lengthy and extremely interesting post explaining many aspects of PCa..., also the link between PSA and PCa and many other facts. I flagged the post to read later but for some reason the post has been deleted. Can anyone point me to this post as from what
A couple of weeks ago, I partially read a lengthy and extremely interesting post explaining many aspects of PCa..., also the link between PSA and PCa and many other facts. I flagged the post to read later but for some reason the post has been deleted. Can anyone point me to this post as from what
StuartS
in
Advanced Prostate Cancer
8 months ago
Recompensated Liver. Safe to travel.
I had my telephone consultation yesterday with my liver nurse and had some reassuring news. I asked her if I was safe to travel abroad and she said that my liver had recompensated and was functioning normal and that my bloods and scans are normal range and they have no features of concern. It will be
I had my telephone consultation yesterday with my liver nurse and had some reassuring news. I asked her if I was safe to travel abroad and she said that my liver had recompensated and was functioning normal and that my bloods and scans are normal range and they have no features of concern. It will be
Nip1
in
British Liver Trust
8 months ago
Omega 3
Does anyone take Omega 3 supplements for Rheumatoid Arthritis if so do they help so many brands out there.
Does anyone take Omega 3 supplements for Rheumatoid Arthritis if so do they help so many brands out there.
welsh12
in
NRAS
6 months ago
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