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Gaucher disease type 2 (GD2)
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Membership of the Pernicious Anaemia Society
https://pernicious-anaemia-society.org/member/ Membership of Health Unlocked is not the same as membership of the charity which represents the interests of people with PA or suspected of having PA. You can join the Society at the link above. We are an international organisation and you don't have
https://pernicious-anaemia-society.org/member/ Membership of Health Unlocked is not the same as membership of the charity which represents the interests of people with PA or suspected of having PA. You can join the Society at the link above. We are an international organisation and you don't have
PAScomms
in
Pernicious Anaemia Society
7 months ago
CLL / SLL & Autoimmune Disease ???
Recently I've had very bad fatigue, hives, joint pain/swelling, and high white cell counts indicative of inflammation. Have SLL and been on BTKs for 2.5 years but my hemo doesn't think drug side effects or disease progression are causing these symptoms. Rather, she said they could indicated a separate
Recently I've had very bad fatigue, hives, joint pain/swelling, and high white cell counts indicative of inflammation. Have SLL and been on BTKs for 2.5 years but my hemo doesn't think drug side effects or disease progression are causing these symptoms. Rather, she said they could indicated a separate
Amberesque
in
CLL Support
7 months ago
PET scan
I was diagnosed with PMR in October last year started on 60 mgs prednisol which relieved my symptoms in 3 or 4 days.Started reducing by 10 mgs every 4 weeks in December. Saw the medicina interna (I live in Spain) in July this year who suggested GCA and increased my pred to 60 again reducing by 10 mgs
I was diagnosed with PMR in October last year started on 60 mgs prednisol which relieved my symptoms in 3 or 4 days.Started reducing by 10 mgs every 4 weeks in December. Saw the medicina interna (I live in Spain) in July this year who suggested GCA and increased my pred to 60 again reducing by 10 mgs
NormaB
in
PMRGCAuk
6 months ago
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HCI and pepsin and anticoagulants
Just finished a week in Spain with daughter and had terrible heartburn, burping etc. I know I have low stomach acid because of an under active thyroid Have just ordered some Betaine Hydrochloride with pepsin tablets from Natures Best but wonder if I can take them with an anticoagulant Any
Just finished a week in Spain with daughter and had terrible heartburn, burping etc. I know I have low stomach acid because of an under active thyroid Have just ordered some Betaine Hydrochloride with pepsin tablets from Natures Best but wonder if I can take them with an anticoagulant Any
Hylda2
in
Atrial Fibrillation Support
6 months ago
Apixaban Eliquis vs Teva
Anyone had issues with Teva Apixaban? My wife has been switched from Eliqius to Teva and now has a number of side effects (anxiety/emotional, nausea, headaches, balance) that she never had while taking Eliqius for 9 years.
Anyone had issues with Teva Apixaban? My wife has been switched from Eliqius to Teva and now has a number of side effects (anxiety/emotional, nausea, headaches, balance) that she never had while taking Eliqius for 9 years.
tcpace
in
AF Association
6 months ago
Propanolol
I have been given Prop for my AF, cardiologist changed me over from Digoxin to it. I also have restless legs and they seem to have become really bad since starting prop. Does anyone else have af and rls, if so what do you take?
I have been given Prop for my AF, cardiologist changed me over from Digoxin to it. I also have restless legs and they seem to have become really bad since starting prop. Does anyone else have af and rls, if so what do you take?
Hidden
in
AF Association
6 months ago
PBC or fatty liver
Does this sound like fatty liver or PBC? I was diagnosed 9 years ago with mild fatty liver. They were checking for PBC because I had a ama m2 of 69 and a mildly elevated Alt. I lost weight and my Alt came down. US showed an enlarged liver and biopsy showed only mild fatty liver. I went back to Hepa last
Does this sound like fatty liver or PBC? I was diagnosed 9 years ago with mild fatty liver. They were checking for PBC because I had a ama m2 of 69 and a mildly elevated Alt. I lost weight and my Alt came down. US showed an enlarged liver and biopsy showed only mild fatty liver. I went back to Hepa last
Zelda5
in
British Liver Trust
9 months ago
FYI: New data on progression of visceral mets without PSA progression (discordance) and ARAT/docetaxel therapy
Interesting study, folks. We know physical progression of PCa (i.e., new metastases) can occur without PSA progression. This is known as a discordance. But we don't know how often it occurs or why it occurs. In these instances, our greatest fear is "therapy-induced neuroendocrine prostate cancer
Interesting study, folks. We know physical progression of PCa (i.e., new metastases) can occur without PSA progression. This is known as a discordance. But we don't know how often it occurs or why it occurs. In these instances, our greatest fear is "therapy-induced neuroendocrine prostate cancer
SeosamhM
in
Advanced Prostate Cancer
9 months ago
Cholesterol, Hypothyroidism, Statins
The issue of elevated cholesterol in those with undiagnosed/under medicated hypothyroidism used to be commonly known. Not so now, the information is out there but not sufficiently joined up and prominent in many doctors minds to be a frontline consideration. Thus we need to be well versed so we can
The issue of elevated cholesterol in those with undiagnosed/under medicated hypothyroidism used to be commonly known. Not so now, the information is out there but not sufficiently joined up and prominent in many doctors minds to be a frontline consideration. Thus we need to be well versed so we can
Charlie-Farley
in
Thyroid UK
6 months ago
Endo/cyst on the kidney after MRI - could this happen to you?
Hi ladies! The results came in for the first MRI (still waiting for the results of the second MRI). A cyst was spotted on one of my kidneys and the blood test indicated issues with my kidneys. I know this might indicate deep infiltrating endometriosis on the kidney/ureter or... I know that endo can lead
Hi ladies! The results came in for the first MRI (still waiting for the results of the second MRI). A cyst was spotted on one of my kidneys and the blood test indicated issues with my kidneys. I know this might indicate deep infiltrating endometriosis on the kidney/ureter or... I know that endo can lead
Endosufferer1
in
Endometriosis UK
9 months ago
Low Heart Rate
As I mentioned a few days ago, I've been waiting to hear from the Arrhythmia clinic. It's been 3 weeks and no phone call so I called today, got a voicemail. Hopefully I hear soon. Today I don't seem to have any energy and thought I would check my HR. I was shocked to see it was 43. Sure hope I don't
As I mentioned a few days ago, I've been waiting to hear from the Arrhythmia clinic. It's been 3 weeks and no phone call so I called today, got a voicemail. Hopefully I hear soon. Today I don't seem to have any energy and thought I would check my HR. I was shocked to see it was 43. Sure hope I don't
Vicmeister
in
AF Association
6 months ago
Permanent AF how do you manage?
Hi everyone , I had AF for about six years I was diagnosed after I was fond to have a leaky heart valve,I could manage my AF while I was only getting episodes say once a month but then once a week but for the last week I’m having them every day ,not sure how to cope ,perhaps some of you lovely people
Hi everyone , I had AF for about six years I was diagnosed after I was fond to have a leaky heart valve,I could manage my AF while I was only getting episodes say once a month but then once a week but for the last week I’m having them every day ,not sure how to cope ,perhaps some of you lovely people
Fattypatty
in
AF Association
3 months ago
Brain metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
pca2004
in
Fight Prostate Cancer
9 months ago
AUA 2023: PSA Response and Time-to-Castration Resistance Among Patients with mCSPCa Initiated on Apalutamide, Enzalutamide, or Abiraterone
The objective of this study was to describe a “real-world” experience of mCSPC patients treated with apalutamide, enzalutamide, and abiraterone acetate, with a focus on PSA response and development of castration resistance outcomes. This study identified patients with mCSPC newly initiated on apalutamide
The objective of this study was to describe a “real-world” experience of mCSPC patients treated with apalutamide, enzalutamide, and abiraterone acetate, with a focus on PSA response and development of castration resistance outcomes. This study identified patients with mCSPC newly initiated on apalutamide
skiingfiend
in
Advanced Prostate Cancer
9 months ago
Cortisol/DHEA results
Hi I recently had a Regenerus test, due to my frequent adrenaline surges, and just feeling generally awful. To be honest, I thought the results were going to say my cortisol was high, but I think the results suggest the opposite? Could anyone take a look and let me know? Cortisol AM30 24 nmol
Hi I recently had a Regenerus test, due to my frequent adrenaline surges, and just feeling generally awful. To be honest, I thought the results were going to say my cortisol was high, but I think the results suggest the opposite? Could anyone take a look and let me know? Cortisol AM30 24 nmol
Justine_Case
in
Thyroid UK
9 months ago
Thyroid s and high cortisol
hello. 9months ago I switched from 100 mcg eurothyrox to thyroid -s and have been having major issues. Today I threw in the towel and am trying out a t4/t3 combo instead. Question - on ndt 1 grain my cortisol saliva test at 8-12 and 16 are double then they should be , 2 or even 3 times higher at 16.00
hello. 9months ago I switched from 100 mcg eurothyrox to thyroid -s and have been having major issues. Today I threw in the towel and am trying out a t4/t3 combo instead. Question - on ndt 1 grain my cortisol saliva test at 8-12 and 16 are double then they should be , 2 or even 3 times higher at 16.00
MiaMam
in
Thyroid UK
9 months ago
medication after open heart surgery
is there anyone on this site who has had a heart valve replacement and is now using biologic meds to control their ra? If so, I’d love to hear your experience. I was born with a bicuspid aortic valve which needed replacing in June (an event hastened by a toxic reaction to leflunomide). I’ve had an Inspiris
is there anyone on this site who has had a heart valve replacement and is now using biologic meds to control their ra? If so, I’d love to hear your experience. I was born with a bicuspid aortic valve which needed replacing in June (an event hastened by a toxic reaction to leflunomide). I’ve had an Inspiris
Emye343
in
NRAS
6 months ago
Care at High-Volume Radiation Treatment Centers Tied to Higher Survival
Published in Oncology News · August 17, 2023 Care at High-Volume Radiation Treatment Centers Tied to Higher Survival Findings seen among men with very high-risk prostate cancer HealthDay WEDNESDAY, Aug. 16, 2023 (HealthDay News) -- Among men with very high-risk prostate cancer, higher radiation
Published in Oncology News · August 17, 2023 Care at High-Volume Radiation Treatment Centers Tied to Higher Survival Findings seen among men with very high-risk prostate cancer HealthDay WEDNESDAY, Aug. 16, 2023 (HealthDay News) -- Among men with very high-risk prostate cancer, higher radiation
Balsam01
in
Advanced Prostate Cancer
9 months ago
Covid Vaccination Study
COVID-19 Vaccines 'May Trigger' Rheumatic Inflammatory Diseases: Study https://healthunlocked.com/redirect?url=https%3A%2F%2Fwww.theepochtimes.com%2Fhealth%2Fcovid-19-vaccines-may-trigger-rheumatic-inflammatory-diseases-study-5508547%3Futm_source%3Dref_share%26src_src%3Dref_share%26utm_campaign%3Dmb-cc
COVID-19 Vaccines 'May Trigger' Rheumatic Inflammatory Diseases: Study https://healthunlocked.com/redirect?url=https%3A%2F%2Fwww.theepochtimes.com%2Fhealth%2Fcovid-19-vaccines-may-trigger-rheumatic-inflammatory-diseases-study-5508547%3Futm_source%3Dref_share%26src_src%3Dref_share%26utm_campaign%3Dmb-cc
noslak
in
PMRGCAuk
7 months ago
Wonderful News - portal hypertension reversal
I am filled with joy to let you know that I got my duplex vascular Doppler ultrasound results back and I do NOT have portal hypertension!!! 😁 I have mild cirrhosis. Scarring/fibrosis. Everything after that is excellent news! Normal pancreas, gallbladder, kidney and SPLEEN! 🥳 it’s 11 cm. Not
I am filled with joy to let you know that I got my duplex vascular Doppler ultrasound results back and I do NOT have portal hypertension!!! 😁 I have mild cirrhosis. Scarring/fibrosis. Everything after that is excellent news! Normal pancreas, gallbladder, kidney and SPLEEN! 🥳 it’s 11 cm. Not
Greengal314
in
British Liver Trust
9 months ago
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