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Gaucher disease type 2 (GD2)
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PSA of <0.1 undetectable?
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
pj1121
in
Advanced Prostate Cancer
8 months ago
B1 therapy side effects
Hi, I am 55 years old male diagnosed with PD about 5 years ago. Started B1 therapy couple of days ago in consultation with my Neurologist. He suggested 100 mg Thiamine oral tablets 3 times a day for 10 days and taper down after 10 days. However severe side effects like feverish, body aches, headache
Hi, I am 55 years old male diagnosed with PD about 5 years ago. Started B1 therapy couple of days ago in consultation with my Neurologist. He suggested 100 mg Thiamine oral tablets 3 times a day for 10 days and taper down after 10 days. However severe side effects like feverish, body aches, headache
ashok200
in
Cure Parkinson's
8 months ago
Selbourn
Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows. I am also having very vivid bad dreams, is anyone
Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows. I am also having very vivid bad dreams, is anyone
Selbourn
in
Vasculitis UK
6 months ago
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Recommendations for Endos in/near Berkshire
Just wondered if anyone has any recommendations for endos in or around Berkshire if they could pm me. I have seen one recently who has said he doesn't think I've ever had a thyroid problem as I was borderline when diagnosed but still have many symptoms. My TSH is very low but I am on a combination
Just wondered if anyone has any recommendations for endos in or around Berkshire if they could pm me. I have seen one recently who has said he doesn't think I've ever had a thyroid problem as I was borderline when diagnosed but still have many symptoms. My TSH is very low but I am on a combination
JRosemaryW
in
Thyroid UK
6 months ago
Forum Updates from 29 February 2024
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
6 months ago
PAF … ? Further echo
Hi all, I’ve been quiet on the group for a while now as after my horrible introduction to rapid AF 18 months ago prompting a couple of stays in CCU things have settled on meds. The cardiologist has discharged me back to the Gp , apart from ectopics & odd thumps/ bumps I am well on adizem & flecanide
Hi all, I’ve been quiet on the group for a while now as after my horrible introduction to rapid AF 18 months ago prompting a couple of stays in CCU things have settled on meds. The cardiologist has discharged me back to the Gp , apart from ectopics & odd thumps/ bumps I am well on adizem & flecanide
Sniggetts
in
Atrial Fibrillation Support
2 months ago
Hashimoto's & Multiple Sclerosis (apologies for two posts in very quick succession!)
Hello - first off, sorry for making two posts in quick succession asking for help! As I mentioned in my first question about an Endo Department, there has been a 'twist' in my Hashi's (I actually have Ord's: autoimmune thyroid disease with no goitre) story... Over the course of several blood tests,
Hello - first off, sorry for making two posts in quick succession asking for help! As I mentioned in my first question about an Endo Department, there has been a 'twist' in my Hashi's (I actually have Ord's: autoimmune thyroid disease with no goitre) story... Over the course of several blood tests,
ERIC107
in
Thyroid UK
6 months ago
Methotrexate
Been on methotrexate 15mg for 16 wks have psoriatic arthritis, rheumatoid arthritis helps my nails n skin but my joint feel worse now was out on another 5 mg from last Monday fell dreadfully n breathless n more pain n my feet and feel my blood vessels all tight n pulling any body else have this
Been on methotrexate 15mg for 16 wks have psoriatic arthritis, rheumatoid arthritis helps my nails n skin but my joint feel worse now was out on another 5 mg from last Monday fell dreadfully n breathless n more pain n my feet and feel my blood vessels all tight n pulling any body else have this
Teddie111
in
NRAS
6 months ago
Moderate Calcification
Good morning all, I was recently invited for a lung check and have been recalled as the scan showed moderate Calcification. As I like to be proactive and believe this is due to fatty diet, are there any recommendations for menus that will halt (improve?) This condition. My brother dies with this condition
Good morning all, I was recently invited for a lung check and have been recalled as the scan showed moderate Calcification. As I like to be proactive and believe this is due to fatty diet, are there any recommendations for menus that will halt (improve?) This condition. My brother dies with this condition
1AnneMcC
in
Healthy Eating
6 months ago
Can i take vacation when already 5 years PSA < 0.01
Cancer of the prostate and pelvic lymph nodes found with PET 1, MRI, biopsy, PSA=100. - After 6 cycles of chemotherapy with docetaxel and ADT-ELIGARD with PET 2 and PET 3 show a rapid decrease in the size of the lymph nodes and their emission of SUV, as well as the disappearance of several of them
Cancer of the prostate and pelvic lymph nodes found with PET 1, MRI, biopsy, PSA=100. - After 6 cycles of chemotherapy with docetaxel and ADT-ELIGARD with PET 2 and PET 3 show a rapid decrease in the size of the lymph nodes and their emission of SUV, as well as the disappearance of several of them
Vasili
in
Advanced Prostate Cancer
8 months ago
Post Amiodarone and waiting for ablation
I was on Amiodarone for 12 months after diagnosis of persistent AF post Covid and stopped taking it in October '23. I had a cardioversion in June and as far as I'm aware I'm still in sinus rhythm. I'm on the list for an ablation at the John Radcliffe in Oxford. I had a couple of blood tests, at my
I was on Amiodarone for 12 months after diagnosis of persistent AF post Covid and stopped taking it in October '23. I had a cardioversion in June and as far as I'm aware I'm still in sinus rhythm. I'm on the list for an ablation at the John Radcliffe in Oxford. I had a couple of blood tests, at my
JoDogBlue
in
Atrial Fibrillation Support
6 months ago
Update B12 appointment . help needed
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Welshtoffee
in
Pernicious Anaemia Society
6 months ago
Pressure onback causing AF
I lay on my left side today and nasty afib came on within a couple minutes same on back. I then tried lying on right side and i felt ok with my EMAY ecg saying bradycardia. I qent to GP and she will book me in for xray back and front.Colin
I lay on my left side today and nasty afib came on within a couple minutes same on back. I then tried lying on right side and i felt ok with my EMAY ecg saying bradycardia. I qent to GP and she will book me in for xray back and front.Colin
Alphakiwi
in
Atrial Fibrillation Support
6 months ago
SPECT scan horror
I had a SPECT scan after first does of Pluvicto. I had no idea how horrible a scan could be. There are things that project out to get as close to you as possible. I have had many CT scans MRIs PET scans but this is different. I do have a bit of claustrophobia but never felt this horrible before. They
I had a SPECT scan after first does of Pluvicto. I had no idea how horrible a scan could be. There are things that project out to get as close to you as possible. I have had many CT scans MRIs PET scans but this is different. I do have a bit of claustrophobia but never felt this horrible before. They
spencoid2
in
Advanced Prostate Cancer
8 months ago
Open Heart Surgery Ahead
Born with a bicuspid valve I guessed this day was coming…just not so soon! I will be 56 when they open my chest on August 15th. I would much rather have the TAVR procedure but at my age the long term planning doesn’t support that method at this time. So, OHD it is. I have significant procedural anxiety
Born with a bicuspid valve I guessed this day was coming…just not so soon! I will be 56 when they open my chest on August 15th. I would much rather have the TAVR procedure but at my age the long term planning doesn’t support that method at this time. So, OHD it is. I have significant procedural anxiety
Jafib
in
Atrial Fibrillation Support
2 months ago
multaq and increased heart beat
Hi everyone haven’t posted for a while,but reading the site daily. Had my third ablation in October 2023 mostly for atypical flutter,procedure wasn’t long but quite extensive judging from post procedure troponin elevations over 20,000.Placed on Multaq afterwards as I already failed all other meds and
Hi everyone haven’t posted for a while,but reading the site daily. Had my third ablation in October 2023 mostly for atypical flutter,procedure wasn’t long but quite extensive judging from post procedure troponin elevations over 20,000.Placed on Multaq afterwards as I already failed all other meds and
55zuzanka61
in
AF Association
6 months ago
Remission now flare.
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
pool0009
in
NRAS
6 months ago
The ups and downs of our rollercoaster OC journeys
When I recovered from debulking earlier this year I gave myself a good talking to and vowed not to let myself go from blood check to blood check worrying about them. I was so pleased my first check showed bloods were normal so thought my plan was working but then prior to the 6 month check developed
When I recovered from debulking earlier this year I gave myself a good talking to and vowed not to let myself go from blood check to blood check worrying about them. I was so pleased my first check showed bloods were normal so thought my plan was working but then prior to the 6 month check developed
Jholly4
in
My Ovacome
8 months ago
Hello
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Tray68
in
LUPUS UK
6 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
6 months ago
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