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Experiences with
Gaucher disease type 2 (GD2)
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flare?
Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs of Prednisolone but the last week I have felt awful. Very tired, my body aches, no energy. I had a total knee replacement 3 months ago and I’m due to go back to part time work next weds. Should I increase my pred for a couple
Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs of Prednisolone but the last week I have felt awful. Very tired, my body aches, no energy. I had a total knee replacement 3 months ago and I’m due to go back to part time work next weds. Should I increase my pred for a couple
kentish61
in
PMRGCAuk
1 year ago
Curious
Hi wondering if anyone has had groin discomfort in their CLL journey, l have for a couple of weeks on and off,l do gardening when fatigue allows me too so could be a strain,thanks all.
Hi wondering if anyone has had groin discomfort in their CLL journey, l have for a couple of weeks on and off,l do gardening when fatigue allows me too so could be a strain,thanks all.
sun_flower
in
CLL Support
1 year ago
Has anyone tried Celadrin or Glucosamine Sulphate for Fibro?
Hi, I recently read an article about someone with fibromyalgia who said Celadrin cream really helped them with their stiff muscles. I then did some reading of my own about it and found that celadrin works best when combined with glucosamine sulphate. Has anyone tried either of these for their fibro?
Hi, I recently read an article about someone with fibromyalgia who said Celadrin cream really helped them with their stiff muscles. I then did some reading of my own about it and found that celadrin works best when combined with glucosamine sulphate. Has anyone tried either of these for their fibro?
Twin4Life
in
Fibromyalgia Action UK
7 days ago
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Glucosamine Sulphate.
Hello Fybro family, I hope you are all keeping as well as you can. Does anyone take the supplement Glucosamine Sulphate? A friend thought it might help with the pain & stiffness, though can't seem to find too much information about whether it helps with fibromyralgia. I'd be grateful in hearing about
Hello Fybro family, I hope you are all keeping as well as you can. Does anyone take the supplement Glucosamine Sulphate? A friend thought it might help with the pain & stiffness, though can't seem to find too much information about whether it helps with fibromyralgia. I'd be grateful in hearing about
Dreamgreen
in
Fibromyalgia Action UK
8 days ago
Suspected Malabsorption
I have an underactive thyroid, after a few months of being diagnosed I was losing nutrients I told my doctor I thought I had malabsorption syndrome, they never said anything and they order a test for celiac but was negative, I've been supplementing with vitamins since.... But over the last 3 weeks/month
I have an underactive thyroid, after a few months of being diagnosed I was losing nutrients I told my doctor I thought I had malabsorption syndrome, they never said anything and they order a test for celiac but was negative, I've been supplementing with vitamins since.... But over the last 3 weeks/month
Jojomcc
in
Thyroid UK
14 days ago
Tryptophan vs L-tryptophan, which is best?
I have long had a sneaky suspicion that serotonin is more important for me than dopamine. So now I am moving my focus to boosting those levels. I am completely confused about the difference between straight tryptophan, and the "L" kind. Anyone able to enlighten me?
I have long had a sneaky suspicion that serotonin is more important for me than dopamine. So now I am moving my focus to boosting those levels. I am completely confused about the difference between straight tryptophan, and the "L" kind. Anyone able to enlighten me?
gomelgo
in
Cure Parkinson's
20 days ago
What's your experience of coming of steroids
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
Autolupus
in
LUPUS UK
1 year ago
My type 2 diabetes
Hello there, hope everyone is healthy today! I’m 26 years old male from India. Two years back, I was diagnosed with type 2 diabetes when I visited the doctor for some other reason. It was no surprise to me as both my parents have type 2 diabetes and I am also moderately obese with no physical activity
Hello there, hope everyone is healthy today! I’m 26 years old male from India. Two years back, I was diagnosed with type 2 diabetes when I visited the doctor for some other reason. It was no surprise to me as both my parents have type 2 diabetes and I am also moderately obese with no physical activity
secretsubject
in
Diabetes India
1 year ago
Distortion of Hba1c test with levo
Hi Someone asked me to give further info about my claim that HbA1c tests cannot be relied upon if you are being treated with levothyroxine. I can't find that request now so I'm starting a new thread. The clearest statement is on the American Thyroid Association website.
WHAT ARE THE IMPLICATIONS
Hi Someone asked me to give further info about my claim that HbA1c tests cannot be relied upon if you are being treated with levothyroxine. I can't find that request now so I'm starting a new thread. The clearest statement is on the American Thyroid Association website.
WHAT ARE THE IMPLICATIONS
Pearlteapot
in
Thyroid UK
1 year ago
What I learned about steroids and blood sugar levels from wearing a continuous glucose monitor (CGM) on the ZOE program
I’ve just finished using a CGM for 2 weeks as a paying participant in the ZOE study, which I mentioned in a previous post: https://healthunlocked.com/pmrgcauk/posts/149526653/ive-signed-up-for-tim-spectors-zoe-study-looking-at-blood-sugars-and-gut-health Many PMR and GCA patients, self-included, have
I’ve just finished using a CGM for 2 weeks as a paying participant in the ZOE study, which I mentioned in a previous post: https://healthunlocked.com/pmrgcauk/posts/149526653/ive-signed-up-for-tim-spectors-zoe-study-looking-at-blood-sugars-and-gut-health Many PMR and GCA patients, self-included, have
tangocharlie
in
PMRGCAuk
1 year ago
levo with statin
Is it safe for me to use atorvastatin, a statin medication, to lower my cholesterol levels while also taking levothyroxine?
Is it safe for me to use atorvastatin, a statin medication, to lower my cholesterol levels while also taking levothyroxine?
Abdullahdalmar
in
Thyroid UK
1 year ago
LCHF / IF for August?
Hi all The title means Low Carbohydrate High Fat / Intermittent fasting. Both are ways of eating that can help people loose weight without the need to count calories or eat less and without the need to go hungry. Both ways of eating can also help to ease several health conditions. IF and LCHF work
Hi all The title means Low Carbohydrate High Fat / Intermittent fasting. Both are ways of eating that can help people loose weight without the need to count calories or eat less and without the need to go hungry. Both ways of eating can also help to ease several health conditions. IF and LCHF work
Professor-Yaffle
Visitor
in
Weight Loss Support
1 year ago
Crockpot recipes
Hello, as a heart attack surviver I am on a wholefood, low carb, low sugar campaign and with the above and intermittent fasting ( GP approved)I am 2 stone lighter than when I came out of hospital on 3d March this year . I am looking for some good recipe ideas for a Crockpot! It's my latest toy and I'm
Hello, as a heart attack surviver I am on a wholefood, low carb, low sugar campaign and with the above and intermittent fasting ( GP approved)I am 2 stone lighter than when I came out of hospital on 3d March this year . I am looking for some good recipe ideas for a Crockpot! It's my latest toy and I'm
Instructor57
in
Healthy Eating
1 year ago
'But you look OK'
I don't look OK, spinal curvature, so I've never had this. Can folks explain to me where the idiots who say this are coming from? Broken limbs, skin conditions, people don't look OK. Systemic conditions, heart, liver, kidneys, GI, people being correctly treated look OK. My SIL has myeloma - but she
I don't look OK, spinal curvature, so I've never had this. Can folks explain to me where the idiots who say this are coming from? Broken limbs, skin conditions, people don't look OK. Systemic conditions, heart, liver, kidneys, GI, people being correctly treated look OK. My SIL has myeloma - but she
Mayadill
in
PMRGCAuk
1 year ago
High cholesterol
Just had telephone consultation with my gp, he said my cholesterol is 8.2 and I have high triglycerides. He offered me statins, I said I d think about it.Im writing this because I am a bit shocked and unsure what to do next. Any advice most welcome. Im taking 75/100 mcg teva levothyroxine alternate
Just had telephone consultation with my gp, he said my cholesterol is 8.2 and I have high triglycerides. He offered me statins, I said I d think about it.Im writing this because I am a bit shocked and unsure what to do next. Any advice most welcome. Im taking 75/100 mcg teva levothyroxine alternate
Geegee777
in
Thyroid UK
10 months ago
Post Surgery Query
Hi there, I had a lap, hysteroscopy and curettage 3 days ago. Unattached ovary from back of uterus and removed the scar tissue from it, excision of 3 points of endo on other ovary, slight ablation of endo on bladder and removed a big piece of tissue from top to bottom of uterus. Reading everything
Hi there, I had a lap, hysteroscopy and curettage 3 days ago. Unattached ovary from back of uterus and removed the scar tissue from it, excision of 3 points of endo on other ovary, slight ablation of endo on bladder and removed a big piece of tissue from top to bottom of uterus. Reading everything
Oneday_
in
Endometriosis UK
10 hours ago
Circulating Lipid Profiles Associated With Resistance to Androgen Deprivation Therapy in Localized Prostate Cancer
Circulating Lipid Profiles Associated With Resistance to Androgen Deprivation Therapy in Localized Prostate Cancer Authors: Hui-Ming Lin, PhD https://orcid.org/0000-0003-4892-6008, Xiaoyu Yang, MS https://orcid.org/0009-0001-0035-9289, Margaret M. Centenera, PhD https://orcid.org/0000-0002-2206-0632
Circulating Lipid Profiles Associated With Resistance to Androgen Deprivation Therapy in Localized Prostate Cancer Authors: Hui-Ming Lin, PhD https://orcid.org/0000-0003-4892-6008, Xiaoyu Yang, MS https://orcid.org/0009-0001-0035-9289, Margaret M. Centenera, PhD https://orcid.org/0000-0002-2206-0632
podsart
in
Advanced Prostate Cancer
14 hours ago
At what PSA will a PSMA PET scan be useful?
Hi everyone My father has been on Lupron for 3 years now. We stopped Abi last year due to rising blood sugar levels. His PSA used to hover between 0.6-0.8 (with an occasional spike to 1.2). PSA in May 24 was 0.6. Today, however, his PSA came back as 2.5. Plan is to restart Abi and monitor. But I wanted
Hi everyone My father has been on Lupron for 3 years now. We stopped Abi last year due to rising blood sugar levels. His PSA used to hover between 0.6-0.8 (with an occasional spike to 1.2). PSA in May 24 was 0.6. Today, however, his PSA came back as 2.5. Plan is to restart Abi and monitor. But I wanted
Rodeoz15
in
Advanced Prostate Cancer
14 hours ago
Recurrent prostate cancer at 5 months after radical prostatectomy, with psa up to 0.2. PSMA and MRI negative. Now on Leuprolide and Nubeqa.
My Gleason was 9. Incontinence has been an issue since the RP and even though it has improved still leaked around 30 ml a day. Delaying radiation that I was recommended by one institution but some Oncologists say to delay radiation for more recovery. Even though my PSA is 0.01 on the meds, i worry
My Gleason was 9. Incontinence has been an issue since the RP and even though it has improved still leaked around 30 ml a day. Delaying radiation that I was recommended by one institution but some Oncologists say to delay radiation for more recovery. Even though my PSA is 0.01 on the meds, i worry
Chipichape1
in
Advanced Prostate Cancer
1 day ago
zytiga/pred treatment
please tell me the psa results once you started this combo and the drop in psa over time, does it take months before psa drops or does or should it happen quickly? mine was at 55.2 down to 38.3 then 39.4 in past two months so sm now wondering as tal thought, I am too late to start this combo? I do
please tell me the psa results once you started this combo and the drop in psa over time, does it take months before psa drops or does or should it happen quickly? mine was at 55.2 down to 38.3 then 39.4 in past two months so sm now wondering as tal thought, I am too late to start this combo? I do
billyboy3
in
Advanced Prostate Cancer
2 days ago
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