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Experiences with
Gaucher disease type 2 (GD2)
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terminal illness
my son was diagnosed with cirrhosis through alcohol 2 and a half years ago . He was given 2. -3 month to live . He stopped all alcohol immediately . Since then he’s had a TIPS procedure for ascities and he takes water tablets . His bloods are nearly all stable and the only symptoms he has is ascities
my son was diagnosed with cirrhosis through alcohol 2 and a half years ago . He was given 2. -3 month to live . He stopped all alcohol immediately . Since then he’s had a TIPS procedure for ascities and he takes water tablets . His bloods are nearly all stable and the only symptoms he has is ascities
Mango5cm
in
British Liver Trust
2 days ago
So many emotions
Hi, newly diagnosed NAFLD Cirrhosis severe F4, also type 2 diabetic.Saw consultant last week with results of fibroscan, he wasn't very helpful, told me Google for information, he's arranging for an endoscopy which I'm petrified about to check for bleeding and cancer and said I need to loose weight. When
Hi, newly diagnosed NAFLD Cirrhosis severe F4, also type 2 diabetic.Saw consultant last week with results of fibroscan, he wasn't very helpful, told me Google for information, he's arranging for an endoscopy which I'm petrified about to check for bleeding and cancer and said I need to loose weight. When
Mushroom2024
in
British Liver Trust
2 days ago
Common drug restores youthful function to clean up aging brains
A drug used to induce labor in pregnant women has been shown to reactivate tiny waste-clearing pumps in the brains of old mice.
The finding could hold promise as a new way to fight Alzheimer's and Parkinson's diseases and overall cognitive decline.
https://newatlas.com/health-wellbeing/pregnancy-drug-brain
A drug used to induce labor in pregnant women has been shown to reactivate tiny waste-clearing pumps in the brains of old mice.
The finding could hold promise as a new way to fight Alzheimer's and Parkinson's diseases and overall cognitive decline.
https://newatlas.com/health-wellbeing/pregnancy-drug-brain
Gcf51
in
Cure Parkinson's
2 days ago
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Thursday's Thoughts
I always try to chat about something I feel is important for everyone to know about. Today I want to go to something very basic - your Urso dosage.
1. Urso is the proven first line treatment for PBC and should be started as soon as PBC is suspected
2. The dose is
[u]
always[/
I always try to chat about something I feel is important for everyone to know about. Today I want to go to something very basic - your Urso dosage.
1. Urso is the proven first line treatment for PBC and should be started as soon as PBC is suspected
2. The dose is
[u]
always[/
DonnaBoll
Administrator
in
PBC Foundation
2 days ago
[Effect of Autophagy Inhibitor Hydroxychloroquine on Chemosensitivity of Castration-resistant Prostate Cancer]
https://pubmed.ncbi.nlm.nih.gov/31631597/
https://pubmed.ncbi.nlm.nih.gov/31631597/
85745
in
Advanced Prostate Cancer
3 days ago
Symposium on AR related to prostate cancer
just to know what doctors talk about when they meet! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11253403/
just to know what doctors talk about when they meet! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11253403/
Maxone73
in
Advanced Prostate Cancer
3 days ago
UPDATE- PSA JOURNEY
Hi folks I have just had my regular blood tests. It was actually quite funny. My oncologist is not one for laughing but I interrupted him just as he was about to tell me my latest "score" and told him my prognosis after a 4 month gap was 0.38 - he laughed as he told me the bloodtest gave 0.39. Theres
Hi folks I have just had my regular blood tests. It was actually quite funny. My oncologist is not one for laughing but I interrupted him just as he was about to tell me my latest "score" and told him my prognosis after a 4 month gap was 0.38 - he laughed as he told me the bloodtest gave 0.39. Theres
Stoneartist
in
Advanced Prostate Cancer
3 days ago
Need Advice
I recently completed 23 radiation treatments of EBRT at Cedars Siani in LA for recurrent prostate Cancer. The cancer was in a lymph node near the prostate gland. My RO has informed me that we will check PSA in November to see if the treatments were successful. I mentioned doing a PSMA Pet Scan in addition
I recently completed 23 radiation treatments of EBRT at Cedars Siani in LA for recurrent prostate Cancer. The cancer was in a lymph node near the prostate gland. My RO has informed me that we will check PSA in November to see if the treatments were successful. I mentioned doing a PSMA Pet Scan in addition
Jimbo47
in
Advanced Prostate Cancer
3 days ago
ELF score
My husband is a 44M, 6'1, 20.5 stone (was 21.5st, recently lost a stone in a couple of months). He'd been feeling off since beginning of the year. Began getting neck and shoulder pain, saying he must have slept wrong but it's happening far too frequently for that to be the case. I did a urine dipstick
My husband is a 44M, 6'1, 20.5 stone (was 21.5st, recently lost a stone in a couple of months). He'd been feeling off since beginning of the year. Began getting neck and shoulder pain, saying he must have slept wrong but it's happening far too frequently for that to be the case. I did a urine dipstick
Mamastevens2008
in
British Liver Trust
3 days ago
Wednesday's Word
[u][i]
NAFLD - non alcoholic fatty liver disease
[/i][/u] This is a very common chronic disease characterized by the deposit of fat in the liver cells. When it is also accompanied by inflammation it is known as NASH. This stands for non alcoholic steatohepatitis. NAFLD is said to be the biggest
[u][i]
NAFLD - non alcoholic fatty liver disease
[/i][/u] This is a very common chronic disease characterized by the deposit of fat in the liver cells. When it is also accompanied by inflammation it is known as NASH. This stands for non alcoholic steatohepatitis. NAFLD is said to be the biggest
DonnaBoll
Administrator
in
PBC Foundation
4 days ago
low cortisol
hello, I’ve repeatedly had lowish 9am cortisol (around 250ish mark) but passed SST. However, private endo has said he wants to trial a low dose of hydrocortisone to see if it helps my symptoms of chronic fatigue, headaches, muscle aches etc. etc. I’m nervous to trial a steroid when I don’t have Addison
hello, I’ve repeatedly had lowish 9am cortisol (around 250ish mark) but passed SST. However, private endo has said he wants to trial a low dose of hydrocortisone to see if it helps my symptoms of chronic fatigue, headaches, muscle aches etc. etc. I’m nervous to trial a steroid when I don’t have Addison
RoseStar
in
Thyroid UK
4 days ago
Adrenal glands and reflexology
I’ve just had an amazing experience at a reflexology appointment (on a holiday with my Mum). At the end of the session the therapist asked to look something up and then said ‘you’ve got a blockage in your adrenal glands’. I hadn’t mentioned anything about steroids or adrenals before and she said it
I’ve just had an amazing experience at a reflexology appointment (on a holiday with my Mum). At the end of the session the therapist asked to look something up and then said ‘you’ve got a blockage in your adrenal glands’. I hadn’t mentioned anything about steroids or adrenals before and she said it
CupOfEarlGrey
in
PMRGCAuk
4 days ago
Regulated Induced Proximity Targeting Chimeras (RIPTAC) therapies are designed to target major solid tumours (as prostate and breast cancer)
My head is going to explode...ok, we also have RIPTACs now, I hope they work! Always been a fan of Halan Halda since I was a little kid watching M.A.S.H. (you will understand this "joke" later) Regulated Induced Proximity Targeting Chimera (RIPTAC) is a groundbreaking new technique to selectively target
My head is going to explode...ok, we also have RIPTACs now, I hope they work! Always been a fan of Halan Halda since I was a little kid watching M.A.S.H. (you will understand this "joke" later) Regulated Induced Proximity Targeting Chimera (RIPTAC) is a groundbreaking new technique to selectively target
Maxone73
in
Advanced Prostate Cancer
4 days ago
Neuroendocrine cancer % in APC patients is not rare, it’s becoming common.
How do we help men, on this site, to reduce their chances of getting NEPC? I did a PSMA PET scan today. My blood tests looked pretty normal with psa at .5 and other tested looking like they usually do, except for blood glucose, which is normally in the 93-99 range for the past five years, but was 76
How do we help men, on this site, to reduce their chances of getting NEPC? I did a PSMA PET scan today. My blood tests looked pretty normal with psa at .5 and other tested looking like they usually do, except for blood glucose, which is normally in the 93-99 range for the past five years, but was 76
GeorgeGlass
in
Advanced Prostate Cancer
4 days ago
liver enzymes
I was overweight and drinking had high liver enzymes ast/alt ratio .5. I lost weight and stopped drinking enzymes returned to normal in 6-8 weeks. Was diagnosed with nafld as the probable cause. Does returning liver enzymes mean it is resolved
I was overweight and drinking had high liver enzymes ast/alt ratio .5. I lost weight and stopped drinking enzymes returned to normal in 6-8 weeks. Was diagnosed with nafld as the probable cause. Does returning liver enzymes mean it is resolved
Yoyo7190
in
British Liver Trust
4 days ago
PSA low and Cancer Spreading
My Dad diagnosed September 11th 2023. PSA was highest at 3.71. He had 6 doses Doxetaxel that were completed in January of 2024. Currently taking Zytiga daily and lupron infections. PSA still 0.01. In June of this year the pain started really bothering him. Hard to walk. MRIs to both hips showed bone
My Dad diagnosed September 11th 2023. PSA was highest at 3.71. He had 6 doses Doxetaxel that were completed in January of 2024. Currently taking Zytiga daily and lupron infections. PSA still 0.01. In June of this year the pain started really bothering him. Hard to walk. MRIs to both hips showed bone
Scoobydoocrew
in
Advanced Prostate Cancer
5 days ago
Chronic Insomnia Part 2
https://healthunlocked.com/thyroiduk/posts/151096015/chronic-insomnia Above is a link to my previous post from 3 weeks ago. I've now asked my husband to communicate in the group on my behalf, as my condition has worsened significantly. I'm struggling to function, walking is difficult, my speech is
https://healthunlocked.com/thyroiduk/posts/151096015/chronic-insomnia Above is a link to my previous post from 3 weeks ago. I've now asked my husband to communicate in the group on my behalf, as my condition has worsened significantly. I'm struggling to function, walking is difficult, my speech is
Sami-M
in
Thyroid UK
5 days ago
Can PSMA-PET scan be used off label?
I have a friend who has had multiple MRIs and biopsies to locate his presumed prostate cancer. His PSA is high, around 20 but fluctuates and this has gone on for a number of years. He had antibiotic therapy but this did not make any difference. I was wondering if a doctor would prescribe a PET/ PSMA
I have a friend who has had multiple MRIs and biopsies to locate his presumed prostate cancer. His PSA is high, around 20 but fluctuates and this has gone on for a number of years. He had antibiotic therapy but this did not make any difference. I was wondering if a doctor would prescribe a PET/ PSMA
Teddy28
in
Advanced Prostate Cancer
5 days ago
Amneal Receives FDA Approval for Parkinson’s Treatment - The capsules are expected to be available to US patients in September 2024.
CREXONT shown a statistically significant improvement in “good on” time for PD patients. Amneal Pharmaceuticals has received approval from the US Food and Drug Administration (FDA) for its CREXONT extended-release capsules for Parkinson’s disease (PD) treatment. The oral carbidopa (CD)/levodopa (LD
CREXONT shown a statistically significant improvement in “good on” time for PD patients. Amneal Pharmaceuticals has received approval from the US Food and Drug Administration (FDA) for its CREXONT extended-release capsules for Parkinson’s disease (PD) treatment. The oral carbidopa (CD)/levodopa (LD
Farooqji
in
Cure Parkinson's
5 days ago
Biologics and possible side effects
Wondering if anyone has had something similar happen. I’ve had severe p since 2020 and started the bialogic adalimumab in January 2020 after systemic treatments failed/side effects became to bad. In June this month my adalimumab was swapped as it want working wellto ustekinumab which I had my first
Wondering if anyone has had something similar happen. I’ve had severe p since 2020 and started the bialogic adalimumab in January 2020 after systemic treatments failed/side effects became to bad. In June this month my adalimumab was swapped as it want working wellto ustekinumab which I had my first
katienewland
in
Beyond Psoriasis
5 days ago
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