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Disabled rail card application
Hi there. Among other things I’ve had to accept that my driving days are now severely impacted by fibro etc and am looking at getting a disabled rail card. The website says I need to provide a PIP award letter dated the last 12 months. My original letter is over two years old. I’m in the process
Hi there. Among other things I’ve had to accept that my driving days are now severely impacted by fibro etc and am looking at getting a disabled rail card. The website says I need to provide a PIP award letter dated the last 12 months. My original letter is over two years old. I’m in the process
Fibrofreak
in
Fibromyalgia Action UK
1 year ago
Cerelle desogestrel
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
Surfingblue
in
Endometriosis UK
1 year ago
PIP tribunal TBI
Tomorow I have to attend my PIP tribunal hearing. I suffered my brain injury four and a half years ago and have now been in the PIP system for 16 months. I have to attend to defend the invisible disability I suffer, all I ask for is to be seen by the establishment not just the medical community. I was
Tomorow I have to attend my PIP tribunal hearing. I suffered my brain injury four and a half years ago and have now been in the PIP system for 16 months. I have to attend to defend the invisible disability I suffer, all I ask for is to be seen by the establishment not just the medical community. I was
TheChenz
in
Headway
10 months ago
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Chronic constipation
hi so I have been suffering with severe chronic constipation soft stools for almost 3 years, they have done testings and ruled out nothing. I always feel it in my rectum and they did a defecography on me last week and found an intra-anal intussusception and a 2.5 cm Rectocele. I am confused on this.
hi so I have been suffering with severe chronic constipation soft stools for almost 3 years, they have done testings and ruled out nothing. I always feel it in my rectum and they did a defecography on me last week and found an intra-anal intussusception and a 2.5 cm Rectocele. I am confused on this.
Liv12b
in
IBS Network
1 year ago
TW: TFMR and loss
Hi, I've just recently had a TFMR for Trisomy 18 at 13+4. It was really traumatic and ended up with surgery and blood transfusions. My egg collection gave me 2 embryos, my first which resulted in this pregnancy and one that is frozen. I'm nervous about the frozen embryo having the same issues but I'm
Hi, I've just recently had a TFMR for Trisomy 18 at 13+4. It was really traumatic and ended up with surgery and blood transfusions. My egg collection gave me 2 embryos, my first which resulted in this pregnancy and one that is frozen. I'm nervous about the frozen embryo having the same issues but I'm
Molliemoo85
in
Fertility Network UK
1 year ago
Modafanil experiences?
Hi all. I am hoping to hear from people who have taken modafanil (Provigil) or armodafanil (Artvigil) for profound daytime sleepiness and fatigue associated with RLS. I am at the end of my options for RLS having taken pretty much everything except dipyridamole with limited success and I continue to
Hi all. I am hoping to hear from people who have taken modafanil (Provigil) or armodafanil (Artvigil) for profound daytime sleepiness and fatigue associated with RLS. I am at the end of my options for RLS having taken pretty much everything except dipyridamole with limited success and I continue to
Doctorplacebo
in
Restless Legs Syndrome
1 year ago
sectioned
hi I am new to here, my husband had a traumatic brain injury last august an has been in hospital and most recently rehab. I was told the Gp has asked for a mental health assessment and ordered a section 3 due to his agitation and aggression the rehab have told me they are not meeting his needs which
hi I am new to here, my husband had a traumatic brain injury last august an has been in hospital and most recently rehab. I was told the Gp has asked for a mental health assessment and ordered a section 3 due to his agitation and aggression the rehab have told me they are not meeting his needs which
T-88
in
Headway
1 year ago
Hiding head injury
Four and a half years ago I had a concussion and I am still experiencing periods in which I have balance and coordination problems, fatigue, can't concentrate and am easily feeling overwhelmed. Since then I have picked up freelance work again, working outdoors and in educational contexts part-time.
Four and a half years ago I had a concussion and I am still experiencing periods in which I have balance and coordination problems, fatigue, can't concentrate and am easily feeling overwhelmed. Since then I have picked up freelance work again, working outdoors and in educational contexts part-time.
Blackbird98
in
Headway
10 months ago
ankle fusion
Hi I’m just wondering if anyone has had an ankle fusion as I’m having one soon and I’m wondering how long I will be off my feet for, I will try and keep my story short, I fell off a door step 18 months ago and broke three bones in my ankle and leg, I was in hospital for a week and had pins and plate
Hi I’m just wondering if anyone has had an ankle fusion as I’m having one soon and I’m wondering how long I will be off my feet for, I will try and keep my story short, I fell off a door step 18 months ago and broke three bones in my ankle and leg, I was in hospital for a week and had pins and plate
Moonshine15
in
Pain Concern
1 year ago
Care Home response
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Wybert
in
PSP Association
10 months ago
MRI and injuries
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
ritaandscooter1
in
MPN Voice
1 year ago
Could these symptoms be CANVAS
Diagnosed with Large fibre polyneuropathy in 2021 but symptoms have progressed more towards CANVAS. Is anyone familiar with it? Stands for Cerebellar Ataxia (CA), Neuropathy (N) and Vestibular Areflexia (VA). There is a genetic RFC1 type and one without a genetic type. I have positive Rhomberg and loss
Diagnosed with Large fibre polyneuropathy in 2021 but symptoms have progressed more towards CANVAS. Is anyone familiar with it? Stands for Cerebellar Ataxia (CA), Neuropathy (N) and Vestibular Areflexia (VA). There is a genetic RFC1 type and one without a genetic type. I have positive Rhomberg and loss
rideabike
in
Ataxia UK
1 year ago
3 weeks into disimpaction and no elusive rusty tea.
Hello, I started a disimpaction regime for my 3 year old, 21 days ago. After two weeks we added a Senna Stimulant to assist and he has been on 8 sachets along with the Senna now for 3 weeks. Last Sunday he had a huge gravy like BM and I thought we had turned a corner, then back to lumpy (slightly watery
Hello, I started a disimpaction regime for my 3 year old, 21 days ago. After two weeks we added a Senna Stimulant to assist and he has been on 8 sachets along with the Senna now for 3 weeks. Last Sunday he had a huge gravy like BM and I thought we had turned a corner, then back to lumpy (slightly watery
Twim_mamaSA89
in
ERIC
1 year ago
Incontinence pads: advice please
I’m looking after someone with PSP, symptoms started 2019/20, diagnosed 2021. Due to increasing mobility problems, he’s had a couple of accidents when he couldn’t get to the toilet in time. Just urine so far. Looking for advice & suggestions for incontinence pads. We’re in the London (UK) area.
I’m looking after someone with PSP, symptoms started 2019/20, diagnosed 2021. Due to increasing mobility problems, he’s had a couple of accidents when he couldn’t get to the toilet in time. Just urine so far. Looking for advice & suggestions for incontinence pads. We’re in the London (UK) area.
Hidden
in
PSP Association
1 year ago
Sharp pain in arm
recently I have had intermittent sharp pain in left lower arm ….bit like a nerve pain … wonder if it’s anything to do with tapering off steroids ?
recently I have had intermittent sharp pain in left lower arm ….bit like a nerve pain … wonder if it’s anything to do with tapering off steroids ?
shella
in
PMRGCAuk
1 year ago
Swollen painful hand
I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gotten down to 13 mg. Recently I tapered to 12 mg but have not felt very well & suddenly my right hand fingers are swollen & very painful. This has never happened before. Is this some kind of flare?
I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gotten down to 13 mg. Recently I tapered to 12 mg but have not felt very well & suddenly my right hand fingers are swollen & very painful. This has never happened before. Is this some kind of flare?
noslak
in
PMRGCAuk
10 months ago
19th July: Today is THE day….
….that back on May 1st I did not want to reach from a couch position. I wanted to complete C25K by today and had a margin for repeating weeks/injury etc which luckily I didn’t need. I didn’t care about the distance and didn’t even identify what it was – just wanted get to the “run” for 30 mins status
….that back on May 1st I did not want to reach from a couch position. I wanted to complete C25K by today and had a margin for repeating weeks/injury etc which luckily I didn’t need. I didn’t care about the distance and didn’t even identify what it was – just wanted get to the “run” for 30 mins status
farsouthwest
Graduate
in
Couch to 5K
1 year ago
Second repeat disimpaction?
Our 5 yo daughter was diagnosed with constipation in April this year, following incidents with poo and wee soiling. We disimpacted her successfully at the time using cosmocol (it took 11 days in total until we reached rusty water stage). We went to the highest maintenance dose. (4 sachets in line with
Our 5 yo daughter was diagnosed with constipation in April this year, following incidents with poo and wee soiling. We disimpacted her successfully at the time using cosmocol (it took 11 days in total until we reached rusty water stage). We went to the highest maintenance dose. (4 sachets in line with
Beccaell
in
ERIC
1 year ago
MESSAGE FROM THE ADMIN: This thread of posts contains sensitive information that could be upsetting. Rhinoplasty made me depressed
Message from Admin: If you are feeling vulnerable, do take care if you choose to read this thread of posts. We are adding this message in accordance with the terms of use and HealthUnlocked community guidelines. I had a rhinoplasty who basically ruined my self esteem and life. Just had it recently but
Message from Admin: If you are feeling vulnerable, do take care if you choose to read this thread of posts. We are adding this message in accordance with the terms of use and HealthUnlocked community guidelines. I had a rhinoplasty who basically ruined my self esteem and life. Just had it recently but
DeliaArama
in
Changing Faces
1 year ago
Preventing IBS diarrhea before plane travel
Does anyone have any tips on how to avoid embarrassing accidents on planes? Is it okay to use Imodium proactively?
Does anyone have any tips on how to avoid embarrassing accidents on planes? Is it okay to use Imodium proactively?
MrsSJO
in
IBS Network
11 months ago
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