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Adrenal crisis experiences & prevention please.
After witnessing mum’s full on adrenal crisis - unconscious for 90mins - we are thankfully now back home. I have emergency hydrocortisone and packs to read regarding all the different sick day rules. The endocrine nurses were lovely and I now have their contact details, but I am wondering if any
After witnessing mum’s full on adrenal crisis - unconscious for 90mins - we are thankfully now back home. I have emergency hydrocortisone and packs to read regarding all the different sick day rules. The endocrine nurses were lovely and I now have their contact details, but I am wondering if any
RT18
in
PMRGCAuk
1 year ago
Pride and discrimination, but love wins
Hi all, Cannot believe I'm saying this, when it is Pride Bristol this weekend. Pride is not my thing, as Festival type events are too "peoply" for me. I'd rather have some quiet time. But Pride is important. It celebrates life and diversity. And yes, don't we need it? We passed up on it. Not because
Hi all, Cannot believe I'm saying this, when it is Pride Bristol this weekend. Pride is not my thing, as Festival type events are too "peoply" for me. I'd rather have some quiet time. But Pride is important. It celebrates life and diversity. And yes, don't we need it? We passed up on it. Not because
Hidden
Community Ambassador
in
Changing Faces
1 year ago
I just Run the whole Park Run
So, it was hot, it was humid with a few spots of rain! My support crew ( my daughter and grandson) were out on the course as Daddy was Marshalling for Park Run as daddy has a 1/2 marathon tomorrow! My aim for today was keep it steady due to the weather conditions! As a precaution I had already had
So, it was hot, it was humid with a few spots of rain! My support crew ( my daughter and grandson) were out on the course as Daddy was Marshalling for Park Run as daddy has a 1/2 marathon tomorrow! My aim for today was keep it steady due to the weather conditions! As a precaution I had already had
BGood
in
Couch to 5K
1 year ago
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Ongoing mucus issue ibs
Hi all. Ive posted a few times in the last 2 years regarding my horrendous issue with passing mucus from my rectum.Im 52 and all this started at 49. Feeling like i need to pass wind but if i hold a tissue at my back end its clear mucus. Ive had a full colonoscopy done 14 months ago and was clear. Ct
Hi all. Ive posted a few times in the last 2 years regarding my horrendous issue with passing mucus from my rectum.Im 52 and all this started at 49. Feeling like i need to pass wind but if i hold a tissue at my back end its clear mucus. Ive had a full colonoscopy done 14 months ago and was clear. Ct
mal444
in
IBS Network
1 year ago
Monocular Vision Pain
Good evening, I lost sight in my right eye from a freak accident in January. I'm having constant eye pain in the good eye, I have seen many consultants that have examined the eye and unable to identify anything that could be causing the pain. I use eye drops daily, eye gel and many pain killers
Good evening, I lost sight in my right eye from a freak accident in January. I'm having constant eye pain in the good eye, I have seen many consultants that have examined the eye and unable to identify anything that could be causing the pain. I use eye drops daily, eye gel and many pain killers
ItsBrandon
in
Pain Concern
11 months ago
husband diagnosed with PSP
My husband had a bleed to the brain 5 years ago and fell causing a traumatic brain injury, over the years his mobility has got worse, his memory isn’t good and he can’t remember where the bedroom or toilet is. I put it all down to his brain injury, had a face to face appointment with his neurologist
My husband had a bleed to the brain 5 years ago and fell causing a traumatic brain injury, over the years his mobility has got worse, his memory isn’t good and he can’t remember where the bedroom or toilet is. I put it all down to his brain injury, had a face to face appointment with his neurologist
Bella9999
in
PSP Association
1 year ago
Goodbye Sifrol
I have been only taking half of .125mg sifrol for the last 4 weeks so tonight plan not to take any…..finally!….I have found that codeine was helping less and less as I slowly reduced my sifrol dose( originally .250mg for 10 years.)60mg of codeine/paracetamol now only gives me 2-3 hours relief which
I have been only taking half of .125mg sifrol for the last 4 weeks so tonight plan not to take any…..finally!….I have found that codeine was helping less and less as I slowly reduced my sifrol dose( originally .250mg for 10 years.)60mg of codeine/paracetamol now only gives me 2-3 hours relief which
Retiredlady
in
Restless Legs Syndrome
1 year ago
Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
1 year ago
Extra dose of Progynova. I'm really worried. Please help.
Hi. I'm on 4dp5dt today and I already messed my Progynova dose twice. I'm on 2x2mg Progynova a day (6am and 6pm) But right on the next day after transfer, after I took my morning dose, around two and half hours later (when I'm about to take other vitamins) I mistook another dose. It was extra 2 tablets
Hi. I'm on 4dp5dt today and I already messed my Progynova dose twice. I'm on 2x2mg Progynova a day (6am and 6pm) But right on the next day after transfer, after I took my morning dose, around two and half hours later (when I'm about to take other vitamins) I mistook another dose. It was extra 2 tablets
jadeyc
in
Fertility Network UK
1 year ago
IBS Storm
I was diagnosed with IBS by my GP but at the time I was thinking my symptoms were mostly caused by virus or bacteria. I suspect taking supplements like multivitamins I definitely could negatively affect one’s gut; however the onset of my problems started with acute stress, anxiety and sudden consumption
I was diagnosed with IBS by my GP but at the time I was thinking my symptoms were mostly caused by virus or bacteria. I suspect taking supplements like multivitamins I definitely could negatively affect one’s gut; however the onset of my problems started with acute stress, anxiety and sudden consumption
overcomer42
in
IBS Network
1 year ago
bed wetting has stopped but now child is highly emotional?
hi, just wondering if anyone here that’s had a child that wets the bed had any emotional problems when they stopped? I certainly didn’t expect that stopping bed wetting would cause us any problems 🤦🏼♀️. So this last wee my 9 year old girl has been dry at night. Great news… but now she’s so emotional
hi, just wondering if anyone here that’s had a child that wets the bed had any emotional problems when they stopped? I certainly didn’t expect that stopping bed wetting would cause us any problems 🤦🏼♀️. So this last wee my 9 year old girl has been dry at night. Great news… but now she’s so emotional
Skyfullofstars1
in
ERIC
1 year ago
best foods to eat after ibs d flare
I’ve suffered from ibs for years and have been well controlled. Have never needed to do FODMAP as yet as know triggers. Anyway I’ve had the worst flare ever in last 5 days and no improvement. Constant diarrhoea. Everything just going straight through. Imodium helps but I need to start trying to eat
I’ve suffered from ibs for years and have been well controlled. Have never needed to do FODMAP as yet as know triggers. Anyway I’ve had the worst flare ever in last 5 days and no improvement. Constant diarrhoea. Everything just going straight through. Imodium helps but I need to start trying to eat
sarahaaronkayley
in
IBS Network
1 year ago
When to reduce maintenance dose?
Hi everyone, After 3 years of on and off constipation, and last year having a really stubborn withholding episode, and one almighty disimpaction, we have now got a nearly 5 year old daughter who is on 3 sachets of cosmocol a day, and pooing regularly. This is such a huge achievement as this time last
Hi everyone, After 3 years of on and off constipation, and last year having a really stubborn withholding episode, and one almighty disimpaction, we have now got a nearly 5 year old daughter who is on 3 sachets of cosmocol a day, and pooing regularly. This is such a huge achievement as this time last
Frank4321Time
in
ERIC
1 year ago
Horizant
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
wantokporo
in
Restless Legs Syndrome
1 year ago
Talking About Mistletoe therapy (TAM) research study
Dear all, We have been contacted by a third-year undergraduate medical student at University of Bristol, who is conducting a research project called Talking About Mistletoe therapy (TAM). Please read her message below: [i]This project is called Talking About Mistletoe therapy (TAM) study, and we plan
Dear all, We have been contacted by a third-year undergraduate medical student at University of Bristol, who is conducting a research project called Talking About Mistletoe therapy (TAM). Please read her message below: [i]This project is called Talking About Mistletoe therapy (TAM) study, and we plan
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 year ago
Turned down by the RHN
I recently emailed the admissions office at the Royal Hospital for Neuro-disability in Wandsworth, London to see if I met their criteria for referral as, over four years after my ABI, I have received no rehabilitation. The RHN is not an NHS hospital so it has the freedom to pick and choose who it treats
I recently emailed the admissions office at the Royal Hospital for Neuro-disability in Wandsworth, London to see if I met their criteria for referral as, over four years after my ABI, I have received no rehabilitation. The RHN is not an NHS hospital so it has the freedom to pick and choose who it treats
Skulls
in
Headway
1 year ago
waking up from induced coma
I posted a few days ago about my sister being in ICU in an induced coma. This is day 7 now and they have turned down the sedation after being able to control her seizures. I have read that it’s a slow process. Can people give me example of how it went for you. I know everyone is different but it helps
I posted a few days ago about my sister being in ICU in an induced coma. This is day 7 now and they have turned down the sedation after being able to control her seizures. I have read that it’s a slow process. Can people give me example of how it went for you. I know everyone is different but it helps
Bendnfn
in
ICUsteps
1 year ago
Who could you ask about if your entitled to any benifits.
I have struggled with my breathing for the last few years and was wondering if there was any help financially. I took early retirement last year couldn't cope anymore with my job stairlift engineer. I have saved some money to help before I can claim my work pension, so at the moment I have no income.
I have struggled with my breathing for the last few years and was wondering if there was any help financially. I took early retirement last year couldn't cope anymore with my job stairlift engineer. I have saved some money to help before I can claim my work pension, so at the moment I have no income.
UptheTicks
in
Lung Conditions Community Forum
1 year ago
Need Away from Home Care
My HWP has been in constant pain for over a month. Left shoulder which has been around for a long time. A cracked rib a year ago that has been reagrevated walking the dogs. This month he has been to er 3 time to exclude coronary issue. Once they do send him home. He’s lost over 20 lbs this month 157
My HWP has been in constant pain for over a month. Left shoulder which has been around for a long time. A cracked rib a year ago that has been reagrevated walking the dogs. This month he has been to er 3 time to exclude coronary issue. Once they do send him home. He’s lost over 20 lbs this month 157
NanaCC
in
Cure Parkinson's
1 year ago
Woo hoo I've finally smashed it!
Set off at 7am, still 18C, can you believe it? I told myself this was just another run and if it was too warm to go the distance, well the graduation run would still be there for another day. A few minutes in and I've hit my happy pace. My music was calming overlaid by beautiful birdsong. Then the 15
Set off at 7am, still 18C, can you believe it? I told myself this was just another run and if it was too warm to go the distance, well the graduation run would still be there for another day. A few minutes in and I've hit my happy pace. My music was calming overlaid by beautiful birdsong. Then the 15
Sax64
Graduate
in
Couch to 5K
1 year ago
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