TW: TFMR and loss

[Molliemoo85]

Hi, I've just recently had a TFMR for Trisomy 18 at 13+4. It was really traumatic and ended up with surgery and blood transfusions. My egg collection gave me 2 embryos, my first which resulted in this pregnancy and one that is frozen. I'm nervous about the frozen embryo having the same issues but I'm also nervous of going through another round of egg collection in case I have the heartbreak of getting nothing out of it. Has anyone been through a similar situation that could tell me what road you took? I'm really distraught over losing my baby but the abnormalities were so severe that I was trying to prevent them from being in any pain. I just don't really know what to do next. Thanks in advance for any help or advice x

[Elmo13]

Hi Molliemoo,

I am so sorry for your loss with your recent TFMR. I haven’t been in the same situation myself so can’t even begin to imagine the physical and mental impact this has had on you.

Your post resonated with me as I did an egg collection recently and found out with PGTA testing that all 4 of my embryos were genetically abnormal. One of them came back as Trisomy 18.

I know there are some controversies with PGTA testing but I’m trying to put a positive spin on this and am thinking that this testing avoided failed transfers, miscarriages (I’ve had 2 already) and potential TFMR like you’ve had to sadly go through.

Maybe you can talk to your clinic about whether PGTA testing would be worth doing for a future cycle?

Wishing you strength.

Xx

[HedgehogMad]

So sorry you have had to go through this, I hope you have a good support network around you ♥️I would be inclined to do a fresh cycle, PGT-A test any embryos, defrost and test this last one and transfer it in the fresh cycle (to avoid refreezing). You would get the results quite quickly. Don't know whether your clinic would do that though. I have also been told by the embryologists at my clinic that it is fine to thaw, biopsy and refreeze embryos. Xx

[Skittles11]

❤️ will send you a private message tomorrow about what my clinic advised after TFMR in regard a frozen embryo and also for any new egg collection cycles. Sending huge hugs and support to you xx

[DianeArnold Partner Nurse Fertility Network UK]

Hi Molliemoo. So sorry to hear of all your heartbreak. Although the pain mentally and physically is unimaginable, you have to leave it in the past. Of course you will never forget the little one you lost, try and move forwarD and let’s hope a new batch obsessed includes a precious family for you. Thinking of you. Diane

[CornflowerMoon]

This is heartbreaking. I'm so sorry for what you're going through.