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Advice please 😱 Rheumatology appointment brought forward following my complaint to the rheumatology nurse
I've seen the rheumatologist once , a disinterested locum who 'diagnosed' palindromic rheumatism and the specialist nurse twice. In my last phone conversation with her I said I was concerned I wasn't being treated effectively, not along NICE guidance lines etc, particularly as my anti-CCP of 298 indicated
I've seen the rheumatologist once , a disinterested locum who 'diagnosed' palindromic rheumatism and the specialist nurse twice. In my last phone conversation with her I said I was concerned I wasn't being treated effectively, not along NICE guidance lines etc, particularly as my anti-CCP of 298 indicated
Barb66
in
NRAS
7 years ago
amitryptaline side effects.. or is it from myself?
i take 25mg of ami for migraines.. i've taken it since november - ish ... lol. in the summer iwas very healthy, i weighed 112, all muscle, vegan, ran everyday and was very happy with my body. i started taking this pill and now i weigh 135, am always bloated, my mentrual cycle is messed up, my thighs
i take 25mg of ami for migraines.. i've taken it since november - ish ... lol. in the summer iwas very healthy, i weighed 112, all muscle, vegan, ran everyday and was very happy with my body. i started taking this pill and now i weigh 135, am always bloated, my mentrual cycle is messed up, my thighs
mfchelsea24
in
Fibromyalgia Action UK
7 years ago
Night Time Wetting
Hi, my son is 7 and is wet every night. We have been to the enuresis clinic and the advice was that he was constipated because in the one week I recorded he only went 4 days out of 7. They asked us to start him on movicol. After this I recorded for 2weeks and he was going every day so we did not give
Hi, my son is 7 and is wet every night. We have been to the enuresis clinic and the advice was that he was constipated because in the one week I recorded he only went 4 days out of 7. They asked us to start him on movicol. After this I recorded for 2weeks and he was going every day so we did not give
H702
in
ERIC
7 years ago
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Hypoxic brain injury
Hi there. I'm writing this post in a cry out for people with any similar experience. My mom had hypoxic brain injury following a cardiac arrest after massive clots in her lungs. She was revived but unfortunately according to an MRI scan, she had some hypoxic injury in the deeper parts (basal ganglia
Hi there. I'm writing this post in a cry out for people with any similar experience. My mom had hypoxic brain injury following a cardiac arrest after massive clots in her lungs. She was revived but unfortunately according to an MRI scan, she had some hypoxic injury in the deeper parts (basal ganglia
Tomtom34
in
Headway
7 years ago
Ileostomy?
Hi I'm new here I am 39 and for the last 15years I have been suffering from a large rectocele, leviator ani syndrome, intersusepsion, Obstructive defication disorder, Ibs and anismus the only thing my consultant is offering to help is a illiostomy with no garentee that it will take away the pain, I just
Hi I'm new here I am 39 and for the last 15years I have been suffering from a large rectocele, leviator ani syndrome, intersusepsion, Obstructive defication disorder, Ibs and anismus the only thing my consultant is offering to help is a illiostomy with no garentee that it will take away the pain, I just
Becki77
in
Pain Concern
7 years ago
Low Dose Naltrexone (LDN).
Hi, Am new to this group and glad to find it. Am wondering if anyone has used Low Dose Naltrexone in connection with their thyroid issues. It is available by prescription but I believe it is only currently available for off-label use. Am interested in how anyone who uses it finds it etc.
Hi, Am new to this group and glad to find it. Am wondering if anyone has used Low Dose Naltrexone in connection with their thyroid issues. It is available by prescription but I believe it is only currently available for off-label use. Am interested in how anyone who uses it finds it etc.
Gazebo
in
Thyroid UK
7 years ago
Am I going insane?
Okay so recently I have been getting weird dreams, dreams of family, people that I know. And it's been happening for 2 weeks now. I do suffer with anxiety and depression and my sleeping pattern is not the best but it's starting to make me feel like I might be going insane? It feels like av already seen
Okay so recently I have been getting weird dreams, dreams of family, people that I know. And it's been happening for 2 weeks now. I do suffer with anxiety and depression and my sleeping pattern is not the best but it's starting to make me feel like I might be going insane? It feels like av already seen
CALUM19
in
Anxiety Support
7 years ago
Hypoxic brain injury
Hello everyone, I'm jess and I'm new to this, my boyfriend has a hypoxic injury due to a cardiac arrest he had last year. He was only discharged last July from a brain injury unit. I am struggling as he is only 22 and he is mobile and has no problem with communication but he just doesn't get the reading
Hello everyone, I'm jess and I'm new to this, my boyfriend has a hypoxic injury due to a cardiac arrest he had last year. He was only discharged last July from a brain injury unit. I am struggling as he is only 22 and he is mobile and has no problem with communication but he just doesn't get the reading
jess25
in
Headway
7 years ago
Has anyone been feeling better on low dose naltrexone? I've had Hashimotos for a decade and have tried everything.
I've passed on Hashimotos to both of my children. The autoimmune thyroiditis. I finally got on dessicated thyroid and do feel better although that is not correcting my autoimmune disease as I still have antibodies. After my body finishes attacking my thyroid it can be triggered to attack other organs
I've passed on Hashimotos to both of my children. The autoimmune thyroiditis. I finally got on dessicated thyroid and do feel better although that is not correcting my autoimmune disease as I still have antibodies. After my body finishes attacking my thyroid it can be triggered to attack other organs
Itsnotinmyhead
in
Thyroid UK
7 years ago
Dr Jarred Younger giving us an insight into Low Dose Naltrexone - LDN Radio show
https://www.mixcloud.com/LDNRT/dr-jarred-younger/
https://www.mixcloud.com/LDNRT/dr-jarred-younger/
liveurlife
Volunteer
in
LDN Research Trust
7 years ago
Weather
It has been a crazy winter for Vancouver. We have had repeated snow falls. We have not had snow for eight years. There is usually one but it melts the same day. We are now in a rainy period again. It makes me feel terrible. From most of the literature, RD is not affected by climate. Is this true? I want
It has been a crazy winter for Vancouver. We have had repeated snow falls. We have not had snow for eight years. There is usually one but it melts the same day. We are now in a rainy period again. It makes me feel terrible. From most of the literature, RD is not affected by climate. Is this true? I want
Damaged
in
NRAS
7 years ago
Returning bed wetting
Hi everyone. I'm hoping for a bit of help. My daughter is 5 and a half and has been dry overnight since she was 3 with the odd, very rare, accident. She started school in September and has seemed very happy. For three weeks or so before half term in Feb she started wetting the bed at night and also
Hi everyone. I'm hoping for a bit of help. My daughter is 5 and a half and has been dry overnight since she was 3 with the odd, very rare, accident. She started school in September and has seemed very happy. For three weeks or so before half term in Feb she started wetting the bed at night and also
MysteryMachine
in
ERIC
7 years ago
Low Dose Naltrexone and where to get it?
Hello everyone, I have Hashimoto's, and have recently had a weak positive to celiac. After watching the Thyroid Secret, I would like to get myself on LDN. Can anyone advise me on where to get it? I am in the UK. I have done some research, but found that there are quite a few charges - telephone consultation
Hello everyone, I have Hashimoto's, and have recently had a weak positive to celiac. After watching the Thyroid Secret, I would like to get myself on LDN. Can anyone advise me on where to get it? I am in the UK. I have done some research, but found that there are quite a few charges - telephone consultation
furcoatnoknickers
in
Thyroid UK
7 years ago
End of treatment !
Hi ladies, Can't believe I'm here really .. but , had my end of treatment results today and I'm apparently cancer free !!! Such a weird feeling and place to be ? Was diagnosed last August , obviously totally out of the blue like most of us !.. Anyway, subsequently, graded stage 3c high grade serous..
Hi ladies, Can't believe I'm here really .. but , had my end of treatment results today and I'm apparently cancer free !!! Such a weird feeling and place to be ? Was diagnosed last August , obviously totally out of the blue like most of us !.. Anyway, subsequently, graded stage 3c high grade serous..
Shire62
in
My Ovacome
7 years ago
Low Dose Naltrexone (LDN) - 4th week in!
Jackie has been trying Low Dose Naltrexone (LDN) as we have heard of some very good results of this when used for Parkinson's and MS. Unfortunately as had as we have tried we can find no record of anyone trying the drug with MSA. It's not easy as the body treats it as a toxin and so the dose has to
Jackie has been trying Low Dose Naltrexone (LDN) as we have heard of some very good results of this when used for Parkinson's and MS. Unfortunately as had as we have tried we can find no record of anyone trying the drug with MSA. It's not easy as the body treats it as a toxin and so the dose has to
Yanno
in
Multiple System Atrophy Trust
7 years ago
Induced coma x 2
Hi I'm Sarah, November 2014 I was rushed to hospital with severe ketoacidosis (type 1 diabetes) and put in an induced coma for nine days. Took me a long time to recover both physically and mentally. In March 2016, I had an ear infection that turned into sepsis and I was in an induced coma for 13 days
Hi I'm Sarah, November 2014 I was rushed to hospital with severe ketoacidosis (type 1 diabetes) and put in an induced coma for nine days. Took me a long time to recover both physically and mentally. In March 2016, I had an ear infection that turned into sepsis and I was in an induced coma for 13 days
Sarahcoma
in
ICUsteps
7 years ago
Tube feeding, choking or deep sedation/euthanasia? Your thoughts would help so much, we are quite lost about dad's late PSP stage.
Dear all, I have been following your posts which have helped me so much communicate invaluable information to my mum who is supporting my sick father, most of all the knowledge that she is not alone dealing with this awful disease. I translate your posts since she speaks French and lives in France and
Dear all, I have been following your posts which have helped me so much communicate invaluable information to my mum who is supporting my sick father, most of all the knowledge that she is not alone dealing with this awful disease. I translate your posts since she speaks French and lives in France and
Hidden
in
PSP Association
7 years ago
Confidence without alcohol... Possible? :/
I hope I don't sound like a little kid but I got a message of a guy I really like asking me out but I'm so scared. I don't want to let him down, but if I go I know I will end up getting really drunk because I believe alcohol gives me confidence. :( I should not be like this. I'm so pathetic. FML
I hope I don't sound like a little kid but I got a message of a guy I really like asking me out but I'm so scared. I don't want to let him down, but if I go I know I will end up getting really drunk because I believe alcohol gives me confidence. :( I should not be like this. I'm so pathetic. FML
Stephlouiseharibo
in
Mental Health Support
7 years ago
Hi guys
Hi I'm Sean, I have had head injuries in the past, fractured skull twice as a child, march 2009 whilst living in Lompoc California I was hit by a car and released the same day, then the next day thought I was home in England and i couldn't remember who anyone was, i was taken to the hospital and told
Hi I'm Sean, I have had head injuries in the past, fractured skull twice as a child, march 2009 whilst living in Lompoc California I was hit by a car and released the same day, then the next day thought I was home in England and i couldn't remember who anyone was, i was taken to the hospital and told
mac39
in
Headway
7 years ago
Benign myoclonus movements
Hi my son who's now 8 weeks got BM at 3 weeks old. One week ago today he had 1 st set of immunisations including men B I don't know if it's a coincidence or a side effect of the BM but he's started getting these weird episodes which look like fits. I had him to accident and emergency and they diagnosed
Hi my son who's now 8 weeks got BM at 3 weeks old. One week ago today he had 1 st set of immunisations including men B I don't know if it's a coincidence or a side effect of the BM but he's started getting these weird episodes which look like fits. I had him to accident and emergency and they diagnosed
misswinky34
in
Meningitis Now
7 years ago
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