Jackie has been trying Low Dose Naltrexone (LDN) as we have heard of some very good results of this when used for Parkinson's and MS. Unfortunately as had as we have tried we can find no record of anyone trying the drug with MSA.
It's not easy as the body treats it as a toxin and so the dose has to be built up slowly and there are side effects (albeit not lasting we are told) of headaches and nausea. The drug has be be ordered through a private prescription but is not over expensive at about £19 per month. If it gives any relief it will be worth every penny.
Jackie is now at 2.5ml per day and one builds to 4.5ml in 0.5ml weekly graduations. So far she has all of the bad with none of the good! Headaches and some nausea but these have been made more manageable since we shifted taking the drug from mornings to last thing before bed.
We have always said we will not chase rainbows and accept 'what will be will be' but the positive reports we have had led us to believe, as our neurologist said "what have you got to lose through trying it".
Needless to say, if any reader has knowledge of LDN used with MSA, then please get in touch.
If we have anything further to report we will.
Take care, Ian