Hello everyone,
I'm jess and I'm new to this, my boyfriend has a hypoxic injury due to a cardiac arrest he had last year. He was only discharged last July from a brain injury unit. I am struggling as he is only 22 and he is mobile and has no problem with communication but he just doesn't get the reading and writing help he requires he only has two sessions a week but he lost all ability to read and write due to his injury, I also struggle to see a future together even though we have only been together for 9 months. I love him and he is my world and I want a family and to move in together in the future, it all just looks a bit foggy. He is always the sensible one that says take each day and I will be fine it will take time, but I do struggle with the whole waiting concept, any support or advice would be greatly appreciated thankyou!
Hi Jess my name is Angie although I have a brain injury I also have a partner with a more severe brain injury. It is difficult and can be frustrating. Its good that he is saying take each day as they come, and he's not getting frustrated or angry. For you, your still getting your head around it all, and its only natural to feel confused and want it the way it was. It is just time and motivation, is he linked to any support eg headway?
Hi Angie thankyou for your reply, I can't imagine your situation but you must be such a strong couple to get through. It is frustrating but more for him not me I rung headway today but need to call the Somerset link tomorrow, I am also looking into getting him a private tutor who he is happy to fund, he is slowly loosing motivation and it's tough to keep him going at times but he's usually very positive but he's been let down by free transport to the gym a few times so he feels failed by the system in a way! But I am trying everything for him, I just feel as angry as he does at times and he tells me to stop worrying so much
Jess it is a constant battle, me and my partner have been through hell. I've had to be everything to him because he was in denial, but we hit rock bottom and he was severely affecting my health. So I pushed and got him in the system. Headway will give you some great information and support, as will we on here. I've done a lot of searching online for whats out there, what of the great bits of advice I got that might help his situation is if you contact his surgery and as to be linked up to their care coordinator. They have lots of info on groups, places available that could help him with his reading and writing. I can relate to the problem with transport. I had a horrendous time with the ambulance service taking me to trauma therapy (im disabled) out of six sessions they failed me on three. Don't take any rubbish if transport/organisations/drs etc let him down complain because its not on. If ever you need a chat I can see both sides so im always around
Angie