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Compression boots w/heat
Hello, So far the only the only things I have found to help my severe RLS is 15 mgs of methodone w/400 mgs of magnesium (long term fix about 24 hrs), hot baths with epsom salt (short term fix, maybe 30 mins.) Being how I do NOT want to be on methodone for ever. I am looking for other solutions.
Hello, So far the only the only things I have found to help my severe RLS is 15 mgs of methodone w/400 mgs of magnesium (long term fix about 24 hrs), hot baths with epsom salt (short term fix, maybe 30 mins.) Being how I do NOT want to be on methodone for ever. I am looking for other solutions.
Anguished
in
Restless Legs Syndrome
2 years ago
Finally I have a Sight long distance Reading!!
Hi everyone I, Long story short I recently had cataract surgery in April which was a bodge job that ended up slicing my corneal layer . After 5months into it with still inflammation and pain , constant migraines putting up with constant ghosting and refection . I finally had a positive reading lens
Hi everyone I, Long story short I recently had cataract surgery in April which was a bodge job that ended up slicing my corneal layer . After 5months into it with still inflammation and pain , constant migraines putting up with constant ghosting and refection . I finally had a positive reading lens
KnitSewPurl
in
LUPUS UK
2 years ago
GCA Symptoms
Hello, I’m curious of those that have gone blind in one eye, or completely, from GCA…did you have any symptoms? We’re you misdiagnosed? If you had symptom, were they consistent, and present all the time? How long did you have symptoms before going blind? Was your blindness abrupt, or a slow loss of sight
Hello, I’m curious of those that have gone blind in one eye, or completely, from GCA…did you have any symptoms? We’re you misdiagnosed? If you had symptom, were they consistent, and present all the time? How long did you have symptoms before going blind? Was your blindness abrupt, or a slow loss of sight
Newcomer22
in
PMRGCAuk
2 years ago
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Azathioprine hydroxychloroquine steroids and dental extraction
Hello lovely people. I am due to have a dental root extraction and are on the above drugs. I am finding it hard to get to see my rheumatologist so in the absence of a GP who understands lupus does anyone know if there is anything that I need to particularly be aware of or do before or after? I am
Hello lovely people. I am due to have a dental root extraction and are on the above drugs. I am finding it hard to get to see my rheumatologist so in the absence of a GP who understands lupus does anyone know if there is anything that I need to particularly be aware of or do before or after? I am
cakerbaker
in
LUPUS UK
2 years ago
Is it GCA or side effect of Prednisone
Has anyone had blurry vision in one eye, no jaw pain, no headaches and eye exam revealed nothing to worry about in regards to GCA. The blurry vision comes and goes. I am tapering down. Started at 60 mg for 1 day in ER due to PMR then 40mg for 2 days and then 20mg for 2 months. Now down to 13mg reducing
Has anyone had blurry vision in one eye, no jaw pain, no headaches and eye exam revealed nothing to worry about in regards to GCA. The blurry vision comes and goes. I am tapering down. Started at 60 mg for 1 day in ER due to PMR then 40mg for 2 days and then 20mg for 2 months. Now down to 13mg reducing
flygirl65
in
PMRGCAuk
2 years ago
Very dry mouth
Since Covid in October 2022 I have had a dry mouth with a sore tongue and sore roof of mouth. I am now thinking it is nothing to do with Covid but maybe related to Mercury thyroxine? I have struggled for years trying to find a brand that agrees with me, ever since the original Eltroxin I by Glaxo disappeared
Since Covid in October 2022 I have had a dry mouth with a sore tongue and sore roof of mouth. I am now thinking it is nothing to do with Covid but maybe related to Mercury thyroxine? I have struggled for years trying to find a brand that agrees with me, ever since the original Eltroxin I by Glaxo disappeared
Goldpurple
in
Thyroid UK
2 years ago
Treadmill pace.
Hi guys. I started couch to 5K a few weeks back and have done weeks 3 and 4 (now 2 runs into week 4) on the treadmill. I set my walking pace between 3.5 - 4 mph and running at 6.5-7.5 mph. I'm managing the runs OK but am bathed in sweat when I get off - am I pushing too hard and likely to struggle with
Hi guys. I started couch to 5K a few weeks back and have done weeks 3 and 4 (now 2 runs into week 4) on the treadmill. I set my walking pace between 3.5 - 4 mph and running at 6.5-7.5 mph. I'm managing the runs OK but am bathed in sweat when I get off - am I pushing too hard and likely to struggle with
Leeg1974
in
Couch to 5K
2 years ago
best products
Hello,can I pick your brains please. recently diagnosed with sjorgrens.after a fight my drs gave agreed to supply some products on prescription. My first trip to the pharmacy cost me £50 and I top of this I purchase eye drops online and pay for my prescription for hydroxy. The drops I buy online
Hello,can I pick your brains please. recently diagnosed with sjorgrens.after a fight my drs gave agreed to supply some products on prescription. My first trip to the pharmacy cost me £50 and I top of this I purchase eye drops online and pay for my prescription for hydroxy. The drops I buy online
BonnyB
in
LUPUS UK
2 years ago
glaucoma operation
I am having a glaucoma operation on my right eye this week and I’m terrified. I am having it with a local anaesthetic. I could not find anyone who has had it and could put my mind at ease . Is there anyone who has been through this please help me.
I am having a glaucoma operation on my right eye this week and I’m terrified. I am having it with a local anaesthetic. I could not find anyone who has had it and could put my mind at ease . Is there anyone who has been through this please help me.
Maryjane-s
in
Glaucoma UK
2 years ago
Interferons as the First Choice of Cytoreduction in ET and PV
»Interferons are a group of cytokines with immunomodulatory properties and were the first immune therapies used in the treatment of cancers, including hematologic malignancies. Use of standard interferon alfa-2b for MPN treatment has been limited by its difficulty in administration and adverse effect
»Interferons are a group of cytokines with immunomodulatory properties and were the first immune therapies used in the treatment of cancers, including hematologic malignancies. Use of standard interferon alfa-2b for MPN treatment has been limited by its difficulty in administration and adverse effect
Manouche
in
MPN Voice
2 years ago
Here we go again!!
I just wanted to say hi to all the wonderful women on this forum. I've been following peoples journeys and I'm always inspired by everyone's stories and support for each other. I've just been for my scratch as I hope to start treatment again in a few days time. Weirdly the scratch wasn't as painful
I just wanted to say hi to all the wonderful women on this forum. I've been following peoples journeys and I'm always inspired by everyone's stories and support for each other. I've just been for my scratch as I hope to start treatment again in a few days time. Weirdly the scratch wasn't as painful
Pebbles345
in
Fertility Network UK
2 years ago
Tiopex and night vision
I was diagnosed with glaucoma last March and prescribed Tiopex eye drops, one drop in each eye once a day. Since the nights have got darker I notice that my vision is poor when driving at night Yesterday in the cinema I could not read extracts from a notebook when they appeared on a screen - they were
I was diagnosed with glaucoma last March and prescribed Tiopex eye drops, one drop in each eye once a day. Since the nights have got darker I notice that my vision is poor when driving at night Yesterday in the cinema I could not read extracts from a notebook when they appeared on a screen - they were
Eyeworrier
in
Glaucoma UK
2 years ago
constipation
Hi folks Taking Levodopa Gabapentin and Tramadol for Parkinson and Restless legs and get bad constipation can you suggest any good things to take to help this .
Hi folks Taking Levodopa Gabapentin and Tramadol for Parkinson and Restless legs and get bad constipation can you suggest any good things to take to help this .
auldreekie18
in
Restless Legs Syndrome
2 years ago
alternative to sertraline due to restless legs
I have suffered restless legs all my life. A few years ago my dr checked my ferritin level. It was very low and I took iron. My legs got better and I was elated. No one had ever told me there was such a simple solution in all my 71 years. I have also taken sertraline in the past but never associated
I have suffered restless legs all my life. A few years ago my dr checked my ferritin level. It was very low and I took iron. My legs got better and I was elated. No one had ever told me there was such a simple solution in all my 71 years. I have also taken sertraline in the past but never associated
NJB71
in
Restless Legs Syndrome
2 years ago
Very high IgE levels
Does anyone else with autoimmune PA have a sky high IgE level as I do? Since diagnosis mine has been around 2000 KIU/L (normal range <20). I don’t suffer from any of the conditions usually associated with very high serum IgE such as aspergillosis, Hodgkin’s Disease etc, so whatever has caused it is
Does anyone else with autoimmune PA have a sky high IgE level as I do? Since diagnosis mine has been around 2000 KIU/L (normal range <20). I don’t suffer from any of the conditions usually associated with very high serum IgE such as aspergillosis, Hodgkin’s Disease etc, so whatever has caused it is
summersj
in
Pernicious Anaemia Society
2 years ago
Eyelids swollen and TED suspected
My saga continues. I have Hashimotos and have been on 200mg levothyroxine for some years. For the last 2 years I have had eyelid swelling which has now affected my vision. I tried my GP for help but to no avail. This year whilst having an eyetest st Specsavers the optician also tested my field of
My saga continues. I have Hashimotos and have been on 200mg levothyroxine for some years. For the last 2 years I have had eyelid swelling which has now affected my vision. I tried my GP for help but to no avail. This year whilst having an eyetest st Specsavers the optician also tested my field of
A1Amber
in
Thyroid UK
2 years ago
Living in the PUPO bubble...10dp5dt *sensitive - updated...bfp*
Hi everyone! Not posted on here in a while but have never stopped lurking 😅 Sorry in advance for the long post and update! My last post was about thinking of moving to a clinic abroad, which we did early this year. Since then we've had 2 cycles in Spain. 1st cycle there (3rd overall after 2 x NHS cycles
Hi everyone! Not posted on here in a while but have never stopped lurking 😅 Sorry in advance for the long post and update! My last post was about thinking of moving to a clinic abroad, which we did early this year. Since then we've had 2 cycles in Spain. 1st cycle there (3rd overall after 2 x NHS cycles
Moonbeam8511
in
Fertility Network UK
2 years ago
Psp and cataracts.
Hi friends just wanted to ask if anyone has any experience with a loved one who has psp and has has cataracts. At long last my mum got an appointment with a optometrist at the hospital. They said she has cataracts in both eyes and will need to have surgery. The doctor was quite scary telling me the complications
Hi friends just wanted to ask if anyone has any experience with a loved one who has psp and has has cataracts. At long last my mum got an appointment with a optometrist at the hospital. They said she has cataracts in both eyes and will need to have surgery. The doctor was quite scary telling me the complications
Cinderella80
in
PSP Association
2 years ago
Dry eyes
Recently, I had an ANA speckled pattern 1:640. They ran all the little subtests and all came out negative. My eyes are so dry that I was thinking I might have sjogrens. Also, I have bad constipation that I take Linzess for. Optician said when I was getting tested for glasses that my glands were blocked
Recently, I had an ANA speckled pattern 1:640. They ran all the little subtests and all came out negative. My eyes are so dry that I was thinking I might have sjogrens. Also, I have bad constipation that I take Linzess for. Optician said when I was getting tested for glasses that my glands were blocked
Zelda5
in
Thyroid UK
2 years ago
Scalp SLE diagnosed April 2021, conflicting/contradictory medications - any advice?
Hi I've had a biopsy which confirmed SLE for scalp last year in France (where I live).Having suffered health issues due to serious overmedication here before, I was reluctant to start on 400mg of Plaquenil. Got a 2nd opinion in Spain in May2021, who prescribed Diprosone (topical steroid cream) which
Hi I've had a biopsy which confirmed SLE for scalp last year in France (where I live).Having suffered health issues due to serious overmedication here before, I was reluctant to start on 400mg of Plaquenil. Got a 2nd opinion in Spain in May2021, who prescribed Diprosone (topical steroid cream) which
carorueil
in
LUPUS UK
2 years ago
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