Psp and cataracts.

[Cinderella80]

Hi friends just wanted to ask if anyone has any experience with a loved one who has psp and has has cataracts. At long last my mum got an appointment with a optometrist at the hospital. They said she has cataracts in both eyes and will need to have surgery. The doctor was quite scary telling me the complications of the surgery. He also said she will need a hoist when in hospital. Im just a bit worried for her but her quality of life is already hard i would love to see her eyesight improve as she loves watching gardening and wildlife programmes. Has anyone else had any experience with this . With a loved one having psp and cataracts and has had the surgery. I would love to know how it was for you if it was okay. Thankyou .

[Dance1955]

my husband had it done there was no problems he had 20 /20 vision after

Now I don’t know how his sight is 3 or 4 years on

And we had it done privately he tells me he can see a bit

I think it’s the progression of the disease so not sure if I would have had it but at the time he

was mobile so I wanted him to have good sight

Good luck with your decision

Hugs to you 💐

[Cinderella80 in reply to Dance1955]

Hi thanks for replying. My mum is unfortunatly not very mobile therefore mostly she lays down or watches television. I was thinking about going on the private route as they may be abit more sympathetic towards mums condition. I live in the uk so i will try to get some info on getting her surgery done privately. Thankyou again.

[Dance1955 in reply to Cinderella80]

hi Cinderella the things we do hey what a horrible disease this is xx

[Leseva]

Hi, my Dad has had both his done and was a big improvement for him. One just recently, he is 84 with PSP. Just need eyedrops in so provided someone can do that 3 x per day then should be ok x

[Cinderella80 in reply to Leseva]

Thanks for taking the time out to reply.

[BellaRooney]

Hello, my Dad has both cataracts and psp. He was due to go under anaesthetic for the op as wouldn’t be able to sit still and follow the instructions, his mobility/coordination and cognition is poor.

On the day when it came to the op the doctors decided the risks of the anaesthetic outweighed the benefits and they called off the operation. I expect it’s all dependant on each individual’s condition.

Wish you all the best,

[Cinderella80]

Thanks for taking the time out to reply. Iam thinking about getting her surgery done privately. Hopefully they will be more sympathetic towards mums condition.

[TBoyles]

Hi! My husband has PSP and has had cataract surgery. We did not realize that he had PSP at the time, since he had been diagnosed with early Parkinson's disease at that time. When he went in for the surgery with the first Dr. , he experienced a severe panic attack as he was being lowered on the table. So, the Dr. said NO and walked out. A year later we found a Dr. who was willing to do the anesthesia for each eye (separate surgeries) and he did great and has 20/20 vision. But now that he has the correct diagnoses as PSP, his entire vision is extremely distorted by the brain that he cannot see anything for the spatial disabilities. He cannot drive, read, and is limited in his TV viewing. It is a horrible disease but at least his vision is not cloudy. He is very happy that he has had the cataract surgery.

[Cinderella80 in reply to TBoyles]

thankyou for replying. The doctor that we were seen by was quite rude and wasnt really interested in me trying to inform him about mums condition. He said he would be doing the surgery or a trainee would be doing it. It got me abit worried.

[BlueSkyler in reply to Cinderella80]

No, PSP is just not understood by the average Dr. and unfortunately, not well known amongst the Neurologists either.

[AJK2001]

I think cataract operations are so "routine" that the surgeons view them virtually as a production line and so empathy can be a little in short supply. Mum had her 2nd cataract done when PSP was quite advanced. What she didn't tell me was she'd had a fall the night before and was in alot of pain. She had the operation no problem but the nurse who was moving her said she did appear to be in pain in her shoulder. Then she admitted to having fallen, so we went straight from day surgery to A&E to find out she's broken her arm in the fall!