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A dignified journey
Hi all, I just wanted to pop on here to express my sincere appreciation for this site. I haven't really participated here, but have found it to be a wealth of information while transitioning through the different stages of my dad's PSP journey. Alongside that, it has been really remarkable to know there
Hi all, I just wanted to pop on here to express my sincere appreciation for this site. I haven't really participated here, but have found it to be a wealth of information while transitioning through the different stages of my dad's PSP journey. Alongside that, it has been really remarkable to know there
Lulumacmac231
in
PSP Association
5 years ago
My love - aka ‘Hazard’ - passed away on Monday night
4 years after diagnosis. He was brave and extraordinarily stoic right up until the end. Treatment was stopped four weeks ago and we managed to bring him home for the last week with the help of palliative care, where he enjoyed seeing many visitors and listening to his beloved stereo. On Monday night
4 years after diagnosis. He was brave and extraordinarily stoic right up until the end. Treatment was stopped four weeks ago and we managed to bring him home for the last week with the help of palliative care, where he enjoyed seeing many visitors and listening to his beloved stereo. On Monday night
Kat95
in
Advanced Prostate Cancer
5 years ago
Balanitis?
These small red dots appeared after masterbating. They are itchy but not painful or any smell to it. My shaft looks swollen a bit (I am uncircumcised). I will be visiting my GP Wednesday to have a look but would like the communities input on it. Little background info, I did contract Chlamydia I believe
These small red dots appeared after masterbating. They are itchy but not painful or any smell to it. My shaft looks swollen a bit (I am uncircumcised). I will be visiting my GP Wednesday to have a look but would like the communities input on it. Little background info, I did contract Chlamydia I believe
Sir_Smilez
in
Men's Health Forum
5 years ago
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Internal hemorroids
Can I ask a question? I was constipated months ago and following a painful BM thought I tore (fissure). Each time I would go, it felt like razors at the end with at times bright blood. Went to GI, she looked and said it was Grade 1 piles. Gave me proctosol 2.5 cream. I have been using for 2 months which
Can I ask a question? I was constipated months ago and following a painful BM thought I tore (fissure). Each time I would go, it felt like razors at the end with at times bright blood. Went to GI, she looked and said it was Grade 1 piles. Gave me proctosol 2.5 cream. I have been using for 2 months which
rmlski
in
IBS Network
5 years ago
Polycythemia jak2 possitive and mouth ulcers :-(
Hi everyone, just found this site. I have been on hydroxycarbomide for about 2 years, and the last year I have been suffering with mouth ulcers, almost every week, and the one I have now for over a week is horrible, the over the counter remedies don’t touch.it. They are always under my tongue or at the
Hi everyone, just found this site. I have been on hydroxycarbomide for about 2 years, and the last year I have been suffering with mouth ulcers, almost every week, and the one I have now for over a week is horrible, the over the counter remedies don’t touch.it. They are always under my tongue or at the
Yvette49
in
MPN Voice
5 years ago
Update from the countess of chester
An update from yesterday’s post.well I’m realising that it takes a further amount of hospital visits and juggling of medication in particular prograf after a liver transplant before you can say your out of the woods finally.although some may not have any issues.so I’m in the hospital in the amazing countess
An update from yesterday’s post.well I’m realising that it takes a further amount of hospital visits and juggling of medication in particular prograf after a liver transplant before you can say your out of the woods finally.although some may not have any issues.so I’m in the hospital in the amazing countess
Popel
in
British Liver Trust
5 years ago
PVC'S
Anyone get premature ventricular contractions from gastointestinal problems? I keep havibg mucus, pus, yeast in my stool...and sometimes blood when I wipe. Colonoscopy was clear. Could it be haemorrhoids?
Anyone get premature ventricular contractions from gastointestinal problems? I keep havibg mucus, pus, yeast in my stool...and sometimes blood when I wipe. Colonoscopy was clear. Could it be haemorrhoids?
Healthyfreak
in
IBS Network
5 years ago
Doxycycline 2
Feeling a mixture of stupid, fussy and a general pain in the. Asked the simple question 'do we have any sun screen as the doxy info and surgery advised I use it outside even going to the car' .....really wish I hadn't asked because - we are in the UK it's not summer, it's raining outside......etc etc
Feeling a mixture of stupid, fussy and a general pain in the. Asked the simple question 'do we have any sun screen as the doxy info and surgery advised I use it outside even going to the car' .....really wish I hadn't asked because - we are in the UK it's not summer, it's raining outside......etc etc
Hidden
in
LUPUS UK
5 years ago
Inhibition of NFκB Reduces Prostate Cancer Related Osteoclastogenesis In Vitro and Osteolysis Ex Vivo.
New UK study below [1]. See a post from 3 years back [2]: "Foods/Supplements-Vitamins: Parthenolide - Feverfew" I have also posted on inflammation & the role of chronically activated nuclear factor-kappaB [NFkB] in PCa. All the polyphenolic usual suspects are NFkB inhibitors. In the new study, the target
New UK study below [1]. See a post from 3 years back [2]: "Foods/Supplements-Vitamins: Parthenolide - Feverfew" I have also posted on inflammation & the role of chronically activated nuclear factor-kappaB [NFkB] in PCa. All the polyphenolic usual suspects are NFkB inhibitors. In the new study, the target
pjoshea13
in
Advanced Prostate Cancer
5 years ago
Homemade CBD oil suppositories for anal fissures/anal sphincter spasm
I am having a bit of success relaxing my sphincter through making homemade CBD oil and coconut oil suppositories. I am melting down organic coconut oil by placing coconut oil into a glass and immersing glass in a bowl of hot water. It melts really quickly. About 2 tablespoons. Then I am adding CBD oil
I am having a bit of success relaxing my sphincter through making homemade CBD oil and coconut oil suppositories. I am melting down organic coconut oil by placing coconut oil into a glass and immersing glass in a bowl of hot water. It melts really quickly. About 2 tablespoons. Then I am adding CBD oil
dbronline
in
Pelvic Pain Support Network
5 years ago
More questions than answers
Hi, I'm new here. I have been having severe anal pain for about 4 months now. It started after a bout of constipation which caused hemorrhoids and an anal fissure. Over the months the pain worsened exponentially and my surgeon recommended a hemorroidectomy, which I had one month ago. Since surgery the
Hi, I'm new here. I have been having severe anal pain for about 4 months now. It started after a bout of constipation which caused hemorrhoids and an anal fissure. Over the months the pain worsened exponentially and my surgeon recommended a hemorroidectomy, which I had one month ago. Since surgery the
mipdgal
in
Pelvic Pain Support Network
5 years ago
My worries about CKD are now secondary
I am 69, male, stage 3b. In 2017 one kidney was removed due to a stage 1 cancer tumor. Then I was labelled as CKD. Since then I have done on the recommended things about diet, exercise, testing, etc. And my egfr has remained stable, or slightly improved. And this website has given me so much information
I am 69, male, stage 3b. In 2017 one kidney was removed due to a stage 1 cancer tumor. Then I was labelled as CKD. Since then I have done on the recommended things about diet, exercise, testing, etc. And my egfr has remained stable, or slightly improved. And this website has given me so much information
RickHow
in
Early CKD Support
5 years ago
PROMACTA ?? anyone on it ???
anyone on promacta ????????? on it for 2 weeks now and get a platlelet count tomorrow ….. will let all know tomorrow .. doctor says it's the best with little side effects ?? very expensive ………………… ANYONE GET CIRCULAR PURPLE ROUND SPOTS ON THE LEGS SMALLER THAN DIME … THEY ARE PURPLE THEN RED THEN
anyone on promacta ????????? on it for 2 weeks now and get a platlelet count tomorrow ….. will let all know tomorrow .. doctor says it's the best with little side effects ?? very expensive ………………… ANYONE GET CIRCULAR PURPLE ROUND SPOTS ON THE LEGS SMALLER THAN DIME … THEY ARE PURPLE THEN RED THEN
exxxon
in
ITP Support Association
5 years ago
kidney transplant support
last two years i am doing dialysis and i had a gallbladder removal surgery and Coronary artery bypass graft i am without a job for last two years i spend all my saving for dialysis and two surgery. i have to do three dialysis per week i have a donor for a kidney transplant i need some financial support
last two years i am doing dialysis and i had a gallbladder removal surgery and Coronary artery bypass graft i am without a job for last two years i spend all my saving for dialysis and two surgery. i have to do three dialysis per week i have a donor for a kidney transplant i need some financial support
Shami
in
Kidney Dialysis
5 years ago
Arachnoiditis
Has anyone else been diagnosed with Arachnoiditis? It was found on an MRI to rule out osteomyelitis due to bacterial meningitis. From what I've read it is chronic and progressive, with no treatment available. The disease that keeps on giving!
Has anyone else been diagnosed with Arachnoiditis? It was found on an MRI to rule out osteomyelitis due to bacterial meningitis. From what I've read it is chronic and progressive, with no treatment available. The disease that keeps on giving!
Quiltergirl
in
Meningitis Now
5 years ago
Advagraf dosage
I reduce the dose of advagraf for 9 months after the transplant, but the level of tacrolimus does not decrease. I started with 9mg, but now I use only 5mg. Tacrolimus levels are around 11-12. My doctor recommends that I use only 3mg - is it not too small?
I reduce the dose of advagraf for 9 months after the transplant, but the level of tacrolimus does not decrease. I started with 9mg, but now I use only 5mg. Tacrolimus levels are around 11-12. My doctor recommends that I use only 3mg - is it not too small?
uking
in
Kidney Transplant Patient Support
5 years ago
Cough drops did the trick
I have to post, especially to papatom, regarding a solution to persistent mouth sores related to taking Imbruvica. Papatom responded to my recent post that he’d inadvertently found relief by sucking on Ricola lemon mint cough drops. I have tried everything from oil of oregano and mouth rinses to powerful
I have to post, especially to papatom, regarding a solution to persistent mouth sores related to taking Imbruvica. Papatom responded to my recent post that he’d inadvertently found relief by sucking on Ricola lemon mint cough drops. I have tried everything from oil of oregano and mouth rinses to powerful
Survivor1951
in
CLL Support
5 years ago
Living on dialysis
Hi jayhawker its Mj 1965, its been a while.b4 I started dialysis I wanted to go on haemodialysis but I was advised by my nephrologist to go on PD dialysis because if I went on haemodialysis it would make me feel worse and I would feel drained all the time. You know what its the best decision I made.
Hi jayhawker its Mj 1965, its been a while.b4 I started dialysis I wanted to go on haemodialysis but I was advised by my nephrologist to go on PD dialysis because if I went on haemodialysis it would make me feel worse and I would feel drained all the time. You know what its the best decision I made.
Mj1965
in
Kidney Dialysis
5 years ago
Trying my GP again
Hi l am fairly new to the site but have had PA for almost 34 years and there wasn't much information back then so l have just tried my best to get on with it and for most part that was ok. Until recently l was able to make it through the 12 weeks until my next injection and the rest of the time l struggled
Hi l am fairly new to the site but have had PA for almost 34 years and there wasn't much information back then so l have just tried my best to get on with it and for most part that was ok. Until recently l was able to make it through the 12 weeks until my next injection and the rest of the time l struggled
CraftyKit
in
Pernicious Anaemia Society
6 years ago
Immune system
Hey Girls Since having my endometriosis removed 5 weeks ago my immune system has been really low. My Surgery didn’t go as planned and I was in theatre for nearly 5 hours due to them finding endometriosis in places they wasn’t aware of as they didn’t see it in the first surgery last July and it not showing
Hey Girls Since having my endometriosis removed 5 weeks ago my immune system has been really low. My Surgery didn’t go as planned and I was in theatre for nearly 5 hours due to them finding endometriosis in places they wasn’t aware of as they didn’t see it in the first surgery last July and it not showing
jelleytots10
in
Endometriosis UK
5 years ago
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