I am 69, male, stage 3b. In 2017 one kidney was removed due to a stage 1 cancer tumor. Then I was labelled as CKD. Since then I have done on the recommended things about diet, exercise, testing, etc. And my egfr has remained stable, or slightly improved. And this website has given me so much information and hope and sharing, it helped a great deal. Now I had a routine ultrasound to see how the other kidney looked, and other organs (to see if cancer returned. At stage 1 there is only an 8% chance it comes back). Yesterday I found that the cancer has returned, to the bones, in four spots. Three in the pelvis, one in the spine. I am one of the 8%. There are no effective treatments for metastatic kidney cancer, no chemo, etc. There are one or two new pills that help to slow the growth for a short time, but at the cost of about $18,000 a month. That is not a typo. $18,000 a month! There is immunotherapy which is given as a patient in the hospital but it is so toxic and only helps for a very short time, that the oncologists does not recommend it. So I will be in palliative care with radiation for pain as required. Basically the cause of death is that the bone cancer makes you increasingly anemic. So my message? I have spent almost 2 years constantly concerned about the CKD, what to eat, drink, exercise, and worrying. All for naught. To all my friends on here with CKD. Remember to enjoy your days too. Not to be consumed by constant worry and what if's. That can easily become wasted time, because in the end, as I have now learned, what will be, will be. And now I will go have a big beef steak, with all the foods I have avoided, and a beer for the first time in almost 2 years :). And think to myself "take that CKD".
My worries about CKD are now secondary - Early CKD Support
Early CKD Support
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