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Deep Brain Stimulation
Hi, my partner has Dystonia and we may be going down the route of Deep Brain stimulation. Has anyone had this? is there any personal stories anyone wanted to share? Thanks in advance xx
Hi, my partner has Dystonia and we may be going down the route of Deep Brain stimulation. Has anyone had this? is there any personal stories anyone wanted to share? Thanks in advance xx
Clgn83
in
Dystonia Society
5 years ago
Another Question about DBS
I’ve been following the latest discussions about DBS. It makes me feel hopeful. However, I have a pacemaker already and am wondering if that would disqualify me as a candidate. Has anyone ever heard anything about this? I plan to ask my MDS, but I don’t see him again until next January.
I’ve been following the latest discussions about DBS. It makes me feel hopeful. However, I have a pacemaker already and am wondering if that would disqualify me as a candidate. Has anyone ever heard anything about this? I plan to ask my MDS, but I don’t see him again until next January.
Cjbro2000
in
Cure Parkinson's
5 years ago
1st Step
The weather is in a
deep
freeze
, as most of the country. All the schools are closed. A travel advisory is in place this morning. For a moment I wondered if they would call and cancel. I stopped my thoughts immediately - I have to take this step. I have so many questions, little nagging things.
The weather is in a
deep
freeze
, as most of the country. All the schools are closed. A travel advisory is in place this morning. For a moment I wondered if they would call and cancel. I stopped my thoughts immediately - I have to take this step. I have so many questions, little nagging things.
Scrap3
in
Kidney Dialysis
5 years ago
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DBS
Anyone that has had DBS, would you please share your experience? I’m highly considering starting the approval process. I’m 45, dx in 2008, and have exhausted medication options. I’ve tried diet, exercise, HDT.
Anyone that has had DBS, would you please share your experience? I’m highly considering starting the approval process. I’m 45, dx in 2008, and have exhausted medication options. I’ve tried diet, exercise, HDT.
Jlloy5
in
Cure Parkinson's
5 years ago
Can ataxia improve to hardly any symptoms?
Last year I had slurred speech and an “ataxia gait” after a couple of months these symptoms vanished completely, I had an mri twice and there was no abnormal problems I also had a lumber puncher and that was clear so was my blood tests. I do have coeliac disease and I didn’t follow my gluten free diet
Last year I had slurred speech and an “ataxia gait” after a couple of months these symptoms vanished completely, I had an mri twice and there was no abnormal problems I also had a lumber puncher and that was clear so was my blood tests. I do have coeliac disease and I didn’t follow my gluten free diet
GlutenLadYorkshire
in
Ataxia UK
5 years ago
WHICH WOULD YOU CONSIDER AS THE MOST BENEFICIAL TO YOU AS A PD TREATMENT? MEDICATION OR DBS.
Hi fellow parkies and caregivers.For patients and caregivers,your opinions we go a long way to help me decide on my options,at the right time.Please if you have been on medication therapy for sveral years and then opted for surgery with DBS.Kindly share your experiences.As I understand through my searches
Hi fellow parkies and caregivers.For patients and caregivers,your opinions we go a long way to help me decide on my options,at the right time.Please if you have been on medication therapy for sveral years and then opted for surgery with DBS.Kindly share your experiences.As I understand through my searches
GBAMIGOD
in
Cure Parkinson's
5 years ago
Gluten ataxia
Hi all I’m just wondering how you are diagnosed as having gluten ataxia, I currently have coeliac disease which was diagnosed about 5 Years ago, I didn’t follow a gluten free diet and about last I fell ill with balance issues slurred speech and an ear infection which improved in hospital and a couple
Hi all I’m just wondering how you are diagnosed as having gluten ataxia, I currently have coeliac disease which was diagnosed about 5 Years ago, I didn’t follow a gluten free diet and about last I fell ill with balance issues slurred speech and an ear infection which improved in hospital and a couple
GlutenLadYorkshire
in
Ataxia UK
5 years ago
DBS battery--affecting my symptoms?
I had DBS surgery 4.5 years ago. I have been alerted to the fact that my battery needs changing out by my DBS monitor, and I am having the minimal surgery on 4/24. I was diagnosed almost 20 years ago (I am now 70) and have stayed fairly functional. Until now. For the last couple of months, my symptoms
I had DBS surgery 4.5 years ago. I have been alerted to the fact that my battery needs changing out by my DBS monitor, and I am having the minimal surgery on 4/24. I was diagnosed almost 20 years ago (I am now 70) and have stayed fairly functional. Until now. For the last couple of months, my symptoms
tnleighla
in
Cure Parkinson's
5 years ago
Going Gluten Free
Hi, Looking for some moral support and success stories. I am about to embark on a gluten free diet. Anyone else on this journey or able to offer positive encouragement? Thanks.
Hi, Looking for some moral support and success stories. I am about to embark on a gluten free diet. Anyone else on this journey or able to offer positive encouragement? Thanks.
nessa263
in
Thyroid UK
5 years ago
Coeliac and trigger foods
Hiya, sorry for the long post. I’ve been coeliac for over 10 years and still struggle daily with bloating and bowel problems. I stick to what I though was a strict gluten free diet staying away from oats, barley and rye also. My diet overall is pretty poor and contains a lot of caffeine and sugar ! I
Hiya, sorry for the long post. I’ve been coeliac for over 10 years and still struggle daily with bloating and bowel problems. I stick to what I though was a strict gluten free diet staying away from oats, barley and rye also. My diet overall is pretty poor and contains a lot of caffeine and sugar ! I
Candyfloss18
in
Gluten Free Guerrillas
5 years ago
HDT and dyskinesia
A friend of mine and a PWP has severe dyskinesia and I was wondering if the high dose thiamine protocol would help her? I understand that HDT is meant to prevent developing dyskinesia but I'm not sure if it helps decrease the movements once you have it. She was considering deep brain stimulation but
A friend of mine and a PWP has severe dyskinesia and I was wondering if the high dose thiamine protocol would help her? I understand that HDT is meant to prevent developing dyskinesia but I'm not sure if it helps decrease the movements once you have it. She was considering deep brain stimulation but
Shaky-hand
in
Cure Parkinson's
5 years ago
Diabetes and end stage liver cirrhosis.
Hi guys ... As I posted earlier my husband had very severe internal bleeding but somehow recovered. He is discharged from hospital 20days ago but is too weak. Has lost almost 20kgs of weight but the good news is he is not taking alcohol anymore. He is sedated with medicines and sleeps almost entire day
Hi guys ... As I posted earlier my husband had very severe internal bleeding but somehow recovered. He is discharged from hospital 20days ago but is too weak. Has lost almost 20kgs of weight but the good news is he is not taking alcohol anymore. He is sedated with medicines and sleeps almost entire day
Wifeofalcoholic
in
British Liver Trust
5 years ago
Does Deep brain stimulation even work for Dystonia
Hi all my name is Joshua, I have got some questions and concerned about the opt I’ve had over a year ago called deep brain stimulating (DBS), my doctor told me that it would approximately take a year before I can see any changes but it has been now over a year and I haven’t seen anything happening I
Hi all my name is Joshua, I have got some questions and concerned about the opt I’ve had over a year ago called deep brain stimulating (DBS), my doctor told me that it would approximately take a year before I can see any changes but it has been now over a year and I haven’t seen anything happening I
Josh_l
in
Cure Parkinson's
5 years ago
Oats for gluten free diet.
Hi. im on gluten free diet from july 2019. I lobed to start eat oats, but I dont know if its posible for a free gluten diet. Im hashis and feel so ok since gluten free diet and combo t4/t3. Taking also folate, biotine, selenium, vit c, and liver cleanse and digestive enzimes. I can eat oaks now? Thanks
Hi. im on gluten free diet from july 2019. I lobed to start eat oats, but I dont know if its posible for a free gluten diet. Im hashis and feel so ok since gluten free diet and combo t4/t3. Taking also folate, biotine, selenium, vit c, and liver cleanse and digestive enzimes. I can eat oaks now? Thanks
Nattysmith
in
Thyroid UK
5 years ago
Confused!
Hi, I've been reading and reading, searching and searching, but I still can't find the answers - well maybe there isn't an answer, but I'm going to ask anyway. About 2 months ago I got a really unpleasant bitter taste in my mouth that won't go away. I had a gastroscopy and was told to take tablets (2x
Hi, I've been reading and reading, searching and searching, but I still can't find the answers - well maybe there isn't an answer, but I'm going to ask anyway. About 2 months ago I got a really unpleasant bitter taste in my mouth that won't go away. I had a gastroscopy and was told to take tablets (2x
Slov1
in
Gluten Free Guerrillas
5 years ago
Breathlessness and chest pain
I have a telephone consultation with my doctor on Friday and I am looking for some advice on what to ask. Apologies in advance for the essay! ETA, I have Hashimoto's and am on a gluten free diet. My levothyroxine has been increased from 50mcg to 150mcg in the past 2 years. My thyroid function results
I have a telephone consultation with my doctor on Friday and I am looking for some advice on what to ask. Apologies in advance for the essay! ETA, I have Hashimoto's and am on a gluten free diet. My levothyroxine has been increased from 50mcg to 150mcg in the past 2 years. My thyroid function results
romyhorse
in
Thyroid UK
5 years ago
Thyroid antibodies higher after starting GF
I've just been retested after upping my thyroxin and going on a gluten free diet. My TSH levels have come down but my antibodies have gone up. Very confused
I've just been retested after upping my thyroxin and going on a gluten free diet. My TSH levels have come down but my antibodies have gone up. Very confused
Foggyk
in
Thyroid UK
5 years ago
Deep Brain stimulation - how it works ?
Recharge your batteries! https://www.imperial.ac.uk/news/190525/parkinsons-treatment-delivers-power-up-brain-cell/?utm_medium=email&utm_campaign=Imperial%20Today%20797%20%20Wednesday%2013%20March%202019&utm_content=Imperial%20Today%20797%20%20Wednesday%2013%20March%202019%20CID_bc4365e0a80def7f102e4d41b21e55c9&
Recharge your batteries! https://www.imperial.ac.uk/news/190525/parkinsons-treatment-delivers-power-up-brain-cell/?utm_medium=email&utm_campaign=Imperial%20Today%20797%20%20Wednesday%2013%20March%202019&utm_content=Imperial%20Today%20797%20%20Wednesday%2013%20March%202019%20CID_bc4365e0a80def7f102e4d41b21e55c9&
WinnieThePoo
in
Cure Parkinson's
5 years ago
T3 advice
Hi folks I’d dearly like some advice on T3 treatment. I’ve been on levo for around 6 years and I’m also a type 1 diabetic so both are auto immune disorders. I am going to have a private blood test to have a thorough check as I’m not sure I trust the TSH only test. As well as taking 150mg of thyroxine
Hi folks I’d dearly like some advice on T3 treatment. I’ve been on levo for around 6 years and I’m also a type 1 diabetic so both are auto immune disorders. I am going to have a private blood test to have a thorough check as I’m not sure I trust the TSH only test. As well as taking 150mg of thyroxine
Alwaysknackered77
in
Thyroid UK
5 years ago
Changing medication
Hi everyone I’m going to speak to my doctor today about my medication ,I take 75mg of progabalin 3 times a day and I want to reduce it eventually get of medication all together .I was wondering if I was having a bad day if I could up the dosage or does it take time to work ? Started gluten free diet
Hi everyone I’m going to speak to my doctor today about my medication ,I take 75mg of progabalin 3 times a day and I want to reduce it eventually get of medication all together .I was wondering if I was having a bad day if I could up the dosage or does it take time to work ? Started gluten free diet
Larnian
in
Fibromyalgia Action UK
5 years ago
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