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Hip pain
Just done Week 4 run 2 and absolutely amazed that I can do this. Had hip pain (more discomfort but always there) since week 1. I’m running through it and using deep heat. Anyone have constant hip pain?
Just done Week 4 run 2 and absolutely amazed that I can do this. Had hip pain (more discomfort but always there) since week 1. I’m running through it and using deep heat. Anyone have constant hip pain?
Dramaqueenbee
in
Couch to 5K
5 years ago
Does DBS improve sleep?
Has anyone who has had DBS found that it improved their non motor symptoms, especially sleep?
Has anyone who has had DBS found that it improved their non motor symptoms, especially sleep?
jackedmonston
in
Cure Parkinson's
5 years ago
DBS results please
Since I am beginniing to seriously consider DBS I would appreciate your comments regarding results, positive and negative,, and when and where was your surgery. Many thanks
Since I am beginniing to seriously consider DBS I would appreciate your comments regarding results, positive and negative,, and when and where was your surgery. Many thanks
jombi
in
Cure Parkinson's
5 years ago
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Just the job for stiff and sore joints and muscles
I came across this on Amazon: “Horse Balm” made in Germany, and gave it a go. Rest assured, it is for humans. This really is the vindaloo of balms, exceeding red Tiger Balm and Deep Heat. Use sparingly and wash your hands!!
I came across this on Amazon: “Horse Balm” made in Germany, and gave it a go. Rest assured, it is for humans. This really is the vindaloo of balms, exceeding red Tiger Balm and Deep Heat. Use sparingly and wash your hands!!
HeavyFoot
Graduate10
in
Bridge to 10K
5 years ago
10 Days Ago it was DBS
Always stated to my neurologists and physical therapist for over three years now to please tell me things straight up, so they did. A few weeks ago i had my 6 month check-up, doc said "Mark you might want to consider looking into DBS, because at 1250mg of c/l per day your pushing the max level for what
Always stated to my neurologists and physical therapist for over three years now to please tell me things straight up, so they did. A few weeks ago i had my 6 month check-up, doc said "Mark you might want to consider looking into DBS, because at 1250mg of c/l per day your pushing the max level for what
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Is it sciatica?!
Hi everyone! This is my first post, so far was silently following the programme until graduation...lost a bit of mojo after but trying to make my running more regular again....and that’s where my little, very painful problem made itself known...I could always find sound advice and encouragement from
Hi everyone! This is my first post, so far was silently following the programme until graduation...lost a bit of mojo after but trying to make my running more regular again....and that’s where my little, very painful problem made itself known...I could always find sound advice and encouragement from
Run_Gosh
Graduate
in
Couch to 5K
5 years ago
Gluten Free / anti-bodies
Hi. For the last 5 months I've been gluten free, as I was trying to reduce my thyroid anti-bodies. In May they were TPO 79, and it's now 70. The TG was 616 and is now 520. To me that's not a lot of difference, and I feel no different. I admit there are more options at the shops these days, but eating
Hi. For the last 5 months I've been gluten free, as I was trying to reduce my thyroid anti-bodies. In May they were TPO 79, and it's now 70. The TG was 616 and is now 520. To me that's not a lot of difference, and I feel no different. I admit there are more options at the shops these days, but eating
Greenwall
in
Thyroid UK
5 years ago
Life after pramipraxole
I got off pramipaxiole a little less than a month ago. Withdrawal was hell but worth it. My life has greatly improved. I am working on a a very low sugar and gluten-free diet. My sleep has improved so much! I do think diet is very important with this condition. Life can be good again, but it is hard
I got off pramipaxiole a little less than a month ago. Withdrawal was hell but worth it. My life has greatly improved. I am working on a a very low sugar and gluten-free diet. My sleep has improved so much! I do think diet is very important with this condition. Life can be good again, but it is hard
senders
in
Restless Legs Syndrome
5 years ago
Opicapone
My husband was given Opicapone about 18 months ago but stopped taking it for some reason. He started taking it again just over a month ago. He found immediate improvement with it eg. not having to go to the toilet so often during the night but he is finding it difficult to get the correct dose. It does
My husband was given Opicapone about 18 months ago but stopped taking it for some reason. He started taking it again just over a month ago. He found immediate improvement with it eg. not having to go to the toilet so often during the night but he is finding it difficult to get the correct dose. It does
JeanieBeanie
in
Cure Parkinson's
5 years ago
Cervical Dystonia
Hi everyone, I have had cervical dystonia for 30 years and been through many treatments.I wasn't diagnosed for 10 years and struggled on a daily basis, that was until I presented myself at the local hospital and received 1000 units of BOTOX.I had BOTOX injections for 10 years until it became ineffective.At
Hi everyone, I have had cervical dystonia for 30 years and been through many treatments.I wasn't diagnosed for 10 years and struggled on a daily basis, that was until I presented myself at the local hospital and received 1000 units of BOTOX.I had BOTOX injections for 10 years until it became ineffective.At
JJJ160
in
Dystonia Society
5 years ago
Does DBS control non motor problems, like sleep?
I’ve been diagnosed six years now (I’m 76). Three years in, my neurologist suggested DBS so I spoke to a neurosurgeon who has done many of these procedures. He said DBS works on “motor symptoms only.” Since medicine works for me, I did not go ahead. Recently I spoke to a friend in biotech who
I’ve been diagnosed six years now (I’m 76). Three years in, my neurologist suggested DBS so I spoke to a neurosurgeon who has done many of these procedures. He said DBS works on “motor symptoms only.” Since medicine works for me, I did not go ahead. Recently I spoke to a friend in biotech who
jackedmonston
in
Cure Parkinson's
5 years ago
Did not expect this..
Saw my neuro today... I'v been taking c/l and requip. Doc said with the amount of c/l I'm currently on 250mg 6 times a day and only getting 60-90 min of relief and my age (57) I would be the perfect candidate for DBS surgery which might grant me 10-15 years of a better quality of life. I asked if he
Saw my neuro today... I'v been taking c/l and requip. Doc said with the amount of c/l I'm currently on 250mg 6 times a day and only getting 60-90 min of relief and my age (57) I would be the perfect candidate for DBS surgery which might grant me 10-15 years of a better quality of life. I asked if he
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Fecal Calprotectin
Thank you for the welcome. I have been ill with terrible diarrhea for two weeks. Lost half a stone. Loperamide didn't help. GP wanted sample of what I produced to send to the lab. Result was they checked for all viruses & bacteria that are treatable, nothing showed up. He said the usual level of faecal
Thank you for the welcome. I have been ill with terrible diarrhea for two weeks. Lost half a stone. Loperamide didn't help. GP wanted sample of what I produced to send to the lab. Result was they checked for all viruses & bacteria that are treatable, nothing showed up. He said the usual level of faecal
hearty1
in
Bowel Disease Support
5 years ago
Person with parkinsons disease
I was diagnosed in 2002 When l went to my local dr. With some symptoms of mind games, dragging one leg, writing getting scribbymas l continued writing, hard to sign my name, but no tremors yet, my dr. Sent me to a neurologist who when l told him of the symptoms, stated l had early signs of Parkinson’
I was diagnosed in 2002 When l went to my local dr. With some symptoms of mind games, dragging one leg, writing getting scribbymas l continued writing, hard to sign my name, but no tremors yet, my dr. Sent me to a neurologist who when l told him of the symptoms, stated l had early signs of Parkinson’
Bernieneedfixing
in
Cure Parkinson's
5 years ago
Week 1 Run 2 :-))
Week 1 run 2 under the belt. Felt good but left calf is feeling like a slight pull so going to have to watch that. I hope it doesn't get worse. Had a soak and put some deep heat type stuff on. Fingers crossed!
Week 1 run 2 under the belt. Felt good but left calf is feeling like a slight pull so going to have to watch that. I hope it doesn't get worse. Had a soak and put some deep heat type stuff on. Fingers crossed!
parsdeclined
in
Couch to 5K
5 years ago
Canadian guideline for Parkinson disease
KEY POINTS This guideline update reflects substantial changes in the literature on diagnosis and treatment of Parkinson disease, and adds information on palliative care. Impulse control disorders can develop in a person with Parkinson disease who is on any dopaminergic therapy at any stage in the disease
KEY POINTS This guideline update reflects substantial changes in the literature on diagnosis and treatment of Parkinson disease, and adds information on palliative care. Impulse control disorders can develop in a person with Parkinson disease who is on any dopaminergic therapy at any stage in the disease
Farooqji
in
Cure Parkinson's
5 years ago
Life has returned to me part 2
Stress is important to control too- if i get anxious etc then i can
freeze
up so
deep
breathing cures that- relaxation. If i get to turn / move around too fast then i could fall- have not for months now used to be weekly.
Stress is important to control too- if i get anxious etc then i can
freeze
up so
deep
breathing cures that- relaxation. If i get to turn / move around too fast then i could fall- have not for months now used to be weekly.
alaynedellow
in
Cure Parkinson's
5 years ago
No light at the end of the tunnel!
Haven’t been on here for a while. It’s reassuring that I’m not the only one out there, although it feels that way sometimes. Any advice would be greatly appreciated, as I see no light at the end of the tunnel. I have had so many invasive tests done, including simple blood tests that show absolutely nothing
Haven’t been on here for a while. It’s reassuring that I’m not the only one out there, although it feels that way sometimes. Any advice would be greatly appreciated, as I see no light at the end of the tunnel. I have had so many invasive tests done, including simple blood tests that show absolutely nothing
Juggins1978
in
IBS Network
5 years ago
Adaptive Deep Brain Stimulation as an Advanced Parkinson’s disease Treatment (ADAPT): a pseudorandomised clinical trial
https://www.biorxiv.org/content/10.1101/749903v1?rss=1
https://www.biorxiv.org/content/10.1101/749903v1?rss=1
Farooqji
in
Cure Parkinson's
5 years ago
TSH perfectly normal ! ?
Hello again. Well, I paid to see the endo today and what people said would happen did happen. He was fixated on numbers as usual and didn't really listen to symptoms. The first words were, 'Why do you think you need an endocrinologist' . Well, that sort of opening line always throws me, why is it
Hello again. Well, I paid to see the endo today and what people said would happen did happen. He was fixated on numbers as usual and didn't really listen to symptoms. The first words were, 'Why do you think you need an endocrinologist' . Well, that sort of opening line always throws me, why is it
mountainice
in
Thyroid UK
5 years ago
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