10 Days Ago it was DBS: Always stated to my... - Cure Parkinson's

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10 Days Ago it was DBS

TheLordsWeapon profile image
14 Replies

Always stated to my neurologists and physical therapist for over three years now to please tell me things straight up, so they did. A few weeks ago i had my 6 month check-up, doc said "Mark you might want to consider looking into DBS, because at 1250mg of c/l per day your pushing the max level for what we are usually comfortable with. I said "Doc personally I did heavy research on DBS over the last year and I'm not going that route".... So in a conference call yesterday with Doc and Physical Therapist I stated that DBS was out but they were still my team if they agreed to support my med highway and not the push the drill in the skull approach...

Well I guess their decision has been written in stone and the team and I understand each other because a pharmacy delivery vehicle arrived at my front door yesterday, with a 12 month script and a peanut butter sized jar filled with 450, 250mg c/l tabs, I will continue to take 5 times a day (Every 3.5 to 4.0 hrs) @ 7am 11am 3pm 7pm 11pm. I'm getting about 90 minutes of "on" time per dose. roughly 7.5 hours a day of peace per day and about 6.0 hours of hell symptoms/side effects of off time, and then around 11:30pm I drug up with Ambien 12.5mg and sometimes medical cannabis then go to bed to get about 6 hrs sleep on average, waking up once on average .

I'll report back when I have to increase dosage or when any thing news worthy occurs. Praise to God!

2 Corinthians 12:9-10

9 But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses and trails, so that Christ’s power may rest on me. 10 That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak and feel at end, then I am strong.

GOD SPEED!

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TheLordsWeapon
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14 Replies
Cowpatti profile image
Cowpatti

My husband is at 250 4xday but also takes an agonist Nuepro patch. He also listens to calming music and paints. Some people do Tai Chi. He has a stationary bike any exercise helps. There are YouTube videos for Yoga Nidra that can boost your dopamine by 65% lizziehill.com. you just have to lie still and listen. It will give you energy and calm

Hope this helps

Xenos profile image
Xenos in reply toCowpatti

Thanks for your post but the link doesn't work.

Cowpatti profile image
Cowpatti in reply toXenos

You can search YouTube for lizziehill

TheLordsWeapon profile image
TheLordsWeapon in reply toCowpatti

Thank you so much for your reply and info, i will definitely look into it... God Bless...

parkie13 profile image
parkie13

youtu.be/7H0FKzeuVVs

Many meditations on YouTube, don't know which one you said.

TheLordsWeapon profile image
TheLordsWeapon in reply toparkie13

Fantastic Parkie thank you!,

ill try anything to ease symptom/side effects....anything but DBS...

Some time ago, while seeking for information about DBS, I came across with information about a similar system called cranial stimulation or intracranial magnetic stimulation. According to description it is a non-invasive device cleared by the FDA.

TheLordsWeapon profile image
TheLordsWeapon in reply to

VERY interesting, think this might be what you were talking about

mayoclinic.org/tests-proced...

God Speed....

thanks for reply!

in reply toTheLordsWeapon

Not exactly, I'm talking about a non-invasive device called The Fisher Wallace Stimulator® which, as I mention is FDA approved. Follow the link for more information. Good luck!

fisherwallace.com/pages/saf...

fisherwallace.com.

TheLordsWeapon profile image
TheLordsWeapon in reply to

ok thx!

movinngroovin1 profile image
movinngroovin1

I love my DBS! In the gym 4 times/week.

TheLordsWeapon profile image
TheLordsWeapon in reply tomovinngroovin1

Just out of curiosity how many batteries do you go through? or is it rechargeable? still cant deal with the thought of hardware, wires and such implanted under your skin, aside from the turn off of drilling holes in the skull 8(

glad its working for you! God Speed.......

movinngroovin1 profile image
movinngroovin1 in reply toTheLordsWeapon

6 years and still using the same battery

These days they put you asleep

I only wish I had done it earlier

I have been struggling with this monster for 22 years

TheLordsWeapon profile image
TheLordsWeapon in reply tomovinngroovin1

you are a very strong individual or have tremendous Faith in God,, or Both 8) God Bless!

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