have been struggling to find right treatment for months levothyroxine since august last year initially helped a lot with low energy and muscle pain but didn’t last. After several posts on here I have now gone up to 100 mcg for a week with a view to re testing in 2 months to see if my t3 has moved at all ( so far no change even slight drop)
I feel much worse shaky exhausted and heavy mood gone completely flat don’t want to do anything or see anyone. Do I need to acclimatise to new dose ? I’m not looking forward to weeks feeling like this.
I’m on all the supplements I need gluten free diet and feeling worse than ever
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Mag999
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I think as others have said it can feel worse before better for some people increasing dose. If you can wait for another few weeks you may start to feel better. Hard I know! Hope you feel better soon!
funnily enough we have just worked out that whenever my daughter has a rise in meds, about a week or so after she has a few days like this. When she is in need of a rise, it affects her gut and absorption, so it feels like it may not immediately be converted or used (not a medical fact, just a supposition) Because her absorption goes to pot when she needs a rise, we have to work on the whole picture...supplements etc and gradually it settles down. We are in that phase at the moment...unfortunately things never happen quickly enough with Hashimoto's, there always seems to be a frustrating wait for improvement when things sometimes fell like they are getting worse, not better
it’s such a delicate balancing act isn’t it, and this is the only place I get any help in navigating it, my gp doesn’t understand the importance of vitamins and minerals I suppose few of them do it just makes it such a slow process and I’m feeling fed up with the lack of progress but I need to be more patient with my poor old body.
it really is a fine balancing act and takes time to put right...we have found doctors quite dismissive, so you get to know your own body. Just the fact that if you are on T4 alone (which my daughter is) it can take an age for a dose adjustment to do its thing, then you have to deal with all the other stuff that has gone our of wack..hang in there!
For me, a week into my dose increase, I felt worse. I would have a 4-5 week period of my symptoms easing up and then I would feel worse again. I cut out gluten, dairy and sugar which helped for a month or 2 only. When I added the low FODMAP diet, my bone, muscle and gut pains went away fast. It was those pains that lead to another autoimmune diagnosis of autoimmune pancreatitis type 1. AIP type 1 is a blessing and a curse for me. I can use it to my advantage when I want to rapidly lose weight by forcing a flare, but I pay for it by severe pains and disabled for days.
thanks, I’m experimenting with diet and I also have low pancreatic enzymes I’m doing gluten and nightshade free but will look at low fodmap too as I’ve come across it and thought it could help.
If I have any small amount of gluten or high fodmap foods, I'm in pain. Just a bite of cake or a piece of onion or garlic and I'm in pain for days. Garlic and onions are high fodmap. For low enzymes, look for a product called Pancreatin 2000 by a company called NOW. I take 1 pill before any snack or meal.
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