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Continuous Ambulatory Peritoneal Dialysis
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Traveling to France and Germany
Hello all! I have a wonderful opportunity to travel to France and Germany in early October. It’s been a dream of mine to travel abroad but I’m overwhelmed with all the paraphernalia I have to take; medicines for my asthma, emergency meds, cpap, etc. I’m unsure of the weather during that time and other
Hello all! I have a wonderful opportunity to travel to France and Germany in early October. It’s been a dream of mine to travel abroad but I’m overwhelmed with all the paraphernalia I have to take; medicines for my asthma, emergency meds, cpap, etc. I’m unsure of the weather during that time and other
kdr112
in
Asthma Community Forum
2 years ago
Copd medication
I have just been given Uniphyllin Continus by my study doctor (Copd study for new drug) but forgot to ask if I should continue to use my ventolin during the day, does anyone know
I have just been given Uniphyllin Continus by my study doctor (Copd study for new drug) but forgot to ask if I should continue to use my ventolin during the day, does anyone know
Oldhippylynn
in
Lung Conditions Community Forum
2 years ago
IS HE GOING TO SLIDE OUT OF THIS ONE?!
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
Hidden
in
Lung Conditions Community Forum
2 years ago
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Finally got the Diagnosis!
Hello everyone. I am around here for 2 months now. I must say, it has been a horrible 2 months. Lots of nightmares, unnecessary operations... But today here I am again, writing to you from Copenhagen. I actually moved despite every negative development regarding my disease. I would like to start with
Hello everyone. I am around here for 2 months now. I must say, it has been a horrible 2 months. Lots of nightmares, unnecessary operations... But today here I am again, writing to you from Copenhagen. I actually moved despite every negative development regarding my disease. I would like to start with
tas1kubra
in
Kidney Disease
2 years ago
Can You Damage Your Ablation Work By Over-Exertion After 5 Months?
I had a Cyro Ablation on March 16 of this year so it has been 5 months. (Today is August 19.) On April 13, I was taken off Flecainide and then put on a two-week Zio monitor on June 30 to see how effective the ablation was at least at that point. On June 23 I had one Afib episode lasting about 4 hours
I had a Cyro Ablation on March 16 of this year so it has been 5 months. (Today is August 19.) On April 13, I was taken off Flecainide and then put on a two-week Zio monitor on June 30 to see how effective the ablation was at least at that point. On June 23 I had one Afib episode lasting about 4 hours
willec49
in
Arrhythmia Alliance
2 years ago
Home Hemodialysis Dialysis Experience
NKF is looking for people currently on home hemodialysis (patients and caregivers!) to share their experience with one of our partners in a 1 hour zoom interview. Compensation for your time will be provided! If interested, please sign up here: https://www.surveymonkey.com/r/J8F2G7H
NKF is looking for people currently on home hemodialysis (patients and caregivers!) to share their experience with one of our partners in a 1 hour zoom interview. Compensation for your time will be provided! If interested, please sign up here: https://www.surveymonkey.com/r/J8F2G7H
KelliC_NKF
in
Kidney Dialysis
2 years ago
Dialysis Alarm
I am having dialysis at home. I am deaf and do not hear the alarm when the machine malfunctions so wake up in the morning with dialysis not completed. Does anyone know if there is some sort of vibrating alarm that could be connected to the machine,
I am having dialysis at home. I am deaf and do not hear the alarm when the machine malfunctions so wake up in the morning with dialysis not completed. Does anyone know if there is some sort of vibrating alarm that could be connected to the machine,
granof8
in
Kidney Dialysis
2 years ago
Time for Dialysis?
My current kidney function is at 17% and I recently got added to a transplant list. My nephrologist is telling me that it's up to me when I start dialysis. I'm trying to figure out when is the right time to start. I definitely feel fatigued most of the time, but I just push through it. Some days it hits
My current kidney function is at 17% and I recently got added to a transplant list. My nephrologist is telling me that it's up to me when I start dialysis. I'm trying to figure out when is the right time to start. I definitely feel fatigued most of the time, but I just push through it. Some days it hits
Picman322
in
Kidney Dialysis
2 years ago
LOSING HAIR.....AGAIN
A few months after being diagnosed with CKD, I noticed my hair was falling out (as well as becoming more straight, instead of curly/wavy as it had been). My Neph said it was typical and that hormones in the kidney determine texture (i.e. straight, curly, etc.). I talked to the Neph about taking Biotin
A few months after being diagnosed with CKD, I noticed my hair was falling out (as well as becoming more straight, instead of curly/wavy as it had been). My Neph said it was typical and that hormones in the kidney determine texture (i.e. straight, curly, etc.). I talked to the Neph about taking Biotin
TaffyTwoshoes27
in
Kidney Transplant
2 years ago
Hi is it normal to be switched from “acute kidney damage” to “renal failure” even when kidneys still function & lab work from clinic is good
Still urinating normal amount, nothing odd about it. Went over a week without dialysis when my chest catheter malfunctioned and had no ill side effects Labs seem to always be “good” news or at least that my numbers are within the clinic’s liking.
Still urinating normal amount, nothing odd about it. Went over a week without dialysis when my chest catheter malfunctioned and had no ill side effects Labs seem to always be “good” news or at least that my numbers are within the clinic’s liking.
MrDarhk89
in
Kidney Dialysis
2 years ago
Sleep Apnoea!
Some will remember that I have posted a few times about my trouble with sleeping, especially withdrawing from Amitriptyline when that wasn’t helping the sleep any more. Well, it appears that I have moderate sleep apnoea. My sleep is disturbed over 19 times per hour! This has led to me having to get
Some will remember that I have posted a few times about my trouble with sleeping, especially withdrawing from Amitriptyline when that wasn’t helping the sleep any more. Well, it appears that I have moderate sleep apnoea. My sleep is disturbed over 19 times per hour! This has led to me having to get
suzy1959
in
PMRGCAuk
2 years ago
Possible Electricity Black Outs this Winter in the UK
Good afternoon everyone, As well as all the rising fuel cost can I please ask what people have in place that need to use cpap and Nivi machines everyday/night? Just in the worst case event that there possibly may need to be Electricity Black-Outs anytime this winter? I am already listed with my electric
Good afternoon everyone, As well as all the rising fuel cost can I please ask what people have in place that need to use cpap and Nivi machines everyday/night? Just in the worst case event that there possibly may need to be Electricity Black-Outs anytime this winter? I am already listed with my electric
Joseph260268
in
Lung Conditions Community Forum
2 years ago
Physiotherapy after coma
Hi my husband spent 7 weeks in an induced coma,he had covid pneumonia which caused respatory failure and he was put on ECMO for a month he had kidney trouble needing dialysis he had to have a biopsy on his liver ... he is now medically fit after 4 months in hospital ... he is now in a physiotherapy hospital
Hi my husband spent 7 weeks in an induced coma,he had covid pneumonia which caused respatory failure and he was put on ECMO for a month he had kidney trouble needing dialysis he had to have a biopsy on his liver ... he is now medically fit after 4 months in hospital ... he is now in a physiotherapy hospital
Potter321
in
ICUsteps
2 years ago
Ureteral stricture after transplant with no success after attempting stent and ballooning
Hello:) I just had my third kidney transplant in December. I had multiple pre transplant day long meetings to decide the best option for me having a third transplant and it was decided my fiance would donate and we would do paired exchange as a live donor and planned transplant would be for the best
Hello:) I just had my third kidney transplant in December. I had multiple pre transplant day long meetings to decide the best option for me having a third transplant and it was decided my fiance would donate and we would do paired exchange as a live donor and planned transplant would be for the best
Calebzztop
in
Kidney Transplant
2 years ago
Splish Splash for the Queen
I went to the nephrologist last week. He said I'm stable so I can return in two months. No dialysis yet. I'm thankful. I also go to the transplant center at the end of the month for my last few tests. An abdomen x-ray and a stress test. A little nervous about the stress test. I don't want to fall out
I went to the nephrologist last week. He said I'm stable so I can return in two months. No dialysis yet. I'm thankful. I also go to the transplant center at the end of the month for my last few tests. An abdomen x-ray and a stress test. A little nervous about the stress test. I don't want to fall out
HipHopQueen
in
Kidney Dialysis
2 years ago
Help needed regarding the process of finding living donor
I have been on dialysis for 1 1/2 years and now am told that I need to find a living donor. The wait list for my type O blood is 7 years : ((((( I had been on the liver and kidney list for a year for a deceased donor, received 2 calls, and now it seems my liver has regenerated itself. This is a good
I have been on dialysis for 1 1/2 years and now am told that I need to find a living donor. The wait list for my type O blood is 7 years : ((((( I had been on the liver and kidney list for a year for a deceased donor, received 2 calls, and now it seems my liver has regenerated itself. This is a good
BeachLove
in
Kidney Transplant
2 years ago
Kicked off List
Has anyone on here been kicked off the transplant list for not going to dialysis all the time??? I don't always make it due to different reasons like not feeling well, nauseous, diarrhea etc. Who wants to go sit in a chair for 4 hours when you don't feel good enough to get out of bed? My one kidney
Has anyone on here been kicked off the transplant list for not going to dialysis all the time??? I don't always make it due to different reasons like not feeling well, nauseous, diarrhea etc. Who wants to go sit in a chair for 4 hours when you don't feel good enough to get out of bed? My one kidney
SadMad
in
Kidney Transplant
2 years ago
I don't like PD
I have been doing PD dialysis for 5 days and I don't like it because of the cramping is this unusual? I feel like I want to go back to doing hemodialysis in the center. The only thing I do like is PD is not four hours period. Any advice?
I have been doing PD dialysis for 5 days and I don't like it because of the cramping is this unusual? I feel like I want to go back to doing hemodialysis in the center. The only thing I do like is PD is not four hours period. Any advice?
Quita55
in
Kidney Dialysis
2 years ago
Anxiety and fear
Hi I'm new at doing PD dialysis at home and I'm already feeling anxiety and fear. I have noticed that my dry weight has gone up some is this normal? What can I do to control my dry weight from going up and I am a diabetic too any advice would help me.
Hi I'm new at doing PD dialysis at home and I'm already feeling anxiety and fear. I have noticed that my dry weight has gone up some is this normal? What can I do to control my dry weight from going up and I am a diabetic too any advice would help me.
Quita55
in
Kidney Dialysis
2 years ago
In a bit of a quandry
Hello - if you were me would you concentrate more on keeping your kidneys going without dialysis and all of the special diets or would you spend good money on going to a sleeping pill detox so you could sleep naturally at night. I suffer with both and it is making me very depressed. I may not be allowed
Hello - if you were me would you concentrate more on keeping your kidneys going without dialysis and all of the special diets or would you spend good money on going to a sleeping pill detox so you could sleep naturally at night. I suffer with both and it is making me very depressed. I may not be allowed
fartikins
in
Kidney Disease
2 years ago
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