Search
Search
About
Log in
Join
Experiences with
Continuous Ambulatory Peritoneal Dialysis
Posts
Communities
3,209 public posts
Filter results
Help my Momma
Hey all. I am new here and have a few questions I would love to get your input on. My mom recently had her 3rd stroke on may 1st. She has stage 4 kidney disease and had a fistula placed a while back for future dialysis. While in the hospital waiting transport to get to rehab, her creatinine levels
Hey all. I am new here and have a few questions I would love to get your input on. My mom recently had her 3rd stroke on may 1st. She has stage 4 kidney disease and had a fistula placed a while back for future dialysis. While in the hospital waiting transport to get to rehab, her creatinine levels
Ilovelucy65
in
Kidney Dialysis
2 years ago
First day of dialysis
HI Everyone. Im a newbie to the dialysis thread. Just about to start my first dialysis today. Gfr is at 6% but apart from fatigue, I feel fine. I am an absolute bag of nerves. I have been to the dialysis unit for an induction but that seems to have made me more anxious. I cant believe the day, I have
HI Everyone. Im a newbie to the dialysis thread. Just about to start my first dialysis today. Gfr is at 6% but apart from fatigue, I feel fine. I am an absolute bag of nerves. I have been to the dialysis unit for an induction but that seems to have made me more anxious. I cant believe the day, I have
Ziggydoodah
in
Kidney Dialysis
2 years ago
Adjust Crown, Mood Roller Coaster Begin
I meet with my nephrologist this week. Always nerve wrecking. The highs and lows of all of this are definitely a roller coaster and I know I still haven't fully gotten on. I'm waiting on the day when my nephrologist says I have to start dialysis. My fistula seems to be doing well, vibrating away. Why
I meet with my nephrologist this week. Always nerve wrecking. The highs and lows of all of this are definitely a roller coaster and I know I still haven't fully gotten on. I'm waiting on the day when my nephrologist says I have to start dialysis. My fistula seems to be doing well, vibrating away. Why
HipHopQueen
in
Kidney Dialysis
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Besremi - CBC after the 11th dose kept at 175mcg
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 11th dose (results of 7/19/2022; 1st dose results was on 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 11th dose (results of 7/19/2022; 1st dose results was on 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
NEED YOUR ADVICE...
Hi Everyone....hope you re all having a blessed day. Trying to find out if taking florisimide ( generic Lasix ) is good or bad for ckd stage 5. Also...if you are on dialysis or had to choose the best way to do dialysis, which one would you choose and why? THANK YOU ever so much.
Hi Everyone....hope you re all having a blessed day. Trying to find out if taking florisimide ( generic Lasix ) is good or bad for ckd stage 5. Also...if you are on dialysis or had to choose the best way to do dialysis, which one would you choose and why? THANK YOU ever so much.
Highgfr
in
Kidney Disease
2 years ago
Pd home changing to cycler severe edema.
I am currently on pd home dialysis. I felt as if it had stopped working and my Dr recently confirmed this. I have severe lower calf edema. It’s red spotty, itchy and dry and very tight. I am starting the cycler on Monday. Has anyone else had manual exchanges stop giving them proper fluid removal?
I am currently on pd home dialysis. I felt as if it had stopped working and my Dr recently confirmed this. I have severe lower calf edema. It’s red spotty, itchy and dry and very tight. I am starting the cycler on Monday. Has anyone else had manual exchanges stop giving them proper fluid removal?
LeslieK
in
Kidney Dialysis
2 years ago
Traveling with Dialysis
I recently flew to another state to visit my mom and while traveling I thought about how it could be done while on PD and how best to go about it. It seemed impossible given all the flight delays and changing gates that went on. Has anyone done this successfully?
I recently flew to another state to visit my mom and while traveling I thought about how it could be done while on PD and how best to go about it. It seemed impossible given all the flight delays and changing gates that went on. Has anyone done this successfully?
horsie63
in
Kidney Disease
2 years ago
Stage 4 7 years
Stage 4 for 7 years GFR 24. Starting to feel kidney pain Not considering dialysis. How do I compare to others?Bun 30 creatine 2.71 Michael
Stage 4 for 7 years GFR 24. Starting to feel kidney pain Not considering dialysis. How do I compare to others?Bun 30 creatine 2.71 Michael
maven123
in
Kidney Disease
2 years ago
Parathyroid Hormone
I have been on dialysis for 7 years. Three years ago my primary physician advised I start receiving Prolia shots for Osteoporosis. I have had approximately 6 shots and each time my PTH increases greatly until time for the next shot when it falls below normal levels. These increases in PTH have caused
I have been on dialysis for 7 years. Three years ago my primary physician advised I start receiving Prolia shots for Osteoporosis. I have had approximately 6 shots and each time my PTH increases greatly until time for the next shot when it falls below normal levels. These increases in PTH have caused
Rocket4006
in
Osteoporosis Support
2 years ago
Home dialysis question
Has anyone had experience with both home hemodialysis and peritoneal dialysis? If so, what were the pros and cons for each.
Has anyone had experience with both home hemodialysis and peritoneal dialysis? If so, what were the pros and cons for each.
Yojimboken
in
Kidney Dialysis
2 years ago
To use Procrit or not? 86 with end stage renal failure
My Uncle is 86 and has end stage renal failure. He does not want dialysis. His Dr wants him to start Procrit to help with the anemia. The side effects are daunting and he does not want to take it. Anyone have experience with Procrit?
My Uncle is 86 and has end stage renal failure. He does not want dialysis. His Dr wants him to start Procrit to help with the anemia. The side effects are daunting and he does not want to take it. Anyone have experience with Procrit?
Lv4Uncle
in
Kidney Disease
2 years ago
Activity restrictions on peritoneal dialysis?
I just attended my first PD orientation and I am very sad to learn that once the catheter is in place I won't be able to soak in a bathtub or go swimming. The RN didn't seem in favor of doing other strenuous sports like snowboarding or running. Have other been able to stay active and do sports while
I just attended my first PD orientation and I am very sad to learn that once the catheter is in place I won't be able to soak in a bathtub or go swimming. The RN didn't seem in favor of doing other strenuous sports like snowboarding or running. Have other been able to stay active and do sports while
Cabrilla
in
Kidney Transplant
2 years ago
KIDNEY & COVID
A major side effect of a Covid illness is deteriorating GFR. I am on a one way ticket to the dialysis chair thanks to a bout of Covid in early 2020. This is problem is a really “long” Covid.
A major side effect of a Covid illness is deteriorating GFR. I am on a one way ticket to the dialysis chair thanks to a bout of Covid in early 2020. This is problem is a really “long” Covid.
Last2Go
in
Kidney Disease
2 years ago
Just started all of this June last year, love all of the info you share
Had my driver medical blood test done April last year. I get called in and was told 1 kidney had level 2 cancer and blood clot in superior vena cava, and that I needed immediate surgery. By mid June it was done with and I was hoping that was it. So when I went for a check up I was surprised to find
Had my driver medical blood test done April last year. I get called in and was told 1 kidney had level 2 cancer and blood clot in superior vena cava, and that I needed immediate surgery. By mid June it was done with and I was hoping that was it. So when I went for a check up I was surprised to find
BigDino
in
Kidney Disease
2 years ago
What's causing my son's left arm to expand?
Hi, my name is Thai and I have a 29yr old son who has chronic kidney disease. For the last 2 weeks he has been experiencing a lot of pain in his left arm, the same arm they use during dialysis. Not just only that but his left arm is also expanding too as well. I have asked the docter about his left
Hi, my name is Thai and I have a 29yr old son who has chronic kidney disease. For the last 2 weeks he has been experiencing a lot of pain in his left arm, the same arm they use during dialysis. Not just only that but his left arm is also expanding too as well. I have asked the docter about his left
Thaivang713
in
Kidney Disease
2 years ago
moving my cardiology care from Barts to Lincoln. Being tested for Sleep Apnoea.
we moved here ( a couple of miles from Lincoln cathedral) from East London 6 months ago. I have sick sinus brady/tachy23 years, been previously looked after by prof Schilling and team at Barts, so was concerned how the transfer would work. I am on my 3rd pacemaker which is monitored by ep's at Barts
we moved here ( a couple of miles from Lincoln cathedral) from East London 6 months ago. I have sick sinus brady/tachy23 years, been previously looked after by prof Schilling and team at Barts, so was concerned how the transfer would work. I am on my 3rd pacemaker which is monitored by ep's at Barts
Icenae
in
Atrial Fibrillation Support
2 years ago
27 years off dialysis
In 1995 almost died from meningococcal sepsis. Was hospitalised over 6 months requiring wound care, debridement, skin grafts, amputations of fingers and toes. The resulting kidney damage classified as meningococcal Waterhouse Fridericksen syndrome. The treatment was dialysis to remove the bacteria
In 1995 almost died from meningococcal sepsis. Was hospitalised over 6 months requiring wound care, debridement, skin grafts, amputations of fingers and toes. The resulting kidney damage classified as meningococcal Waterhouse Fridericksen syndrome. The treatment was dialysis to remove the bacteria
chicablue
in
Kidney Disease
2 years ago
Stage 5 symptoms just before dialysis begins
Ok, some of you folks who have gone before me, tell me again what symptoms I should be seeing at stage 5 to know it's "time" to start dialysis. I've been waiting for these symptoms to show up for months and I still feel ok, doing pretty much whatever I want to do (within reason for my age-69). I see
Ok, some of you folks who have gone before me, tell me again what symptoms I should be seeing at stage 5 to know it's "time" to start dialysis. I've been waiting for these symptoms to show up for months and I still feel ok, doing pretty much whatever I want to do (within reason for my age-69). I see
RonZone
in
Kidney Disease
2 years ago
Having a bit of a trying time.
Hello - the last few days have been not so good - no energy or motivation and this morning I had my breakfast and felt so sick afterwards I had to go back to bed. It has been slowly going downhill for a few days now.My biggest worry is that this all points to kidney function and the dialysis question
Hello - the last few days have been not so good - no energy or motivation and this morning I had my breakfast and felt so sick afterwards I had to go back to bed. It has been slowly going downhill for a few days now.My biggest worry is that this all points to kidney function and the dialysis question
fartikins
in
Kidney Disease
2 years ago
Preemptive transplant
For those of you with preemptive transplants, did you get started as soon as you could? My last lab was in Mar and I was at 22%. I've been dropping now for months and have labs due end of May where I think they'll be at 20% or lower. Other than being tired I feel ok and have started back working out
For those of you with preemptive transplants, did you get started as soon as you could? My last lab was in Mar and I was at 22%. I've been dropping now for months and have labs due end of May where I think they'll be at 20% or lower. Other than being tired I feel ok and have started back working out
horsie63
in
Kidney Transplant
2 years ago
1
...
33
34
35
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Kidney Dialysis
611 results
Kidney Disease
564 results
Dialysis Support
263 results
View top 10 communities
Sort by
Most Relevant
Newest