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Continuous Ambulatory Peritoneal Dialysis
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I am in a dilema
have hi doesn't bicarbonate soda help with cod? I made the decision to refuse dialysis and have been told I have 12 to 18 moths to live
have hi doesn't bicarbonate soda help with cod? I made the decision to refuse dialysis and have been told I have 12 to 18 moths to live
eyeBRing
in
Kidney Disease
8 months ago
PERITONITIS SUCKS
Third night in my local hospital for a bacterial infection. Probably would not have caught it, if I hadn't decided to do a manual exchange after a rough night on the cyculor the night before and painful cramps all day. Sure enough the fluid that came out of me was cloudy. You don't see your fluid doing
Third night in my local hospital for a bacterial infection. Probably would not have caught it, if I hadn't decided to do a manual exchange after a rough night on the cyculor the night before and painful cramps all day. Sure enough the fluid that came out of me was cloudy. You don't see your fluid doing
SadMad
in
Kidney Disease
8 months ago
I’m Desperate for help
My husband is an active 81y.o. with CHF and Amyloidosis. He also has an enlarged prostate. His BP is well controlled and he has no history of diabetes. He currently takes: Vyndaquel - Amyloidosis Eliquis Torsemide (water pill) Finasteride (prostate) Amiodarone (heart) Potassium (heart) Atorvastatin
My husband is an active 81y.o. with CHF and Amyloidosis. He also has an enlarged prostate. His BP is well controlled and he has no history of diabetes. He currently takes: Vyndaquel - Amyloidosis Eliquis Torsemide (water pill) Finasteride (prostate) Amiodarone (heart) Potassium (heart) Atorvastatin
Readdaily
in
Kidney Disease
8 months ago
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Transplant.vs dialysis
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Jade1982
in
Kidney Transplant Patient Support
8 months ago
swelling eyes
Hi everyone. How do you guys dealing with swelling eyes? After 2-3 days without dialysis I've got "huge" bags under my eyes especially when I waking up. During a day it getting little less. Its also affect on sight. Average weight gain between dialysis is 1-1.5 kg with 65 kg dry weight.
Hi everyone. How do you guys dealing with swelling eyes? After 2-3 days without dialysis I've got "huge" bags under my eyes especially when I waking up. During a day it getting little less. Its also affect on sight. Average weight gain between dialysis is 1-1.5 kg with 65 kg dry weight.
TomMilds
in
Kidney Dialysis
9 months ago
anxiety during dialysis
Hi. My mom is 90. a multitude of health problems lead to her finally having to go on dialysis. She has been on it, and in and out of the hospital and rehab, for 4 months. Now she is home. she still is having trouble getting through the sessions. She tries deep breathing, meditation, Netflix, extra
Hi. My mom is 90. a multitude of health problems lead to her finally having to go on dialysis. She has been on it, and in and out of the hospital and rehab, for 4 months. Now she is home. she still is having trouble getting through the sessions. She tries deep breathing, meditation, Netflix, extra
Hidden
in
Kidney Dialysis
9 months ago
Very worried
I have posted on here before but briefly as i'm panicking. I am on EGFR 7 on PD dialysis. For the last couple of months i've been getting these sores on my face. They start very small and then get large very quick and itch. I'm just getting fobbed off from doctor to doctor and they state it's an allergy
I have posted on here before but briefly as i'm panicking. I am on EGFR 7 on PD dialysis. For the last couple of months i've been getting these sores on my face. They start very small and then get large very quick and itch. I'm just getting fobbed off from doctor to doctor and they state it's an allergy
half-glass-full
in
Kidney Disease
9 months ago
GREAT INFO FROM EXPERIENCED KIDNEY DOCTOR
I’d like you recommend this very informative video from Dadvice TV. The nephrologist gives explanation and advice for different stages of kidney disease, what is and what isn’t really kidney disease, appropriate treatments and diet, etc. I have seen this nephrologist several times online and he is
I’d like you recommend this very informative video from Dadvice TV. The nephrologist gives explanation and advice for different stages of kidney disease, what is and what isn’t really kidney disease, appropriate treatments and diet, etc. I have seen this nephrologist several times online and he is
HisLittleOne
in
Early CKD Support
9 months ago
GREAT INFO FROM KIDNEY DOCTOR
I’d like you recommend this very informative video from Dadvice TV. The nephrologist gives explanation and advice for different stages of kidney disease, what is and what isn’t really kidney disease, appropriate treatments and diet, etc. I have seen this nephrologist several times online and he is
I’d like you recommend this very informative video from Dadvice TV. The nephrologist gives explanation and advice for different stages of kidney disease, what is and what isn’t really kidney disease, appropriate treatments and diet, etc. I have seen this nephrologist several times online and he is
HisLittleOne
in
Kidney Disease
9 months ago
induced coma - how long can it take for a loved one to come around?
My sister had a sudden septic infection last week. She was in hospital when it happened for another condition. She has severe form of gastroparesis and was admitted because of a flare up. It’s 8 days today since she was put in induced coma. She has been given rounds of antibiotics. She is currently on
My sister had a sudden septic infection last week. She was in hospital when it happened for another condition. She has severe form of gastroparesis and was admitted because of a flare up. It’s 8 days today since she was put in induced coma. She has been given rounds of antibiotics. She is currently on
tkelum
in
ICUsteps
9 months ago
And another question, this for the people who have the AV fistula but are not yet on dialysis or had it for a while before dialysis.
My neph, at my last visit, suggested I get the AV fistula right away. She said it could take a year to heal. My eGFR is at 30 and I think she is rushing me to get it. I'm 80 and maybe she is thinking that I'm going to go into an emergency situation and then the catheter thingy they use then. I would
My neph, at my last visit, suggested I get the AV fistula right away. She said it could take a year to heal. My eGFR is at 30 and I think she is rushing me to get it. I'm 80 and maybe she is thinking that I'm going to go into an emergency situation and then the catheter thingy they use then. I would
jodaer
in
Kidney Disease
9 months ago
pd dialysis and swimming ?
last week it was so hot here I wanted to get in a pool so bad. But I’m extra careful with my exit site . But I read stories where people say they swim in the salt water ocean or a pool . And had no problems. I am wanting to hear from any of you who have gone swimming have you gone in an ocean or a
last week it was so hot here I wanted to get in a pool so bad. But I’m extra careful with my exit site . But I read stories where people say they swim in the salt water ocean or a pool . And had no problems. I am wanting to hear from any of you who have gone swimming have you gone in an ocean or a
Beachgirl32
in
Kidney Dialysis
9 months ago
Navigating College, Dialysis, and Transplant: One Advocate’s Kidney Disease Journey
From living the carefree college life to living life on dialysis, Lance Mason's CKD journey was anything but easy. See how he turned his struggle into passion as a Voices for Kidney Health Advocate. #MyKidneyVoice Learn more: https://www.kidney.org/newsletter/advocacy/navigating-college-dialysis-and-transplant-one-advocate-s-kidney-disease-journey
From living the carefree college life to living life on dialysis, Lance Mason's CKD journey was anything but easy. See how he turned his struggle into passion as a Voices for Kidney Health Advocate. #MyKidneyVoice Learn more: https://www.kidney.org/newsletter/advocacy/navigating-college-dialysis-and-transplant-one-advocate-s-kidney-disease-journey
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
9 months ago
Dialysis and transplant.
I want to tell everyone my experience, with dialysis and trying to be put transplant list.The experiences I have had at have been good and bad. The good is when I no cramps and good blood pressure. The is when the total opposite. This has happened several times. I would say be your own advocate.
I want to tell everyone my experience, with dialysis and trying to be put transplant list.The experiences I have had at have been good and bad. The good is when I no cramps and good blood pressure. The is when the total opposite. This has happened several times. I would say be your own advocate.
Fsgs57
in
Kidney Dialysis
9 months ago
For anyone and everyoneand those that dont see the helpfullness. Thank you
Ive randomly come on here and read alot of posts...my heart pours out to anyone feeling down...as I struggle everyday and thats beimg completely honest...STORMCLOUDS POST MAKES ME cry as even in my 40s i get it beimg new to dialysis my self...i couldnt evem begin to realize the journey most of you have
Ive randomly come on here and read alot of posts...my heart pours out to anyone feeling down...as I struggle everyday and thats beimg completely honest...STORMCLOUDS POST MAKES ME cry as even in my 40s i get it beimg new to dialysis my self...i couldnt evem begin to realize the journey most of you have
Sod6pnts
in
Kidney Dialysis
9 months ago
Frustrations
I have been on PD since November '22. Since that time I have been experiencing nightly issues with the cycler to which my husband and I have had one week in nine months of being able to sleep the night through. (No clue why it worked that one week.) We have been doing as suggested by our care team to
I have been on PD since November '22. Since that time I have been experiencing nightly issues with the cycler to which my husband and I have had one week in nine months of being able to sleep the night through. (No clue why it worked that one week.) We have been doing as suggested by our care team to
Sharon421
in
Kidney Disease
9 months ago
Why it is important to advocate for yourself
I have been on this journey for many years and have shared most of my experience. I want to share the latest snafu, because it is so infuriating. I went through the transplant evaluation in 2021. Completed all the tests and was told this: My BMI was too high and that on the nuclear test, they found
I have been on this journey for many years and have shared most of my experience. I want to share the latest snafu, because it is so infuriating. I went through the transplant evaluation in 2021. Completed all the tests and was told this: My BMI was too high and that on the nuclear test, they found
Bassetmommer
NKF Ambassador
in
Kidney Disease
9 months ago
grade 5 reflux with a neurogenic bladder
my son (now 8 months old) was diagnosed with a grade 5 reflux along with a neurogenic bladder post his mcu and cystoscopy which were performed when he was almost a month old, after a life threatening episode of sepsis. The reflux situation caused urine to build up in the kidneys, so much so that one
my son (now 8 months old) was diagnosed with a grade 5 reflux along with a neurogenic bladder post his mcu and cystoscopy which were performed when he was almost a month old, after a life threatening episode of sepsis. The reflux situation caused urine to build up in the kidneys, so much so that one
Anxiousmom97
in
Parents of Children with Kidney Disease
9 months ago
HeRO graft
Hi, I’m new onto dialysis which I’ve been getting for the last 2 months or so, I have a femoral line in at the moment but due to get a hero graft, does anyone know much about it or experience of one please. I’m not really sure what to expect. I have seen vascular surgeon who said they will take an artery
Hi, I’m new onto dialysis which I’ve been getting for the last 2 months or so, I have a femoral line in at the moment but due to get a hero graft, does anyone know much about it or experience of one please. I’m not really sure what to expect. I have seen vascular surgeon who said they will take an artery
SpringersRock
in
Kidney Dialysis
9 months ago
I’m hospital
I’ve been here since Tuesday because I have this uncontrollable shaking/tremors. Happy to say that dialysis here follows protocol but with a liberty cycler. They have run a bunch of tests but no answer. They even did 5 cycles.
I’ve been here since Tuesday because I have this uncontrollable shaking/tremors. Happy to say that dialysis here follows protocol but with a liberty cycler. They have run a bunch of tests but no answer. They even did 5 cycles.
horsie63
in
Kidney Dialysis
9 months ago
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