Experiences with

Continuous Ambulatory Peritoneal Dialysis

Hello, My sister went on the kidney transplant list two and a half years ago after being diagnosed with renal failure, and until this past July, was doing Peritoneal Dialysis, which she was doing quite well on. However, starting in the new year this year, she had three minor strokes, and after the last

My spouse is currently receiving peritoneal dialysis and moving forward to the transplant list.

I don't post much because my RLS isn't too bad most nights.I tried adding that both my kidneys have failed because of catching Covid for the second time and already I have a number of health issues. I am on Peritoneal Dialysis and I am diabetic. I treat my RLS with 75mg Pregabalin, I know it's nothing

Hi everyone, for those on PD, have you had any catheter complications or blockages and how were they resolved? My father suddenly started to have his PD fluid drain bloody two weeks ago. We notified the nurse/dr who are both unresponsive and just assumed it’s a burst blood vessel. We requested a sample

Whats the lifespan for 54 year old with stage 5 renal failure? My gfr was 14 last year. Not sure what it is now....I'm on peritoneal dialysis

My name is Deepti and I am 35 years old . In April 2024, I was diagnosed with End-Stage Renal Disease and now rely on peritoneal dialysis (PD) 7 days a week. Dialysis is exhausting and restricts my daily activities . I hold a Masters degree from Purdue and work as a Data engineer in Silicon Valley

Hello, My father is 83 years old and his eGFR is now 8. The doctors want to start the process for home peritoneal dialysis overnight. We are feeling quite anxious as a family and I would appreciate your support. Can anyone offer their experiences on starting PD, physically and mentally how they feel

So my husband is currently incarcerated and is still doing dialysis three times a week. He also has been taking his binders three times a day. Before he was incarcerated his phosphorus levels were normal but his latest blood test result shows that his phosphorus level is a 5.9 he can't exactly have a

Hi all I just had surgery today for an av fistula placement. Happy to say all went well, no pain meds were needed. It is very black and blue with some swelling and a bit of red not serious though,. I have elevated and iced it and tried hard to not use it, I'm grateful it was so smooth and very little

What do sneakers have to do with fighting kidney disease? For Randy Yim, they’re everything. Every time he goes to dialysis, he wears a new pair of his favorite sneakers, takes a photo, and shares the story behind them on social media. What started as a way to cope and update his family and friends has

Hi. My husband is now at 12 efrg annd is getting prepared for dialysis. He’s chosen to start with PD overnight, though I’m not looking forward to any alarms going off. Now, to my astonishment, it turns out I also have ckd, though only stage 3a. My efrg is now 56, having been 59 less than a month

I was misdiagnosed with PMR for years. It was eventually diagnosed as vasculitis and it's attacked my kidney. I am not suitable for dialysis and my prognosis is 6 months to live. My egfr is5 and I am Asymptomatic at the moment. IAM angry it took so long to get a proper diagnosis.

Trying to take a survey of transplant patients like me who have high pth and what their doctors recommended. It is not as high as when I was on dialysis but still runs above normal. My doctor has never recommended medication or surgery. I guess due to my blood tests for calcium and I have exhibited

Medicare is so important to transplant patients as well as dialysis patients. The fact that it might be privatized in the new administration has me worried. I am on Medicare with a supplement and am wondering how Medicare advantage programs handle transplant medication and treatments. Presently my medication

Recently diagnosed PAF, no treatment as on dialysis already for kidney failure. Anyone else have similar? Thanks in advance.

My partner recently passed away from decompensated liver disease after developing jaundice and ascites, resulting in having to have kidney dialysis. He was an alcoholic for a number of years and we did not realise his illness was so far advanced. He developed a lot of complications after being admitted

Sorry I haven't been on in a while.I am stage 5 now,Have had my fistula done.Waiting follow up about dialysis.

I got CKD stage 5. I would like to know more about in home treatment options. Any suggestions?

Hi... My best friend has had kidney failure for some years. Six months ago he suddently got very sick again. Multiple blood transfuisions. Dialysis twice a week. Been in ICU more than not last 6 months. Last week he was vomitting blood. He just got out of ICU and is back in again - fluid in lungs and

My father is CKD stage 5 patient with diabetes and blood pressure. He is feeling too weak since we started dialysis (currently twice a week) which is also impacting his mental health. Please advice how we stop the dialysis and control creatinine and urea figures with diet.