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Continuous Ambulatory Peritoneal Dialysis
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Fed Up with everything.
I have been on haemodialysis since May. Having completed all the tests etc at the beginning of November, I was just waiting to go live in the transplant list. My previous consultant, who is now on maternity leave, said my results were good and she even said, I would probably receive a new kidney before
I have been on haemodialysis since May. Having completed all the tests etc at the beginning of November, I was just waiting to go live in the transplant list. My previous consultant, who is now on maternity leave, said my results were good and she even said, I would probably receive a new kidney before
Ziggydoodah
in
Kidney Dialysis
1 year ago
Home Sleep Test results
Hi All, I recently had an overnight sleep study done checking for sleep apnea and got my results back this week. My results show I didn't meet the criteria for a sleep apnea diagnosis. Both AHI and ODI were recorded at 1.2 per hour, below the 5 required for a diagnosis. Average SP02 was 92.4%. It was
Hi All, I recently had an overnight sleep study done checking for sleep apnea and got my results back this week. My results show I didn't meet the criteria for a sleep apnea diagnosis. Both AHI and ODI were recorded at 1.2 per hour, below the 5 required for a diagnosis. Average SP02 was 92.4%. It was
Bb1878
in
Sleep Matters
1 year ago
Spoke to nephrologist.
Hello - I finally managed to speak to my nephrologist this morning. I asked about transplant and he said it was possible. In this country they wait until you are gfr 6 or 7 before they put you on dialysis and mine is 21 at the moment so I wouldn't be considered for the transplant list just yet. I
Hello - I finally managed to speak to my nephrologist this morning. I asked about transplant and he said it was possible. In this country they wait until you are gfr 6 or 7 before they put you on dialysis and mine is 21 at the moment so I wouldn't be considered for the transplant list just yet. I
fartikins
in
Kidney Disease
1 year ago
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Holiday post blues
I have been feeling quite down for the past few days. I feel like I was so busy with Holiday plans , cooking and gifting that now that it is over, I just feel horribly depressed. On top of that I was up sick all night. With the New Year coming I can’t help but think how I want my old life back. The
I have been feeling quite down for the past few days. I feel like I was so busy with Holiday plans , cooking and gifting that now that it is over, I just feel horribly depressed. On top of that I was up sick all night. With the New Year coming I can’t help but think how I want my old life back. The
Frankie24
in
Anxiety and Depression Support
1 year ago
finally off of Ropinirole ,what next?
I have had 2 sleep study’s since diagnosis 10 years ago. Not just legs but lim and torso movements. First put on Ropinirole 2mg and slowly upped to 6mg then down to 4mg Used Ropinirole 4mg combined with gabapentin but made we feel very unwell and didn’t help with the rls. After another sleep study
I have had 2 sleep study’s since diagnosis 10 years ago. Not just legs but lim and torso movements. First put on Ropinirole 2mg and slowly upped to 6mg then down to 4mg Used Ropinirole 4mg combined with gabapentin but made we feel very unwell and didn’t help with the rls. After another sleep study
Allatonce
in
Restless Legs Syndrome
1 year ago
T4 works, I have it in writing, it must be true.....
Had this in writing on an email via a friend, who has asked advice (without my asking him to) from the head pharmacist at one of the major London hospitals (a chum of his), who works for the current consultant in matters thyroid related and clearly thinks she knows about thyroid, and all thyroid patients
Had this in writing on an email via a friend, who has asked advice (without my asking him to) from the head pharmacist at one of the major London hospitals (a chum of his), who works for the current consultant in matters thyroid related and clearly thinks she knows about thyroid, and all thyroid patients
turquoisea7
in
Thyroid UK
1 year ago
2 years again
I have been on dialysis for the second time . I lost both kidneys when I was 32 due to a virial infection . Spent 2 years on hemo dialysis in 1994-1996 then a perfect match from a wonderful doner . This transplant lasted 27 years from 1996 to 2020 I am again on hemo dialysis every other day and hoping
I have been on dialysis for the second time . I lost both kidneys when I was 32 due to a virial infection . Spent 2 years on hemo dialysis in 1994-1996 then a perfect match from a wonderful doner . This transplant lasted 27 years from 1996 to 2020 I am again on hemo dialysis every other day and hoping
bubbaboo2
in
Kidney Dialysis
1 year ago
Snow Queen... ha ha ha...
Snow Queen was a hard one to come up with living on the east coast. The weather has been beautiful, but I'm not looking forward to the frigid weather. My semester is done. I received an A in my class which is great, butI wish I had learned more. All my fault. I did the assignments but I didn't let it
Snow Queen was a hard one to come up with living on the east coast. The weather has been beautiful, but I'm not looking forward to the frigid weather. My semester is done. I received an A in my class which is great, butI wish I had learned more. All my fault. I did the assignments but I didn't let it
HipHopQueen
in
Kidney Dialysis
1 year ago
Trazadone
Hello I have been reading some old posts about this medication and ckd. Is it really dangerous to take. My gfr is 21 and I need to keep it stable. I suffer with insomnia and it helps me sleep at 100mg per dose. I also take quietepine 50mg and diazepam 8mg per dose Added into that mix is mirtazepine
Hello I have been reading some old posts about this medication and ckd. Is it really dangerous to take. My gfr is 21 and I need to keep it stable. I suffer with insomnia and it helps me sleep at 100mg per dose. I also take quietepine 50mg and diazepam 8mg per dose Added into that mix is mirtazepine
fartikins
in
Kidney Disease
1 year ago
does anyone have a CPAP ?
If you have a CPAP, how long did it take to get it? Do you like it? Has it changed how you feel? What are the drawbacks and/or benefits from it?
If you have a CPAP, how long did it take to get it? Do you like it? Has it changed how you feel? What are the drawbacks and/or benefits from it?
mom483
in
Anxiety and Depression Support
1 year ago
5 Perfect Gifts for Your Loved One on Dialysis
The winter holidays are quickly approaching–have you hung up lights, decorated, and picked out presents? If not, no worries. We can take some of the burden off your plate with five gifts that are perfect for your loved one who is on dialysis or has a chronic illness. To learn more, visit: https://www.kidney.org
The winter holidays are quickly approaching–have you hung up lights, decorated, and picked out presents? If not, no worries. We can take some of the burden off your plate with five gifts that are perfect for your loved one who is on dialysis or has a chronic illness. To learn more, visit: https://www.kidney.org
JackieJ_NKF
Partner
in
Kidney Dialysis
1 year ago
Calciphylaxis
I have been on dialysis for 4 years.i have devoloped knots under my skin on legs arms breasts etc.i have been diagnosed with calciphylaxis i have no open wounds thank God. I know very little about this diagnosis do any of you know any information.?
I have been on dialysis for 4 years.i have devoloped knots under my skin on legs arms breasts etc.i have been diagnosed with calciphylaxis i have no open wounds thank God. I know very little about this diagnosis do any of you know any information.?
NurseRed
in
Kidney Dialysis
1 year ago
Discord for Dialysis Patients
Hello Everyone! I just wanted to make an updated post about the Dialysis discord we have. This discord serves a purpose for people who are going thru dialysis and want to have a place to feel at home. We have a lot of friendly members currently in this discord and we're always posting and talking about
Hello Everyone! I just wanted to make an updated post about the Dialysis discord we have. This discord serves a purpose for people who are going thru dialysis and want to have a place to feel at home. We have a lot of friendly members currently in this discord and we're always posting and talking about
Thizzle
in
Kidney Dialysis
1 year ago
Discord for Dialysis Patients
Hello Everyone! I just wanted to make an updated post about the Dialysis discord we have. This discord serves a purpose for people who are going thru dialysis and want to have a place to feel at home. We have a lot of friendly members currently in this discord and we're always posting and talking about
Hello Everyone! I just wanted to make an updated post about the Dialysis discord we have. This discord serves a purpose for people who are going thru dialysis and want to have a place to feel at home. We have a lot of friendly members currently in this discord and we're always posting and talking about
Thizzle
in
Kidney Disease
1 year ago
hospital visit
Have I done the right thing and is ignorance bliss with this vile illness. I have gfr of 21 but everything else seems to be ok. The private consultant was very good and explained everything well. He did say though that if your gfr goes below 20 you could be talking about dialysis so now I am terrified
Have I done the right thing and is ignorance bliss with this vile illness. I have gfr of 21 but everything else seems to be ok. The private consultant was very good and explained everything well. He did say though that if your gfr goes below 20 you could be talking about dialysis so now I am terrified
fartikins
in
Kidney Disease
1 year ago
The Kidney Project
Today I wanted to post in one of the biggest CKD Facebook groups about The Kidney Project. I pointed out that the project is barely advancing due to the lack of sufficient funding and support. So, the government should be persuaded to fund the project. Even 1 percent of annual dialysis expenditure from
Today I wanted to post in one of the biggest CKD Facebook groups about The Kidney Project. I pointed out that the project is barely advancing due to the lack of sufficient funding and support. So, the government should be persuaded to fund the project. Even 1 percent of annual dialysis expenditure from
milo_miller
in
Kidney Disease
1 year ago
A fun night in the hospital
Yesterday I went and had my labs done. I did not get them back, so I had no idea of what was happening. At 6pm, I get a call from the on-call doctor from the nephrology practice I use. I could barely understand his English and he had a screaming child behind him as he was calling from home. He ordered
Yesterday I went and had my labs done. I did not get them back, so I had no idea of what was happening. At 6pm, I get a call from the on-call doctor from the nephrology practice I use. I could barely understand his English and he had a screaming child behind him as he was calling from home. He ordered
Bassetmommer
NKF Ambassador
in
Kidney Disease
1 year ago
Father not waking up after septic shock
My beloved Dad (72) survived a severe septic shock. They called us 3 Weeks ago after a routine bile surgery and told us that he is now in the ICU. They told us he had internal bleeding and they needed to perform surgery on him. We were shocked and prayed that night that everything would go well. He survived
My beloved Dad (72) survived a severe septic shock. They called us 3 Weeks ago after a routine bile surgery and told us that he is now in the ICU. They told us he had internal bleeding and they needed to perform surgery on him. We were shocked and prayed that night that everything would go well. He survived
Bshyhsh
in
ICUsteps
1 year ago
First night with Cpap
I recently had a sleep study and I stopped breathing 52 times in an hour during study. Last night was my first one with cpap, I did ok but struggling with dry mouth. I had to get one that covers all of nose and mouth. Just wondered if any had any suggetions to help with dry mouth? Thanks
I recently had a sleep study and I stopped breathing 52 times in an hour during study. Last night was my first one with cpap, I did ok but struggling with dry mouth. I had to get one that covers all of nose and mouth. Just wondered if any had any suggetions to help with dry mouth? Thanks
Opie__
in
Sleep Matters
1 year ago
Unstable Angina - Male 53 years old
On Easter Sunday I attended church with my wife and about midway through mass I started to get a tight sensation in the middle of my chest. At first I thought it was just a bit of nasty heartburn and waited for it to pass, but the pain got worse and started to feel like something was being forced into
On Easter Sunday I attended church with my wife and about midway through mass I started to get a tight sensation in the middle of my chest. At first I thought it was just a bit of nasty heartburn and waited for it to pass, but the pain got worse and started to feel like something was being forced into
Daddio70
in
British Heart Foundation
1 year ago
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