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Continuous Ambulatory Peritoneal Dialysis
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I have everything to put up with - need some reassurance
Hello - I live in the UK - I am early 70,s and have just been diagnosed with a GFR of 16. I have T2 controlled with insulin. I also have clinical depression and insomnia -controlled with Mirtazepine.and Venlafaxine. I take zopiclone at night along with diazepam for sleep. I am terrified beyond anything
Hello - I live in the UK - I am early 70,s and have just been diagnosed with a GFR of 16. I have T2 controlled with insulin. I also have clinical depression and insomnia -controlled with Mirtazepine.and Venlafaxine. I take zopiclone at night along with diazepam for sleep. I am terrified beyond anything
fartikins
in
Kidney Disease
3 years ago
New Here, Stage 3b Kidney Disease with T1D, feeling down
Hi, I'm new here and I don't know what to do with how I'm feeling about my kidney disease. I am a Type 1 Diabetic diagnosed at 16, 35y/o female with high bp (currently being treated with amlodipine and now losartan) My last egfr this month is 32, my creatinine level is 2.13. I am african american, and
Hi, I'm new here and I don't know what to do with how I'm feeling about my kidney disease. I am a Type 1 Diabetic diagnosed at 16, 35y/o female with high bp (currently being treated with amlodipine and now losartan) My last egfr this month is 32, my creatinine level is 2.13. I am african american, and
DMH200435
in
Kidney Disease
3 years ago
Response to want to chat
Hi, I am relatively new as well. On PD for one year now. Joining this chat line is the first time I have heard other stories of people in my similar condition. I have wanted to chat with others on dialysis since I started this whole process. I struggle with eating enough, my leg and arm muscles don’t
Hi, I am relatively new as well. On PD for one year now. Joining this chat line is the first time I have heard other stories of people in my similar condition. I have wanted to chat with others on dialysis since I started this whole process. I struggle with eating enough, my leg and arm muscles don’t
PD20
in
Dialysis Support
3 years ago
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Fears and Anxiety
Hello everyone, I often post here about my anxiety and regarding my mom and her illness. She is in dialysis, she had a lung cancroid and later breast cancer. I feel like my anxieties do not allow me to function, in the sense that every time something bothers me I just get very depressed! Scanxiety, or
Hello everyone, I often post here about my anxiety and regarding my mom and her illness. She is in dialysis, she had a lung cancroid and later breast cancer. I feel like my anxieties do not allow me to function, in the sense that every time something bothers me I just get very depressed! Scanxiety, or
janeths466
in
SHARE Metastatic Breast Cancer
3 years ago
Cocktail Please: Bipolar/Spinal Cord Injury Now Dialysis
So I dived in and started posting last week after my visit to the dialysis educator. I didn't get into the fact that I have bipolar disorder and a spinal cord injury. I promise that's all. It's all a long story, but I'm concerned with making sure my medications stay stable. I was told depending on when
So I dived in and started posting last week after my visit to the dialysis educator. I didn't get into the fact that I have bipolar disorder and a spinal cord injury. I promise that's all. It's all a long story, but I'm concerned with making sure my medications stay stable. I was told depending on when
HipHopQueen
in
Kidney Dialysis
3 years ago
PD catheter installation
Hi everyone. I am 78 YO with CKD diagnosed in 2009 at GRF of 55. Now my GFR is 10. My Nephro has asked me to get the PD catheter installed soon. Right now I am feeling OK. No Edima, no nausea, no head ache, no diarrhea, walk one mile everyday, little anemic, not diabetic, Plant based diet. I take Amlodopine
Hi everyone. I am 78 YO with CKD diagnosed in 2009 at GRF of 55. Now my GFR is 10. My Nephro has asked me to get the PD catheter installed soon. Right now I am feeling OK. No Edima, no nausea, no head ache, no diarrhea, walk one mile everyday, little anemic, not diabetic, Plant based diet. I take Amlodopine
htpi1543
in
Kidney Disease
3 years ago
Besremi - CBC after the 5th dose kept at 200 mcg
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 5th dose (results of 4/16/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 5th dose (results of 4/16/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
Has anyone had a failed Fistulogram Procedure?
Hi everyone, I had my fistula done 5/4/21. It had worked great in dialysis until 2 weeks ago when my clearance numbers started going down to .8. I had my first Fistulogram yesterday and apparently is was a complete fail! My clearance at dialysis today was lower than before the procedure: .58. This
Hi everyone, I had my fistula done 5/4/21. It had worked great in dialysis until 2 weeks ago when my clearance numbers started going down to .8. I had my first Fistulogram yesterday and apparently is was a complete fail! My clearance at dialysis today was lower than before the procedure: .58. This
BeachLove
in
Kidney Transplant
3 years ago
Vein Mapping
I have vein mapping done next week. I'm worried about all these doctor's visits adding up in cost for copays, but what can I do I have to get things done. I haven't looked up vein mapping yet so I don't know the process, but it is one step closer to starting Dialysis. I'm worried when I think about it
I have vein mapping done next week. I'm worried about all these doctor's visits adding up in cost for copays, but what can I do I have to get things done. I haven't looked up vein mapping yet so I don't know the process, but it is one step closer to starting Dialysis. I'm worried when I think about it
HipHopQueen
in
Kidney Dialysis
3 years ago
Question about rides
How many people are able to drive themselves to dialysis?
How many people are able to drive themselves to dialysis?
dadinfo
in
Kidney Dialysis
3 years ago
GFR drop-potassium high
Just had labs and my GRF dropped from 15 to 10 & creatinine went from 3.16 to 4.67. Potassium level went up too over 5( critical value). I drink at least 64 oz of water a day and watch my potassium, salt & protein intake. Started adding in some plant based proteins. I also take sodium bicarb twice
Just had labs and my GRF dropped from 15 to 10 & creatinine went from 3.16 to 4.67. Potassium level went up too over 5( critical value). I drink at least 64 oz of water a day and watch my potassium, salt & protein intake. Started adding in some plant based proteins. I also take sodium bicarb twice
Hawaiilover
in
Kidney Disease
3 years ago
Would love to connect with other young CKD families and spouses 💖
Hello! New face here! Would love to build a support team as my husband is currently battling CKD and is prepping to start dialysis as he awaits a transplant. We are a young family, husband is 33, myself 35. We are parents to 7 crazy little minions and a fur baby. He has been battling CKD for most of
Hello! New face here! Would love to build a support team as my husband is currently battling CKD and is prepping to start dialysis as he awaits a transplant. We are a young family, husband is 33, myself 35. We are parents to 7 crazy little minions and a fur baby. He has been battling CKD for most of
LSalt87
in
Kidney Disease
3 years ago
Too old at 56 to donate to my 79 year old mom? Long term effects?
I am a 56 year old, active mom of 4 kids ages 17-28. About 6 months ago my 79 year old mom informed our family that she is in end-stage KD due to kidney “trauma” that occurred 10 years ago when she underwent chemotherapy to treat her breast cancer. She also told us that doctors recommend starting the
I am a 56 year old, active mom of 4 kids ages 17-28. About 6 months ago my 79 year old mom informed our family that she is in end-stage KD due to kidney “trauma” that occurred 10 years ago when she underwent chemotherapy to treat her breast cancer. She also told us that doctors recommend starting the
KellyLS
in
Kidney Dialysis
3 years ago
New here. From all I read, dialysis sounds horrific. Why aren’t more people stepping up to be living donors 4 family members instead?
Family, living donor, dialysis
Family, living donor, dialysis
KellyLS
in
Kidney Donation
3 years ago
He is out of the hospital
My dad just came home from the hospital he starts near home dialysis tomorrow. Said it’s 3 times a week.
My dad just came home from the hospital he starts near home dialysis tomorrow. Said it’s 3 times a week.
dadinfo
in
Kidney Dialysis
3 years ago
The Queens first steps inside the Dialysis Center
Hi everyone. I went to dialysis education yesterday. It was the very first time I went inside a building I have past a million times knowing it was where people got dialysis. Going in I felt a wealth of emotions none greater than sadness. It felt suffocating and surreal to be honest. Me and my mom
Hi everyone. I went to dialysis education yesterday. It was the very first time I went inside a building I have past a million times knowing it was where people got dialysis. Going in I felt a wealth of emotions none greater than sadness. It felt suffocating and surreal to be honest. Me and my mom
HipHopQueen
in
Kidney Dialysis
3 years ago
Does anyone doing dialysis suffer with IBS?
Hello I was just diagnosed with IBS, and I was wondering does anyone who does dialysis have this issue? And how do you find a balance with your meal plan? Any advice would help
Hello I was just diagnosed with IBS, and I was wondering does anyone who does dialysis have this issue? And how do you find a balance with your meal plan? Any advice would help
Quita55
in
Kidney Dialysis
3 years ago
Why do others think I'm stupid for helping our family member
Hello I have a brother in the hospital recovering from covid thank God he will make a good recovery he's only allowed 1 visitor for 1 hour everyday. I went to see our brother to just try & spend some time with him his wife beat me to it a few minutes earlier. He's going to require dialysis I think twice
Hello I have a brother in the hospital recovering from covid thank God he will make a good recovery he's only allowed 1 visitor for 1 hour everyday. I went to see our brother to just try & spend some time with him his wife beat me to it a few minutes earlier. He's going to require dialysis I think twice
Drawi
in
Kidney Dialysis
3 years ago
Does anyone has this rare kidney disease (familial hypercalciuria, hypomagnesemia and nephrocalsinosis)?
I have been diagnosed with a very rare kidney disease since day 1 which called familial hypercalciuria, hypomagnesemia and nephrocalsinosis. Not a single doctor figured out a way to treat my condition or in other words nothing worked for me like: (sodium citrate, potassium citrate, potassium bicarbonate
I have been diagnosed with a very rare kidney disease since day 1 which called familial hypercalciuria, hypomagnesemia and nephrocalsinosis. Not a single doctor figured out a way to treat my condition or in other words nothing worked for me like: (sodium citrate, potassium citrate, potassium bicarbonate
Serlo92
in
Kidney Disease
3 years ago
What to do when dad gets home from hospital
My dad 79 and a veteran, just started kidney dialysis in the hospital. I live an hour and I am hoping they can setup rides to dialysis when he gets home. I am worried about his new diet plan. Because of my health I can only get there once a week. Any tips are appreciated. I am new to this, and I am
My dad 79 and a veteran, just started kidney dialysis in the hospital. I live an hour and I am hoping they can setup rides to dialysis when he gets home. I am worried about his new diet plan. Because of my health I can only get there once a week. Any tips are appreciated. I am new to this, and I am
dadinfo
in
Kidney Dialysis
3 years ago
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