Search
Search
About
Log in
Join
Experiences with
Continuous Ambulatory Peritoneal Dialysis
Posts
Communities
3,121 public posts
Filter results
Stage 4 7 years
Stage 4 for 7 years GFR 24. Starting to feel kidney pain Not considering dialysis. How do I compare to others?Bun 30 creatine 2.71 Michael
Stage 4 for 7 years GFR 24. Starting to feel kidney pain Not considering dialysis. How do I compare to others?Bun 30 creatine 2.71 Michael
maven123
in
Kidney Disease
2 years ago
Parathyroid Hormone
I have been on dialysis for 7 years. Three years ago my primary physician advised I start receiving Prolia shots for Osteoporosis. I have had approximately 6 shots and each time my PTH increases greatly until time for the next shot when it falls below normal levels. These increases in PTH have caused
I have been on dialysis for 7 years. Three years ago my primary physician advised I start receiving Prolia shots for Osteoporosis. I have had approximately 6 shots and each time my PTH increases greatly until time for the next shot when it falls below normal levels. These increases in PTH have caused
Rocket4006
in
Osteoporosis Support
2 years ago
To use Procrit or not? 86 with end stage renal failure
My Uncle is 86 and has end stage renal failure. He does not want dialysis. His Dr wants him to start Procrit to help with the anemia. The side effects are daunting and he does not want to take it. Anyone have experience with Procrit?
My Uncle is 86 and has end stage renal failure. He does not want dialysis. His Dr wants him to start Procrit to help with the anemia. The side effects are daunting and he does not want to take it. Anyone have experience with Procrit?
Lv4Uncle
in
Kidney Disease
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Besremi - CBC after the 11th dose kept at 175mcg
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 11th dose (results of 7/19/2022; 1st dose results was on 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 11th dose (results of 7/19/2022; 1st dose results was on 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
KIDNEY & COVID
A major side effect of a Covid illness is deteriorating GFR. I am on a one way ticket to the dialysis chair thanks to a bout of Covid in early 2020. This is problem is a really “long” Covid.
A major side effect of a Covid illness is deteriorating GFR. I am on a one way ticket to the dialysis chair thanks to a bout of Covid in early 2020. This is problem is a really “long” Covid.
Last2Go
in
Kidney Disease
2 years ago
Just started all of this June last year, love all of the info you share
Had my driver medical blood test done April last year. I get called in and was told 1 kidney had level 2 cancer and blood clot in superior vena cava, and that I needed immediate surgery. By mid June it was done with and I was hoping that was it. So when I went for a check up I was surprised to find
Had my driver medical blood test done April last year. I get called in and was told 1 kidney had level 2 cancer and blood clot in superior vena cava, and that I needed immediate surgery. By mid June it was done with and I was hoping that was it. So when I went for a check up I was surprised to find
BigDino
in
Kidney Disease
2 years ago
What's causing my son's left arm to expand?
Hi, my name is Thai and I have a 29yr old son who has chronic kidney disease. For the last 2 weeks he has been experiencing a lot of pain in his left arm, the same arm they use during dialysis. Not just only that but his left arm is also expanding too as well. I have asked the docter about his left
Hi, my name is Thai and I have a 29yr old son who has chronic kidney disease. For the last 2 weeks he has been experiencing a lot of pain in his left arm, the same arm they use during dialysis. Not just only that but his left arm is also expanding too as well. I have asked the docter about his left
Thaivang713
in
Kidney Disease
2 years ago
27 years off dialysis
In 1995 almost died from meningococcal sepsis. Was hospitalised over 6 months requiring wound care, debridement, skin grafts, amputations of fingers and toes. The resulting kidney damage classified as meningococcal Waterhouse Fridericksen syndrome. The treatment was dialysis to remove the bacteria
In 1995 almost died from meningococcal sepsis. Was hospitalised over 6 months requiring wound care, debridement, skin grafts, amputations of fingers and toes. The resulting kidney damage classified as meningococcal Waterhouse Fridericksen syndrome. The treatment was dialysis to remove the bacteria
chicablue
in
Kidney Disease
2 years ago
Stage 5 symptoms just before dialysis begins
Ok, some of you folks who have gone before me, tell me again what symptoms I should be seeing at stage 5 to know it's "time" to start dialysis. I've been waiting for these symptoms to show up for months and I still feel ok, doing pretty much whatever I want to do (within reason for my age-69). I see
Ok, some of you folks who have gone before me, tell me again what symptoms I should be seeing at stage 5 to know it's "time" to start dialysis. I've been waiting for these symptoms to show up for months and I still feel ok, doing pretty much whatever I want to do (within reason for my age-69). I see
RonZone
in
Kidney Disease
2 years ago
Having a bit of a trying time.
Hello - the last few days have been not so good - no energy or motivation and this morning I had my breakfast and felt so sick afterwards I had to go back to bed. It has been slowly going downhill for a few days now.My biggest worry is that this all points to kidney function and the dialysis question
Hello - the last few days have been not so good - no energy or motivation and this morning I had my breakfast and felt so sick afterwards I had to go back to bed. It has been slowly going downhill for a few days now.My biggest worry is that this all points to kidney function and the dialysis question
fartikins
in
Kidney Disease
2 years ago
Preemptive transplant
For those of you with preemptive transplants, did you get started as soon as you could? My last lab was in Mar and I was at 22%. I've been dropping now for months and have labs due end of May where I think they'll be at 20% or lower. Other than being tired I feel ok and have started back working out
For those of you with preemptive transplants, did you get started as soon as you could? My last lab was in Mar and I was at 22%. I've been dropping now for months and have labs due end of May where I think they'll be at 20% or lower. Other than being tired I feel ok and have started back working out
horsie63
in
Kidney Transplant
2 years ago
Leg pain in dialysis patients
I am on twice a week dialysis and experiencing continuous leg pain and weakness. I am taking multivitamins, iron supplements but not much relief. Any idea how to tackle this pain?
I am on twice a week dialysis and experiencing continuous leg pain and weakness. I am taking multivitamins, iron supplements but not much relief. Any idea how to tackle this pain?
ashok5085
in
Kidney Dialysis
2 years ago
73 year old patient w/o transport to dialysis
I am a Care Navigator and a nurse I support has a client who is Stage 3, ESRD. He doesn't have transportation to his dialysis. Does anyone on this blog live in Shelton, Washington or near there? I'm trying to find resources for him. We had $1,000 we were able to spend getting him to his dialysis
I am a Care Navigator and a nurse I support has a client who is Stage 3, ESRD. He doesn't have transportation to his dialysis. Does anyone on this blog live in Shelton, Washington or near there? I'm trying to find resources for him. We had $1,000 we were able to spend getting him to his dialysis
patientadvocate
in
Kidney Dialysis
2 years ago
moving my cardiology care from Barts to Lincoln. Being tested for Sleep Apnoea.
we moved here ( a couple of miles from Lincoln cathedral) from East London 6 months ago. I have sick sinus brady/tachy23 years, been previously looked after by prof Schilling and team at Barts, so was concerned how the transfer would work. I am on my 3rd pacemaker which is monitored by ep's at Barts
we moved here ( a couple of miles from Lincoln cathedral) from East London 6 months ago. I have sick sinus brady/tachy23 years, been previously looked after by prof Schilling and team at Barts, so was concerned how the transfer would work. I am on my 3rd pacemaker which is monitored by ep's at Barts
Icenae
in
Atrial Fibrillation Support
2 years ago
Painkillers for Drain Pain
Last night I suffered excruciating drain pain through all 8 hours of dialysis this has never happened to me before. All day my stomach has felt tender and tight. I never ever take painkillers for anything but last night was horrible. Does anyone know if painkillers would help or I am open to any other
Last night I suffered excruciating drain pain through all 8 hours of dialysis this has never happened to me before. All day my stomach has felt tender and tight. I never ever take painkillers for anything but last night was horrible. Does anyone know if painkillers would help or I am open to any other
Dora86
in
Kidney Dialysis
2 years ago
Magnesium supplements
Hello - what are other peoples views on taking magnesium supplements. I have read conflicting information on this subject. I have invested in Lee Hull,s book and it states that magnesium is good for the heart as it helps to prevent calcification especially if you are on dialysis. On the other hand I
Hello - what are other peoples views on taking magnesium supplements. I have read conflicting information on this subject. I have invested in Lee Hull,s book and it states that magnesium is good for the heart as it helps to prevent calcification especially if you are on dialysis. On the other hand I
fartikins
in
Kidney Disease
2 years ago
Acute anxiety issues during dialysis
Has anyone here experienced acute, physiological anxiety symptoms during dialysis - symptoms which appear suddenly as if from nowhere about 20-60 minutes into session, and do not seem linked to emotional / mental state? Symptoms so intense and distressing that they may require modifying or even immediately
Has anyone here experienced acute, physiological anxiety symptoms during dialysis - symptoms which appear suddenly as if from nowhere about 20-60 minutes into session, and do not seem linked to emotional / mental state? Symptoms so intense and distressing that they may require modifying or even immediately
WimWalther
in
Kidney Dialysis
2 years ago
Best protein supplement powder on dialysis
Hi Just wanted to check which protein supplement powder is best for dialysis patients. I have been using Nephro HP powder. Any better alternative?
Hi Just wanted to check which protein supplement powder is best for dialysis patients. I have been using Nephro HP powder. Any better alternative?
ashok5085
in
Kidney Transplant
2 years ago
Peritoneal Dialysis Challenges
Hi There, I believe there are restrictions for both hemo- and peritoneal dialysis and both types of dialysis are challenging…Having ESRD and having to go on dialysis disrupts your life in so many ways and you grieve for the life you used to have. This is my second time around being on PD😕 Although
Hi There, I believe there are restrictions for both hemo- and peritoneal dialysis and both types of dialysis are challenging…Having ESRD and having to go on dialysis disrupts your life in so many ways and you grieve for the life you used to have. This is my second time around being on PD😕 Although
Slcallat
in
Kidney Transplant
2 years ago
At a Dialysis Crossroads
I have to decide whether to get a fistula in my arm and go with hemodialysis, or go with peritoneal dialysis. I spent a couple of hours in a center talking to a couple of nurses about peritoneal dialysis and it sounds like a bad choice given its near constant presence in your life. With hemodialysis
I have to decide whether to get a fistula in my arm and go with hemodialysis, or go with peritoneal dialysis. I spent a couple of hours in a center talking to a couple of nurses about peritoneal dialysis and it sounds like a bad choice given its near constant presence in your life. With hemodialysis
MP11
in
Kidney Dialysis
2 years ago
1
...
29
30
31
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Kidney Dialysis
585 results
Kidney Disease
543 results
Dialysis Support
262 results
View top 10 communities
Sort by
Most Relevant
Newest