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Continuous Ambulatory Peritoneal Dialysis
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PD Dialysis - Week 5 day 1 - training begins
So today, I drove to the Fresenius dialysis clinic for my first day of PD training. Last Wednesday, since my training had been put off a week waiting for Baxter supplies to come in, my PD nurse had given me an iPod with the PD training modules pre-loaded. But I discovered that after I had logged into
So today, I drove to the Fresenius dialysis clinic for my first day of PD training. Last Wednesday, since my training had been put off a week waiting for Baxter supplies to come in, my PD nurse had given me an iPod with the PD training modules pre-loaded. But I discovered that after I had logged into
RonZone
in
Kidney Dialysis
2 years ago
The mother of all flares!
I have been having my worst flare ever in the 10 plus years of PMR. I have increased pred to 22.5 from 11 mgs and it is still not yet fully under control. I wish I had increased my dose more quickly but I had no idea it was this bad. I don't usually have blood tests for CRP but this week it was 43 and
I have been having my worst flare ever in the 10 plus years of PMR. I have increased pred to 22.5 from 11 mgs and it is still not yet fully under control. I wish I had increased my dose more quickly but I had no idea it was this bad. I don't usually have blood tests for CRP but this week it was 43 and
suzy1959
in
PMRGCAuk
2 years ago
Food when on PD Dialysis
I haven't really seen this but what all do you eat? I'm not yet there and at 17% I'm mostly eating plants. So if I was on PD can I eat what I like while sticking to healthy food but what about high potassium foods like potatoes, tomatoes, cantaloupe, bananas and the like? Since I am taking meds for
I haven't really seen this but what all do you eat? I'm not yet there and at 17% I'm mostly eating plants. So if I was on PD can I eat what I like while sticking to healthy food but what about high potassium foods like potatoes, tomatoes, cantaloupe, bananas and the like? Since I am taking meds for
horsie63
in
Kidney Dialysis
2 years ago
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Pressure along diaphragm
Hi guys, I just have a quick question for those of you who are getting low on your GFR like myself (12gfr) not on dialysis, have you ever experienced a sense of pressure in your abdominal area just below your diaphragm? Along with this, the bottom of my sternum where my xiphoid process is along with
Hi guys, I just have a quick question for those of you who are getting low on your GFR like myself (12gfr) not on dialysis, have you ever experienced a sense of pressure in your abdominal area just below your diaphragm? Along with this, the bottom of my sternum where my xiphoid process is along with
Jamok
in
Kidney Disease
2 years ago
PD Dialysis - Week 4 day 3 - approved for shower!
So, since my official PD training got put off till next week, my PD nurse had me come in today for another dressing change and "flush" of my pd catheter. She did not do the "sterile" setup for this, just the "clean" set up that included the extreme hand washing techniques and she did use clean gloves
So, since my official PD training got put off till next week, my PD nurse had me come in today for another dressing change and "flush" of my pd catheter. She did not do the "sterile" setup for this, just the "clean" set up that included the extreme hand washing techniques and she did use clean gloves
RonZone
in
Kidney Dialysis
2 years ago
Learning to Follow Your Dialysis Fluid Restrictions
New fluid restrictions and dialysis can be overwhelming. Learn how you can create new fluid prescription routines. https://www.kidney.org/newsletter/learning-to-follow-your-dialysis-fluid-restrictions
New fluid restrictions and dialysis can be overwhelming. Learn how you can create new fluid prescription routines. https://www.kidney.org/newsletter/learning-to-follow-your-dialysis-fluid-restrictions
JackieJ_NKF
Partner
in
Kidney Dialysis
2 years ago
PD Dialysis - Week Four Day Two Baxter site issue
So my PD nurse set me up an account with Baxter, the company who will supply my cycler (Amia) and the PD solutions and other stuff. Baxter sent me an email with my account username and asked me to create a password and a security question. I did all that, then was taken to the page shown in the first
So my PD nurse set me up an account with Baxter, the company who will supply my cycler (Amia) and the PD solutions and other stuff. Baxter sent me an email with my account username and asked me to create a password and a security question. I did all that, then was taken to the page shown in the first
RonZone
in
Kidney Dialysis
2 years ago
Need info please
if I have gained muscle and weight since going on dialysis, should they re evaluate my dry weight?
if I have gained muscle and weight since going on dialysis, should they re evaluate my dry weight?
Ldavis87
in
Dialysis Support
2 years ago
Queen of hearts
Yesterday my folks celebrated their ❤️50th wedding anniversary❤️ and I got an MRI to see if I'll need one kidney out and an adrenal gland removed that have a mass on them. I'll find out Monday morning. I already found out an ovary needs to be removed. It has a cyst on it. If they remove a kidney I will
Yesterday my folks celebrated their ❤️50th wedding anniversary❤️ and I got an MRI to see if I'll need one kidney out and an adrenal gland removed that have a mass on them. I'll find out Monday morning. I already found out an ovary needs to be removed. It has a cyst on it. If they remove a kidney I will
HipHopQueen
in
Kidney Dialysis
2 years ago
Blood In Urine
I have Polycystic Kidney Disease and have been on dialysis for 5 years. I recently have had 2 bouts of Blood In the urine, The first time lasted one week. I was checked out by a Urologist, and everything looked ok. After about 2 months, I am having another bout. This one has lasted about 2 weeks.
I have Polycystic Kidney Disease and have been on dialysis for 5 years. I recently have had 2 bouts of Blood In the urine, The first time lasted one week. I was checked out by a Urologist, and everything looked ok. After about 2 months, I am having another bout. This one has lasted about 2 weeks.
Hdslimand62
in
Kidney Transplant
2 years ago
Hoping I'm not alone...
I was rushed into A&E when I was away from home on a weekend trip for Easter (17/04/22) and was diagnosed with necrotizing pancreatitus. I remember being in the bed in A&E and them saying I needed to stay in a few days. Fast forward to 02 June 2022 and there I am surrounded by strangers in ICU unable
I was rushed into A&E when I was away from home on a weekend trip for Easter (17/04/22) and was diagnosed with necrotizing pancreatitus. I remember being in the bed in A&E and them saying I needed to stay in a few days. Fast forward to 02 June 2022 and there I am surrounded by strangers in ICU unable
Raven21
in
ICUsteps
2 years ago
I have heart anxiety.
I currently have a cold which really triggers my anxiety. I also recently started cpap treatment also (it's on hold while I get through this). My issues right now are feeling sick but no runny nose, cough, or fever. So my anxiety is that it's something else and not a cold. That of course makes me think
I currently have a cold which really triggers my anxiety. I also recently started cpap treatment also (it's on hold while I get through this). My issues right now are feeling sick but no runny nose, cough, or fever. So my anxiety is that it's something else and not a cold. That of course makes me think
GP76
in
Anxiety Support
2 years ago
Getting grief from my employer
I have worked in a small business for 10years. I have been very open about my condition from the time I was diagnosed 7 years ago. To be fair to my employers they have beenfairly decent regarding hospital appointments etc. They still expected me to do the job and more, without making any allowances
I have worked in a small business for 10years. I have been very open about my condition from the time I was diagnosed 7 years ago. To be fair to my employers they have beenfairly decent regarding hospital appointments etc. They still expected me to do the job and more, without making any allowances
Ziggydoodah
in
Kidney Dialysis
2 years ago
First time Kidney Transplant
Hello,This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been a very
Hello,This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been a very
LillyBear09
in
National Foundation for Transplants
2 years ago
First Time Kindey Transplant
Hello, This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been
Hello, This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been
LillyBear09
in
Kidney Transplant
2 years ago
Dialysis Centers
So because of RonZone's "blog" posts on his journey, and many others here with their stories of PD I'm more convinced that is the way I would like to go when the time comes (hopefully not anytime soon). So looking around at Dialysis Centers near me I've found there are two businesses that offer dialysis
So because of RonZone's "blog" posts on his journey, and many others here with their stories of PD I'm more convinced that is the way I would like to go when the time comes (hopefully not anytime soon). So looking around at Dialysis Centers near me I've found there are two businesses that offer dialysis
horsie63
in
Kidney Dialysis
2 years ago
Urgent-start peritoneal dialysis
Interesting info I had not seen before. Not sure I would wait till this is required, but for folks caught off guard, it might be an option. https://www.healio.com/news/nephrology/20220306/speaker-urgentstart-peritoneal-dialysis-feasible-costefficient-with-support-system
Interesting info I had not seen before. Not sure I would wait till this is required, but for folks caught off guard, it might be an option. https://www.healio.com/news/nephrology/20220306/speaker-urgentstart-peritoneal-dialysis-feasible-costefficient-with-support-system
RonZone
in
Kidney Disease
2 years ago
Live donor results. How long did you wait?
My husband was tested 9 weeks ago to see if he was suitable.I asked my dialysis nurse in Tuesday if there were any updates. She sent an email to the transplant nurse asking for any information. My husband received a voicemail yesterday at work.The transplant nurse laughed as she said, she thought
My husband was tested 9 weeks ago to see if he was suitable.I asked my dialysis nurse in Tuesday if there were any updates. She sent an email to the transplant nurse asking for any information. My husband received a voicemail yesterday at work.The transplant nurse laughed as she said, she thought
Ziggydoodah
in
Kidney Dialysis
2 years ago
Newbie, hi
I'm 60. I was diagnosed 1 month ago with RLS. I've had symptoms since I was about 13 years old. I'm taking Pregabalin and have just moved onto my clinical dose. I'm not enjoying the side effects but hope they will pass. My life has been one of dealing with excessive daytime sleepiness, mental health
I'm 60. I was diagnosed 1 month ago with RLS. I've had symptoms since I was about 13 years old. I'm taking Pregabalin and have just moved onto my clinical dose. I'm not enjoying the side effects but hope they will pass. My life has been one of dealing with excessive daytime sleepiness, mental health
AsleepInYorkshire
in
Restless Legs Syndrome
2 years ago
UFR increase during Dialysis Treatment
Can I ask any suggestion that during my dialysis, after a while they (the nurse or technician) always increase the UFR, and I figure out will be higher than the CMS guideline 13/ml/kg/hr, sometimes even 18/ml/kg/hr. I am afraid that Myocardial stunning could be happened although my blood pressure still
Can I ask any suggestion that during my dialysis, after a while they (the nurse or technician) always increase the UFR, and I figure out will be higher than the CMS guideline 13/ml/kg/hr, sometimes even 18/ml/kg/hr. I am afraid that Myocardial stunning could be happened although my blood pressure still
jnch88
in
Kidney Disease
2 years ago
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