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Continuous Ambulatory Peritoneal Dialysis
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One year post transplant (recipient).
One year post transplant I have certainly learned a lot and sure feel so much better overall. Some struggles with keeping weight down. My appetite was so depressed pre transplant that it was easy to lose weight. Not now! Biggest takeaway. The medical community is so advanced in the last few decades.
One year post transplant I have certainly learned a lot and sure feel so much better overall. Some struggles with keeping weight down. My appetite was so depressed pre transplant that it was easy to lose weight. Not now! Biggest takeaway. The medical community is so advanced in the last few decades.
SwissArmy
in
Kidney Transplant
4 years ago
RIP Dad
My Dad took his last breath around 9.19pm. What an absolute rollercoaster of suffering and decline this has been for him. There was absolutely no let up for him and we had only got a CPap machine for him yesterday. He didn’t even get a chance to suppress any of the symptoms. 😭😭😭😭
My Dad took his last breath around 9.19pm. What an absolute rollercoaster of suffering and decline this has been for him. There was absolutely no let up for him and we had only got a CPap machine for him yesterday. He didn’t even get a chance to suppress any of the symptoms. 😭😭😭😭
ZoeSweet7
in
Multiple System Atrophy Trust
4 years ago
I want my father to have my kidney, but he doesn’t want to accept it, please help!
Hi everyone I am from Uruguay, tiny country in South America. So first I want to apologize for my English. My father has been in dialysis for 16 years (HD). I’m 35 and I have to be honest and say that I, subconsciously, thought it would be tough but not impossible. I’m very close to my father and my
Hi everyone I am from Uruguay, tiny country in South America. So first I want to apologize for my English. My father has been in dialysis for 16 years (HD). I’m 35 and I have to be honest and say that I, subconsciously, thought it would be tough but not impossible. I’m very close to my father and my
Claire24601
in
Kidney Dialysis
4 years ago
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AFib & Sleep Apnea
Good day all! I have A Fib/Flutter on sotalol & eliquis. I want very much to get off meds if at all possible. In October I had a bad month with several bouts of AF, not my norm. By the end of the month was preparing (mentally) for ablation. Just needed to schedule. Then at the same time I finally
Good day all! I have A Fib/Flutter on sotalol & eliquis. I want very much to get off meds if at all possible. In October I had a bad month with several bouts of AF, not my norm. By the end of the month was preparing (mentally) for ablation. Just needed to schedule. Then at the same time I finally
4Laur
in
AF Association
4 years ago
Am new to this site, best foods to eat and foods to avoid, I need to find a way to improve my bones, is there vitamins or mineral to recomme
I suffer from hasmito, I have had 5 spontaneous fractures in the last three years , in pelvis and both feet, I also have sleep apnea, diagnosed 11 years ago but only just being treated , using a cpap machine , which caused high blood pressure
I suffer from hasmito, I have had 5 spontaneous fractures in the last three years , in pelvis and both feet, I also have sleep apnea, diagnosed 11 years ago but only just being treated , using a cpap machine , which caused high blood pressure
maddiepoopoo
in
Healthy Eating
4 years ago
Holidays and Kidney Failure
Anyone got tips and strategies for going through the holidays with family when you have kidney failure? Also it is my birthday in Christmas! I am turning 31!! At GFR 8...Feeling like the kid that has to sit out or that everyone forgot about while everyone is having fun. Most of the things I see people
Anyone got tips and strategies for going through the holidays with family when you have kidney failure? Also it is my birthday in Christmas! I am turning 31!! At GFR 8...Feeling like the kid that has to sit out or that everyone forgot about while everyone is having fun. Most of the things I see people
Cap_dragon
in
Kidney Disease
4 years ago
Pros and cons of PD/dialysis in general?
Hi everyone! I'm new here, and posting on behalf of my uncle who is in his mid seventies and looking for impartial information. His nephrologist has been telling him to start dialysis for two years, but he has not done so, rightly (thus far) intuiting that he could maintain his lifestyle without it.
Hi everyone! I'm new here, and posting on behalf of my uncle who is in his mid seventies and looking for impartial information. His nephrologist has been telling him to start dialysis for two years, but he has not done so, rightly (thus far) intuiting that he could maintain his lifestyle without it.
nephew92
in
Kidney Dialysis
4 years ago
Soon to be on dialysis
I am the caregiver for my BF who has CKD. He is going on dialysis in a couple weeks at a center. He has a lot of fluid built up particularly the tops of his legs. Will that get better with the dialysis??
I am the caregiver for my BF who has CKD. He is going on dialysis in a couple weeks at a center. He has a lot of fluid built up particularly the tops of his legs. Will that get better with the dialysis??
patandfritz
in
Kidney Dialysis
4 years ago
Hi everybody! A few words and questions
Hi guys, I have been a member of this forum group since last month, and although this is my first post, I read the posts and responses on here often. I was discharged from Aintree hospital on November 28 this year, after being in hospital for 3 and a half months. I was first admitted to Oldham Royal
Hi guys, I have been a member of this forum group since last month, and although this is my first post, I read the posts and responses on here often. I was discharged from Aintree hospital on November 28 this year, after being in hospital for 3 and a half months. I was first admitted to Oldham Royal
SarahMcgarrigle
in
British Liver Trust
4 years ago
Hi everybody! A few words and questions
Hi guys, I have been a member of this forum group since last month, and although this is my first post, I read the posts and responses on here often. I was discharged from Aintree hospital on November 28 this year, after being in hospital for 3 and a half months. I was first admitted to Oldham Royal
Hi guys, I have been a member of this forum group since last month, and although this is my first post, I read the posts and responses on here often. I was discharged from Aintree hospital on November 28 this year, after being in hospital for 3 and a half months. I was first admitted to Oldham Royal
SarahMcgarrigle
in
British Liver Trust
4 years ago
Dialysis
Got discharged on monday afternoon as my dialysis machine and solutions all arrived on Monday morning. Adapted quite well to doing it on my own at night and having the nurses coming in visiting me every day to check up gives me that extra peace if mind that I like. Didn't think I would take to it so
Got discharged on monday afternoon as my dialysis machine and solutions all arrived on Monday morning. Adapted quite well to doing it on my own at night and having the nurses coming in visiting me every day to check up gives me that extra peace if mind that I like. Didn't think I would take to it so
Hidden
in
LUPUS UK
4 years ago
9 years and counting
Today marks my 9th anniversary of being admitted to ICU by ambulance for 3 months where I was so close to death with double pneumonia and severe sepsis which lead to multiple organ failure with 6 weeks on dialysis, severe ARDS with respiratory arrest for 10 mins and 2 cardiac arrests thrown in for good
Today marks my 9th anniversary of being admitted to ICU by ambulance for 3 months where I was so close to death with double pneumonia and severe sepsis which lead to multiple organ failure with 6 weeks on dialysis, severe ARDS with respiratory arrest for 10 mins and 2 cardiac arrests thrown in for good
Luckyone
in
ICUsteps
4 years ago
Barely making it to the toilet....
I am stage 5 waiting to start dialysis. I noticed today that I was peeing more and barely making it to the toilet. I have also had a lot of cramps in my toes. I am not dehydrated but my feet and toes are acting like it. Has anyone else experienced this in late stage?
I am stage 5 waiting to start dialysis. I noticed today that I was peeing more and barely making it to the toilet. I have also had a lot of cramps in my toes. I am not dehydrated but my feet and toes are acting like it. Has anyone else experienced this in late stage?
SadMad
in
Kidney Disease
4 years ago
Sleep Apnea
I’ve got AF and just been diagnosed with severe sleep apnea and have started with a CPAP Machine. However on the third night of trying to sleep but struggling to get comfortable with the machine I woke up around 5.30. and had palpitations. An AF attack had started and is calming down now with the help
I’ve got AF and just been diagnosed with severe sleep apnea and have started with a CPAP Machine. However on the third night of trying to sleep but struggling to get comfortable with the machine I woke up around 5.30. and had palpitations. An AF attack had started and is calming down now with the help
maria68
in
AF Association
4 years ago
Hughes Syndrome - December 2019
Hughes Syndrome - December 2019 December 6 saw a second London Bridge terrorist attack, the first in Borough Market, the second on the other end of the bridge – both within a couple of hundred yards of our hospital, both with slashing knives. It is poignant to reflect on the long and colourful history
Hughes Syndrome - December 2019 December 6 saw a second London Bridge terrorist attack, the first in Borough Market, the second on the other end of the bridge – both within a couple of hundred yards of our hospital, both with slashing knives. It is poignant to reflect on the long and colourful history
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Nephrologist doctor with CKD... what do you think?
While I am very new to this forum, I am SO glad that I found you people!! It gives me hope to see the success stories, and it also makes me realize how disinterested the medical community is in truly helping CKD patients, until the disease is too far advanced, and dialysis is required. Why are nephrologists
While I am very new to this forum, I am SO glad that I found you people!! It gives me hope to see the success stories, and it also makes me realize how disinterested the medical community is in truly helping CKD patients, until the disease is too far advanced, and dialysis is required. Why are nephrologists
Whitetail66
in
Kidney Disease
4 years ago
Sudden drop in GFR due to dehydration?
Just a bit scared. (I didnt think I had kidney disease) , but yesterday I went to the ER for several near syncopal episodes. My bun was 26, creat was 1.75, and my GFR was 30. The last physical I had was in March, and my creat was 1.1 at that time. My GFR has always been >=60. I do have hypertension
Just a bit scared. (I didnt think I had kidney disease) , but yesterday I went to the ER for several near syncopal episodes. My bun was 26, creat was 1.75, and my GFR was 30. The last physical I had was in March, and my creat was 1.1 at that time. My GFR has always been >=60. I do have hypertension
Vodnurse1
in
Kidney Disease
4 years ago
Meduallry Sponge Kidney
I was diagnosed with MSK. Meduallry Sponge Kidney. I just turned 31 and just got married. I'm on gabapentin for pain, Augmentin for antibiotics and Listopril for BP. I do take thc and CBD. No dialysis yet.
I was diagnosed with MSK. Meduallry Sponge Kidney. I just turned 31 and just got married. I'm on gabapentin for pain, Augmentin for antibiotics and Listopril for BP. I do take thc and CBD. No dialysis yet.
PurdySelph88
in
Kidney Disease
4 years ago
Insurance confusion
Hi, Does anyone know a bit about insurance? It can be so confusing! I currently have health insurance from COBRA, but was reccomended to apply for medicaid to cover the out of pocket maximum i will have when it starts over next yr. I am on dialysis. They dont want me to apply for medicare until cobra
Hi, Does anyone know a bit about insurance? It can be so confusing! I currently have health insurance from COBRA, but was reccomended to apply for medicaid to cover the out of pocket maximum i will have when it starts over next yr. I am on dialysis. They dont want me to apply for medicare until cobra
Vlc17
in
Kidney Disease
4 years ago
Amyloidosis
I am new to this online community. I was diagnosed with APO-CII amyloidosis which has affected my kidneys by the Mayo Clinic in 2017. It is a very rare form of a very rare disease. I'm interested to know if anyone else in this online community also has this disease. At this point, I am close to Stage
I am new to this online community. I was diagnosed with APO-CII amyloidosis which has affected my kidneys by the Mayo Clinic in 2017. It is a very rare form of a very rare disease. I'm interested to know if anyone else in this online community also has this disease. At this point, I am close to Stage
Amyloid_Leslie
in
Kidney Disease
4 years ago
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