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Mental health issues
Well it’s almost 2 years ago since my transplant. With everything that went wrong afterwards I am really struggling to cope or feel blessed with this amazing gift I was given. I saw a psychologist that works with Renal patients and I got as far as being diagnosed with PTSD and depression and then her
Well it’s almost 2 years ago since my transplant. With everything that went wrong afterwards I am really struggling to cope or feel blessed with this amazing gift I was given. I saw a psychologist that works with Renal patients and I got as far as being diagnosed with PTSD and depression and then her
Cazzy41
in
Kidney Transplant Patient Support
4 years ago
Be Prepared: Kidney Patient Prep for Coronavirus
Considering the news surrounding Coronavirus (also referred to as COVID-19), we have prepared a guide for people with kidney disease that highlights the Centers for Disease Control and Prevention (CDC) recommendations to prevent spread of the virus as well as emergency preparedness and nutrition tips
Considering the news surrounding Coronavirus (also referred to as COVID-19), we have prepared a guide for people with kidney disease that highlights the Centers for Disease Control and Prevention (CDC) recommendations to prevent spread of the virus as well as emergency preparedness and nutrition tips
MarissaA_NKF
Administrator
in
Kidney Transplant
4 years ago
Be Prepared: Kidney Patient Prep for Coronavirus
Considering the news surrounding Coronavirus (also referred to as COVID-19), we have prepared a guide for people with kidney disease that highlights the Centers for Disease Control and Prevention (CDC) recommendations to prevent spread of the virus as well as emergency preparedness and nutrition tips
Considering the news surrounding Coronavirus (also referred to as COVID-19), we have prepared a guide for people with kidney disease that highlights the Centers for Disease Control and Prevention (CDC) recommendations to prevent spread of the virus as well as emergency preparedness and nutrition tips
MarissaA_NKF
Administrator
in
Kidney Dialysis
4 years ago
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Be Prepared: Kidney Patient Prep for Coronavirus
Considering the news surrounding Coronavirus (also referred to as COVID-19), we have prepared a guide for people with kidney disease that highlights the Centers for Disease Control and Prevention (CDC) recommendations to prevent spread of the virus as well as emergency preparedness and nutrition tips
Considering the news surrounding Coronavirus (also referred to as COVID-19), we have prepared a guide for people with kidney disease that highlights the Centers for Disease Control and Prevention (CDC) recommendations to prevent spread of the virus as well as emergency preparedness and nutrition tips
DavidF_NKF
Administrator
in
C3 Glomerulopathy
4 years ago
Be Prepared: Kidney Patient Prep for Coronavirus
Considering the news surrounding Coronavirus (also referred to as COVID-19), we have prepared a guide for people with kidney disease that highlights the Centers for Disease Control and Prevention (CDC) recommendations to prevent spread of the virus as well as emergency preparedness and nutrition tips
Considering the news surrounding Coronavirus (also referred to as COVID-19), we have prepared a guide for people with kidney disease that highlights the Centers for Disease Control and Prevention (CDC) recommendations to prevent spread of the virus as well as emergency preparedness and nutrition tips
MarissaA_NKF
Administrator
in
Kidney Disease
4 years ago
Short Stay
Hi everyone, reading your posts and advice etc has been really helpful mentally after I had a short stay in ICU/HDU last yr - thank you! I only had a short stay in icu and then hdu (6 days altogether) and was only ventilated for the 1st day whilst having dialysis. At the time I thought I was quite ‘with
Hi everyone, reading your posts and advice etc has been really helpful mentally after I had a short stay in ICU/HDU last yr - thank you! I only had a short stay in icu and then hdu (6 days altogether) and was only ventilated for the 1st day whilst having dialysis. At the time I thought I was quite ‘with
Keepgoing27
in
ICUsteps
4 years ago
Dialysis...Will I live very long w/out dialysis?
At 18 on gfr. Will dialysis come quickly?
At 18 on gfr. Will dialysis come quickly?
royalchief1
in
Kidney Disease
4 years ago
33 year old mother with GFR fluctuation between 16 & 19%, preparing for transplant whilst trying to increase GFR through vegi/vegan diet.
Hi all, My GFR was 16% two weeks ago, so my consultant started proceedings for possible transplant from my mom & dad. As I’m a mother to very young children I’m feeling quite scared about the prospect of having a transplant or dialysis and am trying to slow down the kidney disease, which was caused through
Hi all, My GFR was 16% two weeks ago, so my consultant started proceedings for possible transplant from my mom & dad. As I’m a mother to very young children I’m feeling quite scared about the prospect of having a transplant or dialysis and am trying to slow down the kidney disease, which was caused through
Kalee33
in
Kidney Disease
4 years ago
Holiday Dialysis in private settings
Hi, if willing to dialyse away, holiday dialysis in a private unit in the UK, can I get a refund from NHS? Are there any procedures to help claiming money back? Please advise.
Hi, if willing to dialyse away, holiday dialysis in a private unit in the UK, can I get a refund from NHS? Are there any procedures to help claiming money back? Please advise.
Janette23
in
Kidney Disease
4 years ago
Trouble urinating 20months after post transplant. Self-Cath.3times a day I’m gaining weight.
Started having UTI’s 3 months ago and now I’m beginning to feel and see fluid retention in my face and in my abdomen area. Two days ago produced clear looking urine, blood pressure has been normal. This was my first transplant after being on Dialysis for 19-1/2 years. I’m praying!
Started having UTI’s 3 months ago and now I’m beginning to feel and see fluid retention in my face and in my abdomen area. Two days ago produced clear looking urine, blood pressure has been normal. This was my first transplant after being on Dialysis for 19-1/2 years. I’m praying!
lynnford18
in
Kidney Transplant
4 years ago
PLEASE try not call GP's - Use the surgery website
Many people have not received a shielding letter and are confused whether or not they should be as think they should. If you are not on regular steroid tablets OR have not had regular admissions to hospital you will NOT be getting the NHS letter. The Asthma UK guidance is clear on this it says you have
Many people have not received a shielding letter and are confused whether or not they should be as think they should. If you are not on regular steroid tablets OR have not had regular admissions to hospital you will NOT be getting the NHS letter. The Asthma UK guidance is clear on this it says you have
LDloveslattecoffe
in
Asthma Community Forum
4 years ago
NOt starting dialysis at GFR 14 stage 4 kidney failure
Recently slipped into Stage 4 kidney failure GFR 14. I don't feel sick or any worse than what a 68 yr old woman should be experiencing. Has anyone remained at Stage 4 GFR 14 for any amount of time before starting dialysis? Any responses would be appreicated. On HBP meds. MEtropolo, Statin
Recently slipped into Stage 4 kidney failure GFR 14. I don't feel sick or any worse than what a 68 yr old woman should be experiencing. Has anyone remained at Stage 4 GFR 14 for any amount of time before starting dialysis? Any responses would be appreicated. On HBP meds. MEtropolo, Statin
cheslsa
in
Kidney Disease
4 years ago
Negative UFs
Been on dialysis for almost two years, worked through 1 -1/2 years of it. Suddenly getting negative UFs. Any remedies or what may cause it?
Been on dialysis for almost two years, worked through 1 -1/2 years of it. Suddenly getting negative UFs. Any remedies or what may cause it?
Cjkd
in
Kidney Disease
4 years ago
Familial dysalbuminemic hyperthyroxinemia confounding management of coexistent autoimmune thyroid disease
We see a trickle of reports where patients have thyroid test results that are very difficult to understand. This is one possible cause. Note the use of two different methods of assaying - which should be a standard first-step. [i]Endocrinol Diabetes Metab Case Rep. 2020 Feb 26;2020. pii: EDM190161
We see a trickle of reports where patients have thyroid test results that are very difficult to understand. This is one possible cause. Note the use of two different methods of assaying - which should be a standard first-step. [i]Endocrinol Diabetes Metab Case Rep. 2020 Feb 26;2020. pii: EDM190161
helvella
Thyroid UK
in
Thyroid UK
4 years ago
GFR 6
I know everyone is different but my husband has 6% kidney function and isn't on dialysis. He still doesn't have any real symptoms except for itchy skin and a little tired. Any advice on how long someone can have a low GFR like that before having to do dialysis or transplant? Like I said I know everyone
I know everyone is different but my husband has 6% kidney function and isn't on dialysis. He still doesn't have any real symptoms except for itchy skin and a little tired. Any advice on how long someone can have a low GFR like that before having to do dialysis or transplant? Like I said I know everyone
brynat2
in
Kidney Transplant
4 years ago
Dad had Cardiac arrest with Hypoxia
My dad is 56 years old and went into Cardiac arrest about a week ago. My mom woke up a found my dad lying in bed making gargling noises as if his breathing was low, she tried waking him up but nothing worked. She called 911 and started CPR immediately until paramedics arrived 7 mins later. They revived
My dad is 56 years old and went into Cardiac arrest about a week ago. My mom woke up a found my dad lying in bed making gargling noises as if his breathing was low, she tried waking him up but nothing worked. She called 911 and started CPR immediately until paramedics arrived 7 mins later. They revived
Miles7683
in
ICUsteps
4 years ago
Bit more positive news along with new design of the CPAP machine they are using in London
Fantastic news fingers crossed for a total eradication of this virus stay well all 💕💕💕💕
Fantastic news fingers crossed for a total eradication of this virus stay well all 💕💕💕💕
Blackbird6
in
Lung Conditions Community Forum
4 years ago
Here for Support
Hey I'm Jen i'm new to this. My Mom has stage 5 kidney failure. She starts dialysis very soon and i guess the procedure beforehand. I'm just here for support because this has been very difficult.
Hey I'm Jen i'm new to this. My Mom has stage 5 kidney failure. She starts dialysis very soon and i guess the procedure beforehand. I'm just here for support because this has been very difficult.
Mrsflowers88
in
Kidney Disease
4 years ago
Alternating between wanting to scream and shout and wanting to curl up in a corner and bawl my eyes out
Am busy alternating between wanting to scream and shout and wanting to curl up in a corner and bawl my eyes out. Was diagnosed in July last year with Lupus (it was "stumbled across" whilst the medical profession tried to work out why my left index finger had been swollen for over 12 months) This was
Am busy alternating between wanting to scream and shout and wanting to curl up in a corner and bawl my eyes out. Was diagnosed in July last year with Lupus (it was "stumbled across" whilst the medical profession tried to work out why my left index finger had been swollen for over 12 months) This was
pattypatchwork
in
LUPUS UK
4 years ago
Kidney Ultrasounds and other tests....Lessons to learn from
Folks, I was diagnosed with CHRONIC KIDNEY DISEASE (!) by my PCP just over three years ago with a creatinine-based eGFR of 55. I'm 61 years old. Of course, I flipped out...and I mean REALLY flipped out. Can't even begin to estimate how many DAYS (not hours) I've spent researching the internet about
Folks, I was diagnosed with CHRONIC KIDNEY DISEASE (!) by my PCP just over three years ago with a creatinine-based eGFR of 55. I'm 61 years old. Of course, I flipped out...and I mean REALLY flipped out. Can't even begin to estimate how many DAYS (not hours) I've spent researching the internet about
Marvin8
in
Early CKD Support
4 years ago
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