Search
Search
About
Log in
Join
Experiences with
Continuous Ambulatory Peritoneal Dialysis
Posts
Communities
3,129 public posts
Filter results
Discord for Dialysis Patients
Hello Everyone! I just wanted to make an updated post about the Dialysis discord we have. This discord serves a purpose for people who are going thru dialysis and want to have a place to feel at home. We have a lot of friendly members currently in this discord and we're always posting and talking about
Hello Everyone! I just wanted to make an updated post about the Dialysis discord we have. This discord serves a purpose for people who are going thru dialysis and want to have a place to feel at home. We have a lot of friendly members currently in this discord and we're always posting and talking about
Thizzle
in
Kidney Dialysis
1 year ago
Discord for Dialysis Patients
Hello Everyone! I just wanted to make an updated post about the Dialysis discord we have. This discord serves a purpose for people who are going thru dialysis and want to have a place to feel at home. We have a lot of friendly members currently in this discord and we're always posting and talking about
Hello Everyone! I just wanted to make an updated post about the Dialysis discord we have. This discord serves a purpose for people who are going thru dialysis and want to have a place to feel at home. We have a lot of friendly members currently in this discord and we're always posting and talking about
Thizzle
in
Kidney Disease
1 year ago
hospital visit
Have I done the right thing and is ignorance bliss with this vile illness. I have gfr of 21 but everything else seems to be ok. The private consultant was very good and explained everything well. He did say though that if your gfr goes below 20 you could be talking about dialysis so now I am terrified
Have I done the right thing and is ignorance bliss with this vile illness. I have gfr of 21 but everything else seems to be ok. The private consultant was very good and explained everything well. He did say though that if your gfr goes below 20 you could be talking about dialysis so now I am terrified
fartikins
in
Kidney Disease
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
The Kidney Project
Today I wanted to post in one of the biggest CKD Facebook groups about The Kidney Project. I pointed out that the project is barely advancing due to the lack of sufficient funding and support. So, the government should be persuaded to fund the project. Even 1 percent of annual dialysis expenditure from
Today I wanted to post in one of the biggest CKD Facebook groups about The Kidney Project. I pointed out that the project is barely advancing due to the lack of sufficient funding and support. So, the government should be persuaded to fund the project. Even 1 percent of annual dialysis expenditure from
milo_miller
in
Kidney Disease
1 year ago
A fun night in the hospital
Yesterday I went and had my labs done. I did not get them back, so I had no idea of what was happening. At 6pm, I get a call from the on-call doctor from the nephrology practice I use. I could barely understand his English and he had a screaming child behind him as he was calling from home. He ordered
Yesterday I went and had my labs done. I did not get them back, so I had no idea of what was happening. At 6pm, I get a call from the on-call doctor from the nephrology practice I use. I could barely understand his English and he had a screaming child behind him as he was calling from home. He ordered
Bassetmommer
NKF Ambassador
in
Kidney Disease
1 year ago
First night with Cpap
I recently had a sleep study and I stopped breathing 52 times in an hour during study. Last night was my first one with cpap, I did ok but struggling with dry mouth. I had to get one that covers all of nose and mouth. Just wondered if any had any suggetions to help with dry mouth? Thanks
I recently had a sleep study and I stopped breathing 52 times in an hour during study. Last night was my first one with cpap, I did ok but struggling with dry mouth. I had to get one that covers all of nose and mouth. Just wondered if any had any suggetions to help with dry mouth? Thanks
Opie__
in
Sleep Matters
1 year ago
Father not waking up after septic shock
My beloved Dad (72) survived a severe septic shock. They called us 3 Weeks ago after a routine bile surgery and told us that he is now in the ICU. They told us he had internal bleeding and they needed to perform surgery on him. We were shocked and prayed that night that everything would go well. He survived
My beloved Dad (72) survived a severe septic shock. They called us 3 Weeks ago after a routine bile surgery and told us that he is now in the ICU. They told us he had internal bleeding and they needed to perform surgery on him. We were shocked and prayed that night that everything would go well. He survived
Bshyhsh
in
ICUsteps
1 year ago
Unstable Angina - Male 53 years old
On Easter Sunday I attended church with my wife and about midway through mass I started to get a tight sensation in the middle of my chest. At first I thought it was just a bit of nasty heartburn and waited for it to pass, but the pain got worse and started to feel like something was being forced into
On Easter Sunday I attended church with my wife and about midway through mass I started to get a tight sensation in the middle of my chest. At first I thought it was just a bit of nasty heartburn and waited for it to pass, but the pain got worse and started to feel like something was being forced into
Daddio70
in
British Heart Foundation
1 year ago
Periodic episodes of fluctuating tachycardia while in AFib.
Never had any heart problems until early 2020. I'm a rather robust yet strong guy , late 40s. I suspect COVID may have had something to do with it. Never vaccinated either..went to e.r after having AFib for 16 hrs. Was blacking out at work. Thought I was going to die. Spent 2 days in hospital. Echocardiogram
Never had any heart problems until early 2020. I'm a rather robust yet strong guy , late 40s. I suspect COVID may have had something to do with it. Never vaccinated either..went to e.r after having AFib for 16 hrs. Was blacking out at work. Thought I was going to die. Spent 2 days in hospital. Echocardiogram
Arrythimicaneurysm
in
Arrhythmia Alliance
1 year ago
Diet to lose weight
What is best diet you have found to lose weight while on dialysis?
What is best diet you have found to lose weight while on dialysis?
NurseRed
in
Kidney Dialysis
1 year ago
struggling with CPAP
After 8 months still struggling with the CPAP. Switched to nasal mask but still waken with cough and congestion after about an hour. Humidity does help. Tried saline spray and cortisone nasal spray. Next visit is with ENT. Sleep doctor thinks I am non-compliant. I want the CPAP to work!
After 8 months still struggling with the CPAP. Switched to nasal mask but still waken with cough and congestion after about an hour. Humidity does help. Tried saline spray and cortisone nasal spray. Next visit is with ENT. Sleep doctor thinks I am non-compliant. I want the CPAP to work!
Haresear55
in
Sleep Matters
1 year ago
Liver Transplant first then kidney transplant after recovery
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
Canttakemyeyesoffyou
in
British Liver Trust
1 year ago
Living vs. Deceased Donor?
I live in CO and the kidney wait for me is 7 years long : ((( I have been on dialysis for 2 years. I am pursuing a living donor. Any feedback would be so appreciated regarding how to find one. Also, the facts seems to say that a living donor kidney on average lasts 20 years vs. a deceased donor kidney
I live in CO and the kidney wait for me is 7 years long : ((( I have been on dialysis for 2 years. I am pursuing a living donor. Any feedback would be so appreciated regarding how to find one. Also, the facts seems to say that a living donor kidney on average lasts 20 years vs. a deceased donor kidney
BeachLove
in
Kidney Transplant
1 year ago
Increase Before Testing???
I have posted here a few times and I am grateful for the insight. Even though I have had hypothyroidism and it was treated successfully for a while, that has not been the case for about 4 years now....since NatureThroid went out of production. Without going into a lot of detail, I will recap my latest
I have posted here a few times and I am grateful for the insight. Even though I have had hypothyroidism and it was treated successfully for a while, that has not been the case for about 4 years now....since NatureThroid went out of production. Without going into a lot of detail, I will recap my latest
Trina64
in
Thyroid UK
1 year ago
Cruise ports of call and dialysis
Any suggestions for my husband on ports of call dialysis clinics in Cabo and Puerta Vallerta? The cruise ship does not have dialysis on ship, so he has to go off ship...we will be out for 7 days...
Any suggestions for my husband on ports of call dialysis clinics in Cabo and Puerta Vallerta? The cruise ship does not have dialysis on ship, so he has to go off ship...we will be out for 7 days...
Cats1561
in
Kidney Disease
1 year ago
So sad
Today I lost my first friend at dialysis. He was a charming gentleman who always made me laugh. We engaged in friendly conversations before and after dialysis. He came in slumped in his wheelchair not wanting to talk. I found out later that he died on his way home from dialysis. This makes me sad
Today I lost my first friend at dialysis. He was a charming gentleman who always made me laugh. We engaged in friendly conversations before and after dialysis. He came in slumped in his wheelchair not wanting to talk. I found out later that he died on his way home from dialysis. This makes me sad
Frankie24
in
Kidney Dialysis
1 year ago
MRI QUESTION
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
Hidden
in
Kidney Transplant
2 years ago
Seeking feedback for a project
Hello everyone, I am working with a small team on a school project that we are very excited about. We are developing an app that will help people track food consumption and nutrients. The goal of this project is to provide Kidney Disease patients with a platform where they can organize and keep track
Hello everyone, I am working with a small team on a school project that we are very excited about. We are developing an app that will help people track food consumption and nutrients. The goal of this project is to provide Kidney Disease patients with a platform where they can organize and keep track
cl123
in
Kidney Disease
1 year ago
How do you cope with In center Hemodialysis
I was in center hemodialysis for two years then i switched to home peritoneal dialysis which I loved. After two years it stopped working. I have been back on hemodialysis in center for the past year. I can’t make peace with it . Tried working on my iPad, watching movies, writing, reading, taking
I was in center hemodialysis for two years then i switched to home peritoneal dialysis which I loved. After two years it stopped working. I have been back on hemodialysis in center for the past year. I can’t make peace with it . Tried working on my iPad, watching movies, writing, reading, taking
Frankie24
in
Kidney Dialysis
2 years ago
Dr appt updates
Saw my pulmonologist on Tues. “Why haven’t you been using your Cpap?” Me: “Sometimes I feel claustrophobic and it’s hard to breathe. I also have had shortness of breath since I had Covid last June after coming home from our trip.” This led her to have me do a 6 minute walking test - my oxygen didn’t
Saw my pulmonologist on Tues. “Why haven’t you been using your Cpap?” Me: “Sometimes I feel claustrophobic and it’s hard to breathe. I also have had shortness of breath since I had Covid last June after coming home from our trip.” This led her to have me do a 6 minute walking test - my oxygen didn’t
PWilli
in
My MSAA Community
1 year ago
1
...
20
21
22
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Kidney Dialysis
591 results
Kidney Disease
544 results
Dialysis Support
262 results
View top 10 communities
Sort by
Most Relevant
Newest