Hello - I finally managed to speak to my nephrologist this morning.
I asked about transplant and he said it was possible.
In this country they wait until you are gfr 6 or 7 before they put you on dialysis and mine is 21 at the moment so I wouldn't be considered for the transplant list just yet.
I mentioned the fact that I am group O and incompatible with other groups apart from my own.
He said it didn't matter because they have systems in place to match incompatible with compatible.
I mentioned the antidepressants and the constant uti but he seemed to think that would be no problem.
The only trouble is I can't get regular blood tests via the NHS because they don't want to pay for them - so it s every 6 months - things could go really wrong in that time and you wouldn't know.
Every month we pay national insurance from our pay to cover NHS costs but we are getting no service at all.
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Well, that's good news! Can you order up tests by yourself in the UK? In the US, one can go into a lab (e.g. LabCorp or Quest Diagnostics) and request a renal function panel (for instance) and pay for it directly. They then draw your blood and send or post the results to you for your own use or to use with your medical team. The cost is reasonable.
I wish - you are so lucky in the states - my gp refuses to test the sample and my nephrologist says I have to be at deaths door to test a sample.I have also found out I am infected with Klebsiella Pneumonia which has caused the uti. No one cares and no one wants to know.
I hope a treatment is in the works for you re the Klebsiella Pneumonia. My hubby contracted the horrible superbug c-diff when he was on dialysis. A gastroenterologist found a solution for him. If your doctor is uncaring, perhaps another doctor will help you. Sending a hug and prayer your way!
Went to Quest about 2 weeks ago here in the U.S. requesting a renal panel test and they told me that in order to do that test they would need a request from the Dr. The next day I went to another lab company and had no problem with self pay. I guess it just depends on who is running the local lab.
We have nothing like that in the UK - you can't see anyone without a referral letter from gp = they will not do one. Even if you pay you still need a referral letter. Just a little snapshot - people are waiting 40 hours being put up outside in tents just to try and get seen in the ER - this is of course the UK
Hmm - you are probably right about the person in charge. According to the Quest website, Quest will run a "Kidney Profile" test for anyone willing to pay $99. Sadly, there's a disclaimer that you can't order it in certain states (AK, HI, AZ).
You are lucky you have national health insurance...You are lucky to have a husband that sems to care...perhaps you might consider being happpy for what you do have... so many have it so much worse...going out to help othr less fortunate may make you feel better about yourself.being so overley focused on yourself is not healthy...
That is good news, so please take a moment to lift your head and celebrate it, if you can. Your last eGFR was 21, and that's a good distance from the stage where you would be considered for transplant. Also, remember that test is a snapshot of where your levels are on that particular day, It's not an inevitable slide downhill. Sometimes it pauses, and sometimes that number will go back up. Testing every 3 months wouldn't make any difference in the progress itself. You are the only one who can affect that, but how you approach life itself. Do the best you can to manage your diet (I know you are trying, so good for you!), and remember that constantly stressing over your CKD will not help you one bit. That's the depression and anxiety taking over your mind. Keep on with your antidepressant, and please, do try to find one thing every day to look at with your whole being: anything, a small bird perched in the tree, a pretty flower, a smile on the face of someone you love, or even someone you don't know. Those are the things that can help you just for a few minutes to leave the worry and despair behind. It's hard to do that at first, but you have a lot of time ahead that you can work on that before you are in need of either dialysis or transplant. No one knows those things for sure, because many things can affect how quickly you get there. Fight with all you have to stop that cycle of constant worry and looking ahead to what might happen. I can tell you that I speak from experience on this subject, and I can also tell you what you already know. It's not easy. But nothing about getting older or living with chronic disease is easy. I have several of them, and what's good for one isn't good for the other, so it's a battle to balance it. I understand that you have to advocate for yourself, and it's that way for each of us. Not a single one of us here has a person who just takes over and manages the disease for us. We all have to fight that battle ourselves. There is a great community here who have all offered you support, so you are NOT alone. I think about you every day, because I have read every one of your posts and I can see that you are feeling hopeless.
I would also like to add this thought: We all know in some part of our minds that something could happen to us out of the blue at any time, but we don't let that keep us from living our life to the extent we are able, given the energy we have for the day. Life is a series of days strung together, and each day you spend worrying and dreading what is to come keeps you from having any chance of finding a moment of pleasure or just a small burst of joy now and again. Those are the things that keep us going, through each step of every day of life we are granted here on this beautiful planet.
And there is one more thing; You said that there are no private labs in the UK. There are some. With a quick google search for 'Private pay blood testing labs in the UK' I found several. There is one in London that says they have sites throughout the UK, and that you don't need a GP referral. For that particular one, you do have to sigh up with them for a GP consultation with one of their doctors, which costs 70 pounds. *sorry, I don't know how to find the sign for pounds on my computer* and then a kidney panel is 64 pounds. You may not be able to afford that, but I just wanted to let you know that you do have options. I am fighting a battle with my doctor right now over some testing for another autoimmune disease that my dentist is strongly urging me to have, and it's been daunting. She wants me to talk to another specialist about it, someone I have already spoken to about it, and he just referred me back to her. I do understand all about how hard it is when you are suffering from depression and anxiety. I've fought that battle all my life, and the more chronic disease piles up on you, the harder it gets. But you are crying out here for help, and we all hear you. We can't come and fight the battle for you, because we are all fighting our own battles, but we can cheer you on from the sidelines while you work your way through yours.
Always remember that there are people who care, whether it feels like it or not. If I could, I would send sunshine, blue skies, and perfect health to each person here, but I can't do that. If we all hold one another up, though, we can help each other through the dark days, and the sun will shine again one day.
Nana gave you wonderful advice. amazing. As she said we.. all of us are dealing with chronic health issues. It is part og aging and it is how we deal with it that is the secret.. Yes go look at the birds or flowers. Be grateful if you have the abiity to walk out doors. I have friends who cannot walk but they still enjoy what they have.
Last month my step daughter who was a bilateral amputee in her 40s due to diabetes passed away because of lack of health care in Texas. leaving one child with health problems.. all of us here could tell you contless stories if we chose to but focusing on what we have is far better than self pity ..
The health care system here in the US is ravaged with problems and inadaquacies..In America if you fall through the cracks you get no health care.. or else you loose your home and saving if you get ill.
Take the time and educate yourself on Kidney disease.. there are many many good resources no one i know of can find a dieticin..most people here never get a transplant.. my died died in his 60s due to cardiovascular.. he was on dialysis..
You are the CEO of your life and the old saying about the glass half full or half empty is so true. As a nurse i have spent decades with patients.. and those that enjoy what they have and do not dwell on what they have lost as far better off.. We will all die of something. for now you are alive.. walking and talking and even have a husband to help you..stress releses cortisol... very bad for the body..
Go out and work with homeless animals...adopt an needy cat or dog..volunteer at hospice ..do something for someone in need.. amazingly it will sure make you feel better..and remember your life and your health are up to you...
In addition to my ckd i nave CRVO and lost most of my vision..and i live alone caring for my dog, cat and pigeons..
People here are great.. sometimes we need a hug.. sometimes we need a kick in the ass...caring is willing to be honest...
Oh... my dog sometimes bark.. so does my neighbor dog...it is a lovely sound of happy dogs.. and i hope your husbands daughter is doing ok... He sounds like a wonderful father
I believe you can buy privte health insurance also....
Hello and thanks for your reply. Private health is so expensive over here - we would be paying twice because we already pay with national insurance. I wouldn't be so bad if I could sleep - I am only getting about 4 hrs if I am lucky.
Yes health insurance is pricy.. much worse here.. I pay 400 a month as a senior for insurance.. young people pay 800 a month with a high deductible... It is your choice of course...we do not have national health insurance here so you are very very lucky. You do seem to have a bucket load of excuses for everything so at this point i will no longer respond but i wish you and your family luck..
It seems you are getting some kind of gratification from your "poor me" posts.. and that is more of a mental health issue than kidney issue..I believe you have more mental health help in the UK than we have here.. so I wish you the best.. Perhaps you can find a good mental health forum which can provide you with the help you may need.
Hello - I must defend myself here - we pay that much per person into the scheme for national insurance per month but we are getting nothing out of that - no you can't see a doctor - go into hospital or any other health provision unless you pay as much again on top of what you have already paid - that is the position. Everyone else on the planet knows the state our NHS is in. Plus we take in all the waifs and strays from all over the world who come here for free care to the detriment of the people who have paid.
I find the help on the forum invaluable for advice simply because I cannot get it elsewhere.
Yes I do suffer from depression but that is not my fault so your remarks did cause some hurt.
There are several other resources available listed on the NHS website under their section on CKD. Might be worth a look on your part. As for me, I’ve been stage 4 since 1996 and eGFR of 17-23 since 2017. If you look at specific recommendations from the above websites or the sites listed on NHS to slow disease progression and follow those after consultation with your trusted physician you may never face a decision on dialysis. Additionally, there are multiple SGLT2 medications approved for CKD treatment in the UK or about to be approved that show tremendous potential to stop CKD progression and help reduce cardiovascular risk, cholesterol, weight and other comorbities. The only thing SGLT2’s seem not to provide much benefit for is diabetes which is what they were developed to help control. Several studies are available on US websites such as pubmed.gov, American Society of Nephrologists and Healio News show the potential benefits of SGLT2s and low risks. Such as:
So take heart as there is good news out there for patients like us. As always for specific treatment recommendations for your CKD disease talk to your trusted medical professional.
I have read that the struggles with the National Health System in the UK are real and were exacerbated by the COVID-19 panic. This has caused unusual yet common extended delays for all seeking treatment for any health issue using GPs but is much worse when seeking an appointment with a specialist. Also, taxes can be as high as 45% of income in the UK with 30% of the 45% going to fund the NHS that is now suffering with significant underfunding so though by different means you “pay” a huge amount for this current inadequate system. As a note, as a former small business owner with a good income but certainly not a super-high income I paid as much as $1200/month after implementation of Obama Care in the US for affordable health insurance for all…lol. That was for a “Bronze” or lowest tier with most cost-sharing by me. The deductible was $2000/family member with total out-of-pocket cost no more than $24,000/year. So there are systemic issues with healthcare systems in most Western countries.
Also, kellyscats1 has a point about concentrating on yourself and the stress that worrying over “what ifs” can cause. Many studies in the last 20 years show that stress and anxiety can be as detrimental to one’s health as chronic disease. Educating yourself by going to websites like the above, reading medical studies (or at least the abstract to determine real world facts) and staying away from miracle cures or for-profit treatments for CKD all can help ease the concern about your own health. I know when I consider my stage 4 CKD with eGFR of 17 from December 2020 until present, a history of high cholesterol since 1986, a history of high blood pressure since 1984 (all diagnosed by the US Army but never mentioned to me until my CKD diagnosis in 1996 and subsequent AKI 8 days later requiring a 6 month ICU stay, 4 months on a ventilator) and now due to poly-osteoarthritis and idiopathic peripheral neuropathy from mid thigh down (no feeling with constant pins and needle pain) completely disabled in a wheelchair I freak out over my heart attack risk. I’ve discovered a tool used by cardiologists they use to calculate 5 year risk of a “significant cardiovascular incident,” (severe stroke requiring institutional care, heart-attack causing 80% or more heart muscle damage or either stroke/heart-attack causing death) and calculated my 5 year risk as over 180% greater than a healthy male aged 55. In the first 6 months of dialysis that jumps to 250% greater chance. If I dwell on that information it’ll make me crazy and occupy too much of whatever time I may have left be it 5 months, 5 or 15 years. So I just take heart that my last EKG was normal despite all the comorbities I may have. Finally, when I do get down or anxious over my own predicament and health issues, inevitably I run into someone at the VA clinic, a department store, or in the mall who is 10/20 years younger with double amputations, paralyzed as a para or quadriplegic ot most recently a 26 year old on dialysis for 2 years waiting on their second transplant! I think about my West Point classmates and other Gulf War Veterans who have died from ALS caused by “Gulf War Syndrome.” So kellyscats1 is correct that working with others less fortunate can add perspective to your own concerns over your potential “what ifs” that worry you excessively. I have helped recently diagnosed CKD/AKI patients in and out of hospitals since about 1998 and seeing some being misled by snake oil salesmen offering miracles to “reverse” CKD/AKI who destroyed their remaining kidney function placing them in dialysis perhaps 10/20 years early are some of the saddest situations I’ve dealt with most likely due to my own illness and the commonality between them and me. Thus, I am certainly not criticizing nor judging your concerns just trying to offer my own experiences will hopefully add a measure of helpfulness for you. My best in your CKD journey!
I’m not brave I’m mostly an anxious worrier who suffers from the spiral, out-of-control thinking that leads to panic attacks and since becoming totally dependent on a wheelchair about 6 months ago a housebound depressed person who cries too much. However, we make a choice everyday about our attitude. You cannot control all the things good or bad in life so concentrate on what you can control and throw the rest of the baggage and anxiety in the trash. You can control your attitude everyday. As an example one of your comments relayed the total elation of a potential live donor only to have those hopes dashed due to your blood type making you unfit for live donation. I do not live in the UK, I’m in the southern US but one google search of “trusted UK kidney disease websites” Guys and Thomas hospital link and the blood type breakthrough they led that available throughout the UK now to overcome that issue if transplant is needed. So that emotional roller coaster you experienced could have been completely avoided with a 5 minute search of the internet. Take control of what you CAN CONTROL and force yourself to forget all the other issues. You can’t control what your labs will show (excluding the proper diet abd fluid intake to manage CKD as we are all aware of) so quit worrying if eGFR is 21, 17, 25, or 50…. It is a tremendously inaccurate measure of mGFR (up to a 35% variation between eGFR and mGFR) and isn’t meant to be a “one-time” accurate reflection of kidney function. Rather the trend of eGFR (and UCAR) of several labs taken over a period of 3/6/12 months can show either progression or stabilization of kidney function. Also, when eGFR get to potential dialysis levels several other labs are critical prior to the decision to start dialysis. When first diagnosed with CKD then the AKI there was no measure of eGFR at least not in Little Rock, Arkansas USA and I wouldn’t have my first eGFR test till 2017. It was 20. Since I’ve been as low as 13 and when diagnosed with COVID had a high of 29. That’s a 16 point swing with a mean eGFR of about 20 or a variation of 16 points that 4/5ths or an 80% difference. I was 13 in December 2020 and 29 in July 2021, 17 in March 2022 and 22 in October 2022. Had they had an eGFR test in 1996 in Arkansas I’m sure I’d have been mid-20 as creatinine and other labs used then put me at stage 4. Nearly 27 years with eGFR levels lower than yours. After my ICU stay and about another 6 months to recover I remarried, had a son, opened my own business, and had a daughter. I operated a successful small business for 25 plus years helping over 500 clients navigate the financial markets nearly all reaching their goals. My 26th anniversary is this year with the love of my life, my son is 25, my daughter 20 both successfully adulting and my greatest accomplishment (okay mostly my wife’s greatest accomplishment but I was there for all of it dang it). I spent 6 years as a volunteer AAU coach so my son could improve his basketball skills and I could help other low-income kids from the “delta region” (one of the poorest areas of our state) have opportunities to play 90 games over the summer in places like Indianapolis, Atlanta, Dallas, Charlotte, and Nashville. I made a good income and wanted to give back, those boys are men now and to a person they are all successfully adulting an call me occasionally to just reminisce and all of them thank me for what I did for them when they really helped change my life just as much as anything I did. My LONG-WINDED novel of a point? None of that would have been possible without a daily decision to have the positive attitude and rid myself of the worry and anxiety issues along with the depression I’ve known I suffer from since the hospital stay and my near death at age 29. My ultimate treatment as corny as it sounds positive self-talk and a deep faith in God. Doesn’t work for everyone but for me much better than Xanax bars and Prozac as prescribed by a shrink more interested in drug company kick backs than treating patients with therapy. So my two cents, worth a visit to a doctor or psychologist who might help with the biofeedback methods and get you on another path. Certainly better than worrying about transplants at your current lab levels and with your current conditions which could all change in the next 6 months or 20 years before you are ever faced with that decision. As always my best to you on your path to healing!
My pleasure and truly I hope you get help dealing with the issues no one should suffer untreated from illness be it physical or mental. It’s an unfortunate condition resulting from the Fall of Man and turning away from the Creator (at least I believe) as well as arrogant medical professionals who believe the QUANTITY of life is more important than the QUALITY of life and sometimes extend life and by doing so extend suffering as life extending technology and procedures sound wonderful in a scientific or academic setting but in practical application only cause pain and suffering to patients. I wish you healing and an easing of the anxiety/depression in the near future!
Such good advice and thanks so much! I really find that focusing on others less fortunate is key to not feeling sorry for oneself. I volunteer at a homeless shelter and am always thinking, there but for the grace of god...
Finally, I am in far direr straights, so many of us are, but we come to get support and give support. Not just piss and moan and not even thank people for their genuine kindness.
Go to the “pain” forum for the occasional under 25 year old with unbearable pain they can’t walk, talk or work and really need strong opioid medication to even function to really see some “oh poor me,” posts. I’m not judging as I had my first knees replacement at 33 and all joints below my waist either replaced or fused by age 47, so I understand the pain from systemic disease or genetic conditions at a young age but sometimes the statement “I can’t eat, sleep or work the pain is so bad,” needs some perspective. Much like I think mandatory service in the military or with charities that help the less fortunate or those that put volunteer workers in St. Jude’s Children’s hospital for babies with cancer or Shriners Hospitals for Children for burns, amputees, and rare genetic conditions like “brittle bone” syndrome would be beneficial and fix many of the issues with the current 18-25 year olds who suffer the smack of adulting realities of having to work for the next 40 years (Reddit largest sub-Reddit is anti-work with at one time nearly one million subscribers) the fact that inflation and demand outstripping supply has caused another housing price bubble, but only 15 years ago in 2008 the housing market crashed. Things are cyclical so those who moan they’ll always throw away money on rent cause they can’t afford to buy NOW will get a chance just as other generations have IN TIME. In this “I want it NOW” culture though the idea of waiting and saving to buy an investment like a house is foreign to most under 35. Any service that required a Year commitment to a military branch of service , helping care for a 9 month old with a brain tumor undergoing chemotherapy or aiding a 10 year old with multiple fractures of the femur and tibia would add perspective and generate general feelings of care/respect of others especially those who are suffering from true diagnosed medical issues causing severe pain or potentially life ending disease. That would allow those who suffer from self-induced anxiety, panic and depression (a diagnosis made in almost 60% of those under 30 at some point in their lives in 2022) to stop the unhealthy focus on themselves and their perceived illness or issues and refocus on respect and love for their “brothers” as we a called to love one another by our Creator and the isolation of the COVID lockdowns made worse by putting young people who were still developing socialization skills were forced to be alone without that needed interaction and caused excessive self-focus as well as increased disrespect of our fellow man because it became “all about me.” Anyway I digress, final point kellyscats1 would lose her s#%t in the pain forum…lol! My best to you on your journey to your best health!
I totally agree that a year of the service of our choice should be mandatory. Personally I do not do the god or military thing.. but there is enough need ougt there to go around..yes the kids suffering from cancer...the poor imigrant kids trying to escape a brutal country..the dogs scavaging for a morsel to eat..
The world is not intended to be fair..if so why do the beautiful smart women get jobs modeling that pay a fortune... or those born with athletic skills make a fortune while the little fat kid suffers.. It is the world.. every species.. and every little thing we do to to aid someone helps us as much as them.. I spent countless hours and nights under bushes in the cold to trap homeless cats and the cats.. well were not too happy with me..but they e ded up safe..
We have become a society of ME ME ME /// selfie selfie selfie..Covid did a number on all of us and the entire healthcre system world wide... but the strong will recover..while the winers and criers will fall by the wayside.
And OH... I have no reason to go on the pain forum..40 years as a nurse..I have seen the good bad and ugly..I am not my brothers keeper and feel no guilt for my views. I will always help those I judge to deserve help in my eyes..We all judge.. it is an obligation.. we judge every day for everything we do...It is part of survival..
And i do uderstand the panic attacks.. a real pain..for me xanax worked.. no longer need it but so glad i had it at the time....I believe in science...
have a great new year and KUDOS to all your good work... wonderful
That must be wonderful! I couldn't do that, I would be bringing home strays and waifs every damn day! LOL My 2 teens have 3 cats between them, and we've had Henry for 22 years (Orange tabby) never mind the backdoor cats we feed and the neighbour dogs who get treats! Take care!
CKD gurl.... Yes..animals are my life..I had a non profit 2 acres 50 cats 5 dogs and paid for it all myself...moved them to Arizona ...gave them wonderful lives.. all my money went to their care.. and last month my last kitty age 22 had his back leg amputated due to fibrosarcoma.. he is doing fantastic...the nimals are my passin.. two pigeons who cannot be released and a shelter dog..I do not know how to send a private message..??
all the best and yes there are many many people here who do care about something besides themselves.. so nice
I'm in the US. When I first started hemo in 2017, the social worker at the dialysis center and my neph told me that you are eligible for a transplant with a GFR of 20 or less and the recommended GFR to start dialysis is 15 or less.
Ok maybe this information will help you understand the UK specific guidelines for a transplant.
SO YOU KNOW I WENT TO NHS.uk.org, searched “Kidney Transplant” and followed the link. Took me 10 minutes for all the info I’m sharing with you. YOU CAN DO THE SEARCH AND FIND THIS INFORMATION YOURSELF. OFTEN IF YOU DO THAT YOU LEARN SOMETHING. I believe as you know that IF your ANXIETY/DEPRESSION/INSOMNIA ARE AS “HARD/BAD” (YOUR WORD USED TO RELAY HOW BAD YOUR ISSUES ARE) AS YOU SAY YOU WOULD DO THIS YOURSELF. I know because my fear of another doctor causing my near death continues to motivate me as YOUR ISSUES SHOULD MOTIVATE YOU! YOU DESCRIBE AS BAD YOUR LIST OF PROBLEMS YET YOUR ACTIONS DO NOT INDICATE YOU REALLY SUFFER FROM THESE AS BADLY AS YOU BLOVIATE. I’m not trying to be a dick but you posted again today “In the UK eGFR has to be 6/7 (paraphrased).” That is simply NOT TRUE which if you would have clicked on the links I sent in my first post AND READ THEM (5 minutes of YOUR TIME) you would know. If as you say you are pulled by your emotions from manically depressed to hyper-elated and this cause anxiety/depression/insomnia YOU WOULD SPEND 5MINUTES TO GAIN THE KNOWLEDGE TO PREVENT THE SITUATION THAT CAUSED THOSE “HORRIBLE FEELINGS” IN YOU. However, I cannot let those I know I can help go without trying. Thus I’m willing to help but also be got EVERYTHING FROM THE NHS REGUARDING BOTH LIVE AND DECEASED KIDNEY TRANSPLANT POLICIES, PROCEDURES, GUIDELINES and QUALIFICATION CRITERIA. But before I post almost 20 links in a step-by -step format that will get you to the point of just needing a doctor to send in your registration (and since you didn’t take 5 minutes to read or EVEN OPEN my previous post with 2 LINKS) I NEED YOUR WORD YOU WILL OPEN AND READ WHAT ONLY TOOK ME 10 MINUTES TO FIND BUT WILL TAKE 30 MINUTES TO POST. I WILL NOT WASTE MY TIME DOING THAT FOR YOU IF YOU REFUSE TO DO ANYTHING FOR YOURSELF.
I REALLY DON’T WANT TO BE UPSET BUT SEEING YOUR POST “UK REQUIRES LOWER eGFR,” I KNEW YOU DIDNT BOTHER TO OPEN MY FIRST LINK FROM YESTERDAY AND THAT PISSED ME OFF.
HOW CAN YOU EXPECT SO MUCH HELP FROM SO MANY GOOD HEARTED AND WILLING PEOPLE YET REFUSE TO HELP YOURSELF??
Again not personal, not meant with malice only an honest question because I don’t understand the mindset.
IF YOU WANT THE NHS TRANSPLANT INFO TELL ME AND ILL POST IT.
FINALLY, you will eventually run out of folks willing to give advice and answer your question and concerns as they realize as I have that you really like to complain and whine but you refuse to help yourself. YOU MUST BE HONEST WITH YOURSELF AND CHANGE YOUR BEHAVIOR BECAUSE those with your attitude of “oh poor me it’s too much please someone help!!!!” Yet refusing offered help that would give you the answers you asked for specifically because REALLY your only intent is seeking attention NOT seeking help. Those with this attitude alienate all those around them. Unfortunately we as humans are judgemental as a group. Nearly 98% of people in general dismiss those they judge with your attention seeking attitude. It’s is tiresome, lazy and selfish by those of you who have this unfortunate character flaw. IF YOUR PHYSICAL/MENTAL ISSUUES ARE REAL YOU WILL CHANGE YOUR BEHAVIOR NOW AND EVERYTIME YOU QSK FOR HELP YOU INSTEAD HELP YOURSELF. I only say this as a heartfelt observation and without any personal ill will as I wish you as always my best.
Thank you for your observations. May I just say that I try and find out as much as I can about this disease because of our national shortage of nephrologists along with everything else.Your post has really upset me - all I can say 'don't judge me until you have walked a mile in my shoes' I really appreciate your research on my behalf but I have a letter in front of me from a nephrologist that states when he would consider starting dialysis at those figures - and this is from an expert.
I didn’t bother to read your post. I had several things I had to do today/tonight and last night was the first in 3 nights I have slept (normal for me unfortunately. I didn’t read your post because first item on the agenda was to offer you my apologies. I was rude and mean previous and that is out of character for me. I apologize for my conduct towards you earlier this morning and I am sorry if I offende you or hurt your feelings. I’ve thought about it most of the last day and I wouldn’t want anyone to treat me as I did you on the ASSUMPTION you didn’t look at what I sent to help you. I also thought about my attitude toward you regards your decision to use offered help or not and you decision to open links and read them. Those are, after all your decisions and have nothing to do with me. What you do with my or anyone’s offered help is only up to you. I do have the entire UK transplant process worked out with explanation if you’d like me to send it to you as I planned on doing that yesterday just got busy. If you’d like that information I have it for you if not that’s okay. Finally let me close by reinforcing my apology. I shouldn’t have gotten upset and lashed out at you. I apologize for any hurt or for any offense I caused and I’m just sorry for my actions. Thanks and my best to you always!
Hello - that is so kind of you to apologise and this is accepted with grace. When sometimes the links are pasted I can't open them for some unknown reason but again I would like to thank you for all your help you have so thoughtfully provided.
No need for thanks I hope to be helpful mostly I am too long-winded and usually sightly off topic…lol! I did learn all about the NHS’ transplant system if you want me to post that info regarding your transplant procedures. If you will want/need those specifics I can post that info. If it’s not as important to you right now that’s fine I’ll post later when it becomes important. Have a good day!
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Seen a great Nephrologist today
Why would a nephrologist say this
Newbie and overwhelmed. Waiting on referrals to be finished to see a nephrologist. 
New nephrologist shocker! Thought’s welcome 
Had visit with Nephrologist
